Re: Just joined this group

[Guest guest]

> Hi,

> My name is Michele. I have been experiencing all kinds of symptoms

> over the last few years. I decided to surf the net. I think I

> might have Candida. Have any of you went to your family doctors

for

> this, and what was their suggestions? I have the following

> symptoms, several at once or some just occasionally over the past

> few years.

> back aches

> night sweats

> changes in menstrual cycle

> joint pain, especially knee and shoulder/neck

> urinary tract infections, at least one every year for many years

> dizziness

> nausea

> diahrea/constipation alternating different weeks

> insomnia

> tiredness with no motivation

>

> On the websites I found, it sounds like I am a prime candidate for

> having Candida. Has anyone bought any of the products on the net,

> particular ThreeLac? I found it on several websites and wondered

if

> it really works.

>

> Please give me some response. I would very much appreciate it.

>

> Thanks. Hi Michele, welcome to the group. You will find alot of

info here that will help you. My symptoms were just like yours. My

family dr was no help at all he just kept giving me different pills

which I think made the candida worse. I was 33 feeling like 93. I

took the mild approach at first starting with the diet and some anti-

fungals and GSE. This site was a great help just knowing that I

wasn't alone and crazy like everyone said including the drs. good

luck Cam

[Guest guest]

Hi .I'm new also.I've been here almost 2 weeks.Looking

forward to getting to know you.

This is a kind and wonderful group of people.Welcome!

[Guest guest]

,

Hi & welcome! I've only been a part of the group for a few days and

let me just say...they are fantastic!!

Cami

>

> Hello all: It just dawned on me to look in for other

> people in the same boat as I am.

> RA came to me out of nowhere and no warning on a day in '91 with

puffy

> hands and elbows.

> The typical blood tests confirmed the suspicions of the family

doctor,

> then on to a specialist for the start of drugs, which has

continued

> till today. Not the same ones.....oh no, Ha! I've been on a lot of

> different meds to try and control this curse.

>

> Anyway, thought I'd start this off by saying .....Hi

>

>

>

[Guest guest]

Welcome, ,

This is a great bunch of people. You'll not only get support and compassion

and information, you'll be privileged to meet some fine individuals!!!!

laura

<john1947@...> wrote: Hello all: It just dawned on me to

look in for other

people in the same boat as I am.

RA came to me out of nowhere and no warning on a day in '91 with puffy

hands and elbows.

The typical blood tests confirmed the suspicions of the family doctor,

then on to a specialist for the start of drugs, which has continued

till today. Not the same ones.....oh no, Ha! I've been on a lot of

different meds to try and control this curse.

Anyway, thought I'd start this off by saying .....Hi

[Guest guest]

The cause of A is unknown, don't beat yourself up.

Dave

--- nwalby <nwalby@...> wrote:

> What if I

> damned my beautiful little girl to what I have?!

__________________________________________________

[Guest guest]

Welcome to the group. There is no information stating that this disease is hereditary. Surgery is the best option for helping improve your ability to eat and drink. You must remember that the surgery and other treatments are not a cure for the disease though. Research has shown that the more dilation's and or botox treatments that a person has that when surgery is finally done it might not be as successful due to a build up of scar tissue. Try and find a specialist that know about this disease and has done the surgery. That is you best chance for a better outcome.

What is your name and where do you live? Once again we are glad you found our group and we welcome you with our ears and arms open. If you have any other questions or even just want to talk please let us know and we will try our best to help out.

in Suffolk

[Guest guest]

I suffered for 2 years - 1 month where I could not eat anything at all - I had

the surgery

and life is pretty normal now. The surgery i s 95% of the time successful. It

saved my life.

>

> Hello everyone.

> I was diagnosed almost a year ago as having achalasia after 3 years

> of knowing something was wrong.

> I tried the medication method, nothing. I tried the botox method, 2

> weeks. Is surgery my only hope?!

> I've been to kinesiologists, acupuncture, md's, ear nose and throat,

> witch doctors , and things have helped mildly.

> I guess I'm wondering how effective the surgery is.

