Re: For those of you with PANDAS kids-QUESTION Colleen

[Guest guest]

Hi Judy,

B/c he may have had untreated strep for a long time, it can take a while to see

a difference, but you are on the right antibiotics at a very good dose, so my

advice is to just stick with it and give it time. I would also try a steroid

burst. Maybe this time b/c he is on antibiotics it will be beneficial. I still

think it is highly likely you are dealing with PANDAS. If you email Dr. K some

questions with a brief history, he will answer you back. It is only for his

phone conferences that he charges.

Colleen

> >

> > Hi,

> > Most of you know I have a child(age 8) that was recently diagnosed with

Chronic late stage lyme disease.He had the sudden onset of bad thought ocd and

now also has Tourettes. We have also questioned PANDAS in the past. Well, I just

had a series of extensive bloodwork done on my son. The lab showed he has a

streptozyme titer of 1:600, and it said he was positive for strep. My son has

had no sore throat for months.It also showed a DNase -B Antibody titer of 960.

> >  Would you think he has both Lyme and PANDAS.???? Does anyone know about

these tests?

> >

> >  He sees a LLMD and his pediatrician, but I cannot afford a PANDAS doctor on

top of it all.

> > The last time his pediatrician did a strep test it was negative. His

behavior is no better on the antibiotics this time around.

> > I'm doubly confused now.

> >

> > Thanks so much

> > Judy

> >

> >

[Guest guest]

Hi Colleen,

I have e-mailed Dr. K about a month ago and he said that it is very highly

likely my son has PANDAS, and/or Lyme. This was before I knew for sure he had

Lyme. ( He had only one positive lyme test)

From what I have read, the treatment is about the same for both disorders, and

my son is on these anitibiotics until March 12th when we go back to the LLMD and

see what he says than. I will definitley ask him more about his take on the

PANDAS seeing my son's test came back positive for the strep.

I suppose I should wait and see if my son shows any improvement over the next

few months

thanks so much

Hugs

Judy

 

________________________________

To:

Sent: Wed, November 4, 2009 4:16:25 PM

Subject: Re: For those of you with PANDAS kids-QUESTION

Colleen

 

Hi Judy,

B/c he may have had untreated strep for a long time, it can take a while to see

a difference, but you are on the right antibiotics at a very good dose, so my

advice is to just stick with it and give it time. I would also try a steroid

burst. Maybe this time b/c he is on antibiotics it will be beneficial. I still

think it is highly likely you are dealing with PANDAS. If you email Dr. K some

questions with a brief history, he will answer you back. It is only for his

phone conferences that he charges.

Colleen

> >

> > Hi,

> > Most of you know I have a child(age 8) that was recently diagnosed with

Chronic late stage lyme disease.He had the sudden onset of bad thought ocd and

now also has Tourettes. We have also questioned PANDAS in the past. Well, I

just had a series of extensive bloodwork done on my son. The lab showed he has a

streptozyme titer of 1:600, and it said he was positive for strep. My son has

had no sore throat for months.It also showed a DNase -B Antibody titer of 960.

> >  Would you think he has both Lyme and PANDAS.???? Does anyone know about

these tests?

> >

> >  He sees a LLMD and his pediatrician, but I cannot afford a PANDAS doctor

on top of it all.

> > The last time his pediatrician did a strep test it was negative. His

behavior is no better on the antibiotics this time around.

> > I'm doubly confused now.

> >

> > Thanks so much

> > Judy

> >

> >