Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 Dr K may do consults on Monday, but I'm pretty sure you can schedule a consult by calling on any day of the week. It's just that your appt will be on a Monday. Most likely, Dr K will spend a fair amount of time reviewing your son's medical history. If appropriate, he may prescribe a short term dose (5-10 days) of prednisone. He may also discuss antibiotics for a period of time. If your son still has his tonsils, you may also discuss the benefits of a Tonsillectomy/adenoidectomy. All these things can be done over the phone. Depending on your results from these steps, Dr K may suggest IVIG. To do this, he will order a blood test to make sure your son doesn't have a certain kind of immuno-deficiency (IGg). If this looks ok, at that time you can decide if IVIG is an option for you. In some cases, only one IVIG treatment is needed. In other cases, a second treatment becomes warranted (but you'd give the first treatment 6 months to work before making that decision). It depends on the severity of the case,the age of the child and how long your child has been fighting this thing. Many parents end up flying to Chicago for IVIG. But some have been able to find local doctors who will consult with Dr K and do it in a local hospital. IVIG sounds scary, but it's used on a regular basis for Multiple Sclerosis and many other autoimmune diseases. There is also a one-time treatment of plasmapheresis, but Dr K does not use this treatment option. I'm sure he will work with you as much as practical to limit your travel. But if you see positive results, who knows, you may be jumping on the first flight you can find... Best of luck! > > > > , Colleen?? > > I beleive it was one of you who gave me the website where you can e-mail a PANDAS doctor . > > Well, I emailed with my son's entire story, and the doctor e-mailed me back saying that my son has every single symtpom and that it is HIGHLY likely he has PANDAS. He said, it could be from the Lyme as well and I should pursue that also, but that he probably has both.They told me to call for a phone conference because I live so far away. > > Does anyone know how much it costs for the phone conference? > > > > thanks in advance > > Hugs > > judy > > > > Quote Link to comment Share on other sites More sharing options...
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