Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 , As you read on pandasnetwork.org, ibuprofen can bring some kids relief. Tylenol/acetaminophen will not. Ibuprofen is a NSAID (non-steroidal anti-inflammatory drug). Prednisone (a steroid) is also a much stronger anti-inflammatory and it is often given for a brief period of time to see if it brings relief for Pandas kids. If it does, it's a good indicator. We use Motrin frequently for my Pandas son. But never use more than the recommended dose or frequency- too much can cause s Syndrome and liver damage. If your child suffers from joint and muscle pain from Pandas, you may also want to try glucosamine with chondroitin. Dr. Demetriou and colleagues with the UC Irvine Center for Immunology found that N-acetylglucosamine (GlcNAc), which is similar but more effective than the widely available glucosamine, inhibited the growth and function of abnormal T-cells that incorrectly direct the immune system to attack specific tissues in the body, such as brain myelin in MS and insulin-producing cells of the pancreas in diabetes. Study results appear on the online version of the Journal of Biological Chemistry. Here's the link to the summary of the study: http://www.healthcare.uci.edu/news_releases.asp?filename=07MayDiabetes.htm My son will not swallow pills, so we found a liquid at CVS that's vanilla flavored. We mix it with some coconut banana juice and it seems to bring much relief. Glucosamine is also a very effective anti-inflammatory that is used frequently by sufferers of rheumatoid arthritis. The stuff isn't cheap. It was $20 for a month's supply. But ibuprofin isn't cheap either. If it works, it's worth it. > > <Yes, I have heard of this and their are other safer anti-inflammatories. I do not know what they are> > > > > One thing I take myself for lower back pain due to inflammation is MSM. It’s an all natural anti-inflammatory and pain reliever. After ten years of back pain at night I am now able to sleep through the night. As a bonus, I stopped feeling the need to get up to pee when I started taking it too, which began after the birth of my second daughter. I mentioned this to my Dr. and she said it is likely due to the anti-inflammatory nature of it . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 , Thank you for that wealth of information. We have older horses and we keep them on Glucosamine and chondroitin to ease their arthritic symptoms and it works well. I have a question for you? If your son is positive for PANDAS and is on anti-biotics, has it not reduced his symtoms? Why do you still need glucosamine? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 My son had severe episodes of Pandas all last winter and spring. This past summer, he underwent plasmaphoresus. He was doing really well on a mild prophylactic dose of antibiotics. But in mid-October, he was exposed to strep and it triggered an exacerbation. His neurologist increased his antibiotics and in two weeks, he was in a complete remission again. We consider him in remission, not cured. During the exacerbation, his muscles caused him a lot of pain. So we used the glucosamine and it did wonders. We keep it in the fridge just to have on hand - it seemed to work much better than the Motrin. > > , > > Thank you for that wealth of information. We have older horses and we keep > them on Glucosamine and chondroitin to ease their arthritic symptoms and it > works well. > > > > I have a question for you? If your son is positive for PANDAS and is on > anti-biotics, has it not reduced his symtoms? Why do you still need > glucosamine? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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