> I also just was looking around at different group info. and two of

> the three resource places for achalasia at msn groups are

> for " genetic disorders " . Does that mean achalasia is hereditary?!

> No one told me that!!! I have a daughter that, I can't say I

> wouldn't have had, but, I would've thought more about it in the

> planning stages had I known.

> The last 30 minutes have just turned my world around. What if I

> damned my beautiful little girl to what I have?!

> Sorry for the rambling. I really have dealt with this in what I

> think are good terms. But, my daughter!?

> I guess I don't really want the banter back and forth about what I

> should or shouldn't do. I just want to know the bottome line. After

> exhausting all possibilities(?) should I do the surgery? Does it work

> at least most of the time?

>

> Thanks for your time.

>

[Guest guest]

Life, for me, is much, much, much better after my

heller myotomy 9 months ago. I still have the

occassional chest pain, but it happens a lot less than

it used to and less severe

Dave

--- drgioia75 <santanagioia@...> wrote:

>

> I suffered for 2 years - 1 month where I could not

> eat anything at all - I had the surgery

> and life is pretty normal now. The surgery i s 95%

> of the time successful. It saved my life.

>

>

> >

> > Hello everyone.

> > I was diagnosed almost a year ago as having

> achalasia after 3 years

> > of knowing something was wrong.

> > I tried the medication method, nothing. I tried

> the botox method, 2

> > weeks. Is surgery my only hope?!

> > I've been to kinesiologists, acupuncture, md's,

> ear nose and throat,

> > witch doctors , and things have helped mildly.

> > I guess I'm wondering how effective the surgery

> is.

> > I also just was looking around at different group

> info. and two of

> > the three resource places for achalasia at msn

> groups are

> > for " genetic disorders " . Does that mean achalasia

> is hereditary?!

> > No one told me that!!! I have a daughter that, I

> can't say I

> > wouldn't have had, but, I would've thought more

> about it in the

> > planning stages had I known.

> > The last 30 minutes have just turned my world

> around. What if I

> > damned my beautiful little girl to what I have?!

> > Sorry for the rambling. I really have dealt with

> this in what I

> > think are good terms. But, my daughter!?

> > I guess I don't really want the banter back and

> forth about what I

> > should or shouldn't do. I just want to know the

> bottome line. After

> > exhausting all possibilities(?) should I do the

> surgery? Does it work

> > at least most of the time?

> >

> > Thanks for your time.

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

I'm sorry for the lack of info. I was just really freaked at the

moment.

I'm Nate and I live in Denver for the last 6 months. Before that I

lived with my wife in Mass. for the past 12 years or so. Before that

I grew up in North Dakota. So I'm 33 and hoping that something other

than surgery will take care of this.

It seems that each type of doctor I see has an explanation and says

he/she can probably take care of this. " Probably " is the problem.

Since being diagnosed I've come to find out that alcohol helps

tremendously, especially if it is alot. So I'm worried that I will

become dependant on that before I get this taken care of. In fact, I

may already be.

We had free carein Mass. but nothing in Denver so I don't really know

hwer to proceed without the money it takes to see the best doctors.

I feel trapped by this disease and by my wallet. I can't deny my

family for the next 10 years just because I had to pay for a surgery

that I'm not sure is the best course.

I cannot believe that no one has done research to find out exactly

what this is and how to take care of it without cutting you up.

And if my esophagus is messed how is slitting the LES gonna help

that? The sphincter may allow food now, but, according to my doc.

the esophagus doesn't swallow correctly. It tightens all at once

instead of sequentially.

I really don't know what else to say at this point.

Oh yeah, we did have exotic birds, some of them from S. America)live

with us. So I hope this helps your poll.

> >

> > Hello everyone.

> > I was diagnosed almost a year ago as having achalasia after 3

years

> > of knowing something was wrong.

> > I tried the medication method, nothing. I tried the botox method,

2

> > weeks. Is surgery my only hope?!

> > I've been to kinesiologists, acupuncture, md's, ear nose and

throat,

> > witch doctors , and things have helped mildly.

