Re: New and looking for info - Kathe

[Guest guest]

Hi Kathe,

Thank you for the info. What exactly is fibromyalgia? I have heard the name

but know nothing of it. What do they use to treat these things? I feel

hopeless at the moment until I can get to a doc. I truely feel like I can't

ever work or have a career. I am home with the kids now and can't even take

care of them on some days. I have been eating ibuprophen to help but as little

as possible since I am breastfeeding. Once the baby is a year (in Sep.) I can

take whatever but until then I am hoping to be able to continue to breastfeed

since we have allergies in our family. There are days that I feel like throwing

in the towel. I just feel so pathetic. I am too young for this. I hope I can

find support here because people who don't feel this pain have no idea what you

are going through. I think my mother in law looks at me like I am crazy on some

days. We are staying with them until the first of the year since we are in the

process of moving. A hurricane Katrina thing. I

think stress and having a baby has brought this on.

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi :

Sure sounds like you have RA - yes, it can move

around. Some days it is my hips and ankles, some days

my elbows and hands, etc., and some days it is all

joints. After about a year with RA, I told my doctor

that I also was having pain in not only my joints, but

also my muscles, and entire body. She told me that it

would not be unusual for me to also have Fibro, but

never dx it. When I changed doctors a few years

later, after examination, he told me that I definately

also had Fibro. So, it's not unusal to have more than

one autoimmune disease, seems like when we get one,

others also join in the party. I have RA, Fibro,

Raynaud's, and, I suspect, Sojrens. So, let your

doctor know about the muscle pain - could be Fibro.

Kathe in CA

-- ktandtm <ktandtm@...> wrote:

> I just recently had a baby and ever since I had her

> my body has been

> hurting terribly. This is my 7th child and this is

> not normal for

> me. Some days my knees hurt so bad I can hardly get

> off the couch.

> Other days my elbows will only open to a certain

> point. It is not

> only in my joints though it is in my muscles as

> well. One day my

> hand swelled but only from my knuckles to my wrist.

> The pain was

> tremendous but my fingers were fine. Just pain in

> my hand. The

> weird thing is my pain seems to shift around my

> body. They did a

> sediment level and it was normal but my RA factor

> was very high. I

> haven't been able to get back to the doctor and

> probably won't be

> able to until sometime in Jan. People keep saying

> maybe I have

> Rheumetoid or Lupus. My mom has Rheumetoid but said

> it is always in

> her joints and not the muscles.

>

> My question is, what are the symptoms of Lupus and

> what kind of test

> do they do for it? I don't know anything about it.

> The doc did a

> CBC and a monocites level I think. The monocites

> were a little high

> but he wasn't concerned. My CBC and all that were

> normal. Any help

> and info would be great. Seems like I am living on

> Motrin these

> days and I just want to get to the bottom of this.

>

> Thanks,

>

>

>

>

>

>

>

Kathe in CA

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

Hi ,

I'm not the one to give you the proper scientific info about fibromyalgia,

but I bet our outstanding moderators will grace you with their knowledge. Just

having these women in my life helped to keep me from losing it entirely. I can

validate the fact that people who don't have the pain have no idea. Your

mother-in-law just doesn't understand. I've heard other people mention that

the birth of a baby brought on these type of problems. Welcome! You won't

believe how cool these people are.

laura

kt m <ktandtm@...> wrote: Hi Kathe,

Thank you for the info. What exactly is fibromyalgia? I have heard the name

but know nothing of it. What do they use to treat these things? I feel

hopeless at the moment until I can get to a doc. I truely feel like I can't

ever work or have a career. I am home with the kids now and can't even take

care of them on some days. I have been eating ibuprophen to help but as little

as possible since I am breastfeeding. Once the baby is a year (in Sep.) I

can take whatever but until then I am hoping to be able to continue to

breastfeed since we have allergies in our family. There are days that I feel

like throwing in the towel. I just feel so pathetic. I am too young for this.

I hope I can find support here because people who don't feel this pain have no

idea what you are going through. I think my mother in law looks at me like I

am crazy on some days. We are staying with them until the first of the year

since we are in the process of moving. A hurricane

Katrina thing. I

think stress and having a baby has brought this on.

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi :

Sure sounds like you have RA - yes, it can move

around. Some days it is my hips and ankles, some days

my elbows and hands, etc., and some days it is all

joints. After about a year with RA, I told my doctor

that I also was having pain in not only my joints, but

also my muscles, and entire body. She told me that it

would not be unusual for me to also have Fibro, but

never dx it. When I changed doctors a few years

later, after examination, he told me that I definately

also had Fibro. So, it's not unusal to have more than

one autoimmune disease, seems like when we get one,

others also join in the party. I have RA, Fibro,

Raynaud's, and, I suspect, Sojrens. So, let your

doctor know about the muscle pain - could be Fibro.

