Re: Re: Not Pandas but infecttion/illness effecting OCD

[Guest guest]

I noticed this too. My daughter (age 13) with OCD, but not PANDAS is much worse

when she has a fever. Her OCD spikes, However when my son(age 8) with PANDAS

OCD(now diagnosed) his OCD is better with fever. I think it's because he doesn't

think about it as much.

Just some quick thoughts. I guess each child is different.

Hugs

judy

________________________________

To:

Sent: Tue, November 10, 2009 7:36:39 PM

Subject: Re: Not Pandas but infecttion/illness effecting OCD

 

With (now age 20) I noted his OCD would spike more with a fever. Not

with illnesses without a fever, or so it seemed. And the one time, that we knew,

he had strep it really got worse, took weeks to settle back down. Sometimes took

a month after the other fevers too.

However, over the years reading posts, some parents have commented that when

their child is sick (and I mean feeling lousy), the OCD doesn't seem to be

around so much, the behaviors/rituals aren't being done (I imagine because they

feel so sick?).

I did have tested by bloodwork for strep after his OCD got much worse

once...I think it was when his OCD had returned after stopping Celexa months

before and he was sick a couple months later and OCD was getting even worse....

But titers were said to be within normal range or showed that he didn't have

strep. I even had his thyroid tested too at that time.

>

> People have mentioned before that sickness cold/flu seems to increase OCD in

their kids.

> My son doesn't have Pandas-he only had strep once, was tested (because of what

I read here) and his OCD was not sudden out of blue onset.

> But when he gets sick, he is worse. He has an infected toe of all things and

yesterday was just diffiult for both of us.

> He is on Luvox which works wonders and has done CBT/ERB sucessfully. Of

course, we have our ups and downs-just life withOCD. \

> I was wondering if anyone else has noticed this and if anyone in the medical

world is exploring this

> Thanks

>

[Guest guest]

Kim wrote:

>

>

> My daughter (age 10) absolutely gets worse when exposed to viruses. I

> don't think it's the anxiety of " will I get sick " because a lot of

> times - actually the majority of times - I have noticed the burst of

> OCD and then a few days later found out that someone was sick in her

> class at school - usually with strep. She didn't realize why the

> person was out so that would kill the theory (for my particular

> daughter) that she was anxious about getting sick. (I have her teacher

> inform me anytime someone has been out with possible strep). My

> daughter was told that she had non-PANDAS OCD, but the correlation of

> OCD bursts and the viruses kept nagging at me. I finally had her blood

> sent off to Madeleline Cunningham at Univ. of OK for the research

> study and her CaM Kinase II numbers came in at the upper levels for

> PANDAS. She has only been diagnosed with strep once and that was well

> into her OCD, but when she was diagnosed with strep she was having

> absolutely no strep symptoms - no sore throat, no fever. So who knows

> how many times she could have had strep prior to that and we never

> caught it! >From what I understand the titers only tell you if you

> have had a recent strep infection.

>

Kim, so what did you do with that information? Are you treating her as

a PANDAS case? Is she responding to that? I ask because I know my DD's

strep titers were really high when she first developed OCD at age 7 but

I never pursued it. Her OCD is terrible right now and we are

surrounding by sick people.

Dina