> > I guess I'm wondering how effective the surgery is.

> > I also just was looking around at different group info. and two

of

> > the three resource places for achalasia at msn groups are

> > for " genetic disorders " . Does that mean achalasia is hereditary?!

> > No one told me that!!! I have a daughter that, I can't say I

> > wouldn't have had, but, I would've thought more about it in the

> > planning stages had I known.

> > The last 30 minutes have just turned my world around. What if I

> > damned my beautiful little girl to what I have?!

> > Sorry for the rambling. I really have dealt with this in what I

> > think are good terms. But, my daughter!?

> > I guess I don't really want the banter back and forth about what

I

> > should or shouldn't do. I just want to know the bottome line.

After

> > exhausting all possibilities(?) should I do the surgery? Does it

work

> > at least most of the time?

> >

> > Thanks for your time.

> >

>

[Guest guest]

Up to date there is no other options out there other that dilation's, botox and surgery. Surgery is the best option for long term management of this disease. I am sure there is a way that you can get surgery and not be to worried about the bill. I do not have any ideas really in how to go about that but I am sure there is someone in the group that might be able to help out.

As for the disease itself it is due to the nerves not working properly or not working at all. When the muscles that control the opening to the stomach are cut it allows food to pass into the stomach with little to no impedance. To date there is no cure for this disease or known reason why we get it.

I hope this helps you a little.

in Suffolk

[Guest guest]

The sad fact is that the muscle action of the E will

never come back, the surgery just gives the food a

place to go, and for me that was worth it. I am 9

months post myotomy.

Dave

--- nwalby <nwalby@...> wrote:

> I cannot believe that no one has done research to

> find out exactly

> what this is and how to take care of it without

> cutting you up.

> And if my esophagus is messed how is slitting the

> LES gonna help

> that? The sphincter may allow food now, but,

> according to my doc.

> the esophagus doesn't swallow correctly. It

> tightens all at once

> instead of sequentially.

__________________________________________________

[Guest guest]

Dear Nate,

If you want to vote in the poll I mentioned it is message number 30430.

I hope you realise that you owe it to yourself and those who love you to sort out your drinking problem before you move onto anything else? I know this sounds like a cliche but if you realise you have this problem you are already half way to sorting it out. Please ask for professional help. These trained people want, and know how, to help you. Then you can deal with your achalasia. You may come to see the operation as a positive thing to help your well-being.

You will never get your peristalsis back, but you will find your own bag of tricks to deal with that. And gravity is a BIG BIG help. But you cannot leave your oesophagus to deteriorate as it will if you do nothing. The op allows food to pass unhindered, once it's managed to get down to it, through the cardiac sphincter, the valve that's supposed to open and doesn't. Give yourself a chance at life Nate. You can improve it so much. PLEASE.

With love and caring from Ann in England xx> > >> > > Hello everyone.> > > I was diagnosed almost a year ago as having achalasia after 3 > years > > > of knowing something was wrong.> > > I tried the medication method, nothing. I tried the botox method, > 2 > > > weeks. Is surgery my only hope?!> > > I've been to kinesiologists, acupuncture, md's, ear nose and > throat, > > > witch doctors , and things have helped mildly.> > > I guess I'm wondering how effective the surgery is. > > > I also just was looking around at different group info. and two > of > > > the three resource places for achalasia at msn groups are > > > for "genetic disorders". Does that mean achalasia is hereditary?! > > > No one told me that!!! I have a daughter that, I can't say I > > > wouldn't have had, but, I would've thought more about it in the > > > planning stages had I known. > > > The last 30 minutes have just turned my world around. What if I > > > damned my beautiful little girl to what I have?!> > > Sorry for the rambling. I really have dealt with this in what I > > > think are good terms. But, my daughter!?> > > I guess I don't really want the banter back and forth about what > I > > > should or shouldn't do. I just want to know the bottome line. > After > > > exhausting all possibilities(?) should I do the surgery? Does it > work > > > at least most of the time?> > > > > > Thanks for your time.> > >> >>