Re: Not everyone has fatigue.

[Guest guest]

Hi Connie,

Welcome and bless you. Everyone has fatigue??? Huh?

Tell your dr. that my 45-year-old husband is as

chipper as can be. His 98-year-old grandfather rides

a lawnmower to town every morning all perky and rested

to shoot the breeze with his buddies who don't seem

fatigued either. (He used to drive but lost his

license after crashing through a garage door at a gas

station and driving under a car on a lift.) My

mother-in-law has enough energy to cause all kinds of

trouble. My Dad is 68 and he goes out with a chain

saw on his land in Texas and clears trails and kills

rattlesnakes and hauls wood, and goes out with his

metal detector to dig for the teasure that outlaws hid

on our place in the early 1900's. My granny was out

hunting arrowheads with an archaeological society in

her 70's and could then come home and fix everyone a

meal and keep us up half the night talking. Then here

I am with my own immune system declaring war..barely

making it out of bed each morning, ready to crash by

9:00. I'm sorry, not everyone has fatigue. Most

people I know don't have a clue.

--- Connie Young <foreveryoung_cly@...> wrote:

> Greetings. My name's Connie. I've been following

> you guys for a few months now. I'm learning a lot

> about RA and what a nice group you are. I always

> imagined my first post would be on a positive note,

> but I need to get some opinions about the direction

> I'm going in the RA treatment. I usually have a

> positive attitude, but today has turned out to be

> confounding. I've been seeing a Rheumy who is very

> conservative, since last winter. He calls this a

> difficult diagnosis, probably RA, treated as RA.

> Previously, my Neourosurgeon had diagnosed RA, thus

> the referral to a Rheumy. We've done Celebrex,

> Plaquinel, Sulfasalozine, Metholtrexate. My

> condition continues to worsen. I can not work now.

> I'm a middle school art teacher. I haven't even been

> able to start school this fall. .It's a physically

> demanding job, especially with the fatigue and bad

> hands/wrists/elbows/shoulders/hips. I feel like

> I've been very patient. Most information I've found

> says that one should seek agressive

> treatment. I'm really interested in trying one of

> the newer drugs. The Rheumy wants to continue with

> the Celebrex, Plaquinel, Metholtrexate for 6 more

> weeks (I've already been on Meth. for 8 weeks and am

> nauseous, with mouth sores and bleeding gums) I

> don't want to take the Meth. any more. So I saw a

> new Rheumy today. He thinks its not RA. He thinks

> the hip/lower back pain, and the hand/arm/shoulder

> pain are unrelated. He said everyone has fatigue.

> He thinks I have sleep apnea (though I have no

> problems sleeping) and I probably clench my fists at

> night. He wants me to stop all meds (scares the

> poop out of me! I can barely tolerate the pain as

> it is) and instead, take a valium/sleeping meds.

> Even though I wish it wasn't true, I think the RA

> diagnosis is right, especially since I have 2 other

> autoimmune diseases (has anyone heard of the triplet

> autoimmune diseases- Hoshimoto's, Colitis, RA?).

> I'm in a quandry. I'd appreciate any opinions or

> thoughts. I'm wandering

> aimlessly......Thanks

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi Connie,

Welcome and bless you. Everyone has fatigue??? Huh?

Tell your dr. that my 45-year-old husband is as

chipper as can be. His 98-year-old grandfather rides

a lawnmower to town every morning all perky and rested

to shoot the breeze with his buddies who don't seem

fatigued either. (He used to drive but lost his

license after crashing through a garage door at a gas

station and driving under a car on a lift.) My

mother-in-law has enough energy to cause all kinds of

trouble. My Dad is 68 and he goes out with a chain

saw on his land in Texas and clears trails and kills

rattlesnakes and hauls wood, and goes out with his

metal detector to dig for the teasure that outlaws hid

on our place in the early 1900's. My granny was out

hunting arrowheads with an archaeological society in

her 70's and could then come home and fix everyone a

meal and keep us up half the night talking. Then here

I am with my own immune system declaring war..barely

making it out of bed each morning, ready to crash by

9:00. I'm sorry, not everyone has fatigue. Most

people I know don't have a clue.

