Re: IEP, 504-Beth

[Guest guest]

Hi Beth,

It must be very difficult for you raising your granddaughter, (with OCD on top

of everything else !) She must be having a very hard time herself ,with her mom

passing away. I'm so sorry!

I too, have found that almost all of the doctors around here have never heard of

PANDAS, and if they have, they don't believe it is a diagnosis. You are very

lucky to have a pediatrician who will support you!

My son is 8.He began with showing overnight symptoms the month before he

turned 5.

Keep in touch!!

Hugs

Judy

________________________________

To:

Sent: Tue, January 5, 2010 2:26:59 PM

Subject: RE: IEP, 504

 

Thank you so much for getting back to me. I am also one that is so thankful

for this group. This came on suddenly this summer, although we go back to

at least 2 different episodes when she was younger (and had strep). She's

had the Strep A twice when younger, which I understand is one of the

triggers for the PANDAS. We are unfortunately out there on our own doing

this, with at present, thank God (and I really mean that, literally) with

the help o our pediatrician (the neurologist we got in with doesn't believe

in PANDAS (Texas Children's Hospital). I just pray she will continue with

the antibiotics. She was so bad at the start and they helped tremendously.

I really believe we need more a day. We're doing 500 Augmentin, twice a

day. She is nine and in a gifted and talented class right now. She is

actually my granddaughter. We are raising her after her mother's death 3

years ago. I am so worried about her future and us not being around to help

her. We are in Houston. I so wish we could connect with some others with

similar problems. How old is your son?

Beth

From: @ yahoogroups. com

[mailto:@ yahoogroups. com] On Behalf Of jchabot

Sent: Tuesday, January 05, 2010 12:24 PM

To: @ yahoogroups. com

Subject: Re: IEP, 504

Hi Beth,

I'm sorry you are going through this. My son has very similar symptoms as to

what you describe. As a matter of fact, after re reading your post, they

sound somewhat identical.My son is always afraid of saying or having done

something wrong, amongst many other fears, he cannot be alone, does the

stuffed animal barricade,etc. etc

PANDAS can get worse if your child has been around with another child with

strep, or even another sick child.

..

The 504 is a plan that actually many children have. You can have a 504 for

virtually anything. It allows accomodations, extra time, no loss of

priviledges for homework not completed, etc.I think mentioned alot

about the 504. My dd has one. My son has an IEP.

An IEP is an Individualized Education Plan, whereas the team( meaning the

school faculty and your self) all sit down and write up a special plan for

your child with actual goals that must be completed within a certain time

frame.This is not special ed but a special ed service. The child is also

eligible for any accomodations necessary.

I hope I could be of some help, if anything, just to know you are not

alone!!!1

Hugs

Judy