Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Sondra, I'm not officially on spectrum, but I've struggled greatly over the years with not " getting it " like everyone else seems to get. I often think people are making jokes when they're serious and think people are serious when they're joking. I seem to be the only one in the room who this happens to and i don't know what it is I'm missing. I would venture those who have said Kassi isn't on spectrum is because Kassi presents herself as so mild. It's been my experience those who have experience with people very low-functioning tend to dismiss those higher-functioning. I think this is very wrong and harmful to fail to acknowledge all spectrum people. I remember Kassi saying a few yrs ago that a particular group told her she's not on spectrum, dispite Kassi knowing herself much better than these people who'd met her for a whopping 10 seconds. Sondra, I think that you should give yourself a break. By that I mean you shouldn't be so frustrated with yourself for seeing things differently than others. Your ball example. If you don't see that it's blue, or round, or any of the other things people see, what does that really change? If you see it as more purple, or you see slick while everyone else sees round, that doesn't make you less of a person or stupid or anything else. It just makes your perceptions different. That's okay, we need differences. This world needs that to function. I know it can be frustrating and feel lonely to not get what everyone else gets. But to me, your different perceptions mean you are an individual. How sad it must be for everyone else to be so boring they can only see what has been drilled into them to see. The scientific breakthroughs and musical compositions and paintings and sculptures didn't happen because they saw things like everyone else. If we all saw things the same, how many " Stary Stary Night " paintings would we have? We'd all be composing the same song over and over. We wouldn't have spoons because no one would have ever thought to make a dipped piece to hold liquid. No one would have ever said, " You know, I'll bet toilet paper is better than leaves. " <g> Toileting stuff always makes me laugh. Words are just imitations. I use the words I've read over the years and heard over the years and repeat them back. I use cliches of others all day long. But when you do echo those words you are getting your point across. We always understand what you are saying, even if you feel it's all copied from other sources. Has someone been telling you you're wrong or not doing something right? Your words tonight sound as if someone has been upsetting you. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Sondra, Once again I am in awe of your willingness and ability to express yourself. This helps me understand you and also my daughter and others on the spectrum so much better. Thank you so much. I wish you lived near me so I could offer you some Yoga and relaxation classes! And, hard as it is, please don't stop trusting. There are lots and lots of really good hearted people out there that want to understand and to help. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 yes someone has been of bullying me for much different times and fashions for a few years in my state. she has never met ofme but continues to find ways to hurt of me and then be to deny of it to all because if they lack history will not be to know of what she is refering too. then if I to confront of her it she twists the words somuch so that it makes me unsure of self and to feel crazy . she ignores simple facts of truth and goes to things she makes up as parts of lie things as her own truths and even though many list members to tell her to stop she continues. I to finally found out how to block of her. But this is to be causing me great uncertain. But secondly brining up the kassi things yes that is the time i to be speaking of and my point is of this once those other people shared of things to me much time back it got imprinted in my thinking as a true even though not know how to base off anything but those wrods because they were of the first words to go in about Kassi at a time I was to be fearful of her anger issues on the list. And so it is like stored echoed words at times and I to wonder if others are of this they hear of words from others and take them as complete trues even though they have no way to read or discern aobut the real of the truths around it such as if one told of me as a little girl the sky was of green it would be to me get imprinted it was of green and nothing will be of able to help me learn a new script because the sky is green and it cant be changed because it is what was told in the very begin of my discovery of the sky. I to be not able to see for self in my own cognitions maybe that the sky was of blue? it would not be of a thing i for self have learend from my own self teaching but stored words others have sayed becaomes part of my over all cognitions and it seems to be permanently rooted there. And even when experiences and exposure is maybe over time teaching me new things and I to try to force self to alter the past thinking and or to change of it I can be to script the words in some fashions but deep within me is the imprinted words that never seem to be of able to get erased to be to add the real or new truths in its place. The other issues I to be one who believes all people are going to be 100% honest to me and so I to trust of thems words as facts always , because have no real way to seek out the discovery of the truth if it alters from the words others have shared. sometimes though two opposite scripts get stored in me over the same issues Such as the ABAers feel that ABA is the only option for thems child, (it is not but it is the only one with science to back the theory and i to agree it is one effective approach if it is a GOOD run ABA program that allows dignity to be a priority of the child) And i to feel this thinking is correct, but if I to read things of RDI another of my favorite approaches I to find its words to be very true and right as well, but the RDI people often do not have much good to say about ABA and the ABAers have little good to say about RDI and it leaves me unsure of my own to evalauate which is of true and or is my own assumptions of the fact that both can be of good and both can be combined with very good skills and imagination of how to combine both so the child learns. But usually both sets the RDI and the ABAers are in complete disagree that they can or should be combined. Or back to Kassi as an example those over the past who shared to me Kassi was not of spectrum and it got imprinted as a true to me and it caused me to repeat the scripts of those people for a time because was confused and fearful of this truth and such. It caused me to be cuatious of Kassi and somewhat fearful of her. Yet my exposure to her on line when she was not of angry caused me to listen and explore the facts that some shared on the list she is indeed of spectrum? And it is not an issues really if she is or not just sharing how things get imprimited in me and i to lack the ability to discern of which people are of being truthful and which ones are not of the knowing of the truths and such. My imprinted things given to me in the very begin is still there saying she is not but other parts of me have another scripted side that feels she is maybe of spectrum. But I to think too my challenge is to see spectrum in milder versions or higher functioning people because lack the ability to read or discern and or interpret the actions and words of others like NT people can and it causes me a fear of vulnerability. Yes my own children some are very high functioning now and as childrens of me I to see thier challenges because I to live with the challenges daily. i to be of one not able to do that with kassi and or others who are mild or very high to see of the challenges enough to say yes this is of from my own experiences with my childrens is similar or same. So i to lack what is of true from words saying one things and other peoples words saying another and not haveing ability to see for self to evalaute the real of truth from own eyes that makes of me feel stupid and vulnerable and I to not like that feeling. I to be to trust too much peoples and find later those same people used of me and or manipulated me into a new mess and then left of me to drown in it. Such as one list a person began to post of me and i to thinked hims words were nice and felt maybe he was going to help me understand this bully on line. I to be to telled him much things such as my testing scores and evalauation results and things I to not normally share to others at all but inside of me thinked he was of professional so did and he then typed a response for me to send to the list to verify of the truth of my dx. I to did of this and then the next day he to comed back with much postings of attack to the bully and to the ones who were of supportive of me and to a professional on that same list. it caused me great confusions because lacked for true what most of the words meant but this only added the anger of the bully claiming I to manipulated this and had full knowing of all of this and pretend to not be in the knowing of it which is not true what is of 100% true is i to ahd no clue what happened or why and so it maked me be more vulnerable to all and now I to not be to feel to connect to peoples. i to be in honest this day feel fearful of all people except those i to be to have much words and long history too. I to simply feel in the heart ofme is growing angry and bitter the more exposure i to have to people the more complex my life becomes , the more mass confusions , the more frustrated to self and agitated to self my workd becomes. People all strive to get there kids to a higher level of functioning and yet when they do they think they have reached thier goal but what is more true is it makes us more a target and more vulnerable to attacks because we look as though we have of skills that inside do not match up and it leaves us always feeling as though sucked into a tornado or hurricane and no anchor to really support us. To me felt all of life if can be to just learn to be like normal people then would be to have of real life like them, I to never found that real life yet and feel as if all my life to reach this areas of life was in vain and angry because I to feel my life would be to ahve been better in the early autistic states of no connect and no awareness to the world around me just me and the inner self play of a worold that once was a safe place for me due to the severeity of autism back as a little girl and angry that my brain got to where itis today. living locked away in an isolated cell room seems more like a safe haven than this world to me right now. while fear was there at least it would be a force isolations to me and would keep people away and allow me to self absorb to the way my brain is really wired to be . forcing self too long in this worlds of confusion is playing its toll on my health and my motivations to continue to make any gains at all in life. I to be to feel as if need to just run away and find a small shack and self isoalte as a hermit person for the rest of my days living on this planet. Sorry to ahve vented of my inner confusions and fears and mass frustrations right now to the list but sometimes words must come to survive if we survive at all..... Sondra In Autism_in_Girls , " Debi " wrote: > > Sondra, I'm not officially on spectrum, but I've struggled greatly > over the years with not " getting it " like everyone else seems to get. > I often think people are making jokes when they're serious and think > people are serious when they're joking. I seem to be the only one in > the room who this happens to and i don't know what it is I'm missing. > > I would venture those who have said Kassi isn't on spectrum is because > Kassi presents herself as so mild. It's been my experience those who > have experience with people very low-functioning tend to dismiss those > higher-functioning. I think this is very wrong and harmful to fail to > acknowledge all spectrum people. I remember Kassi saying a few yrs ago > that a particular group told her she's not on spectrum, dispite Kassi > knowing herself much better than these people who'd met her for a > whopping 10 seconds. > > Sondra, I think that you should give yourself a break. By that I mean > you shouldn't be so frustrated with yourself for seeing things > differently than others. Your ball example. If you don't see that it's > blue, or round, or any of the other things people see, what does that > really change? If you see it as more purple, or you see slick while > everyone else sees round, that doesn't make you less of a person or > stupid or anything else. It just makes your perceptions different. > That's okay, we need differences. This world needs that to function. > > I know it can be frustrating and feel lonely to not get what everyone > else gets. But to me, your different perceptions mean you are an > individual. How sad it must be for everyone else to be so boring they > can only see what has been drilled into them to see. The scientific > breakthroughs and musical compositions and paintings and sculptures > didn't happen because they saw things like everyone else. If we all > saw things the same, how many " Stary Stary Night " paintings would we > have? We'd all be composing the same song over and over. We wouldn't > have spoons because no one would have ever thought to make a dipped > piece to hold liquid. No one would have ever said, " You know, I'll bet > toilet paper is better than leaves. " <g> Toileting stuff always makes > me laugh. > > Words are just imitations. I use the words I've read over the years > and heard over the years and repeat them back. I use cliches of others > all day long. But when you do echo those words you are getting your > point across. We always understand what you are saying, even if you > feel it's all copied from other sources. > > Has someone been telling you you're wrong or not doing something > right? Your words tonight sound as if someone has been upsetting you. > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Sondra, You sound as if you are tired. I understand because to be as complex as we are and live in a world of completely different complexities, we become weary and suspicious. I admit I too have spent the past few years intently worried about WHAT I am, WHO am I supposed to be and WHY can't I fit in. I would look at the circle too, Sondra, and I would not see blue. To see the world through autism's spectacles comes with tremendous and numerous burdens that can become unbearable at times. But Sondra, we are so spectacular that even the greatest of minds and the most advance science cannot explain our mysteries. We are such gems in the world that there is no comparison. Should a diamond be any less valuable just because there are no other stones like it? Should an Emerald be of lesser beauty just because it cannot be used to cut like the diamond? No and in fact their rareness and individuality is what makes them so special. Some of the greatest mysteries in our world awe and inspire people everyday not because of their descriptions and causes, but because of the impact of their mystery upon people's minds. The Bermuda Triangle, the Oregon Vortex, Atlantis. there are no proofs, no right answers to these phenomenons, yet it spurs the imaginations of so many people to explore, learn and create. We are one of the phenomenons of the human experience. We are people which awe and inspire so many to want to know more about the beautiful human mind. This does not always