Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 My daughter woke in the night for years and years. She didn't nap and would just get up at 1 or 2am and be up the whole rest of the night and go like the energizer bunny!She is 13.5 now and she only stopped about two and a half years ago. Most of the time she sleeps through now, just maybe once every eight or nine days she is up and at the old stuff, giggling and talking away to herself like your daughter. Dietary changes, supplements never did have an effect on her sleep. The only thing that did was Prozac, taken for anxiety and OCD. That's when she started sleeping through. She's been off it for eight months now and still sleeping pretty well. Hang in there, and try everything that makes sense to you. I don't know how I did it for so many years, and I was a single parent. It just never occurred to me to ask for help from my local ARC or Autism Center or from her doctor. Like someone to come in and be with her in the night so I could sleep. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Aimee, often chatters away while putting herself to sleep, but once she's out, that's it. Yeast and phenols can cause night waking and especially giggling. Do you have her on any enzymes or yeast protocols? > Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS > IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! > SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN > LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING > OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO > TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT > NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO > COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN > SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY > FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER > AND MY HUSBAND DO ARE WEIRD!lol > aIMEE > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Aimee, I am kind of a lurker on this site, but our daughter who is now 23 years old did not sleep at all for many years and never seemed to show any effect from it. She never napped either. I finally learned to sleep through it but it was difficult. She seemed to be having the best time in the middle of the night and we would hear her babbling and giggling. Our son who is neuro typical did some of this as a baby but it was on first waking. I spoke to the pediatrician about it at the time and he said that babies and small children need time to process what they have learned and experienced and some of them did it in this fashion. I know this does not help your current situation but I hope it does bring you some peace of mind. Ruthie waking up! > Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS > IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! > SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN > LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING > OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO > TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT > NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO > COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN > SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY > FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER > AND MY HUSBAND DO ARE WEIRD!lol > aIMEE > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 I dont have Ella on anything...Im too confused as to what to try or what would be best for her. I dont think she gets a lot of yeast, and phenols are from berries right? What enzymes would you suggest for anxiety and ocd along with the night waking? thanks aimee cathylynn2 wrote: Aimee, often chatters away while putting herself to sleep, but once she's out, that's it. Yeast and phenols can cause night waking and especially giggling. Do you have her on any enzymes or yeast protocols? > Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS > IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! > SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN > LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING > OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO > TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT > NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO > COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN > SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY > FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER > AND MY HUSBAND DO ARE WEIRD!lol > aIMEE > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Ruthie, Thanks for the support, its always needed... Ella does seem to be having a ball, i just hate to feel like shes being so a loof and spacing out, but maybe shes not! I too have heard that during developement children will have waking spells, so maybe it is all the growth and developement lately. Also Ella doesnt seem too bothered, her body is different when it comes to sleep. Sometimes Ella will fall asleep for just a few minutes and then wake up like she took a whole nap, its like her body has no idea how long it was sleeping, its weird! Aimee If you dont mind me asking, how is life with an adult autistic daughter? My husband and I are so curios as to what the future holds. Ruthie & Robbins wrote: Aimee, I am kind of a lurker on this site, but our daughter who is now 23 years old did not sleep at all for many years and never seemed to show any effect from it. She never napped either. I finally learned to sleep through it but it was difficult. She seemed to be having the best time in the middle of the night and we would hear her babbling and giggling. Our son who is neuro typical did some of this as a baby but it was on first waking. I spoke to the pediatrician about it at the time and he said that babies and small children need time to process what they have learned and experienced and some of them did it in this fashion. I know this does not help your current situation but I hope it does bring you some peace of mind. Ruthie waking up! > Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS > IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! > SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN > LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING > OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO > TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT > NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO > COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN > SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY > FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER > AND MY HUSBAND DO ARE WEIRD!lol > aIMEE > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Aimee, Many of our kids are subject to chronic systemic candida (yeast) infections. Many things she is eating can contribute to this. https://www.doctorshealthsupply.com/homeopath/ food_list_for_candidiasis.htm Here is some info. about phenols. http://www.danasview.net/phenol.htm A good broad spectrum enzyme, plus ones for processing difficult foods might really help with some of her issues. Houston Enzymes and Enzymedica are two good brands. Houston you need to order but Enzymedica is in health food stores. I suggest you take Ella to a good homeopath who can explore the anxiety and OCD with you. Many supplements and homeopathic remedies can help. Some were mentioned recently here (GABA, magnesium, l- theanine, passionflower, camomile, etc.) > I dont have Ella on anything...Im too confused as to what to try or > what would be best for her. I dont think she gets a lot of yeast, > and phenols are from berries right? > What enzymes would you suggest for anxiety and ocd along with the > night waking? > thanks > aimee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 Allie started that around 2 1/2, of course, it was when I was pregnant! 