--- Connie Young <foreveryoung_cly@...> wrote:

> Greetings. My name's Connie. I've been following

> you guys for a few months now. I'm learning a lot

> about RA and what a nice group you are. I always

> imagined my first post would be on a positive note,

> but I need to get some opinions about the direction

> I'm going in the RA treatment. I usually have a

> positive attitude, but today has turned out to be

> confounding. I've been seeing a Rheumy who is very

> conservative, since last winter. He calls this a

> difficult diagnosis, probably RA, treated as RA.

> Previously, my Neourosurgeon had diagnosed RA, thus

> the referral to a Rheumy. We've done Celebrex,

> Plaquinel, Sulfasalozine, Metholtrexate. My

> condition continues to worsen. I can not work now.

> I'm a middle school art teacher. I haven't even been

> able to start school this fall. .It's a physically

> demanding job, especially with the fatigue and bad

> hands/wrists/elbows/shoulders/hips. I feel like

> I've been very patient. Most information I've found

> says that one should seek agressive

> treatment. I'm really interested in trying one of

> the newer drugs. The Rheumy wants to continue with

> the Celebrex, Plaquinel, Metholtrexate for 6 more

> weeks (I've already been on Meth. for 8 weeks and am

> nauseous, with mouth sores and bleeding gums) I

> don't want to take the Meth. any more. So I saw a

> new Rheumy today. He thinks its not RA. He thinks

> the hip/lower back pain, and the hand/arm/shoulder

> pain are unrelated. He said everyone has fatigue.

> He thinks I have sleep apnea (though I have no

> problems sleeping) and I probably clench my fists at

> night. He wants me to stop all meds (scares the

> poop out of me! I can barely tolerate the pain as

> it is) and instead, take a valium/sleeping meds.

> Even though I wish it wasn't true, I think the RA

> diagnosis is right, especially since I have 2 other

> autoimmune diseases (has anyone heard of the triplet

> autoimmune diseases- Hoshimoto's, Colitis, RA?).

> I'm in a quandry. I'd appreciate any opinions or

> thoughts. I'm wandering

> aimlessly......Thanks

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Quack!! Not everyone has fatigue! Stop all your meds at once? Run, don't

walk, from this doctor. I know your first one is conservative but this 2nd one

seems crazy! How about #3 - 3's supposed to be a charm!?!? I have no answers

for you, just a wish that you find relief.

much love,

barb k.

Bauman <ilovecats83160@...> wrote:

Hi Connie,

Welcome and bless you. Everyone has fatigue??? Huh?

Tell your dr. that my 45-year-old husband is as

chipper as can be. His 98-year-old grandfather rides

a lawnmower to town every morning all perky and rested

to shoot the breeze with his buddies who don't seem

fatigued either. (He used to drive but lost his

license after crashing through a garage door at a gas

station and driving under a car on a lift.) My

mother-in-law has enough energy to cause all kinds of

trouble. My Dad is 68 and he goes out with a chain

saw on his land in Texas and clears trails and kills

rattlesnakes and hauls wood, and goes out with his

metal detector to dig for the teasure that outlaws hid

on our place in the early 1900's. My granny was out

hunting arrowheads with an archaeological society in

her 70's and could then come home and fix everyone a

meal and keep us up half the night talking. Then here

I am with my own immune system declaring war..barely

making it out of bed each morning, ready to crash by

9:00. I'm sorry, not everyone has fatigue. Most

people I know don't have a clue.

--- Connie Young wrote:

> Greetings. My name's Connie. I've been following

> you guys for a few months now. I'm learning a lot

> about RA and what a nice group you are. I always

> imagined my first post would be on a positive note,

> but I need to get some opinions about the direction

> I'm going in the RA treatment. I usually have a

> positive attitude, but today has turned out to be

> confounding. I've been seeing a Rheumy who is very

> conservative, since last winter. He calls this a

> difficult diagnosis, probably RA, treated as RA.

> Previously, my Neourosurgeon had diagnosed RA, thus

> the referral to a Rheumy. We've done Celebrex,

> Plaquinel, Sulfasalozine, Metholtrexate. My

> condition continues to worsen. I can not work now.

> I'm a middle school art teacher. I haven't even been

> able to start school this fall. .It's a physically

> demanding job, especially with the fatigue and bad

> hands/wrists/elbows/shoulders/hips. I feel like

> I've been very patient. Most information I've found

> says that one should seek agressive

> treatment. I'm really interested in trying one of

> the newer drugs. The Rheumy wants to continue with

> the Celebrex, Plaquinel, Metholtrexate for 6 more

> weeks (I've already been on Meth. for 8 weeks and am

> nauseous, with mouth sores and bleeding gums) I

> don't want to take the Meth. any more. So I saw a

> new Rheumy today. He thinks its not RA. He thinks

> the hip/lower back pain, and the hand/arm/shoulder

> pain are unrelated. He said everyone has fatigue.