ease our frustrations because there are always those who in their ignorance fear us and therefore bully us. There will always be those who fear phenomenon and therefore bash it, or hide from it. But we have to learn, my dear friend, to not allow the small amount of ignorant people to displace our hope, trust and belief in our world. According to a poll, 71 % of Americans are interested in learning more about autism. That means we cannot allow the other 29% who are too locked away inside their fears to make us feel inferior. There is a song by Colvin " I never saw Blue like that " on the Runaway Bride movie soundtrack. Try to find this song and listen to it. Tim, when he and I first met, put this song on a CD for me. He told me that this song described how I made him feel. Some of the words are: Today I took a walk up the street And picked a flower and climbed the hill Above the lake And secret thoughts were said aloud We watched the faces in the clouds Until the clouds had blown away And were we ever somewhere else You know, it's hard to say And I never saw blue like that before Across the sky Around the world You've given me all you have and more And no one else has ever shown me how To see the world the way I see it now Oh, I, I never saw blue like that I can't believe a month ago I was alone, I didn't know you I hadn't seen or heard your name And even now, I'm so amazed It's like a dream, it's like a rainbow, it's like the rain And something's are the way they are And words just can't explain And I never saw blue like that before... Tim was so intrigued by my view of the world that he felt his view of the world was made brighter. I think that is what you are too, Sondra. Your view of the world makes all of our views brighter. I only hope that someday I have the honor of meeting you in person and spending time exchanging thoughts. Truth is black and white, but people's perspective of that truth is multicolored. People may think they are honest and speaking truths but are mistaken, not because they are vicious, but because they are blind. They have just never seen blue like that before. Believe in the truth within yourself. Nadine question to those on spectrum I to have a question to others on the spectrum , if you to hear others words aobut certain subjects do you take the words as complete trues and or does it make you ahve an uncertain of peoples. Such as being honest in the past had trusted of some peoples words because had met them in the real of life and they were ever so nice to me but these same people to telled me at one point that Kassianne was not of spectrum but of other things and it triggered an uncertain and fear of her (kassi ) for a time this was a time back Kassi not current. But since not ever really spend of time with Kassi in the real of life could not be to say if she is of spectrum or not but it has caused me to often have this triggered fear (nothing personal kassi but using this as example) and so it leaves a strong lasting fear of what is of true and what is not. And how can one read the trues of another and or the lies of another. I to be to feel as if missing big parts and lack what it is about me that does not get it. Even my fellow spectrum people I to be around at conferneces and such all seem to get things that is of simply foreign to me. It can be like metaphorically one hold up a blue circle and everyone sees it and is able to say that is of a blue circle but my brain simply looks at it too but does not gain the same information or timing as the rest. I to see it but it is as though it does not register at all. I to not gain anything from to look at it as others might be to get by looking at dirty pebbles in the road. useless information to me but others see it and begin to share words of hte blue circle and make much words to it and I ti stand back wondering why? I to also discovered about self for much of life I to never really had Sondra words much of the words from my past were of borrowed words and scripted words and so i to walked around much of the day just echoing and many thinked oh sondra you are of so smart and knowing of this and that. no not in the real I to had no clue I to just echoed back the words. Echoing all the day all the time just echo, echo echoing and never really haveing words that comed from Sondra but also found too that Sondra comes in many forms of words can imiate magazine words, news words, others speakers words echoing not just words but formats and styles of words. but when in my own words my own stupid ways of being in words there are of the truest expression of Sondra that comes deep from with my heart. Yet I to feel I to be too complex of a person one who is complicated to explain and yet trying to not just discover autism in me, but somethings more. trying to still define me. but simply cant because i to be ever so blind to even seeing self or to have words to understand of self. And in true wish in all the life of me that was never to be born or exist in life but the fact I to do is a cruel statement to have to be forced to live in word where one cant be to even have of an essence of her own being that is of to feel like a true inner part of me. I ti feel as it not know how to be or what to be or how to go beyond self to see life as others and cant tell real or fake and cant be to know how to do things like other no matter how hard i to try and even when trying to free self and be of self get of told wrong for that too. I to be to still be stuck and cant feel anything but stuck and have been to try to clarify self and often in the doing get so tangled into much other webs that i to not even see coming and I to find trust everyone and things too much that cant tell when one is trying to do me harm instead of good. Kassi please to not take of it personal as I to be to not be one who can say yes or no to you in the dx but have that fear not because I alone to thinked it but because it was planted and lack how to get planted thinkings out of my brain from others. I to be in much honest to say I to have been to try now for a long time and find over time have discovered a liking to you and less fear to you and not here to make words to disoute of you dx at all but confused by the words of some to say that and how to get those words out of me and try to find the real of truth in anythings not just this sample but all samples. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Sondra, It makes me so sad to read your post. I wish you didn't feel this way. I wish there was a way I could help you know that there are lots of people here that care very much for you and we would never do anything to hurt you in the ways others have. I read your posts more often than others in the group because you are so honest and open about your feelings and the way your see things. I have learned alot about my daughter and myself from reading what you write. I have dx of ADD, and although that is differen't from yours, there are alot of things you write that could be right out of my own head. I'm not as open as you are though, and could not express myself as well as you do either. I hate to think that you feel fearful of writing your own thoughts and feelings because someone might bully you. People who do things like that are usually much more brave talking from a keyboard than they would ever be in person. It would be easy for me to tell you to just ignore people who do these things. After all, if you haven't done anything to deserve that kind of treatment then the problem is with the other person. It's their problem, not yours. But I know from my own experiences that it's easier said than done. I do know that so often what we worry so much about is really nothing at all, just our fears getting the best of us. And others will have forgotten about it in a short time. It wouldn't even be an issue for them. I worry for so long about things I say or write, wondering if it will be taken the wrong way. I very carefully edit things so they won't make others upset. And alot of times I leave out too much of what I want to say. Or say nothing at all so I won't have to feel stupid. I look up to you for voicing things others won't for fear of putting themselves out. And even now as I'm writing this I wonder if others who read this will think I sound stupid or something. But I know from your posts that you won't. And so I feel that I can be honest and open to you. Most of the time even people you think of as more normal than you, are having the same feelings and fears. Sometimes they even say things they shouldn't because of their fears. But as you communicate with more and more people you're going to get a better feeling of who to trust and also know that even if you disagree it's not a big issue. They'll still care for you in a way that won't change because of your differences. I think people on the spectrum just worry way more than the average person is all.I know that's true of me. And as long as I'm on here rambling, I have to add something about the rest of your post. I have a problem with the issues you do about early on getting an imprint so to speak of something and it sticking. Alot of the things my Brain does make me nuts. But I realize that it's my mind. It's not what makes me ME. It's not what makes you YOU either. And the ways you see yourself are too often distorted by your fear. At least I know that's true of myself. I've had to work really hard to learn to just let things go. It's very hard, very very hard for me sometimes, but I MAKE myself get away from what ever it is that I feel I'm over analizing. And get busy with something I can get lost in and forget for a little while what I was obsessing or worring over. If it keeps coming back. I keep switching to something else till it looses it's power. Sometimes I make up silly songs in my mind about whatever it is and sing it over a few times till I have to laugh at myself. And when I can look at it without feeling anxious then I decide if it's something I can actually do anything about, or just let it go. For the longest time I was DXed with OCD. So I learned alot of coping skills from books. I know that for myself, after alot of practice and trying new things, issues don't get to me so much. I hope that there is something in this post to make you feel alittle better about it all. Know that there are quite a few people on here that think you are a very intelligent, wonderful & caring person. And you'll see, as we all get to know each other better that you have real true friends on here that would love to give back to you as much as you have given us. Cristy > > > > Sondra, I'm not officially on spectrum, but I've struggled greatly > > over the years with not " getting it " like everyone else seems to > get. > > I often think people are making jokes when they're serious and > think > > people are serious when they're joking. I seem to be the only one > in > > the room who this happens to and i don't know what it is I'm > missing. > > > > I would venture those who have said Kassi isn't on spectrum is > because > > Kassi presents herself as so mild. It's been my experience those > who > > have experience with people very low-functioning tend to dismiss > those > > higher-functioning. I think this is very wrong and harmful to fail > to > > acknowledge all spectrum people. I remember Kassi saying a few yrs > ago > > that a particular group told her she's not on spectrum, dispite > Kassi > > knowing herself much better than these people who'd met her for a > > whopping 10 seconds. > > > > Sondra, I think that you should give yourself a break. By that I > mean > > you shouldn't be so frustrated with yourself for seeing things > > differently than others. Your ball example. If you don't see that > it's > > blue, or round, or any of the other things people see, what does > that > > really change? If you see it as more purple, or you see slick while > > everyone else sees round, that doesn't make you less of a person or > > stupid or anything else. It just makes your perceptions different. > > That's okay, we need differences. This world needs that to > function. > > > > I know it can be frustrating and feel lonely to not get what > everyone > > else gets. But to me, your different perceptions mean you are an > > individual. How sad it must be for everyone else to be so boring > they > > can only see what has been drilled into them to see. The scientific > > breakthroughs and musical compositions and paintings and sculptures > > didn't happen because they saw things like everyone else. If we all > > saw things the same, how many " Stary Stary Night " paintings would > we > > have? We'd all be composing the same song over and over. We > wouldn't > > have spoons because no one would have ever thought to make a dipped > > piece to hold liquid. No one would have ever said, " You know, I'll > bet > > toilet paper is better than leaves. " <g> Toileting stuff always > makes > > me laugh. > > > > Words are just imitations. I use the words I've read over the years > > and heard over the years and repeat them back. I use cliches of > others > > all day long. But when you do echo those words you are getting your > > point across. We always understand what you are saying, even if you > > feel it's all copied from other sources. > > > > Has someone been telling you you're wrong or not doing something > > right? Your words tonight sound as if someone has been upsetting > you. > > > > Debi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Nadine, (Hope you don't mind be chiming in) That was just beautiful. Your posts are inspiring. Cristy > > Sondra, > > > > You sound as if you are tired. I understand because to be as complex as we > are and live in a world of completely different complexities, we become > weary and suspicious. I admit I too have spent the past few years intently > worried about WHAT I am, WHO am I supposed to be and WHY can't I fit in. I > would look at the circle too, Sondra, and I would not see blue. > > > > To see the world through autism's spectacles comes with tremendous and > numerous burdens that can become unbearable at times. But Sondra, we are so > spectacular that even the greatest of minds and the most advance science > cannot explain our mysteries. We are such gems in the world that there is > no comparison. Should a diamond be any less valuable just because there are > no other stones like it? Should an Emerald be of lesser beauty just because > it cannot be used to cut like the diamond? No and in fact their rareness > and individuality is what makes them so special. > > > > Some of the greatest mysteries in our world awe and inspire people everyday > not because of their descriptions and causes, but because of the impact of > their mystery upon people's minds. The Bermuda Triangle, the Oregon Vortex, > Atlantis. there are no proofs, no right answers to these phenomenons, yet it > spurs the imaginations of so many people to explore, learn and create. We > are one of the phenomenons of the human experience. We are people which awe > and inspire so many to want to know more about the beautiful human mind. > > > > This does not always ease our frustrations because there are always those > who in their ignorance fear us and therefore bully us. There will always be > those who fear phenomenon and therefore bash it, or hide from it. But we > have to learn, my dear friend, to not allow the small amount of ignorant > people to displace our hope, trust and belief in our world. According to a > poll, 71 % of Americans are interested in learning more about autism. That > means we cannot allow the other 29% who are too locked away inside their > fears to make us feel inferior. > > > > There is a song by Colvin " I never saw Blue like that " on the Runaway > Bride movie soundtrack. Try to find this song and listen to it. Tim, when > he and I first met, put this song on a CD for me. He told me that this song > described how I made him feel. Some of the words are: > > > > Today I took a walk up the street > And picked a flower and climbed the hill > Above the lake > > And secret thoughts were said aloud > We watched the faces in the clouds > Until the clouds had blown away > > And were we ever somewhere else > You know, it's hard to say > > And I never saw blue like that before > Across the sky > Around the world > You've given me all you have and more > And no one else has ever shown me how > To see the world the way I see it now > Oh, I, I never saw blue like that > > I can't believe a month ago > I was alone, I didn't know you > I hadn't seen or heard your name > And even now, I'm so amazed > It's like a dream, it's like a rainbow, it's like the rain > > And something's are the way they are > And words just can't explain > > And I never saw blue like that before... > > > > > > Tim was so intrigued by my view of the world that he felt his view of the > world was made brighter. I think that is what you are too, Sondra. Your > view of the world makes all of our views brighter. I only hope that someday > I have the honor of meeting you in person and spending time exchanging > thoughts. Truth is black and white, but people's perspective of that truth > is multicolored. People may think they are honest and speaking truths but > are mistaken, not because they are vicious, but because they are blind. > They have just never seen blue like that before. > > > > Believe in the truth within yourself. > > > > Nadine > > > > > > question to those on spectrum > > > > I to have a question to others on the spectrum , if you to hear > others words aobut certain subjects do you take the words as > complete trues and or does it make you ahve an uncertain of peoples. > Such as being honest in the past had trusted of some peoples words > because had met them in the real of life and they were ever so nice > to me but these same people to telled me at one point that Kassianne > was not of spectrum but of other things and it triggered an > uncertain and fear of her (kassi ) for a time this was a time back > Kassi not current. > > But since not ever really spend of time with Kassi in the real of > life could not be to say if she is of spectrum or not but it has > caused me to often have this triggered fear (nothing personal kassi > but using this as example) and so it leaves a strong lasting fear of > what is of true and what is not. And how can one read the trues of > another and or the lies of another. I to be to feel as if missing > big parts and lack what it is about me that does not get it. Even my > fellow spectrum people I to be around at conferneces and such all > seem to get things that is of simply foreign to me. > > It can be like metaphorically one hold up a blue circle and everyone > sees it and is able to say that is of a blue circle but my brain > simply looks at it too but does not gain the same information or > timing as the rest. I to see it but it is as though it does not > register at all. I to not gain anything from to look at it as others > might be to get by looking at dirty pebbles in the road. useless > information to me but others see it and begin to share words of hte > blue circle and make much words to it and I ti stand back wondering > why? > > I to also discovered about self for much of life I to never really > had Sondra words much of the words from my past were of borrowed > words and scripted words and so i to walked around much of the day > just echoing and many thinked oh sondra you are of so smart and > knowing of this and that. no not in the real I to had no clue I to > just echoed back the words. Echoing all the day all the time just > echo, echo echoing and never really haveing words that comed from > Sondra but also found too that Sondra comes in many forms of words > can imiate magazine words, news words, others speakers words echoing > not just words but formats and styles of words. but when in my own > words my own stupid ways of being in words there are of the truest > expression of Sondra that comes deep from with my heart. > > Yet I to feel I to be too complex of a person one who is complicated > to explain and yet trying to not just discover autism in me, but > somethings more. trying to still define me. but simply cant because > i to be ever so blind to even seeing self or to have words to > understand of self. And in true wish in all the life of me that was > never to be born or exist in life but the fact I to do is a cruel > statement to have to be forced to live in word where one cant be to > even have of an essence of her own being that is of to feel like a > true inner part of me. I ti feel as it not know how to be or what to > be or how to go beyond self to see life as others and cant tell real > or fake and cant be to know how to do things like other no matter > how hard i to try and even when trying to free self and be of self > get of told wrong for that too. > > I to be to still be stuck and cant feel anything but stuck and have > been to try to clarify self and often in the doing get so tangled > into much other webs that i to not even see coming and I to find > trust everyone and things too much that cant tell when one is trying > to do me harm instead of good. > > Kassi please to not take of it personal as I to be to not be one who > can say yes or no to you in the dx but have that fear not because I > alone to thinked it but because it was planted and lack how to get > planted thinkings out of my brain from others. I to be in much > honest to say I to have been to try now for a long time and find > over time have discovered a liking to you and less fear to you and > not here to make words to disoute of you dx at all but confused by > the words of some to say that and how to get those words out of me > and try to find the real of truth in anythings not just this sample > but all samples. > Sondra > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Larua I to b eto have to go to my therapist today but will comment on posts later. i to think what hurts is this bully is among the autism community because she has of two sons who are of HFA and it is of scary that she cannot see the multiple complex ways autism can present itself and very little is known of autism itself but add the mix of severe abuse and trauma to the mix and you have of a very different complexing individual which is hard formy professionals to be to sift out what is autism cores realted to me and what is driven by the abuse and trauma under the PTSD. this woman often cycles my PTSD to cycle rapid to depressions and withdraw. she is not just mean but vicious and very degrading and hurtful and attacks with so much untrues it is of painful and I to be to have no clue how to escape her clutches once she begins. Sondra In Autism_in_Girls , " " wrote: > > Sondra, > > > > You sound as if you are tired. I understand because to be as complex as we > are and live in a world of completely different complexities, we become > weary and suspicious. I admit I too have spent the past few years intently > worried about WHAT I am, WHO am I supposed to be and WHY can't I fit in. I > would look at the circle too, Sondra, and I would not see blue. > > > > To see the world through autism's spectacles comes with tremendous and > numerous burdens that can become unbearable at times. But Sondra, we are so > spectacular that even the greatest of minds and the most advance science > cannot explain our mysteries. We are such gems in the world that there is > no comparison. Should a diamond be any less valuable just because there are > no other stones like it? Should an Emerald be of lesser beauty just because > it cannot be used to cut like the diamond? No and in fact their rareness > and individuality is what makes them so special. > > > > Some of the greatest mysteries in our world awe and inspire people everyday > not because of their descriptions and causes, but because of the impact of > their mystery upon people's minds. The Bermuda Triangle, the Oregon Vortex, > Atlantis. there are no proofs, no right answers to these phenomenons, yet it > spurs the imaginations of so many people to explore, learn and create. We > are one of the phenomenons of the human experience. We are people which awe > and inspire so many to want to know more about the beautiful human mind. > > > > This does not always ease our frustrations because there are always those > who in their ignorance fear us and therefore bully us. There will always be > those who fear phenomenon and therefore bash it, or hide from it. But we > have to learn, my dear friend, to not allow the small amount of ignorant > people to displace our hope, trust and belief in our world. According to a > poll, 71 % of Americans are interested in learning more about autism. That > means we cannot allow the other 29% who are too locked away inside their > fears to make us feel inferior. > > > > There is a song by Colvin " I never saw Blue like that " on the Runaway > Bride movie soundtrack. Try to find this song and listen to it. Tim, when > he and I first met, put this song on a CD for me. He told me that this song > described how I made him feel. Some of the words are: > > > > Today I took a walk up the street > And picked a flower and climbed the hill > Above the lake > > And secret thoughts were said aloud > We watched the faces in the clouds > Until the clouds had blown away > > And were we ever somewhere else > You know, it's hard to say > > And I never saw blue like that before > Across the sky > Around the world > You've given me all you have and more > And no one else has ever shown me how > To see the world the way I see it now > Oh, I, I never saw blue like that > > I can't believe a month ago > I was alone, I didn't know you > I hadn't seen or heard your name > And even now, I'm so amazed > It's like a dream, it's like a rainbow, it's like the rain > > And something's are the way they are > And words just can't explain > > And I never saw blue like that before... > > > > > > Tim was so intrigued by my view of the world that he felt his view of the > world was made brighter. I think that is what you are too, Sondra. Your > view of the world makes all of our views brighter. I only hope that someday > I have the honor of meeting you in person and spending time exchanging > thoughts. Truth is black and white, but people's perspective of that truth > is multicolored. People may think they are honest and speaking truths but > are mistaken, not because they are vicious, but because they are blind. > They have just never seen blue like that before. > > > > Believe in the truth within yourself. > > > > Nadine > > > > > > question to those on spectrum > > > > I to have a question to others on the spectrum , if you to hear > others words aobut certain subjects do you take the words as > complete trues and or does it make you ahve an uncertain of peoples. > Such as being honest in the past had trusted of some peoples words > because had met them in the real of life and they were ever so nice > to me but these same people to telled me at one point that Kassianne > was not of spectrum but of other things and it triggered an > uncertain and fear of her (kassi ) for a time this was a time back > Kassi not current. > > But since not ever really spend of time with Kassi in the real of > life could not be to say if she is of spectrum or not but it has > caused me to often have this triggered fear (nothing personal kassi > but using this as example) and so it leaves a strong lasting fear of > what is of true and what is not. And how can one read the trues of > another and or the lies of another. I to be to feel as if missing > big parts and lack what it is about me that does not get it. Even my > fellow spectrum people I to be around at conferneces and such all > seem to get things that is of simply foreign to me. > > It can be like metaphorically one hold up a blue circle and everyone > sees it and is able to say that is of a blue circle but my brain > simply looks at it too but does not gain the same information or > timing as the rest. I to see it but it is as though it does not > register at all. I to not gain anything from to look at it as others > might be to get by looking at dirty pebbles in the road. useless > information to me but others see it and begin to share words of hte > blue circle and make much words to it and I ti stand back wondering > why? > > I to also discovered about self for much of life I to never really > had Sondra words much of the words from my past were of borrowed > words and scripted words and so i to walked around much of the day > just echoing and many thinked oh sondra you are of so smart and > knowing of this and that. no not in the real I to had no clue I to > just echoed back the words. Echoing all the day all the time just > echo, echo echoing and never really haveing words that comed from > Sondra but also found too that Sondra comes in many forms of words > can imiate magazine words, news words, others speakers words echoing > not just words but formats and styles of words. but when in my own > words my own stupid ways of being in words there are of the truest > expression of Sondra that comes deep from with my heart. > > Yet I to feel I to be too complex of a person one who is complicated > to explain and yet trying to not just discover autism in me, but > somethings more. trying to still define me. but simply cant because > i to be ever so blind to even seeing self or to have words to > understand of self. And in true wish in all the life of me that was > never to be born or exist in life but the fact I to do is a cruel > statement to have to be forced to live in word where one cant be to > even have of an essence of her own being that is of to feel like a > true inner part of me. I ti feel as it not know how to be or what to > be or how to go beyond self to see life as others and cant tell real > or fake and cant be to know how to do things like other no matter > how hard i to try and even when trying to free self and be of self > get of told wrong for that too. > > I to be to still be stuck and cant feel anything but stuck and have > been to try to clarify self and often in the doing get so tangled > into much other webs that i to not even see coming and I to find > trust everyone and things too much that cant tell when one is trying > to do me harm instead of good. > > Kassi please to not take of it personal as I to be to not be one who > can say yes or no to you in the dx but have that fear not because I > alone to thinked it but because it was planted and lack how to get > planted thinkings out of my brain from others. I to be in much > honest to say I to have been to try now for a long time and find > over time have discovered a liking to you and less fear to you and > not here to make words to disoute of you dx at all but confused by > the words of some to say that and how to get those words out of me > and try to find the real of truth in anythings not just this sample > but all samples. > Sondra > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Sondra, It makes me sad that you are so upset. And mad at whoever did this, to make you feel so bad. And using me as an example was fine, I know I'm on the spectrum, people who know me know Im on the spectrum, I think Im up to 9 doctors now saying Im on the spectrum...so I'm secure in that. A bit miffed that people would lie about me, but that isn't your fault. And willing to permit the idea that maybe they were clueless about extroverted auties (we do exist!) and went on that. PTSD is