5-htp, or 5-hydroxytryptophan works like a dream for Allie. It's a plant-based amino acid that is similar to the stuff in turkey that makes one sleepy. I put a sprinkle of a 500mg capsule in her juice and give it to her. Typically it works within about 20 min and she'll lay down, close her eyes, and back to sleep. It's the darndest thing. Melatonin is also a good supplement (I think melatonin is a htp precursor, could be other way around), just didn't seem quite as effective with Allie. Both can be purchased from virtually any drug aisle, I've found it at Walmart and Walgreens. Other things that help are extremely set schedules, up at same time, same bedtime routine. Direct sunlight at the midpoint of when she's awake. Like if she's up at 7am and down at 9pm, then you'd wanna expose her to sunlight in the middle of that day, or around 2pm. If she's still napping, trying to move her nap time to earlier in the day might help. Also, giving the epsom salts baths in her water, about 2 cups per bath, can help. My kids call it sleeping salts, lol. On the prescription front, some have found success with a tiny amount of clonidine, a blood pressure med, that in tiny doses can act as a sedative without a washout feeling. Allie stopped waking when she went on paxil, goes through times when she still wakes, but not nearly so often. I really think the kids can't help this waking ,either, it's like it's a type of abnormal brainwave. I know there have been nights that Allie seemed as miserable being awake as we were. HTH, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 You know, that babbling and " spacing out " in the middle of the night probably IS a form of resting and unwinding for her. Personally, I would let her as long as she's not wandering around the house, getting upset, or being destructive. Everyone needs some alone time. Think about all the pressures she has on her all day between therapies and interaction with you! That's a lot of work for a 3 year old! If the night time actions are calming for her, you will just have to learn how to sleep through it Amnesty > Aimee, > > I am kind of a lurker on this site, but our daughter who is now 23 years old > did not sleep at all for many years and never seemed to show any effect from > it. She never napped either. I finally learned to sleep through it but it > was difficult. She seemed to be having the best time in the middle of the > night and we would hear her babbling and giggling. Our son who is neuro > typical did some of this as a baby but it was on first waking. I spoke to > the pediatrician about it at the time and he said that babies and small > children need time to process what they have learned and experienced and > some of them did it in this fashion. I know this does not help your current > situation but I hope it does bring you some peace of mind. > > Ruthie > waking up! > > > Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS > > IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! > > SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN > > LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING > > OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO > > TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT > > NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO > > COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN > > SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY > > FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER > > AND MY HUSBAND DO ARE WEIRD!lol > > aIMEE > > > > > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2006 Report Share Posted July 10, 2006 OK so everyone agrees, I need to just sleep thriugh it... I guess when I get tired enough I will. We live in a 1 bedroom apartment, Ella is in the bedroom, and we sleep in the livingroom, but its like we are in the same room! Thanks for your help in setting my anxiety at ease... Aimee Amnesty wrote: You know, that babbling and " spacing out " in the middle of the night probably IS a form of resting and unwinding for her. Personally, I would let her as long as she's not wandering around the house, getting upset, or being destructive. Everyone needs some alone time. Think about all the pressures she has on her all day between therapies and interaction with you! That's a lot of work for a 3 year old! If the night time actions are calming for her, you will just have to learn how to sleep through it Amnesty > Aimee, > > I am kind of a lurker on this site, but our daughter who is now 23 years old > did not sleep at all for many years and never seemed to show any effect from > it. She never napped either. I finally learned to sleep through it but it > was difficult. She seemed to be having the best time in the middle of the > night and we would hear her babbling and giggling. Our son who is neuro > typical did some of this as a baby but it was on first waking. I spoke to > the pediatrician about it at the time and he said that babies and small > children need time to process what they have learned and experienced and > some of them did it in this fashion. I know this does not help your current > situation but I hope it does bring you some peace of mind. > > Ruthie > waking up! > > > Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS > > IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! > > SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN > > LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING > > OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO > > TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT > > NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO > > COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN > > SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY > > FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER > > AND MY HUSBAND DO ARE WEIRD!lol > > aIMEE > > > > > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 used to do this. I bought one of those nature sound cds and I play it in his room on continuous loop. He now sleeps. Nadine waking up! Help...EllA IS WAKING UP AND TALKING AND GIGGLING TO HERSELF FOR HOURS IN THE MIDDLE OF THE NIGHT. i CANT SLEEP THROUGH IT, AND I NEED SLEEP! SHE JUST LAYS IN BED OR WALKS AROUND HER ROOM CHATTING IN HER OWN LANGUAGE AND LAUGHING AT HERSELF...i FEEL LIKE SHE SHOULDNT BE SPACING OUT IN HER OWN LITTLE WORLD FOR THAT LONG, BUT I ALSO DONT WANT TO TAKE HER OUT OF THE BEDROOM.I NEED SLEEP, AND SO DOES SHE. ELLA DOESNT NAP, SO SHE MUST BE TIRED...I DONT GET IT. SHE DOESNT EVEN WANT TO COME OUT OF HER ROOM, BECAUSE IN THE MORNING SHE RATTLES THE DOOR WHEN SHE WANTS OUT, AND IN THE UNGODLY HOURS WHEN SHES JUST TALKING AWAY FOR HOURS, SHE DOESNT...ITS WEIRD, BUT THEN AGAIN A LOT OF STUFF HER AND MY HUSBAND DO ARE WEIRD!lol aIMEE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Aimee, Life with an adult autistic daughter is fun. She is non-verbal in spite of all of the work and hope that we had, but it doesn't really matter. She is one of the happiest people that we know and many times wish we could be as happy as she is. She is accepted as being her own person and even though she still has things that bother her more than they should she has also come to accept that we are trying the best we can to not frustrate her and there are some things she must do just because. She is still a daddy's girl and loves spending time with him. I often joke that she loves her daddy but she trusts her mom as she knows that I never sugar coat anything, I just give her the facts even if she does not like them. She is basically a pleasant person and we have fun. Ruthie Quote Link to comment Share on other sites More sharing options...
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