Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. I'm really upset about what this means. Is he more ill than I thought? If it's withdrawal, how can I get him off the drug (I had to put him back on it till the doctor evaluates him)? I feel like I am at a crossroads of sorts. I can't go back to the darker times - don't know if I have the strength. You can't imagine what things we dealt with in the past. What will become of him someday when I am no longer around to keep him well? My daughter who struggled with anxiety/panic attacks this year (post traumatic syndrome?) is afraid of him as some of his rage was directed at her. I told her that I would always keep her safe and that she should know that Matt is not well and that I believe he does love her. I told Matt that she is my daughter just as he is my son and that I love her just the same and will protect her just as I would protect him from harm. On top of that, he is obsessed with ideas about his peers thinking poorly of him. He has a lot of social anxiety. There is no more fear about throwing up, it's all about reputation and fitting in. This and his emotional regulation are things that I guess it's time to focus on in therapy. He's really a great kid underneath and kind and loyal (a good friend to anyone who shows him kindness as per his teacher). He has accomplished so much this year. It's a real heartbreak to see this happening again. He's back on the Seroquel - hopefully, it'll get him back on track before Thanksgiving. I'm so tired of not being able to enjoy the holidays or worrying about what might happen. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Bonnie, I have weaned both of my kids off of Seroquel, and I too , noticed almost exactly what you are describing. They both had two seperate trials of the drug because I could not tolerate the behavior and they ended up back on it.With my daughter, it did subside, but it took literally months. My son is still displaying the behavior and I took him off over a month ago. When the kids are sensitive to meds to begin with , I beleive it makes it all that much harder. I will pray for you and your family. I know what you are dealing with!!!!! Hang in there, and shave the pill down!!! (((((((((((((hugs))))))))))))))) Judy ________________________________ To: Sent: Tue, November 24, 2009 9:31:21 AM Subject: Yikes!!! Â We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. I'm really upset about what this means. Is he more ill than I thought? If it's withdrawal, how can I get him off the drug (I had to put him back on it till the doctor evaluates him)? I feel like I am at a crossroads of sorts. I can't go back to the darker times - don't know if I have the strength. You can't imagine what things we dealt with in the past. What will become of him someday when I am no longer around to keep him well? My daughter who struggled with anxiety/panic attacks this year (post traumatic syndrome?) is afraid of him as some of his rage was directed at her. I told her that I would always keep her safe and that she should know that Matt is not well and that I believe he does love her. I told Matt that she is my daughter just as he is my son and that I love her just the same and will protect her just as I would protect him from harm. On top of that, he is obsessed with ideas about his peers thinking poorly of him. He has a lot of social anxiety. There is no more fear about throwing up, it's all about reputation and fitting in. This and his emotional regulation are things that I guess it's time to focus on in therapy. He's really a great kid underneath and kind and loyal (a good friend to anyone who shows him kindness as per his teacher). He has accomplished so much this year. It's a real heartbreak to see this happening again. He's back on the Seroquel - hopefully, it'll get him back on track before Thanksgiving. I'm so tired of not being able to enjoy the holidays or worrying about what might happen. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 What happened that you wanted to wean him off? Was it just that he had been doing so well or was there some adverse reaction? Subject: Yikes!!! To: Date: Tuesday, November 24, 2009, 9:31 AM  We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. I'm really upset about what this means. Is he more ill than I thought? If it's withdrawal, how can I get him off the drug (I had to put him back on it till the doctor evaluates him)? I feel like I am at a crossroads of sorts. I can't go back to the darker times - don't know if I have the strength. You can't imagine what things we dealt with in the past. What will become of him someday when I am no longer around to keep him well? My daughter who struggled with anxiety/panic attacks this year (post traumatic syndrome?) is afraid of him as some of his rage was directed at her. I told her that I would always keep her safe and that she should know that Matt is not well and that I believe he does love her. I told Matt that she is my daughter just as he is my son and that I love her just the same and will protect her just as I would protect him from harm. On top of that, he is obsessed with ideas about his peers thinking poorly of him. He has a lot of social anxiety. There is no more fear about throwing up, it's all about reputation and fitting in. This and his emotional regulation are things that I guess it's time to focus on in therapy. He's really a great kid underneath and kind and loyal (a good friend to anyone who shows him kindness as per his teacher). He has accomplished so much this year. It's a real heartbreak to see this happening again. He's back on the Seroquel - hopefully, it'll get him back on track before Thanksgiving. I'm so tired of not being able to enjoy the holidays or worrying about what might happen. Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Hi Bonnie, sorry that's happening! Can you just go back to whatever dose you were giving him before stopping completely? How'd you end up finishing the weaning, skipping days? Asking that, as when I weaned off Celexa, that last month or so after we got so far down the dosage, we began skipping days between taking it. Hope the doctor can provide answers/support! > > We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 He was doing very well and had been for a long time Bonnie > > > Subject: Yikes!!! > To: > Date: Tuesday, November 24, 2009, 9:31 AM > > > > > > > > Â > > > > > > > > > > We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. > > > > I'm really upset about what this means. Is he more ill than I thought? If it's withdrawal, how can I get him off the drug (I had to put him back on it till the doctor evaluates him)? I feel like I am at a crossroads of sorts. I can't go back to the darker times - don't know if I have the strength. You can't imagine what things we dealt with in the past. > > > > What will become of him someday when I am no longer around to keep him well? My daughter who struggled with anxiety/panic attacks this year (post traumatic syndrome?) is afraid of him as some of his rage was directed at her. I told her that I would always keep her safe and that she should know that Matt is not well and that I believe he does love her. I told Matt that she is my daughter just as he is my son and that I love her just the same and will protect her just as I would protect him from harm. > > > > On top of that, he is obsessed with ideas about his peers thinking poorly of him. He has a lot of social anxiety. There is no more fear about throwing up, it's all about reputation and fitting in. This and his emotional regulation are things that I guess it's time to focus on in therapy. > > > > He's really a great kid underneath and kind and loyal (a good friend to anyone who shows him kindness as per his teacher). He has accomplished so much this year. It's a real heartbreak to see this happening again. He's back on the Seroquel - hopefully, it'll get him back on track before Thanksgiving. I'm so tired of not being able to enjoy the holidays or worrying about what might happen. > > > > Bonnie > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 We went down to half a pill and then off over 5 weeks. Bonnie > > > > We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2009 Report Share Posted November 24, 2009 Oh Bonnie, I pray for your family that bringing him back to his prior dose proves quickly eliminate the symptoms. It is nice, in a way, to know how much good the medication is doing. Kind Regards, Subject: Re: Yikes!!! To: Date: Tuesday, November 24, 2009, 1:07 PM  He was doing very well and had been for a long time Bonnie > > From: bhamelburg <bhamelburg@ ...> > Subject: Yikes!!! > To: @ yahoogroups. com > Date: Tuesday, November 24, 2009, 9:31 AM > > > > > > > >  > > > > > > > > > > We started weaning Matt of meds (seroquel). I thought for sure it would be OK since I was weaning him over a 5 week period of time and he was on the smallest dose to start with. Well I was wrong!!!!! He started having a lot of trouble sleeping and became irritable and withdrawn within a week of stopping the med all together. The last 2 evenings, I have seen behavior that I haven't seen in a long time. I thought we were becoming home free, but I was wrong. I have to rethink the bipolar diagnosis on top of the anxiety disorder versus Seroquel withdrawal. He was on such a small dose, but perhaps he's sensitive to meds and that was just enough to keep him well? I haven't seen anxiety, just anger (even rage) and insomnia and restlessness. > > > > I'm really upset about what this means. Is he more ill than I thought? If it's withdrawal, how can I get him off the drug (I had to put him back on it till the doctor evaluates him)? I feel like I am at a crossroads of sorts. I can't go back to the darker times - don't know if I have the strength. You can't imagine what things we dealt with in the past. > > > > What will become of him someday when I am no longer around to keep him well? My daughter who struggled with anxiety/panic attacks this year (post traumatic syndrome?) is afraid of him as some of his rage was directed at her. I told her that I would always keep her safe and that she should know that Matt is not well and that I believe he does love her. I told Matt that she is my daughter just as he is my son and that I love her just the same and will protect her just as I would protect him from harm. > > > > On top of that, he is obsessed with ideas about his peers thinking poorly of him. He has a lot of social anxiety. There is no more fear about throwing up, it's all about reputation and fitting in. This and his emotional regulation are things that I guess it's time to focus on in therapy. > > > > He's really a great kid underneath and kind and loyal (a good friend to anyone who shows him kindness as per his teacher). He has accomplished so much this year. It's a real heartbreak to see this happening again. He's back on the Seroquel - hopefully, it'll get him back on track before Thanksgiving. I'm so tired of not being able to enjoy the holidays or worrying about what might happen. > > > > Bonnie > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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