Kathe in CA

-- ktandtm <ktandtm@...> wrote:

> I just recently had a baby and ever since I had her

> my body has been

> hurting terribly. This is my 7th child and this is

> not normal for

> me. Some days my knees hurt so bad I can hardly get

> off the couch.

> Other days my elbows will only open to a certain

> point. It is not

> only in my joints though it is in my muscles as

> well. One day my

> hand swelled but only from my knuckles to my wrist.

> The pain was

> tremendous but my fingers were fine. Just pain in

> my hand. The

> weird thing is my pain seems to shift around my

> body. They did a

> sediment level and it was normal but my RA factor

> was very high. I

> haven't been able to get back to the doctor and

> probably won't be

> able to until sometime in Jan. People keep saying

> maybe I have

> Rheumetoid or Lupus. My mom has Rheumetoid but said

> it is always in

> her joints and not the muscles.

>

> My question is, what are the symptoms of Lupus and

> what kind of test

> do they do for it? I don't know anything about it.

> The doc did a

> CBC and a monocites level I think. The monocites

> were a little high

> but he wasn't concerned. My CBC and all that were

> normal. Any help

> and info would be great. Seems like I am living on

> Motrin these

> days and I just want to get to the bottom of this.

>

> Thanks,

>

>

>

>

>

>

>

Kathe in CA

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

Kathe

Do they prescribed additional meds for Fribro or do the RA meds work

with it also?

Bobbi

>

> > I just recently had a baby and ever since I had her

> > my body has been

> > hurting terribly. This is my 7th child and this is

> > not normal for

> > me. Some days my knees hurt so bad I can hardly get

> > off the couch.

> > Other days my elbows will only open to a certain

> > point. It is not

> > only in my joints though it is in my muscles as

> > well. One day my

> > hand swelled but only from my knuckles to my wrist.

> > The pain was

> > tremendous but my fingers were fine. Just pain in

> > my hand. The

> > weird thing is my pain seems to shift around my

> > body. They did a

> > sediment level and it was normal but my RA factor

> > was very high. I

> > haven't been able to get back to the doctor and

> > probably won't be

> > able to until sometime in Jan. People keep saying

> > maybe I have

> > Rheumetoid or Lupus. My mom has Rheumetoid but said

> > it is always in

> > her joints and not the muscles.

> >

> > My question is, what are the symptoms of Lupus and

> > what kind of test

> > do they do for it? I don't know anything about it.

> > The doc did a

> > CBC and a monocites level I think. The monocites

> > were a little high

> > but he wasn't concerned. My CBC and all that were

> > normal. Any help

> > and info would be great. Seems like I am living on

> > Motrin these

> > days and I just want to get to the bottom of this.

> >

> > Thanks,

> >

> >

> >

> >

> >

> >

> >

>

>

>

> Kathe in CA

>

>

>

>

> __________________________________

> Start your day with - Make it your home page!

> http://www./r/hs

>

>

>

[Guest guest]

Thank you , I can't wait to get to know everyone. Sounds like you all

have a great support system.

Bauman <ilovecats83160@...> wrote:

Hi ,

I'm not the one to give you the proper scientific info about fibromyalgia,

but I bet our outstanding moderators will grace you with their knowledge. Just

having these women in my life helped to keep me from losing it entirely. I can

validate the fact that people who don't have the pain have no idea. Your

mother-in-law just doesn't understand. I've heard other people mention that

the birth of a baby brought on these type of problems. Welcome! You won't

believe how cool these people are.

laura

kt m <ktandtm@...> wrote: Hi Kathe,

Thank you for the info. What exactly is fibromyalgia? I have heard the name

but know nothing of it. What do they use to treat these things? I feel

hopeless at the moment until I can get to a doc. I truely feel like I can't

ever work or have a career. I am home with the kids now and can't even take

care of them on some days. I have been eating ibuprophen to help but as little

as possible since I am breastfeeding. Once the baby is a year (in Sep.) I

can take whatever but until then I am hoping to be able to continue to

breastfeed since we have allergies in our family. There are days that I feel

like throwing in the towel. I just feel so pathetic. I am too young for this.

I hope I can find support here because people who don't feel this pain have no

idea what you are going through. I think my mother in law looks at me like I

am crazy on some days. We are staying with them until the first of the year

since we are in the process of moving. A hurricane

Katrina thing. I

think stress and having a baby has brought this on.

