Houston

[Guest guest]

We have experienced our first full blown I guess PANDA episode that started

in early August when she had staph or strep in her eye (hirrible stye). My

dd had what I now know were 2 smaller episodes when she was 3 and 4. We

first did Augmentin and then I found out that Zithromax was the first

choice, so we are on that right now (I'm not sure if they will give me

beyond the 15 days). She had the constant worries that she had done

something wrong, did I forgive her. In bed at night she said ever since the

worries started she had thought she should die. It has been the most

horrible thing I have ever been through. I thought I would lose my mind.

We are raising her after her mother's death 3 years ago. The antibiotics

have helped greatly and she is more like her old self. She still has some

of the worries, and feels undeserving?? Also, she is still some hyper, but

she's not in the horrible loop she was in. She also still has the low, kind

of guttural sound (tic), not really a throat clearing, but a small noise.

Is this often the way it starts? Does anyone know? Does this often clear

up for long periods and then erupt again. We have had huge road blocks

trying to get help because she is on CHIPS. I was also wondering if there

is anyone out there in the community in the Houston area.

Beth