Re: inadequate pain management stinks

[Guest guest]

Dear Kerri Sue,

My diagnosis is " inflammatory arthritis with fibromyalgia " and the pain started

in my foot and ankle about a year and one-half ago. I know how frustrating it

is to have foot pain--like you can't go anywhere without feeling like you're

being stabbed with every step. I also know what it's like to be treated like a

drug-seeker and I feel for you. We're just trying to live a normal life, here.

Maybe you could call the pharmacist and see if it's okay to take Tylenol with

the hydrocodone. The medication that always worked best for my pain was Norco,

which is hydrocodone plus tylenol. It works much better than the hydrocodone

alone. I took baclofen for a while and it was worthless--it only made me tired.

You're not crazy and you do have a right to adequate pain management. My GP

absolutely refused to prescribe me pain meds of any kind and said he wasn't

qualified and that I'd have to get them from a specialist. Maybe yours feels

that way too. Perhaps it's time to write your

rheumy a note and say that your GP isn't comfortable managing your pain meds

adequately and that he'll have to take over. Tell him your trying to be tough,

but it's really wearing you down and enough is enough. I pray that you'll get

the help you need and deserve soon. Please keep us posted and hang in there.

laura

kerri paquette <ksp2242@...> wrote:

How do I know if something is RA related or not... My foot has been hurting

(like I sprained it, but I didn't) for about four days now. Its hurts to walk on

it. the pain in my hands and feet is almost unbearable, do I just suffer like

this until my next appointment? Is there really anything else they can do? for

pain I take, hydrocodone and baclofen, my RA med right now is Arava.... waiting

to heal so I can start Humira. Everyone here talks of flares and such not...

Some days for me are worse than others, but I haven't had a good day in two

years... I'm beginning to wonder if I'm just crazy. The last thing I want is

another med, but lately I pray for God to take me cuz at least then I'd get some

sleep. My rheumy is happy to let my GP prescribe my pain meds but I think my GP

thinks that I'm just a drug seeker. last time I asked him for something other

than or more of the vicodin he said no.... Isn't that my patient right to be

medicated properly for pain? Rash has broken out again

on my knees... anyone know what this could be? I'm frustrated now grrrrrrr, lol.

Hope everyone is having an enjoyable day.

kerri sue

---------------------------------

FareChase - Search multiple travel sites in one click.

[Guest guest]

Dear Kerri Sue,

My diagnosis is " inflammatory arthritis with fibromyalgia " and the pain started

in my foot and ankle about a year and one-half ago. I know how frustrating it

is to have foot pain--like you can't go anywhere without feeling like you're

being stabbed with every step. I also know what it's like to be treated like a

drug-seeker and I feel for you. We're just trying to live a normal life, here.

Maybe you could call the pharmacist and see if it's okay to take Tylenol with

the hydrocodone. The medication that always worked best for my pain was Norco,

which is hydrocodone plus tylenol. It works much better than the hydrocodone

alone. I took baclofen for a while and it was worthless--it only made me tired.

You're not crazy and you do have a right to adequate pain management. My GP

absolutely refused to prescribe me pain meds of any kind and said he wasn't

qualified and that I'd have to get them from a specialist. Maybe yours feels

that way too. Perhaps it's time to write your

rheumy a note and say that your GP isn't comfortable managing your pain meds

adequately and that he'll have to take over. Tell him your trying to be tough,

but it's really wearing you down and enough is enough. I pray that you'll get

the help you need and deserve soon. Please keep us posted and hang in there.

laura

kerri paquette <ksp2242@...> wrote:

How do I know if something is RA related or not... My foot has been hurting

(like I sprained it, but I didn't) for about four days now. Its hurts to walk on

it. the pain in my hands and feet is almost unbearable, do I just suffer like

this until my next appointment? Is there really anything else they can do? for

pain I take, hydrocodone and baclofen, my RA med right now is Arava.... waiting

to heal so I can start Humira. Everyone here talks of flares and such not...

Some days for me are worse than others, but I haven't had a good day in two

years... I'm beginning to wonder if I'm just crazy. The last thing I want is

another med, but lately I pray for God to take me cuz at least then I'd get some

sleep. My rheumy is happy to let my GP prescribe my pain meds but I think my GP

thinks that I'm just a drug seeker. last time I asked him for something other

than or more of the vicodin he said no.... Isn't that my patient right to be

medicated properly for pain? Rash has broken out again

on my knees... anyone know what this could be? I'm frustrated now grrrrrrr, lol.

Hope everyone is having an enjoyable day.

kerri sue

---------------------------------

FareChase - Search multiple travel sites in one click.

[Guest guest]

,

Thank you for your reply. I saw my GP yesterday and explained my frustration.

Luckily he had a med student with him, so couldn't blow me off and I got the

full work up instead of a lot of nods and mmhmmm's. He said the pain in my foot

is very common with RA and to make sure I buy arch supports for my shoes or I'll

end up wearing those oh-so-stylish orthopedic shoes if I'm not careful. He took

the first pictures of my spine yesterday in 5 years. I hope they don't find any

bone damage, because maybe physical therapy would help. He increased a sleeping

med for me and upped my anti-depressant also. As far as pain meds go, he told

me to talk to my rheumy at my next apt in two weeks. He also paid attention when

I told him my kidneys seem to be bothering me, I have a history of stones and

infections, he checked my urine and again found infection so we're taking care

of that. I also had my flu shot and woke up last night with a migraine from

hell, so I'm quite a bit slow on the go today.

almost dinner time and I just got out of my pajamas to put a new pair of

pajamas on, lol. I hope you are doing well today. Take care of youself and God

bless.

kerri sue

Bauman <ilovecats83160@...> wrote:

Dear Kerri Sue,

My diagnosis is " inflammatory arthritis with fibromyalgia " and the pain started

in my foot and ankle about a year and one-half ago. I know how frustrating it

is to have foot pain--like you can't go anywhere without feeling like you're

being stabbed with every step. I also know what it's like to be treated like a

drug-seeker and I feel for you. We're just trying to live a normal life, here.