> He thinks I have sleep apnea (though I have no

> problems sleeping) and I probably clench my fists at

> night. He wants me to stop all meds (scares the

> poop out of me! I can barely tolerate the pain as

> it is) and instead, take a valium/sleeping meds.

> Even though I wish it wasn't true, I think the RA

> diagnosis is right, especially since I have 2 other

> autoimmune diseases (has anyone heard of the triplet

> autoimmune diseases- Hoshimoto's, Colitis, RA?).

> I'm in a quandry. I'd appreciate any opinions or

> thoughts. I'm wandering

> aimlessly......Thanks

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Quack!! Not everyone has fatigue! Stop all your meds at once? Run, don't

walk, from this doctor. I know your first one is conservative but this 2nd one

seems crazy! How about #3 - 3's supposed to be a charm!?!? I have no answers

for you, just a wish that you find relief.

much love,

barb k.

Bauman <ilovecats83160@...> wrote:

Hi Connie,

Welcome and bless you. Everyone has fatigue??? Huh?

Tell your dr. that my 45-year-old husband is as

chipper as can be. His 98-year-old grandfather rides

a lawnmower to town every morning all perky and rested

to shoot the breeze with his buddies who don't seem

fatigued either. (He used to drive but lost his

license after crashing through a garage door at a gas

station and driving under a car on a lift.) My

mother-in-law has enough energy to cause all kinds of

trouble. My Dad is 68 and he goes out with a chain

saw on his land in Texas and clears trails and kills

rattlesnakes and hauls wood, and goes out with his

metal detector to dig for the teasure that outlaws hid

on our place in the early 1900's. My granny was out

hunting arrowheads with an archaeological society in

her 70's and could then come home and fix everyone a

meal and keep us up half the night talking. Then here

I am with my own immune system declaring war..barely

making it out of bed each morning, ready to crash by

9:00. I'm sorry, not everyone has fatigue. Most

people I know don't have a clue.

--- Connie Young wrote:

> Greetings. My name's Connie. I've been following

> you guys for a few months now. I'm learning a lot

> about RA and what a nice group you are. I always

> imagined my first post would be on a positive note,

> but I need to get some opinions about the direction

> I'm going in the RA treatment. I usually have a

> positive attitude, but today has turned out to be

> confounding. I've been seeing a Rheumy who is very

> conservative, since last winter. He calls this a

> difficult diagnosis, probably RA, treated as RA.

> Previously, my Neourosurgeon had diagnosed RA, thus

> the referral to a Rheumy. We've done Celebrex,

> Plaquinel, Sulfasalozine, Metholtrexate. My

> condition continues to worsen. I can not work now.

> I'm a middle school art teacher. I haven't even been

> able to start school this fall. .It's a physically

> demanding job, especially with the fatigue and bad

> hands/wrists/elbows/shoulders/hips. I feel like

> I've been very patient. Most information I've found

> says that one should seek agressive

> treatment. I'm really interested in trying one of

> the newer drugs. The Rheumy wants to continue with

> the Celebrex, Plaquinel, Metholtrexate for 6 more

> weeks (I've already been on Meth. for 8 weeks and am

> nauseous, with mouth sores and bleeding gums) I

> don't want to take the Meth. any more. So I saw a

> new Rheumy today. He thinks its not RA. He thinks

> the hip/lower back pain, and the hand/arm/shoulder

> pain are unrelated. He said everyone has fatigue.

> He thinks I have sleep apnea (though I have no

> problems sleeping) and I probably clench my fists at

> night. He wants me to stop all meds (scares the

> poop out of me! I can barely tolerate the pain as

> it is) and instead, take a valium/sleeping meds.

> Even though I wish it wasn't true, I think the RA

> diagnosis is right, especially since I have 2 other

> autoimmune diseases (has anyone heard of the triplet

> autoimmune diseases- Hoshimoto's, Colitis, RA?).

> I'm in a quandry. I'd appreciate any opinions or

> thoughts. I'm wandering

> aimlessly......Thanks

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.