rough. It also affects all of us differently-you get into depressions, I get angry but learned to pretend a bit more because that avoided some stuff, sometimes people even forget for years and years what made them scared. Autism is complicated and diverse enough without adding layers. I wish I could help you with your bully situation, or at least help you feel better. Kassiane --- sondra wrote: > Larua I to b eto have to go to my therapist today > but will comment > on posts later. i to think what hurts is this bully > is among the > autism community because she has of two sons who are > of HFA and it > is of scary that she cannot see the multiple complex > ways autism can > present itself and very little is known of autism > itself but add the > mix of severe abuse and trauma to the mix and you > have of a very > different complexing individual which is hard formy > professionals to > be to sift out what is autism cores realted to me > and what is driven > by the abuse and trauma under the PTSD. this woman > often cycles my > PTSD to cycle rapid to depressions and withdraw. she > is not just > mean but vicious and very degrading and hurtful and > attacks with so > much untrues it is of painful and I to be to have no > clue how to > escape her clutches once she begins. > > Sondra > > In Autism_in_Girls , " " > wrote: > > > > Sondra, > > > > > > > > You sound as if you are tired. I understand > because to be as > complex as we > > are and live in a world of completely different > complexities, we > become > > weary and suspicious. I admit I too have spent > the past few years > intently > > worried about WHAT I am, WHO am I supposed to be > and WHY can't I > fit in. I > > would look at the circle too, Sondra, and I would > not see blue. > > > > > > > > To see the world through autism's spectacles comes > with tremendous > and > > numerous burdens that can become unbearable at > times. But Sondra, > we are so > > spectacular that even the greatest of minds and > the most advance > science > > cannot explain our mysteries. We are such gems in > the world that > there is > > no comparison. Should a diamond be any less > valuable just because > there are > > no other stones like it? Should an Emerald be of > lesser beauty > just because > > it cannot be used to cut like the diamond? No and > in fact their > rareness > > and individuality is what makes them so special. > > > > > > > > Some of the greatest mysteries in our world awe > and inspire people > everyday > > not because of their descriptions and causes, but > because of the > impact of > > their mystery upon people's minds. The Bermuda > Triangle, the > Oregon Vortex, > > Atlantis. there are no proofs, no right answers to > these > phenomenons, yet it > > spurs the imaginations of so many people to > explore, learn and > create. We > > are one of the phenomenons of the human > experience. We are people > which awe > > and inspire so many to want to know more about the > beautiful human > mind. > > > > > > > > This does not always ease our frustrations because > there are > always those > > who in their ignorance fear us and therefore bully > us. There will > always be > > those who fear phenomenon and therefore bash it, > or hide from it. > But we > > have to learn, my dear friend, to not allow the > small amount of > ignorant > > people to displace our hope, trust and belief in > our world. > According to a > > poll, 71 % of Americans are interested in learning > more about > autism. That > > means we cannot allow the other 29% who are too > locked away inside > their > > fears to make us feel inferior. > > > > > > > > There is a song by Colvin " I never saw Blue > like that " on > the Runaway > > Bride movie soundtrack. Try to find this song and > listen to it. > Tim, when > > he and I first met, put this song on a CD for me. > He told me that > this song > > described how I made him feel. Some of the words > are: > > > > > > > > Today I took a walk up the street > > And picked a flower and climbed the hill > > Above the lake > > > > And secret thoughts were said aloud > > We watched the faces in the clouds > > Until the clouds had blown away > > > > And were we ever somewhere else > > You know, it's hard to say > > > > And I never saw blue like that before > > Across the sky > > Around the world > > You've given me all you have and more > > And no one else has ever shown me how > > To see the world the way I see it now > > Oh, I, I never saw blue like that > > > > I can't believe a month ago > > I was alone, I didn't know you > > I hadn't seen or heard your name > > And even now, I'm so amazed > > It's like a dream, it's like a rainbow, it's like > the rain > > > > And something's are the way they are > > And words just can't explain > > > > And I never saw blue like that before... > > > > > > > > > > > > Tim was so intrigued by my view of the world that > he felt his view > of the > > world was made brighter. I think that is what you > are too, > Sondra. Your > > view of the world makes all of our views brighter. > I only hope > that someday > > I have the honor of meeting you in person and > spending time > exchanging > > thoughts. Truth is black and white, but people's > perspective of > that truth > > is multicolored. People may think they are honest > and speaking > truths but > > are mistaken, not because they are vicious, but > because they are > blind. > > They have just never seen blue like that before. > > > > > > > > Believe in the truth within yourself. > > > > > > > > Nadine > > > > > > > > > > > > question to those on > spectrum > > > > > > > > I to have a question to others on the spectrum , > if you to hear > > others words aobut certain subjects do you take > the words as > > complete trues and or does it make you ahve an > uncertain of > peoples. > > Such as being honest in the past had trusted of > some peoples words > > because had met them in the real of life and they > were ever so > nice > > to me but these same people to telled me at one > point that > Kassianne > > was not of spectrum but of other things and it > triggered an > > uncertain and fear of her (kassi ) for a time this > was a time back > > Kassi not current. > > > > But since not ever really spend of time with Kassi > in the real of > > life could not be to say if she is of spectrum or > not but it has > > caused me to often have this triggered fear > (nothing personal > kassi > > but using this as example) and so it leaves a > strong lasting fear > of > > what is of true and what is not. And how can one > read the trues of > > another and or the lies of another. I to be to > feel as if missing > > big parts and lack what it is about me that does > not get it. Even > my > > fellow spectrum people I to be around at > conferneces and such all > > seem to get things that is of simply foreign to > me. > > > > It can be like metaphorically one hold up a blue > circle and > everyone > > sees it and is able to say that is of a blue > circle but my brain > > simply looks at it too but does not gain the same > information or > > timing as the rest. I to see it but it is as > though it does not > > register at all. I to not gain anything from to > look at it as > others > > might be to get by looking at dirty pebbles in the > road. useless > > information to me but others see it and begin to > share words of > hte > > blue circle and make much words to it and I ti > stand back > wondering > > why? > > > > I to also discovered about self for much of life I > to never really > > had Sondra words much of the words from my past > were of borrowed > > words and scripted words and so i to walked around > much of the day > > just echoing and many thinked oh sondra you are of > so smart and > > knowing of this and that. no not in the real I to > had no clue I to > > just echoed back the words. Echoing all the day > all the time just > > echo, echo echoing and never really haveing words > that comed from > > Sondra but also found too that Sondra comes in > many forms of words > > can imiate magazine words, news words, others > speakers words > echoing > > not just words but formats and styles of words. > but when in my own > > words my own stupid ways of being in words there > are of the truest > > expression of Sondra that comes deep from with my > heart. > > > > Yet I to feel I to be too complex of a person one > who is > complicated > > to explain and yet trying to not just discover > autism in me, but > > somethings more. trying to still define me. but > simply cant > because > > i to be ever so blind to even seeing self or to > have words to > > understand of self. And in true wish in all the > life of me that > was > > never to be born or exist in life but the fact I > to do is a cruel > > statement to have to be forced to live in word > where one cant be > to > > even have of an essence of her own being that is > of to feel like a > > true inner part of me. I ti feel as it not know > how to be or what > to > > be or how to go beyond self to see life as others > and cant tell > real > > or fake and cant be to know how to do things like > other no matter > > how hard i to try and even when trying to free > self and be of self > > get of told wrong for that too. > > > > I to be to still be stuck and cant feel anything > but stuck and > have > > been to try to clarify self and often in the doing > get so tangled > > into much other webs that i to not even see coming > and I to find > > trust everyone and things too much that cant tell > when one is > trying > > to do me harm instead of good. > > > > Kassi please to not take of it personal as I to be > to not be one > who > > can say yes or no to you in the dx but have that > fear not because > I > > alone to thinked it but because it was planted and > lack how to get > > planted thinkings out of my brain from others. I > to be in much > > honest to say I to have been to try now for a long > time and find > > over time have discovered a liking to you and less > fear to you and > > not here to make words to disoute of you dx at all > but confused by > > the words of some to say that and how to get those > words out of me > > and try to find the real of truth in anythings not > just this > sample > > but all samples. > > Sondra > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I'm just checking the board, can see lots of other responses, will read them before I post much back. I know for myself, sometimes it's easier to leave a board than to deal with the stress this person is causing you. I don't know which board but clearly these people either do not understand the hurt they cause you or they are without compassion. Either way, I wouldn't want to be around those kinds of people. I know how you feel about stress. I was just tonight feeling like my body is dying from the stress and helpless to fight the slow dying. And it's not a mindset of trying to think differently, it's a chemical process that seems to have a life of its own. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 If she's like that with you, imagine how sad her boys' lives are. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Kassi thanks to understand it was not a target to you but explaining in honest my confusions of what some say and what others say and not being able to know for sure. I to tend to be one who echoes and not have a clue for self because cant read or discover many things for self and this is of that barrier I to be discovering of self. I to mean no one any harm and try hard to be to say my words in respectful fashion. yet at times I to be to not have of words so echo them and it makes of me feel like a part of because words are flowing from me to others, but others think they are of my words and thinking and think of me to be smart in life too, yet in the real i to be just so much stupid to life and in words and such. Lately though so much rage has been just on the very surface of me and the agitations are so strong. the impulse to hit people , pinch them or flip of chairs and furniture is of strong in an impulsive reaction to people lately. I to be to think in the life of me I to be to hasd so much abuse and pains I to be to feel maybe the Sondra in me is now to the point of need to fight the pains away from me. I to be to feel like that trapped animal theory and striking back for fear of survival and yet all of life didnot have of bitter heart and took the abuses, the degrades, the insults and the pains were absorbed like a sponge because had no voice or inner way of knowing how to defend of self or keep self safe so just felt of powerless, voiceless and vulnerable to all in life as if the existance of me ahd no value after all that is what I to learned and people like this bully still teaches me causing me to retreat and to recoil within self to some degree and yet the building up is like a time bomb within me as if a volcano about to erupt and yet the heart ofme is not of one to strike out to hurt any but the impulses that are strong surging to me cause me to not even feel safe among my own thinking. I to know will not hurt of any in life because it is not a things in my nature but often because the rage gets so strong I to be to resort to direct angers to self because not know how to direct it anywhere else. I to use to work much into my written works and such but a few weeks ago in this rage I to be to destroyed of my work . i to destroyed all of the book I to be to had been working on called somebody feel my tears i to destroyed of and now frustrated and angry I to did this to my work but now in the heart of me never to feel motivated to rewrite of it or work on it. I to only have one small section of the book a few paragraphs I to had pulled out for a speaking event that was found amomg my speaking work book I to use . i to plan to share it here but only here and can not be shared off this list. I to be of sorry if my words ever to offended you in my honesty. Sondra Sondra In Autism_in_Girls , Kassi wrote: > > Sondra, > It makes me sad that you are so upset. And mad at > whoever did this, to make you feel so bad. > > And using me as an example was fine, I know I'm on the > spectrum, people who know me know Im on the spectrum, > I think Im up to 9 doctors now saying Im on the > spectrum...so I'm secure in that. A bit miffed that > people would lie about me, but that isn't your fault. > And willing to permit the idea that maybe they were > clueless about extroverted auties (we do exist!) and > went on that. > > PTSD is rough. It also affects all of us > differently-you get into depressions, I get angry but > learned to pretend a bit more because that avoided > some stuff, sometimes people even forget for years and > years what made them scared. Autism is complicated and > diverse enough without adding layers. > > I wish I could help you with your bully situation, or > at least help you feel better. > > Kassiane > > > --- sondra wrote: > > > Larua I to b eto have to go to my therapist today > > but will comment > > on posts later. i to think what hurts is this bully > > is among the > > autism community because she has of two sons who are > > of HFA and it > > is of scary that she cannot see the multiple complex > > ways autism can > > present itself and very little is known of autism > > itself but add the > > mix of severe abuse and trauma to the mix and you > > have of a very > > different complexing individual which is hard formy > > professionals to > > be to sift out what is autism cores realted to me > > and what is driven > > by the abuse and trauma under the PTSD. this woman > > often cycles my > > PTSD to cycle rapid to depressions and withdraw. she > > is not just > > mean but vicious and very degrading and hurtful and > > attacks with so > > much untrues it is of