Maybe you could call the pharmacist and see if it's okay to take Tylenol with

the hydrocodone. The medication that always worked best for my pain was Norco,

which is hydrocodone plus tylenol. It works much better than the hydrocodone

alone. I took baclofen for a while and it was worthless--it only made me tired.

You're not crazy and you do have a right to adequate pain management. My GP

absolutely refused to prescribe me pain meds of any kind and said he wasn't

qualified and that I'd have to get them from a specialist. Maybe yours feels

that way too. Perhaps it's time to write your

rheumy a note and say that your GP isn't comfortable managing your pain meds

adequately and that he'll have to take over. Tell him your trying to be tough,

but it's really wearing you down and enough is enough. I pray that you'll get

the help you need and deserve soon. Please keep us posted and hang in there.

laura

kerri paquette <ksp2242@...> wrote:

How do I know if something is RA related or not... My foot has been hurting

(like I sprained it, but I didn't) for about four days now. Its hurts to walk on

it. the pain in my hands and feet is almost unbearable, do I just suffer like

this until my next appointment? Is there really anything else they can do? for

pain I take, hydrocodone and baclofen, my RA med right now is Arava.... waiting

to heal so I can start Humira. Everyone here talks of flares and such not...

Some days for me are worse than others, but I haven't had a good day in two

years... I'm beginning to wonder if I'm just crazy. The last thing I want is

another med, but lately I pray for God to take me cuz at least then I'd get some

sleep. My rheumy is happy to let my GP prescribe my pain meds but I think my GP

thinks that I'm just a drug seeker. last time I asked him for something other

than or more of the vicodin he said no.... Isn't that my patient right to be

medicated properly for pain? Rash has broken out again

on my knees... anyone know what this could be? I'm frustrated now grrrrrrr, lol.

Hope everyone is having an enjoyable day.

kerri sue

---------------------------------

FareChase - Search multiple travel sites in one click.

[Guest guest]

,

Thank you for your reply. I saw my GP yesterday and explained my frustration.

Luckily he had a med student with him, so couldn't blow me off and I got the

full work up instead of a lot of nods and mmhmmm's. He said the pain in my foot

is very common with RA and to make sure I buy arch supports for my shoes or I'll

end up wearing those oh-so-stylish orthopedic shoes if I'm not careful. He took

the first pictures of my spine yesterday in 5 years. I hope they don't find any

bone damage, because maybe physical therapy would help. He increased a sleeping

med for me and upped my anti-depressant also. As far as pain meds go, he told

me to talk to my rheumy at my next apt in two weeks. He also paid attention when

I told him my kidneys seem to be bothering me, I have a history of stones and

infections, he checked my urine and again found infection so we're taking care

of that. I also had my flu shot and woke up last night with a migraine from

hell, so I'm quite a bit slow on the go today.

almost dinner time and I just got out of my pajamas to put a new pair of

pajamas on, lol. I hope you are doing well today. Take care of youself and God

bless.

kerri sue

Bauman <ilovecats83160@...> wrote:

Dear Kerri Sue,

My diagnosis is " inflammatory arthritis with fibromyalgia " and the pain started

in my foot and ankle about a year and one-half ago. I know how frustrating it

is to have foot pain--like you can't go anywhere without feeling like you're

being stabbed with every step. I also know what it's like to be treated like a

drug-seeker and I feel for you. We're just trying to live a normal life, here.

Maybe you could call the pharmacist and see if it's okay to take Tylenol with

the hydrocodone. The medication that always worked best for my pain was Norco,

which is hydrocodone plus tylenol. It works much better than the hydrocodone

alone. I took baclofen for a while and it was worthless--it only made me tired.

You're not crazy and you do have a right to adequate pain management. My GP

absolutely refused to prescribe me pain meds of any kind and said he wasn't

qualified and that I'd have to get them from a specialist. Maybe yours feels

that way too. Perhaps it's time to write your

rheumy a note and say that your GP isn't comfortable managing your pain meds

adequately and that he'll have to take over. Tell him your trying to be tough,

but it's really wearing you down and enough is enough. I pray that you'll get

the help you need and deserve soon. Please keep us posted and hang in there.

laura

kerri paquette <ksp2242@...> wrote:

How do I know if something is RA related or not... My foot has been hurting

(like I sprained it, but I didn't) for about four days now. Its hurts to walk on

it. the pain in my hands and feet is almost unbearable, do I just suffer like

this until my next appointment? Is there really anything else they can do? for

pain I take, hydrocodone and baclofen, my RA med right now is Arava.... waiting

to heal so I can start Humira. Everyone here talks of flares and such not...

Some days for me are worse than others, but I haven't had a good day in two

years... I'm beginning to wonder if I'm just crazy. The last thing I want is

another med, but lately I pray for God to take me cuz at least then I'd get some

sleep. My rheumy is happy to let my GP prescribe my pain meds but I think my GP

thinks that I'm just a drug seeker. last time I asked him for something other

than or more of the vicodin he said no.... Isn't that my patient right to be

medicated properly for pain? Rash has broken out again

on my knees... anyone know what this could be? I'm frustrated now grrrrrrr, lol.

Hope everyone is having an enjoyable day.

kerri sue

---------------------------------

FareChase - Search multiple travel sites in one click.