Guest guest Posted November 3, 2009 Report Share Posted November 3, 2009 Hi. I'm new to the group but definitely not new to OCD. My 11 y/o daughter and I both have OCD. I will try to give a short version of my daughter's life. She was born 6 weeks early and NEVER slept! She didn't start sleeping through the night until she was around 6 y/o. When she was 18 mo. old, the pediatrician sent her to a neurologist because she would bang her head with her fist all the time. She was concerned about autism. Neurologist said it wasn't autism. When she was 5 y/o, a new pediatrician was concerned with autism and cerebral palsy. So, off we went to the neurologist again. The neurologist had her walk down the hall so he could evaluate how she walked on her toes and that was it! She was given a diagnosis of mild cerebral palsy due to some developmental delays when she was a baby, problems with fine motor skills, and toe walking. My daughter was still having severe separation anxiety at age 6 so the pediatrician mentioned high functioning autism again. We moved to another state soon after and no one ever suggested autism again. When she was 7, she started having fears that she would try to hurt me or the pets. She does not want to hurt me or the pets though....it is just a fear. Then, she started having feelings that she wanted to " scrape " herself, but she never tried. She also had feelings of being in a box. I took her to a few different therapists but we were always brushed off. So, I thought that there wasn't anything to be concerned with. Now my daughter is 11 y/o and things are much worse. She still has severe anxiety about being away from me. She is terrified that something will happen to me. She has had lots of mild panic attacks and a few that were a little scary for both of us. She has some of the typical OCD symptoms, such as, she has to touch both sides of things, she likes even numbers, fear of germs and getting sick, etc. She was diagnosed with OCD a few years ago but was never treated for it. A few months ago, she started having obsessive thoughts of " why bother doing things because it will be over soon anyways. " These thoughts include everything from getting new toys or clothes to eating. She said that she is so tired of not being able to enjoy anything because of these thoughts. Surprisingly, she says that she is happy...and, she acts like she is happy. I took her to her pediatrician about 4 weeks ago to ask for a referral to a therapist. A couple of days later, my daughter told me that she thought that she tried to kill herself in the tub and she was really scared because she didn't want to die. I called the pediatrician and he told me to take her to a children's hospital in a nearby city because they have a pediatric pychiatric center there. They said they thought that the suicidal thoughts were coming from her OCD and they started her on zoloft. She has also started therapy with them. I'm so confused! My instinct tells me that something else is going on. Has anyone else experienced any of these things? Sorry about all of the information! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Does sound like OCD and not necessarily suicidal ideation. However, I would be concerned about depression and so I think you should be careful to assess that often (in terms of how she functions in school and at home and her overall mood and planning for the future). Suicidal thoughts can come about with depression and sudden lifting of the mood might indicate that there is a plan in mind. Bonnie > > Hi. I'm new to the group but definitely not new to OCD. My 11 y/o daughter and I both have OCD. I will try to give a short version of my daughter's life. She was born 6 weeks early and NEVER slept! She didn't start sleeping through the night until she was around 6 y/o. When she was 18 mo. old, the pediatrician sent her to a neurologist because she would bang her head with her fist all the time. She was concerned about autism. Neurologist said it wasn't autism. When she was 5 y/o, a new pediatrician was concerned with autism and cerebral palsy. So, off we went to the neurologist again. The neurologist had her walk down the hall so he could evaluate how she walked on her toes and that was it! She was given a diagnosis of mild cerebral palsy due to some developmental delays when she was a baby, problems with fine motor skills, and toe walking. My daughter was still having severe separation anxiety at age 6 so the pediatrician mentioned high functioning autism again. We moved to another state soon after and no one ever suggested autism again. When she was 7, she started having fears that she would try to hurt me or the pets. She does not want to hurt me or the pets though....it is just a fear. Then, she started having feelings that she wanted to " scrape " herself, but she never tried. She also had feelings of being in a box. I took her to a few different therapists but we were always brushed off. So, I thought that there wasn't anything to be concerned with. Now my daughter is 11 y/o and things are much worse. She still has severe anxiety about being away from me. She is terrified that something will happen to me. She has had lots of mild panic attacks and a few that were a little scary for both of us. She has some of the typical OCD symptoms, such as, she has to touch both sides of things, she likes even numbers, fear of germs and getting sick, etc. She was diagnosed with OCD a few years ago but was never treated for it. A few months ago, she started having obsessive thoughts of " why bother doing things because it will be over soon anyways. " These thoughts include everything from getting new toys or clothes to eating. She said that she is so tired of not being able to enjoy anything because of these thoughts. Surprisingly, she says that she is happy...and, she acts like she is happy. I took her to her pediatrician about 4 weeks ago to ask for a referral to a therapist. A couple of days later, my daughter told me that she thought that she tried to kill herself in the tub and she was really scared because she didn't want to die. I called the pediatrician and he told me to take her to a children's hospital in a nearby city because they have a pediatric pychiatric center there. They said they thought that the suicidal thoughts were coming from her OCD and they started her on zoloft. She has also started therapy with them. I'm so confused! My instinct tells me that something else is going on. Has anyone else experienced any of these things? Sorry about all of the information! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I am so glad you are finally getting the OCD treated. We had similar issues with professionals being confused with her DX. Some kids don't fit neatly under autism or asperger syndrome but have such a mix of motor skill issues, sensory integration issues, executive function issues that autism spectrum makes the most sense. We had a neuropschological test done at age 9 years old. Wow the information we got was so concrete. The neurologist MD had said she was OCD only where the neuropyschologist said it was a set of problems best called Asperger. Not that it was Asperger Syndrome but it fit this best. Because she had so many development issues going on. Your daughter too has many issues. And perhaps she is not autistic. But her issues are broad. Some people are able to get the school district to pay for a neuropsch test by saying they suspect a non reading learning disability (non verbal learning disability) or autism. Some people are able to get their insurance to pay for some of it. It is a long test we asked it be done once a week for 3-4 hours rather than all in one week (which I thought was too much stress). Some kids with medical issues (like mild cerebal plasy) have these non verbal learning disorders. And their worlds are very confusing. They often have OCD traits. Testing will not solve the problems but it will identify if there are any issues that make school very stressful. I think it is helpful to have this done at least once. Pam Pam > > Hi. I'm new to the group but definitely not new to OCD. My 11 y/o daughter and I both have OCD. I will try to give a short version of my daughter's life. She was born 6 weeks early and NEVER slept! She didn't start sleeping through the night until she was around 6 y/o. When she was 18 mo. old, the pediatrician sent her to a neurologist because she would bang her head with her fist all the time. She was concerned about autism. Neurologist said it wasn't autism. When she was 5 y/o, a new pediatrician was concerned with autism and cerebral palsy. So, off we went to the neurologist again. The neurologist had her walk down the hall so he could evaluate how she walked on her toes and that was it! She was given a diagnosis of mild cerebral palsy due to some developmental delays when she was a baby, problems with fine motor skills, and toe walking. My daughter was still having severe separation anxiety at age 6 so the pediatrician mentioned high functioning autism again. We moved to another state soon after and no one ever suggested autism again. When she was 7, she started having fears that she would try to hurt me or the pets. She does not want to hurt me or the pets though....it is just a fear. Then, she started having feelings that she wanted to " scrape " herself, but she never tried. She also had feelings of being in a box. I took her to a few different therapists but we were always brushed off. So, I thought that there wasn't anything to be concerned with. Now my daughter is 11 y/o and things are much worse. She still has severe anxiety about being away from me. She is terrified that something will happen to me. She has had lots of mild panic attacks and a few that were a little scary for both of us. She has some of the typical OCD symptoms, such as, she has to touch both sides of things, she likes even numbers, fear of germs and getting sick, etc. She was diagnosed with OCD a few years ago but was never treated for it. A few months ago, she started having obsessive thoughts of " why bother doing things because it will be over soon anyways. " These thoughts include everything from getting new toys or clothes to eating. She said that she is so tired of not being able to enjoy anything because of these thoughts. Surprisingly, she says that she is happy...and, she acts like she is happy. I took her to her pediatrician about 4 weeks ago to ask for a referral to a therapist. A couple of days later, my daughter told me that she thought that she tried to kill herself in the tub and she was really scared because she didn't want to die. I called the pediatrician and he told me to take her to a children's hospital in a nearby city because they have a pediatric pychiatric center there. They said they thought that the suicidal thoughts were coming from her OCD and they started her on zoloft. She has also started therapy with them. I'm so confused! My instinct tells me that something else is going on. Has anyone else experienced any of these things? Sorry about all of the information! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Thanks so much to everyone that replied! It is so nice to know that you're not alone. She goes back to the psychiatrist on December 2. I'm hoping I can get some more answers then. Thanks again! It was such a relief to read other posts and know that I'm not crazy! > > Hi. I'm new to the group but definitely not new to OCD. My 11 y/o daughter and I both have OCD. I will try to give a short version of my daughter's life. She was born 6 weeks early and NEVER slept! She didn't start sleeping through the night until she was around 6 y/o. When she was 18 mo. old, the pediatrician sent her to a neurologist because she would bang her head with her fist all the time. She was concerned about autism. Neurologist said it wasn't autism. When she was 5 y/o, a new pediatrician was concerned with autism and cerebral palsy. So, off we went to the neurologist again. The neurologist had her walk down the hall so he could evaluate how she walked on her toes and that was it! She was given a diagnosis of mild cerebral palsy due to some developmental delays when she was a baby, problems with fine motor skills, and toe walking. My daughter was still having severe separation anxiety at age 6 so the pediatrician mentioned high functioning autism again. We moved to another state soon after and no one ever suggested autism again. When she was 7, she started having fears that she would try to hurt me or the pets. She does not want to hurt me or the pets though....it is just a fear. Then, she started having feelings that she wanted to " scrape " herself, but she never tried. She also had feelings of being in a box. I took her to a few different therapists but we were always brushed off. So, I thought that there wasn't anything to be concerned with. Now my daughter is 11 y/o and things are much worse. She still has severe anxiety about being away from me. She is terrified that something will happen to me. She has had lots of mild panic attacks and a few that were a little scary for both of us. She has some of the typical OCD symptoms, such as, she has to touch both sides of things, she likes even numbers, fear of germs and getting sick, etc. She was diagnosed with OCD a few years ago but was never treated for it. A few months ago, she started having obsessive thoughts of " why bother doing things because it will be over soon anyways. " These thoughts include everything from getting new toys or clothes to eating. She said that she is so tired of not being able to enjoy anything because of these thoughts. Surprisingly, she says that she is happy...and, she acts like she is happy. I took her to her pediatrician about 4 weeks ago to ask for a referral to a therapist. A couple of days later, my daughter told me that she thought that she tried to kill herself in the tub and she was really scared because she didn't want to die. I called the pediatrician and he told me to take her to a children's hospital in a nearby city because they have a pediatric pychiatric center there. They said they thought that the suicidal thoughts were coming from her OCD and they started her on zoloft. She has also started therapy with them. I'm so confused! My instinct tells me that something else is going on. Has anyone else experienced any of these things? Sorry about all of the information! > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.