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Re: Re: Adult/PANDAS?

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Thanks so much for the info. I appreciate it!

LM wrote:

>

>

> Certainly Pandas didn't suddenly appear in the '90s. It was only given

> a name then.

>

> There are no studies on adults. The thinking is that Pandas is an

> autoimmune response to strep - akin to an allergic reaction. A child's

> thalmus - the place where T-Cells are created - is about the size of

> your fist. Once a child hits puberty, the thalmus starts to shrink

> until, by adulthood, it shrivels to next to nothing. As an adult,

> T-cells are created in the GI tract (thus you'll read that " 70% of the

> immune system starts in the gut " ).

>

> So it's assumed (and anecdotally supported) that children outgrow the

> " allergy " . It's also why adults get far less strep infections than

> kids. Your immune system changes and becomes more efficient in

> fighting childhood diseases. But no one can rule out an " adult " Pandas

> - it just hasn't been studied.

>

> You can always do an ASO/AntiDNase B titer test which will test your

> blood for the presence of antibodies to strep. It may show that you've

> had a recent infection even in the absence of strep symptoms. But not

> everyone has elevated titers. So it's not a conclusive test.

>

> In any event, you can see if your doctor would be open to trying a

> longer (21 day?) course of antibiotics, or prednisone to see if you

> experienced a relief in symptoms. However, if you have a tic disorder

> that isn't Pandas, prednisone can make tics worse. So you need to be

> very careful.

>

> If you've had OCD for 40 years, you will be fighting responses that by

> now are based as much - if not more - on learned behaviors as on any

> physical trigger. Even Pandas kids benefit from CBT and ERP skills.

>

> Sorry this doesn't give you a definitive answer. Best of luck!

>

>

>

> > > >

> > > My son is 13 and was just diagnosed with PANDAS. Interestingly, the

> > > PANDAS doctor explained to me that the brain swelling of PANDAS

> causes

> > > the child to be in state of hyper alert due the brain not being able

> > > to filter out sensory input. Everything around him is given equal

> > > value of importance until he is not only hyper alert but in a

> state of

> > > fear due to the overload on his senses. The brain then begins to find

> > > things to be afraid of - thus the OCD. >

> > >

> > >

> >

> >

> >

> >

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