Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 I am not good at this medical stuff, but I can tell you what I go through. I hate to eat. It is a pointless exercise that just eats up paychecks and time I'd rather spend writing or playing music or thinking. Food feels bad, is hard and tiresome to chew, smells, is mostly too hot or too cold (never in between) and is filled with surprises like bones, fat and hair. To eat requires me to envision holocaust people in my head and make myself realize I could look like that if I didn't eat. I have my favorite foods and I would eat them all the time if it wasn't for my NT family wanting more variety. So, I have tried to find at least one food from each of the food groups that I like eating. Even though it is the same round of foods, I am getting all the essentials. I drink a lot of milk, and I take a chewable vitamin everyday. I also drink much water.bottled though because I don't like my water to taste. As far as the discipline of eating, I play music at meal times or read as I eat. This makes the time seem meaningful. I also despise doctors and I don't want to get sick and see them. It took me 20 years to get a variety of foods I could tolerate and as I grew, the sensitivity seemed to calm down. I wish I could give you help, but I am afraid I understand too well the hate of eating. Nadine PS - I also prefer to eat on plates with dividers for the food so they don't touch. It helps me. feeding therapy I just found out a local rehab center her has a feeding therapy class. I still need to find out more about it, but I'd love to get any input anyone might have about this potential solution for Allie. I in no way want her to feel forced or pushed to eat, so if it's forceful in nature she won't be going. The thing is, she *HAS* to start eating better. Debi Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Thanks for sharing. I'm not so much wanting to get Allie to eat meat as I am wanting her to eat her daily requirements. She right now eats: poptarts, potato chips, french fries, sometimes pizza, sometimes peanut butter sandwich, sometimes chicken nuggets. Sometimes fruit juice, though mostly water these days. I was putting her supplements in juice, now she won't drink the juice. She's getting no calcium, save a little cheese from the pizza now and then. I'm not wanting her to eat broccoli (though it would be nice, lol) but like you, I'd like to see her be able to eat something from the food groups. If she could eat a green bean or a carrot, some applesauce or orange juice or a banana, etc. Just something to help her to get her requirements. She's nearly 7 and has yet to even get a lose tooth, I can't help but wonder how bad her bones and teeth are because the only calcium she was getting was coming from her juice when we added it. If she'd even eat a fortified cereal that would help a little bit. Or pudding, or something like that. All that sad, I don't want her to feel miserable about it, so I just don't know what to do... Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 There is a place here called Emory University. They have an autism center and a feeding therapy that is supposed to be one of the best in the country. http://www.psychiatry.emory.edu/PROGRAMS/autism/ I am not sure where you are but maybe this can help over the summer.or maybe they could give recommendations in your area. They have helped us greatly. Nadine Re: feeding therapy Thanks for sharing. I'm not so much wanting to get Allie to eat meat as I am wanting her to eat her daily requirements. She right now eats: poptarts, potato chips, french fries, sometimes pizza, sometimes peanut butter sandwich, sometimes chicken nuggets. Sometimes fruit juice, though mostly water these days. I was putting her supplements in juice, now she won't drink the juice. She's getting no calcium, save a little cheese from the pizza now and then. I'm not wanting her to eat broccoli (though it would be nice, lol) but like you, I'd like to see her be able to eat something from the food groups. If she could eat a green bean or a carrot, some applesauce or orange juice or a banana, etc. Just something to help her to get her requirements. She's nearly 7 and has yet to even get a lose tooth, I can't help but wonder how bad her bones and teeth are because the only calcium she was getting was coming from her juice when we added it. If she'd even eat a fortified cereal that would help a little bit. Or pudding, or something like that. All that sad, I don't want her to feel miserable about it, so I just don't know what to do... Debi Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Thanks. I did have one idea, Allie loves her best friend, . also has autism but eats more. I was thinking about trying to get to eat some of her favorite food with Allie, like bananas, and see if Allie would eat them because her friend is. Would that be bad of me? Debi > > There is a place here called Emory University. They have an autism center > and a feeding therapy that is supposed to be one of the best in the country. > http://www.psychiatry.emory.edu/PROGRAMS/autism/ > > > > I am not sure where you are but maybe this can help over the summer.or maybe > they could give