painful and I to be to have no > > clue how to > > escape her clutches once she begins. > > > > Sondra > > > > In Autism_in_Girls , " " > > <liquidc2@> wrote: > > > > > > Sondra, > > > > > > > > > > > > You sound as if you are tired. I understand > > because to be as > > complex as we > > > are and live in a world of completely different > > complexities, we > > become > > > weary and suspicious. I admit I too have spent > > the past few years > > intently > > > worried about WHAT I am, WHO am I supposed to be > > and WHY can't I > > fit in. I > > > would look at the circle too, Sondra, and I would > > not see blue. > > > > > > > > > > > > To see the world through autism's spectacles comes > > with tremendous > > and > > > numerous burdens that can become unbearable at > > times. But Sondra, > > we are so > > > spectacular that even the greatest of minds and > > the most advance > > science > > > cannot explain our mysteries. We are such gems in > > the world that > > there is > > > no comparison. Should a diamond be any less > > valuable just because > > there are > > > no other stones like it? Should an Emerald be of > > lesser beauty > > just because > > > it cannot be used to cut like the diamond? No and > > in fact their > > rareness > > > and individuality is what makes them so special. > > > > > > > > > > > > Some of the greatest mysteries in our world awe > > and inspire people > > everyday > > > not because of their descriptions and causes, but > > because of the > > impact of > > > their mystery upon people's minds. The Bermuda > > Triangle, the > > Oregon Vortex, > > > Atlantis. there are no proofs, no right answers to > > these > > phenomenons, yet it > > > spurs the imaginations of so many people to > > explore, learn and > > create. We > > > are one of the phenomenons of the human > > experience. We are people > > which awe > > > and inspire so many to want to know more about the > > beautiful human > > mind. > > > > > > > > > > > > This does not always ease our frustrations because > > there are > > always those > > > who in their ignorance fear us and therefore bully > > us. There will > > always be > > > those who fear phenomenon and therefore bash it, > > or hide from it. > > But we > > > have to learn, my dear friend, to not allow the > > small amount of > > ignorant > > > people to displace our hope, trust and belief in > > our world. > > According to a > > > poll, 71 % of Americans are interested in learning > > more about > > autism. That > > > means we cannot allow the other 29% who are too > > locked away inside > > their > > > fears to make us feel inferior. > > > > > > > > > > > > There is a song by Colvin " I never saw Blue > > like that " on > > the Runaway > > > Bride movie soundtrack. Try to find this song and > > listen to it. > > Tim, when > > > he and I first met, put this song on a CD for me. > > He told me that > > this song > > > described how I made him feel. Some of the words > > are: > > > > > > > > > > > > Today I took a walk up the street > > > And picked a flower and climbed the hill > > > Above the lake > > > > > > And secret thoughts were said aloud > > > We watched the faces in the clouds > > > Until the clouds had blown away > > > > > > And were we ever somewhere else > > > You know, it's hard to say > > > > > > And I never saw blue like that before > > > Across the sky > > > Around the world > > > You've given me all you have and more > > > And no one else has ever shown me how > > > To see the world the way I see it now > > > Oh, I, I never saw blue like that > > > > > > I can't believe a month ago > > > I was alone, I didn't know you > > > I hadn't seen or heard your name > > > And even now, I'm so amazed > > > It's like a dream, it's like a rainbow, it's like > > the rain > > > > > > And something's are the way they are > > > And words just can't explain > > > > > > And I never saw blue like that before... > > > > > > > > > > > > > > > > > > Tim was so intrigued by my view of the world that > > he felt his view > > of the > > > world was made brighter. I think that is what you > > are too, > > Sondra. Your > > > view of the world makes all of our views brighter. > > I only hope > > that someday > > > I have the honor of meeting you in person and > > spending time > > exchanging > > > thoughts. Truth is black and white, but people's > > perspective of > > that truth > > > is multicolored. People may think they are honest > > and speaking > > truths but > > > are mistaken, not because they are vicious, but > > because they are > > blind. > > > They have just never seen blue like that before. > > > > > > > > > > > > Believe in the truth within yourself. > > > > > > > > > > > > Nadine > > > > > > > > > > > > > > > > > > question to those on > > spectrum > > > > > > > > > > > > I to have a question to others on the spectrum , > > if you to hear > > > others words aobut certain subjects do you take > > the words as > > > complete trues and or does it make you ahve an > > uncertain of > > peoples. > > > Such as being honest in the past had trusted of > > some peoples words > > > because had met them in the real of life and they > > were ever so > > nice > > > to me but these same people to telled me at one > > point that > > Kassianne > > > was not of spectrum but of other things and it > > triggered an > > > uncertain and fear of her (kassi ) for a time this > > was a time back > > > Kassi not current. > > > > > > But since not ever really spend of time with Kassi > > in the real of > > > life could not be to say if she is of spectrum or > > not but it has > > > caused me to often have this triggered fear > > (nothing personal > > kassi > > > but using this as example) and so it leaves a > > strong lasting fear > > of > > > what is of true and what is not. And how can one > > read the trues of > > > another and or the lies of another. I to be to > > feel as if missing > > > big parts and lack what it is about me that does > > not get it. Even > > my > > > fellow spectrum people I to be around at > > conferneces and such all > > > seem to get things that is of simply foreign to > > me. > > > > > > It can be like metaphorically one hold up a blue > > circle and > > everyone > > > sees it and is able to say that is of a blue > > circle but my brain > > > simply looks at it too but does not gain the same > > information or > > > timing as the rest. I to see it but it is as > > though it does not > > > register at all. I to not gain anything from to > > look at it as > > others > > > might be to get by looking at dirty pebbles in the > > road. useless > > > information to me but others see it and begin to > > share words of > > hte > > > blue circle and make much words to it and I ti > > stand back > > wondering > > > why? > > > > > > I to also discovered about self for much of life I > > to never really > > > had Sondra words much of the words from my past > > were of borrowed > > > words and scripted words and so i to walked around > > much of the day > > > just echoing and many thinked oh sondra you are of > > so smart and > > > knowing of this and that. no not in the real I to > > had no clue I to > > > just echoed back the words. Echoing all the day > > all the time just > > > echo, echo echoing and never really haveing words > > that comed from > > > Sondra but also found too that Sondra comes in > > many forms of words > > > can imiate magazine words, news words, others > > speakers words > > echoing > > > not just words but formats and styles of words. > > but when in my own > > > words my own stupid ways of being in words there > > are of the truest > > > expression of Sondra that comes deep from with my > > heart. > > > > > > Yet I to feel I to be too complex of a person one > > who is > > complicated > > > to explain and yet trying to not just discover > > autism in me, but > > > somethings more. trying to still define me. but > > simply cant > > because > > > i to be ever so blind to even seeing self or to > > have words to > > > understand of self. And in true wish in all the > > life of me that > > was > > > never to be born or exist in life but the fact I > > to do is a cruel > > > statement to have to be forced to live in word > > where one cant be > > to > > > even have of an essence of her own being that is > > of to feel like a > > > true inner part of me. I ti feel as it not know > > how to be or what > > to > > > be or how to go beyond self to see life as others > > and cant tell > > real > > > or fake and cant be to know how to do things like > > other no matter > > > how hard i to try and even when trying to free > > self and be of self > > > get of told wrong for that too. > > > > > > I to be to still be stuck and cant feel anything > > but stuck and > > have > > > been to try to clarify self and often in the doing > > get so tangled > > > into much other webs that i to not even see coming > > and I to find > > > trust everyone and things too much that cant tell > > when one is > > trying > > > to do me harm instead of good. > > > > > > Kassi please to not take of it personal as I to be > > to not be one > > who > > > can say yes or no to you in the dx but have that > > fear not because > > I > > > alone to thinked it but because it was planted and > > lack how to get > > > planted thinkings out of my brain from others. I > > to be in much > > > honest to say I to have been to try now for a long > > time and find > > > over time have discovered a liking to you and less > > fear to you and > > > not here to make words to disoute of you dx at all > > but confused by > > > the words of some to say that and how to get those > > words out of me > > > and try to find the real of truth in anythings not > > just this > > sample > > > but all samples. > > > Sondra > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Debbie this is of the 3rd list she has done this too, two other list she was banned from , well one was for sure she was of banned but the other list not sure but I to no she in not on that list anymoe as the moderator of that list invited me to come back and assured me she was no longer there so felt safe to return but cautious too of my words. My reasons for being on some of the lists is to be to do advocacy work and to teach like i to do here. Sondra In Autism_in_Girls , " Debi " wrote: > > I'm just checking the board, can see lots of other responses, will > read them before I post much back. I know for myself, sometimes it's > easier to leave a board than to deal with the stress this person is > causing you. I don't know which board but clearly these people either > do not understand the hurt they cause you or they are without > compassion. Either way, I wouldn't want to be around those kinds of > people. > > I know how you feel about stress. I was just tonight feeling like my > body is dying from the stress and helpless to fight the slow dying. > And it's not a mindset of trying to think differently, it's a chemical > process that seems to have a life of its own. > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 yes very tired emotionally and physically. Sondra In Autism_in_Girls , " " wrote: > > Sondra, > > > > You sound as if you are tired. I understand because to be as complex as we > are and live in a world of completely different complexities, we become > weary and suspicious. I admit I too have spent the past few years intently > worried about WHAT I am, WHO am I supposed to be and WHY can't I fit in. I > would look at the circle too, Sondra, and I would not see blue. > > > > To see the world through autism's spectacles comes with tremendous and > numerous burdens that can become unbearable at times. But Sondra, we are so > spectacular that even the greatest of minds and the most advance science > cannot explain our mysteries. We are such gems in the world that there is > no comparison. Should a diamond be any less valuable just because there are > no other stones like it? Should an Emerald be of lesser beauty just because > it cannot be used to cut like the diamond? No and in fact their rareness > and individuality is what makes them so special. > > > > Some of the greatest mysteries in our world awe and inspire people everyday > not because of their descriptions and causes, but because of the impact of > their mystery upon people's minds. The Bermuda Triangle, the Oregon Vortex, > Atlantis. there are no proofs, no right answers to these phenomenons, yet it > spurs the imaginations of so many people to explore, learn and create. We > are one of the phenomenons of the human experience. We are people which awe > and inspire so many to want to know more about the beautiful human mind. > > > > This does not always ease our frustrations because there are always those > who in their ignorance fear us and therefore bully us. There will always be > those who fear phenomenon and therefore bash it, or hide from it. But we > have to learn, my dear friend, to not allow the small amount of ignorant > people to displace our hope, trust and belief in our world. According to a > poll, 71 % of Americans are interested in learning more about autism. That > means we cannot allow the other 29% who are too locked away inside their > fears to make us feel inferior. > > > > There is a song by Colvin " I never saw Blue like that " on the Runaway > Bride movie soundtrack. Try to find this song and listen to it. Tim, when > he and I first met, put this song on a CD for me. He told me that this song > described how I made him feel. Some of the words are: > > > > Today I took a walk up the street > And picked a flower and climbed the hill > Above the lake > > And secret thoughts were said aloud > We watched the faces in the clouds > Until the clouds had blown away > > And were we ever somewhere else > You know, it's hard to say > > And I never saw blue like that before > Across the sky > Around the world > You've given me all you have and more > And no one else has ever shown me how > To see the world the way I see it now > Oh, I, I never saw blue like that > > I can't believe a month ago > I was alone, I didn't know you > I hadn't seen or heard your name > And even now, I'm so amazed > It's like a dream, it's like a rainbow, it's like the rain > > And something's are the way they are > And words just can't explain > > And I never saw blue like that before... > > > > > > Tim was so intrigued by my view of the world that he felt his view of the > world was made brighter. I think that is what you are too, Sondra. Your > view of the world makes all of our views brighter. I only hope that someday > I have the honor of meeting you in person and spending time exchanging > thoughts. Truth is black and white, but people's perspective of that truth > is multicolored. People may think they are honest and speaking truths but > are mistaken, not because they are vicious, but because they are blind. > They have just never seen blue like that before. > > > > Believe in the truth within yourself. > > > > Nadine > > > > > > question to those on spectrum > > > > I to have a question to others on the spectrum , if you to hear > others words aobut certain subjects do you take the words as > complete trues and or does it make you ahve an uncertain of peoples. > Such as being honest in the past had trusted of some peoples words > because had met them in the real of life and they were ever so nice > to me but these same people to telled me at one point that Kassianne > was not of spectrum but of other things and it triggered an > uncertain and fear of her (kassi ) for a time this was a time back > Kassi not current. > > But since not ever really spend of time with Kassi in the real of > life could not be to say if she is of spectrum or not but it has > caused me to often have this triggered fear (nothing personal kassi > but using this as example) and so it leaves a strong lasting fear of > what is of true and what is not. And how can one read the trues of > another and or the lies of another. I to be to feel as if missing > big parts and lack what it is about me that does not get it. Even my > fellow spectrum people I to be around at conferneces and such all > seem to get things that is of simply foreign to me. > > It can be like metaphorically one hold up a blue circle and everyone > sees it and is able to say that is of a blue circle but my brain > simply looks at it too but does not gain the same information or > timing as the rest. I to see it but it is as though it does not > register at all. I to not gain anything from to look at it as others > might be to get by looking at dirty pebbles in the road. useless > information to me but others see it and begin to share words of hte > blue circle and make much words to it and I ti stand back wondering > why? > > I to also discovered about self for much of life I to never really > had Sondra words much of the words from my past were of borrowed > words and scripted words and so i to walked around much of the day > just echoing and many thinked oh sondra you are of so smart and > knowing of this and that. no not in the real I to had no clue I to > just echoed back the words. Echoing all the day all the time just > echo, echo echoing and never really haveing words that comed from > Sondra but also found too that Sondra comes in many forms of words > can imiate magazine words, news words, others speakers words echoing > not just words but formats and styles of words. but when in my own > words my own stupid ways of being in words there are of the truest > expression of Sondra that comes deep from with my heart. > > Yet I to feel I to be too complex of a person one who is complicated > to explain and yet trying to not just discover autism in me, but > somethings more. trying to still define me. but simply cant because > i to be ever so blind to even seeing self or to have words to > understand of self. And in true wish in all the life of me that was > never to be born or exist in life but the fact I to do is a cruel > statement to have to be forced to live in word where one cant be to > even have of an essence of her own being that is of to feel like a > true inner part of me. I ti feel as it not know how to be or what to > be or how to go beyond self to see life as others and cant tell real > or fake and cant be to know how to do things like other no matter > how hard i to try and even when trying to free self and be of self > get of told wrong for that too. > > I to be to still be stuck and cant feel anything but stuck and have > been to try to clarify self and often in the doing get so tangled > into much other webs that i to not even see coming and I to find > trust everyone and things too much that cant tell when one is trying > to do me harm instead of good. > > Kassi please to not take of it personal as I to be to not be one who > can say yes or no to you in the dx but have that fear not because I > alone to thinked it but because it was planted and lack how to get > planted thinkings out of my brain from others. I to be in much > honest to say I to have been to try now for a long time and find > over time have discovered a liking to you and less fear to you and > not here to make words to disoute of you dx at all but confused by > the words of some to say that and how to get those words out of me > and try to find the real of truth in anythings not just this sample > but all samples. > Sondra > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Sondra, I can't help but wonder if having your beautiful Delaney might be adding to your stress. I've been amazed that you've seemed to calm during the birth and having a new baby in the house, esp since your daughter is young and in her circumstances. You think maybe that is adding to your angry feelings? It would be very normal for you to have angry feelings in such a situation. because you love her so deeply and your daughter, you might not be aware that the worry feelings are there. I don't know for sure, if I'm wrong, please forgive me for suggesting. I know my best friend had a baby at 21, she was a single mom and moved back in with her mom. They had some rough times those first couple of years after baby was born. At the time they didn't even realize it was his birth that was the trigger because they both loved him so much, but looking back they were able to see all the worry they had for each other and baby was a large part of it. As to the other board, if the board is making you miserable because of this lady, you should take care of yourself first. There is nothing wrong with stepping back. Those who you help, and you certainly help all of us with your wisdom and words, should not get help at the benefit of your mind and body health, at least in my opinion. I know I would not want you to suffer for me, I would be much happier to know you are feeling good. If they won't reign in this lady, they don't deserve you. You are worth much above that. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 >> Such as the > ABAers feel that ABA is the only option for thems child, (it is not > but it is the only one with science to back the theory and i to > agree it is one effective approach if it is a GOOD run ABA program > that allows dignity to be a priority of the child) And i to feel > this thinking is correct, > > but if I to read things of RDI another of my favorite approaches I > to find its words to be very true and right as well, but the RDI > people often do not have much good to say about ABA and the ABAers > have little good to say about RDI and it leaves me unsure of my own > to evalauate which is of true and or is my own assumptions of the > fact that both can be of good and both can be combined with very > good skills and imagination of how to combine both so the child > learns. But usually both sets the RDI and the ABAers are in complete > disagree that they can or should be combined. > Sondra, I just wanted to let you know, not all us ABAers are anti-RDI. Actually the company I work for, although we are an ABA company, STRONGLY supports the use of RDI in combination with our data based ABA program. One of my supervisors did an RDI training workshop and helps the rest of us use RDI approaches for many of our lessons and especially for parent training. Personally I don't believe there is any one " right " way for everyone, every person responds differently to different teaching methods, and in my experience, a combination of methods and interventions are much more effective than trying to stick to any one person's program. You can't force a kid to fit a program, the program has to be altered to fit the child. Anyway, I just wanted you to know there are people who agree with you that they can be combined, and also tell you, no one has all the answers, no matter how well they may be able to present their arguement. Amnesty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Thank you for the compliment. It feels good to have nice words. Nadine question to those on spectrum > > > > I to have a question to others on the spectrum , if you to hear > others words aobut certain subjects do you take the words as > complete trues and or does it make you ahve an uncertain of peoples. > Such as being honest in the past had trusted of some peoples words > because had met them in the real of life and they were ever so nice > to me but these same people to telled me at one point that Kassianne > was not of spectrum but of other things and it triggered an > uncertain and fear of her (kassi ) for a time this was a time back > Kassi not current. > > But since not ever really spend of time with Kassi in the real of > life could not be to say if she is of spectrum or not but it has > caused me to often have this triggered fear (nothing personal kassi > but using this as example) and so it leaves a strong lasting fear of > what is of true and what is not. And how can one read the trues of > another and or the lies of another. I to be to feel as if missing > big parts and lack what it is about me that does not get it. Even my > fellow spectrum people I to be around at conferneces and such all > seem to get things that is of simply foreign to me. > > It can be like metaphorically one hold up a blue circle and everyone > sees it and is able to say that is of a blue circle but my brain > simply looks at it too but does not gain the same information or > timing as the rest. I to see it but it is as though it does not > register at all. I to not gain anything from to look at it as others > might be to get by looking at dirty pebbles in the road. useless > information to me but others see it and begin to share words of hte > blue circle and make much words to it and I ti stand back wondering > why? > > I to also discovered about self for much of life I to never really > had Sondra words much of the words from my past were of borrowed > words and scripted words and so i to walked around much of the day > just echoing and many thinked oh sondra you are of so smart and > knowing of this and that. no not in the real I to had no clue I to > just echoed back the words. Echoing all the day all the time just > echo, echo echoing and never really haveing words that comed from > Sondra but also found too that Sondra comes in many forms of words > can imiate magazine words, news words, others speakers words echoing > not just words but formats and styles of words. but when in my own > words my own stupid ways of being in words there are of the truest > expression of Sondra that comes deep from with my heart. > > Yet I to feel I to be too complex of a person one who is complicated > to explain and yet trying to not just discover autism in me, but > somethings more. trying to still define me. but simply cant because > i to be ever so blind to even seeing self or to have words to > understand of self. And in true wish in all the life of me that was > never to be born or exist in life but the fact I to do is a cruel > statement to have to be forced to live in word where one cant be to > even have of an essence of her own being that is of to feel like a > true inner part of me. I ti feel as it not know how to be or what to > be or how to go beyond self to see life as others and cant tell real > or fake and cant be to know how to do things like other no matter > how hard i to try and even when trying to free self and be of self > get of told wrong for that too. > > I to be to still be stuck and cant feel anything but stuck and have > been to try to clarify self and often in the doing get so tangled > into much other webs that i to not even see coming and I to find > trust everyone and things too much that cant tell when one is trying > to do me harm instead of good. > > Kassi please to not take of it personal as I to be to not be one who > can say yes or no to you in the dx but have that fear not because I > alone to thinked it but because it was planted and lack how to get > planted thinkings out of my brain from others. I to be in much > honest to say I to have been to try now for a long time and find > over time have discovered a liking to you and less fear to you and > not here to make words to disoute of you dx at all but confused by > the words of some to say that and how to get those words out of me > and try to find the real of truth in anythings not just this sample > but all samples. > Sondra > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 I have some more to say but I first need to know.what does PTSD mean and what is it? question to those on spectrum > > > > I to have a question to others on the spectrum , if you to hear > others words aobut certain subjects do you take the words as > complete trues and or does it make you ahve an uncertain of peoples. > Such as being honest in the past had trusted of some peoples words > because had met them in the real of life and they were ever so nice > to me but these same people to telled me at one point that Kassianne > was not of spectrum but of other things and it triggered an > uncertain and fear of her (kassi ) for a time this was a time back > Kassi not current. > > But since not ever really spend of time with Kassi in the real of > life could not be to say if she is of spectrum or not but it has > caused me to often have this triggered fear (nothing personal kassi > but using this as example) and so it leaves a strong lasting fear of > what is of true and what is not. And how can one read the trues of > another and or the lies of another. I to be to feel as if missing > big parts and lack what it is about me that does not get it. Even my > fellow spectrum people I to be around at conferneces and such all > seem to get things that is of simply foreign to me. > > It can be like metaphorically one hold up a blue circle and everyone > sees it and is able to say that is of a blue circle but my brain > simply looks at it too but does not gain the same information or > timing as the rest. I to see it but it is as though it does not > register at all. I to not gain anything from to look at it as others > might be to get by looking at dirty pebbles in the road. useless > information to me but others see it and begin to share words of hte > blue circle and make much words to it and I ti stand back wondering > why? > > I to also discovered about self for much of life I to never really > had Sondra words much of the words from my past were of borrowed > words and scripted words and so i to walked around much of the day > just echoing and many thinked oh sondra you are of so smart and > knowing of this and that. no not in the real I to had no clue I to > just echoed back the words. Echoing all the day all the time just > echo, echo echoing and never really haveing words that comed from > Sondra but also found too that Sondra comes in many forms of words > can imiate magazine words, news words, others speakers words echoing > not just words but formats and styles of words. but when in my own > words my own stupid ways of being in words there are of the truest > expression of Sondra that comes deep from with my heart. > > Yet I to feel I to be too complex of a person one who is complicated > to explain and yet trying to not just discover autism in me, but > somethings more. trying to still define me. but simply cant because > i to be ever so blind to even seeing self or to have words to > understand of self. And in true wish in all the life of me that was > never to be born or exist in life but the fact I to do is a cruel > statement to have to be forced to live in word where one cant be to > even have of an essence of her own being that is of to feel like a > true inner part of me. I ti feel as it not know how to be or what to > be or how to go beyond self to see life as others and cant tell real > or fake and cant be to know how to do things like other no matter > how hard i to try and even when trying to free self and be of self > get of told wrong for that too. > > I to be to still be stuck and cant feel anything but stuck and have > been to try to clarify self and often in the doing get so tangled > into much other webs that i to not even see coming and I to find > trust everyone and things too much that cant tell when one is trying > to do me harm instead of good. > > Kassi please to not take of it personal as I to be to not be one who > can say yes or no to you in the dx but have that fear not because I > alone to thinked it but because it was planted and lack how to get > planted thinkings out of my brain from others. I to be in much > honest to say I to have been to try now for a long time and find > over time have discovered a liking to