Kathe Sabetzadeh <lv2ryd@...> wrote:

Hi :

Sure sounds like you have RA - yes, it can move

around. Some days it is my hips and ankles, some days

my elbows and hands, etc., and some days it is all

joints. After about a year with RA, I told my doctor

that I also was having pain in not only my joints, but

also my muscles, and entire body. She told me that it

would not be unusual for me to also have Fibro, but

never dx it. When I changed doctors a few years

later, after examination, he told me that I definately

also had Fibro. So, it's not unusal to have more than

one autoimmune disease, seems like when we get one,

others also join in the party. I have RA, Fibro,

Raynaud's, and, I suspect, Sojrens. So, let your

doctor know about the muscle pain - could be Fibro.

Kathe in CA

-- ktandtm <ktandtm@...> wrote:

> I just recently had a baby and ever since I had her

> my body has been

> hurting terribly. This is my 7th child and this is

> not normal for

> me. Some days my knees hurt so bad I can hardly get

> off the couch.

> Other days my elbows will only open to a certain

> point. It is not

> only in my joints though it is in my muscles as

> well. One day my

> hand swelled but only from my knuckles to my wrist.

> The pain was

> tremendous but my fingers were fine. Just pain in

> my hand. The

> weird thing is my pain seems to shift around my

> body. They did a

> sediment level and it was normal but my RA factor

> was very high. I

> haven't been able to get back to the doctor and

> probably won't be

> able to until sometime in Jan. People keep saying

> maybe I have

> Rheumetoid or Lupus. My mom has Rheumetoid but said

> it is always in

> her joints and not the muscles.

>

> My question is, what are the symptoms of Lupus and

> what kind of test

> do they do for it? I don't know anything about it.

> The doc did a

> CBC and a monocites level I think. The monocites

> were a little high

> but he wasn't concerned. My CBC and all that were

> normal. Any help

> and info would be great. Seems like I am living on

> Motrin these

> days and I just want to get to the bottom of this.

>

> Thanks,

>

>

>

>

>

>

>

Kathe in CA

__________________________________

Start your day with - Make it your home page!

http://www./r/hs

[Guest guest]

Hi Bobbi:

Yes, since fibromyalgia is not helped by

anti-inflammatories or RA DMARD's, I have been

prescribed Skelaxin (muscle relaxant), Trazodone

(sleep aid), and Zanaflex (muscle relaxant/sleep aid).

I take an anti-depressant (Effexor XR) which is

helpful for both the RA and Fibro, and use Ultracet

for pain from both. So, some meds can crossover.

Goals in FM treatment are to obtain more restorative

sleep (FM patients have a lot of sleep disturbances

and lack of REM sleep) and treat the muscle pain.

Both FM and RA cause joint stiffness and fatigue, so I

guess I have a double whammy there, but the FM joint

stiffness is not caused by inflammation so the Mobic I

take for RA does not help that. FM also causes

difficulties with concentration, memory, and speech,

fibro fog, but unfortunately there is nothing to take

for that - but do I really need another drug??? lol.

Kathe in CA

--- Bobbi <mom2triplets@...> wrote:

> Kathe

> Do they prescribed additional meds for Fribro or do

> the RA meds work

> with it also?

> Bobbi

>

>

> >

> > > I just recently had a baby and ever since I had

> her

> > > my body has been

> > > hurting terribly. This is my 7th child and this

> is

> > > not normal for

> > > me. Some days my knees hurt so bad I can hardly

> get

> > > off the couch.

> > > Other days my elbows will only open to a certain

> > > point. It is not

> > > only in my joints though it is in my muscles as

> > > well. One day my

> > > hand swelled but only from my knuckles to my

> wrist.

> > > The pain was

> > > tremendous but my fingers were fine. Just pain

> in

> > > my hand. The

> > > weird thing is my pain seems to shift around my

> > > body. They did a

> > > sediment level and it was normal but my RA

> factor

> > > was very high. I

> > > haven't been able to get back to the doctor and

> > > probably won't be

> > > able to until sometime in Jan. People keep

> saying

> > > maybe I have

> > > Rheumetoid or Lupus. My mom has Rheumetoid but

> said

> > > it is always in

> > > her joints and not the muscles.

> > >

> > > My question is, what are the symptoms of Lupus

> and

> > > what kind of test

> > > do they do for it? I don't know anything about

> it.

> > > The doc did a

> > > CBC and a monocites level I think. The

> monocites

> > > were a little high

> > > but he wasn't concerned. My CBC and all that

> were

> > > normal. Any help

> > > and info would be great. Seems like I am living

> on

> > > Motrin these

> > > days and I just want to get to the bottom of

> this.

> > >

> > > Thanks,

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> >

> > Kathe in CA

> >

> >

> >

> >

> > __________________________________

> > Start your day with - Make it your home

> page!

> > http://www./r/hs

> >

> >

> >