Re: Re: For those of you with PANDAS kids-QUESTION-\Jen

November 3, 2009

Hi Jen,

We see Dr. Ray in Ct. He is suppossed to be one of the best

pediatric lyme specialists in the country.

This doctor says the bad thoughts can be caused by it.Every other doctor I took

my son too has said they have never heard that was true, and they won't even

give my son antibiotics for more than 3 weeks at a time. They don't believe in

long term antibiotics.

Where in New England do you live?

My son had two positive lyme tests and if you'd like me too look up the info ,

I'd be happy to share with you.

Hugs

judy

________________________________

To:

Sent: Tue, November 3, 2009 4:18:28 PM

Subject: Re: For those of you with PANDAS kids-QUESTION-

Hi there Judy,

I am just commenting because my 9yo daughter has had similar symptoms w/Lyme and

we can't find any Lyme doctors around here. I've talked to so many docs and

psychiatrists, neurologists, etc and they all don't believe that " bad thought "

OCD can be caused from Lyme. They won't treat her w/any antibiotics. (We live in

New England)

I remember her having a blood test long ago (even before Lyme) where the titers

were similar to your sons. There was some concern by her doctor but she wrote it

off as from whatever infection she was in there for.... Are the titers high on

Lyme and Pandas both?

My daughter just started on Zoloft after being in therapy since January for the

bad thought OCD that happened a few months after she was diagnosed w/Lyme. The

bad thoughts were off the charts and they have waxed and waned since then. After

now being on Zoloft for 6 weeks, I finally feel like my little girl is surfacing

again. I wish there was some permanent solution to all of this!!

Thanks for listening, and hang in there... as a friend told me whose child had

OCD - the bad thoughts are only thoughts - they won't kill you. (Even though it

sure feels like it!)

Jen

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