you and less fear to you and > not here to make words to disoute of you dx at all but confused by > the words of some to say that and how to get those words out of me > and try to find the real of truth in anythings not just this sample > but all samples. > Sondra > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 PTSD is of this post traumatic stress disorder is of a result of people who experiences traumas such as violence, rapes, attackes or even earlthy disasters and or war veterans and victims. Many soldiers of nam were to return of home with this sounds words and smells can tigger the reliving of the past traumas. so for me due to past things of severe issues I to get easily triggered by many sensory inputs and it cycles me rapidly to the fight or flight modes. it is a horrible things to have and for me it is intermeshed with my auitsm so tighly it is hard to see which is causing me to react the autism or the PTSD it is hard to sift out and each has a much different appoach one cant treat PTSD in the same fahions one does autism as it does notwork that way. one is neurological and one is of mental disorder caused by enviroment. So due to past history of me to have been locked away in adult wards of mentally ill people being injected, restrained and locked into small cell rooms increased my fear of people. being of raped repeatedly since age of 9-13 also produced a severe fear of people and a almost paranoid reaction to watching people for any signals of danger almost to the point of being to reactional if I to get any signals that register to me as a negative energy. I to know though my issues with the PTSD were severe 5 years ago but now are more under my control now through therapy. But i to still get triggered easily . sudden changes of peoples words or actions can trigger it to me because since cant read thems body langauge and or facial expression I can be to pick up the slightes subtle change in their presentation and it triggers it to me. Anger directed in any fashion will be to trigger me rapidly because it shouts not safe to me inside. So autism is not my only challenge in life i to have to learn to cope with and understand but i to have to understand much more of how my triggers affect my outcomes in the PTSD and have to try hard to see which is consuming me the autism and or the PTSD in all my reactions and that is not a easy things for me to sift out. Sondra In Autism_in_Girls , " " wrote: > > I have some more to say but I first need to know.what does PTSD mean and > what is it? > > > > > > > > question to those on spectrum > > > > > > > > I to have a question to others on the spectrum , if you to hear > > others words aobut certain subjects do you take the words as > > complete trues and or does it make you ahve an uncertain of > peoples. > > Such as being honest in the past had trusted of some peoples words > > because had met them in the real of life and they were ever so > nice > > to me but these same people to telled me at one point that > Kassianne > > was not of spectrum but of other things and it triggered an > > uncertain and fear of her (kassi ) for a time this was a time back > > Kassi not current. > > > > But since not ever really spend of time with Kassi in the real of > > life could not be to say if she is of spectrum or not but it has > > caused me to often have this triggered fear (nothing personal > kassi > > but using this as example) and so it leaves a strong lasting fear > of > > what is of true and what is not. And how can one read the trues of > > another and or the lies of another. I to be to feel as if missing > > big parts and lack what it is about me that does not get it. Even > my > > fellow spectrum people I to be around at conferneces and such all > > seem to get things that is of simply foreign to me. > > > > It can be like metaphorically one hold up a blue circle and > everyone > > sees it and is able to say that is of a blue circle but my brain > > simply looks at it too but does not gain the same information or > > timing as the rest. I to see it but it is as though it does not > > register at all. I to not gain anything from to look at it as > others > > might be to get by looking at dirty pebbles in the road. useless > > information to me but others see it and begin to share words of > hte > > blue circle and make much words to it and I ti stand back > wondering > > why? > > > > I to also discovered about self for much of life I to never really > > had Sondra words much of the words from my past were of borrowed > > words and scripted words and so i to walked around much of the day > > just echoing and many thinked oh sondra you are of so smart and > > knowing of this and that. no not in the real I to had no clue I to > > just echoed back the words. Echoing all the day all the time just > > echo, echo echoing and never really haveing words that comed from > > Sondra but also found too that Sondra comes in many forms of words > > can imiate magazine words, news words, others speakers words > echoing > > not just words but formats and styles of words. but when in my own > > words my own stupid ways of being in words there are of the truest > > expression of Sondra that comes deep from with my heart. > > > > Yet I to feel I to be too complex of a person one who is > complicated > > to explain and yet trying to not just discover autism in me, but > > somethings more. trying to still define me. but simply cant > because > > i to be ever so blind to even seeing self or to have words to > > understand of self. And in true wish in all the life of me that > was > > never to be born or exist in life but the fact I to do is a cruel > > statement to have to be forced to live in word where one cant be > to > > even have of an essence of her own being that is of to feel like a > > true inner part of me. I ti feel as it not know how to be or what > to > > be or how to go beyond self to see life as others and cant tell > real > > or fake and cant be to know how to do things like other no matter > > how hard i to try and even when trying to free self and be of self > > get of told wrong for that too. > > > > I to be to still be stuck and cant feel anything but stuck and > have > > been to try to clarify self and often in the doing get so tangled > > into much other webs that i to not even see coming and I to find > > trust everyone and things too much that cant tell when one is > trying > > to do me harm instead of good. > > > > Kassi please to not take of it personal as I to be to not be one > who > > can say yes or no to you in the dx but have that fear not because > I > > alone to thinked it but because it was planted and lack how to get > > planted thinkings out of my brain from others. I to be in much > > honest to say I to have been to try now for a long time and find > > over time have discovered a liking to you and less fear to you and > > not here to make words to disoute of you dx at all but confused by > > the words of some to say that and how to get those words out of me > > and try to find the real of truth in anythings not just this > sample > > but all samples. > > Sondra > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 I understand the stress. I was raped too and I have been abused physically and emotionally. I saw my neighbor choke to death on a toy when I was 3. I was bullied in school. I think these fears I have developed from these traumas are responsible for destroying my marriage. I wish I knew how to manage this but all I can say is I understand your fears and feel for you. My tears fall hard for you. I wish I know what to say. I wish I knew what to say. I must think now. Nadine question to those on spectrum > > > > > > > > I to have a question to others on the spectrum , if you to hear > > others words aobut certain subjects do you take the words as > > complete trues and or does it make you ahve an uncertain of > peoples. > > Such as being honest in the past had trusted of some peoples words > > because had met them in the real of life and they were ever so > nice > > to me but these same people to telled me at one point that > Kassianne > > was not of spectrum but of other things and it triggered an > > uncertain and fear of her (kassi ) for a time this was a time back > > Kassi not current. > > > > But since not ever really spend of time with Kassi in the real of > > life could not be to say if she is of spectrum or not but it has > > caused me to often have this triggered fear (nothing personal > kassi > > but using this as example) and so it leaves a strong lasting fear > of > > what is of true and what is not. And how can one read the trues of > > another and or the lies of another. I to be to feel as if missing > > big parts and lack what it is about me that does not get it. Even > my > > fellow spectrum people I to be around at conferneces and such all > > seem to get things that is of simply foreign to me. > > > > It can be like metaphorically one hold up a blue circle and > everyone > > sees it and is able to say that is of a blue circle but my brain > > simply looks at it too but does not gain the same information or > > timing as the rest. I to see it but it is as though it does not > > register at all. I to not gain anything from to look at it as > others > > might be to get by looking at dirty pebbles in the road. useless > > information to me but others see it and begin to share words of > hte > > blue circle and make much words to it and I ti stand back > wondering > > why? > > > > I to also discovered about self for much of life I to never really > > had Sondra words much of the words from my past were of borrowed > > words and scripted words and so i to walked around much of the day > > just echoing and many thinked oh sondra you are of so smart and > > knowing of this and that. no not in the real I to had no clue I to > > just echoed back the words. Echoing all the day all the time just > > echo, echo echoing and never really haveing words that comed from > > Sondra but also found too that Sondra comes in many forms of words > > can imiate magazine words, news words, others speakers words > echoing > > not just words but formats and styles of words. but when in my own > > words my own stupid ways of being in words there are of the truest > > expression of Sondra that comes deep from with my heart. > > > > Yet I to feel I to be too complex of a person one who is > complicated > > to explain and yet trying to not just discover autism in me, but > > somethings more. trying to still define me. but simply cant > because > > i to be ever so blind to even seeing self or to have words to > > understand of self. And in true wish in all the life of me that > was > > never to be born or exist in life but the fact I to do is a cruel > > statement to have to be forced to live in word where one cant be > to > > even have of an essence of her own being that is of to feel like a > > true inner part of me. I ti feel as it not know how to be or what > to > > be or how to go beyond self to see life as others and cant tell > real > > or fake and cant be to know how to do things like other no matter > > how hard i to try and even when trying to free self and be of self > > get of told wrong for that too. > > > > I to be to still be stuck and cant feel anything but stuck and > have > > been to try to clarify self and often in the doing get so tangled > > into much other webs that i to not even see coming and I to find > > trust everyone and things too much that cant tell when one is > trying > > to do me harm instead of good. > > > > Kassi please to not take of it personal as I to be to not be one > who > > can say yes or no to you in the dx but have that fear not because > I > > alone to thinked it but because it was planted and lack how to get > > planted thinkings out of my brain from others. I to be in much > > honest to say I to have been to try now for a long time and find > > over time have discovered a liking to you and less fear to you and > > not here to make words to disoute of you dx at all but confused by > > the words of some to say that and how to get those words out of me > > and try to find the real of truth in anythings not just this > sample > > but all samples. > > Sondra > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 The neighbor choking would be AWFUL. I, too was raped but didn't remember for YEARS because of repeated hypnosis. I do remember the physical and emotional abuse from my parents and peers, and recently started remembering the spiritual abuse. The worst was the " I'm doing this for your own good " cruelty. PSTD is at a near 100% level in adult autistics. A terrifying percentage of autistic women will be sexually abused at some time in their lives. Autistic men aren't immune either. It's scary and bad and needs to stop. And it's hard to talk about it all, makes things more complicated, interferes with all sorts of life things. It makes it harder to " shake things off " , creates doubt-especially emotional abuse...sexual abuse creates shame... Sondra, you are one of the strongest people I know. Fear and doubt don't make you weak or less brave, just human. , I don't know you very well, but you seem like a very strong woman as well, and you have a beautiful way with words. I admire you both, and look up to you. You give me hope that I, too, can fight through. Thank you, both of you, for being here and for beng yourselves. Kassiane --- wrote: > I understand the stress. I was raped too and I have > been abused physically > and emotionally. I saw my neighbor choke to death > on a toy when I was 3. I > was bullied in school. I think these fears I have > developed from these > traumas are responsible for destroying my marriage. > I wish I knew how to > manage this but all I can say is I understand your > fears and feel for you. > > > > My tears fall hard for you. I wish I know what to > say. I wish I knew what > to say. I must think now. > > > > Nadine > > > > question to those on > spectrum > > > > > > > > > > > > I to have a question to others on the spectrum , > if you to hear > > > others words aobut certain subjects do you take > the words as > > > complete trues and or does it make you ahve an > uncertain of > > peoples. > > > Such as being honest in the past had trusted of > some peoples > words > > > because had met them in the real of life and > they were ever so > > nice > > > to me but these same people to telled me at one > point that > > Kassianne > > > was not of spectrum but of other things and it > triggered an > > > uncertain and fear of her (kassi ) for a time > this was a time > back > > > Kassi not current. > > > > > > But since not ever really spend of time with > Kassi in the real > of > > > life could not be to say if she is of spectrum > or not but it has > > > caused me to often have this triggered fear > (nothing personal > > kassi > > > but using this as example) and so it leaves a > strong lasting > fear > > of > > > what is of true and what is not. And how can one > read the trues > of > > > another and or the lies of another. I to be to > feel as if > missing > > > big parts and lack what it is about me that does > not get it. > Even > > my > > > fellow spectrum people I to be around at > conferneces and such > all > > > seem to get things that is of simply foreign to > me. > > > > > > It can be like metaphorically one hold up a blue > circle and > > everyone > > > sees it and is able to say that is of a blue > circle but my brain > > > simply looks at it too but does not gain the > same information or > > > timing as the rest. I to see it but it is as > though it does not > > > register at all. I to not gain anything from to > look at it as > > others > > > might be to get by looking at dirty pebbles in > the road. useless > > > information to me but others see it and begin to > share words of > > hte > > > blue circle and make much words to it and I ti > stand back > > wondering > > > why? > > > > > > I to also discovered about self for much of life > I to never > really > > > had Sondra words much of the words from my past > were of borrowed > > > words and scripted words and so i to walked > around much of the > day > > > just echoing and many thinked oh sondra you are > of so smart and > > > knowing of this and that. no not in the real I > to had no clue I > to > > > just echoed back the words. Echoing all the day > all the time > just > > > echo, echo echoing and never really haveing > words that comed > from > > > Sondra but also found too that Sondra comes in > many forms of > words > > > can imiate magazine words, news words, others > speakers words > > echoing > > > not just words but formats and styles of words. > but when in my > own > > > words my own stupid ways of being in words there > are of the > truest > > > expression of Sondra that comes deep from with > my heart. > > > > > > Yet I to feel I to be too complex of a person > one who is > > complicated > > > to explain and yet trying to not just discover > autism in me, but > > > somethings more. trying to still define me. but > simply cant > > because > > > i to be ever so blind to even seeing self or to > have words to > > > understand of self. And in true wish in all the > life of me that > > was > > > never to be born or exist in life but the fact I > to do is a > cruel > > > statement to have to be forced to live in word > where one cant be > > to > > > even have of an essence of her own being that is > of to feel like > a > > > true inner part of me. I ti feel as it not know > how to be or > what > > to > > > be or how to go beyond self to see life as > others and cant tell > > real > > > or fake and cant be to know how to do things > like other no > matter > > > how hard i to try and even when trying to free > self and be of > self > > > get of told wrong for that too. > > > > > > I to be to still be stuck and cant feel anything > but stuck and > > have > > > been to try to clarify self and often in the > doing get so > tangled > > > into much other webs that i to not even see > coming and I to find > > > trust everyone and things too much that cant > tell when one is > > trying > > > to do me harm instead of good. > > > > > > Kassi please to not take of it personal as I to > be to not be one > > who > > > can say yes or no to you in the dx but have that > fear not > because > > I > > > alone to thinked it but because it was planted > and lack how to > get > > > planted thinkings out of my brain from others. I > to be in much > > > honest to say I to have been to try now for a > long time and find > > > over time have discovered a liking to you and > less fear to you > and > > > not here to make words to disoute of you dx at > all but confused > by > > > the words of some to say that and how to get > those words out of > me > > > and try to find the real of truth in anythings > not just this > > sample > > > but all samples. > > > Sondra > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 How would those of you on spectrum suggest we keep our girls safe from sexual abuse? I was molested when I was 7, so I'm keenly aware of men/boys around my girls. I seek to protect them by pretty much only allowing their grandmother to babysit. Grandfather is there, too, but I know he's a safe person. When we are around older cousins, and I do have great nephews, I always keep an eye on them all. We have no boys in the neighborhood with whom they play, so that's not an issue, either. Still, middle/high school terrifies me. I know the students can always find a nook or closet where no one will be around. I also know that's when boys will start having all their desires and Allie could easily become a target. Because of my past history, I think I would go insane if anyone were to ever touch my girls. Any advice? Debi - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 I am naive when it comes to trusting people so I am not sure what to look for. Plus most of what happened to me happened after age 14. I would say be open about talking about the subject. Make sure your girls know that they are never OBLIGATED to give sex, even if it is their boyfriend or husband. Teach them sex is mutual an experience to share. It is a PRIVLEDGE for a man to enter a woman, not the other way around. Teach them if anyone ever touches them that makes them uncomfortable, to tell a trusted adult. My parents used to say that rape was partly the woman's fault for " provoking " them. This is wrong, wrong, wrong. A man needs to exercise self control which is is capable of doing. Rape is not always an act of violence, but an invasion of a woman's sexuality mentally, physically or emotionally. Make that clear to your girls. It doesn't have to end bloody to constitute as rape. My view. Nadine Re: question to those on spectrum How would those of you on spectrum suggest we keep our girls safe from sexual abuse? I was molested when I was 7, so I'm keenly aware of men/boys around my girls. I seek to protect them by pretty much only allowing their grandmother to babysit. Grandfather is there, too, but I know he's a safe person. When we are around older cousins, and I do have great nephews, I always keep an eye on them all. We have no boys in the neighborhood with whom they play, so that's not an issue, either. Still, middle/high school terrifies me. I know the students can always find a nook or closet where no one will be around. I also know that's when boys will start having all their desires and Allie could easily become a target. Because of my past history, I think I would go insane if anyone were to ever touch my girls. Any advice? Debi - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Always keep an eye on your children, even if they are old enough to tell you. When they are young they are easily persuaded not to tell and may not tell you even if you have told them to (verbal children that is) and those who can not tell you, of course you need to keep an even closer eye on them as protection. Honestly, when I was 7 years old, we (my three sisters and I ages 9, 6, and 4) were playing outside in my grandparents yard and there was a little neighbor girl on the other side of the fence who looked sad. I came and asked her what was wrong, she started to tell me and her dad (a very large polynesian man) came over to the fence and told her to shut up. I could tell he was mean, but I don't know what I was thinking, I thought I was safe, because there was a fence. But When the dad walked off for a second I kept talking to her. The next thing I knew he came over and was acting all nice and asking me questions and stuff and then he said, why don't you come over here and play with my daughter. I said " No thankyou and my mom and dad wouldn't like it, but she could come play with me " . He said that she had really fun toys and that I would really like them, the little girl never said a word, just held herarms and held her head down. I said no like three times and then the man reached over the fence and grabbed me. He picked me up as if I was a feather, I only weighed like 30 pounds or so then. Then he brought me in his house. Honestly this entire time, no one paid any attention to me, or where I was. Not my sisters, my parents, my grandparents. I remember I told him that I wanted to go home and he brought me to his daughters room, there was a matress on the floor and sliding glass mirrors and toys and clothes everywhere. He said if I stayed, I could have a little red purse that was his daughters and I loved red. I don't know how he knew that. Anyhow I said no and honestly I do not remember a thing from that point, until he came in the room and kicked me and said get up, your parents are here, and I was laying on the mattress on the floor in just panties that were not even mine. He threw my clothes at me and said " Hurry it up " I remember that it had to be a long time, because it was around 8 or 9 in the morning when we went outside and when my parents came to his door looking for me, it was dark outside already. The man was all friendly with my parents and lied to them saying that I just came over and played with his daughter and he didn't even notice I was there until a few minutes ago, or he would have called so that they didn't worry. When I got back to my grandparents home I got a spanking for going over to that house and when I tried to explain what happened they said, " I don't want to hear it, don't you ever do that again. You could have been kidnapped or something, what if that was a bad man? " About a year ago, I finally asked my parents why they wouldn't let me tell them what happened and I told them what I just told you and I said that I had held a grudge against them for not caring what happened to me. And honestly they said that they do not even remember going to that man's house or finding me over there and that they don't remember any of this. At first they told me that I made it up and they didn't even remember my grandparents having a Polynesian neighbor. But then they asked my grandma and she said " oh yes that creepy old man finally got evicted " . I have had many other experiences with being taken advantage of when I was a girl, because I was very pretty, tan, had long dark hair and was very shapely. But that is to me one of the most obvious examples of being stupid as a parent and not paying attention to your children. Please pay very close attention to your daughters and sons, and do not be to hard on them especially if you don't know what happened or they may be too affraid to tell you. They may think that they will get in trouble. If they can talk or try to talk, listen to them, let them explain. My dad finally asked me, once he believed me, " why didn't you tell us? " Well as a seven year old when you just got spanked and yelled at after something bad happened to you and then you try to say something and you get told to " keep it shut " , then why in the world would you risk getting another spanking or more pain. My dad was pretty heavy handed, so not like I wanted any other pain. So listen to your children and keep a very close eye on them. Also, my mom had the same attitude that 's parents had. She would tell us girls that men can not help themselves and that we always had to be so careful and dress carefully to make sure that none of our clothes were revealing or atractive looking. I was very busty from the time I was 11 and my sisters were rather flat chested, and so was my mom and so she would pick on me. My sisters could wear whatever they wanted and then she would say that I could not wear anything that looked nice at all. I am not talking about immodesty, I am talking about, if I looked pretty or nice or it was form fitting at all, even T-shirts, she would say I had to wear an Xlarge so that it would be baggy, so that I wouldn't tempt anyone. She would yell at me if any guy would ever look at me and tell me I was asking for it. I was just being a person. I was 11 when both my parents were always on my case about not talking to men not looking at them, not wearing cute clothes, and again, I do not mean Cutesy clothes, because I am not that kind of girl, I like jeans and a T-shirt most of the time and I like greens and browns and earthy stuff, but even that, they would say that I needed to put a jacket on. And one year someone gave me a black leather jacket and I wore it to something and my parents made me give it away, because they said I looked like a tramp who was asking for trouble. So if you have beautiful daughters (which I know you all do) don't yell at them for being beautiful or for being who they are, it is certainly NOT their fault if they have old perverts looking at them, God made them who they are, and yes I agree, that we as women should not go around, trying to tempt men and perposely wearing imodest or tempting apparel, but Men do have the ability to control themselves and they need to do it and not make women live in fear of just living and being who they are. Honestly to this day, I know that all that affected me. Because I used to be very slendar and beautiful and a lot healthier. I was around 120 pounds and liked my weight. But my parents scared me so bad. I have to admit that I can see why they were paranoid, because I had at least one guy " hit " on me or give me a " line " or stare their eyeballs out, every single place I went when I was younger, and I HATED it. Especially because I got in trouble for it and chewed out for an hour afterwards saying that I was trying to get their attention. That happened from the time I was 9 till I was 19 and honestly I hated it so much, that I feel strongly that that is the reason I have gained weight and not been able to loose it now. I have gained over a hundred pounds since then and honestly feel a million times safer. I never have guys look at me anymore and I don't have to worry that if they say hello to me, they are thinking about my body. I hated that. I don't like being overweight and often I want to loose weight and look the way I did before, but then I feel afraid, so it is a hard issue. I know that I am rambling now, but I want you all to remember that it is NOT your daughters fault if men look at them, and they do need to be taught to be careful and you need to keep an eye on them but it is not their fault. Hope this helps. It is so sad that so many of us and so many women in the world have to be mistreated and abused and I am sorry to all of you who have been. There are good men out there, but it is a shame that we have to work so hard to protect our children and ourselves from the bad ones. Esther --- wrote: > I am naive when it comes to trusting people so I am > not sure what to look > for. Plus most of what happened to me happened > after age 14. I would say > be open about talking about the subject. Make sure > your girls know that > they are never OBLIGATED to give sex, even if it is > their boyfriend or > husband. Teach them sex is mutual an experience to > share. It is a > PRIVLEDGE for a man to enter a woman, not the other > way around. Teach them > if anyone ever touches them that makes them > uncomfortable, to tell a trusted > adult. My parents used to say that rape was partly > the woman's fault for > " provoking " them. This is wrong, wrong, wrong. A > man needs to exercise self > control which is is capable of doing. > > > > Rape is not always an act of violence, but an > invasion of a woman's > sexuality mentally, physically or emotionally. Make > that clear to your > girls. It doesn't have to end bloody to constitute > as rape. > > > > My view. > > > > Nadine > > > > Re: question to those on > spectrum > > > > How would those of you on spectrum suggest we keep > our girls safe from > sexual abuse? I was molested when I was 7, so I'm > keenly aware of > men/boys around my girls. I seek to protect them by > pretty much only > allowing their grandmother to babysit. Grandfather > is there, too, but > I know he's a safe person. When we are around older > cousins, and I do > have great nephews, I always keep an eye on them > all. We have no boys > in the neighborhood with whom they play, so that's > not an issue, either. > > Still, middle/high school terrifies me. I know the > students can always > find a nook or closet where no one will be around. I > also know that's > when boys will start having all their desires and > Allie could easily > become a target. Because of my past history, I think > I would go insane > if anyone were to ever touch my girls. Any advice? > > Debi > > - > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.