recommendations in your area. > > > > They have helped us greatly. > > > > Nadine > > > > Re: feeding therapy > > > > Thanks for sharing. I'm not so much wanting to get Allie to eat meat > as I am wanting her to eat her daily requirements. She right now eats: > poptarts, potato chips, french fries, sometimes pizza, sometimes > peanut butter sandwich, sometimes chicken nuggets. Sometimes fruit > juice, though mostly water these days. I was putting her supplements > in juice, now she won't drink the juice. She's getting no calcium, > save a little cheese from the pizza now and then. I'm not wanting her > to eat broccoli (though it would be nice, lol) but like you, I'd like > to see her be able to eat something from the food groups. If she could > eat a green bean or a carrot, some applesauce or orange juice or a > banana, etc. Just something to help her to get her requirements. She's > nearly 7 and has yet to even get a lose tooth, I can't help but wonder > how bad her bones and teeth are because the only calcium she was > getting was coming from her juice when we added it. If she'd even eat > a fortified cereal that would help a little bit. Or pudding, or > something like that. All that sad, I don't want her to feel miserable > about it, so I just don't know what to do... > > Debi > > > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 It works kids will copy other kids. We do it here al the time. Good luck and do anything have have to, it makes you creative not bad > Thanks. I did have one idea, Allie loves her best friend, . > also has autism but eats more. I was thinking about trying to > get to eat some of her favorite food with Allie, like bananas, > and see if Allie would eat them because her friend is. Would that be > bad of me? > > Debi > > > > > > There is a place here called Emory University. They have an autism > center > > and a feeding therapy that is supposed to be one of the best in the > country. > > http://www.psychiatry.emory.edu/PROGRAMS/autism/ > > > > > > > > I am not sure where you are but maybe this can help over the > summer.or maybe > > they could give recommendations in your area. > > > > > > > > They have helped us greatly. > > > > > > > > Nadine > > > > > > > > Re: feeding therapy > > > > > > > > Thanks for sharing. I'm not so much wanting to get Allie to eat meat > > as I am wanting her to eat her daily requirements. She right now > eats: > > poptarts, potato chips, french fries, sometimes pizza, sometimes > > peanut butter sandwich, sometimes chicken nuggets. Sometimes fruit > > juice, though mostly water these days. I was putting her supplements > > in juice, now she won't drink the juice. She's getting no calcium, > > save a little cheese from the pizza now and then. I'm not wanting > her > > to eat broccoli (though it would be nice, lol) but like you, I'd > like > > to see her be able to eat something from the food groups. If she > could > > eat a green bean or a carrot, some applesauce or orange juice or a > > banana, etc. Just something to help her to get her requirements. > She's > > nearly 7 and has yet to even get a lose tooth, I can't help but > wonder > > how bad her bones and teeth are because the only calcium she was > > getting was coming from her juice when we added it. If she'd even > eat > > a fortified cereal that would help a little bit. Or pudding, or > > something like that. All that sad, I don't want her to feel > miserable > > about it, so I just don't know what to do... > > > > Debi > > > > > > > > > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hi Debi, I don't know what, if any, dietary restrictions Allie has in terms of sugar, colorings, etc., but for calcium can you give her those tasty chewable Viactiv, or plain old Tums? Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Can't give her the tums, she has aluminum off the charts. She also won't eat candy, so she'll most likely not eat the chewable calcium, except for candy corn calcium, lol. Debi > > Hi Debi, > I don't know what, if any, dietary restrictions Allie has in terms of sugar, > colorings, etc., but for calcium can you give her those tasty chewable > Viactiv, or plain old Tums? > Melinda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Debi, I don't know the specifics of Allie's eating issues, but Grace's appetite really took off after a few months with Houston enzymes. Once she could digest food better, her appetite came back and she finally started growing. We still use them, have for about 3 yrs. She is 9 and has AS. Serena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Serena, thanks for the suggestion. She's been on Peptizyde since we took her off gfcf. It doesn't seem to be appetite, though at times she doesn't eat anything, it's that she will only eat a few foods, most of which are complete junk. She's getting no nutrition and I'm wondering if that's inhibiting her growth & causing other problems. She has been refusing her supplement drink for the last 5 weeks that has her vits/mins in it. Hopefully we've given her enough extra that she just doesn't need it right now. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2006 Report Share Posted March 12, 2006 Hi! Debi- I'm just wondering if Allie likes popsicles? Is it possible to make her small popsicles with her supplements in them? Do you think she might try fresh juices? Surprisingly some of the pickiest kids like fresh apple juice with a little celery or spinach juiced in it... I have had very good luck crushing a good children's multi-vitamin/mineral supplement and smashing it very thoroughly into the peanut butter. We also get Gummy Worm Vitamins, but if kids don't like that sour taste, with the fruit flavors, or the textures of grainy and chewy than that won't work - but it might. There are also Gummy Bear Vitamins and Calcium Supplements. We started growing small gardens with fresh peas, carrots, green beans, tomatoes, lettuce, corn, beets, Swiss chard, and so forth. It was fun to garden together (nothing fancy) and it was also fun to taste the veggies that we had grown ourselves. My EJ liked to eat shelled peas in the garden and carrots pulled up and rinsed off. She still hates a lot of those if they are not eaten in the yard where she has picked them herself... These ideas my not be of any use to you but they may spark an idea of your own that my help...I wish that we could invent an ice cream, pizza, poptart, chicken nugget, or French fry, that had all the daily nutrition in it! Moms like us would sleep better at night without worrying abut how to get good nutrients into our kids. .... > > Serena, thanks for the suggestion. She's been on Peptizyde since we > took her off gfcf. It doesn't seem to be appetite, though at times she > doesn't eat anything, it's that she will only eat a few foods, most of > which are complete junk. She's getting no nutrition and I'm wondering > if that's inhibiting her growth & causing other problems. She has been > refusing her supplement drink for the last 5 weeks that has her > vits/mins in it. Hopefully we've given her enough extra that she just > doesn't need it right now. > > Debi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 She will not eat popcicles. Also, apple, cherry, and other juices high in salicylates give her stomach problems. Pear & mango seemsto be the few that do not (low salicylate) but she won't drink them. She was eating peanut butter but has refused it for the last couple of months. She will eat all those foods you mentioned that we wish had nutrients in them. I've thought about making some pizza sauce with a variety of veggies pureed in it, but I have a strong suspicsion she would then refuse it. I think she has a profoundly-sensitive palate. I'm still gonna take her to her buddy 's house and get ot eat a banana with Allie there, Allie has come as close as kissing the banana. Maybe if her best friend will eat one she might be willing. One other thing, when I make pudding & put red dye in it, put it in a bowl with a straw, put on a video of Tellie Tubbies & tell her it's tubby custard, she will take little sips, but she cringes and shakes after every sip, bless her heart! We have a peach tree, apple tree, blueberry bushes, and strawberry plants in our back yard. She loved picking the strawberries but wouldn't go near eating one. <sigh> Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2006 Report Share Posted March 13, 2006 My 6 year old ASD has many eating issues. She wants to always eat the same thing. Mc and Steak and Shake. She will eat bannanas and grapes a couple times a week. She will try something occasionally. She loves the mac and cheese. I could use so much help with her diet. Our newsletter for our local autism society had a story about a mom who started helping others with their childrens diets ,but she must be very busy. I have not heard back from her yet. I am open to anything at this point. I keep offering healthy foods and she does enjoy an apple a day, but I know there is room for improvemnt! Concerned mom of Hannah Janet in Kc ________________________________ From: Autism_in_Girls on behalf of Debi Sent: Mon 3/13/2006 11:17 PM To: Autism_in_Girls Subject: Re: feeding therapy She will not eat popcicles. Also, apple, cherry, and other juices high in salicylates give her stomach problems. Pear & mango seemsto be the few that do not (low salicylate) but she won't drink them. She was eating peanut butter but has refused it for the last couple of months. She will eat all those foods you mentioned that we wish had nutrients in them. I've thought about making some pizza sauce with a variety of veggies pureed in it, but I have a strong suspicsion she would then refuse it. I think she has a profoundly-sensitive palate. I'm still gonna take her to her buddy 's house and get ot eat a banana with Allie there, Allie has come as close as kissing the banana. Maybe if her best friend will eat one she might be willing. One other thing, when I make pudding & put red dye in it, put it in a bowl with a straw, put on a video of Tellie Tubbies & tell her it's tubby custard, she will take little sips, but she cringes and shakes after every sip, bless her heart! We have a peach tree, apple tree, blueberry bushes, and strawberry plants in our back yard. She loved picking the strawberries but wouldn't go near eating one. <sigh> Debi Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
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