Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 I'm so sorry:( Mine is only almost 7 but I feel for you! I wonder too if he hasn't ramped up due to an H1N1 infection. He had pneumonia around Oct.3rd and like yours for a few days was really sick and really loving but the past week or two have been pure hell and very violent. He hasn't been back to the doc so I don't know that it is the flu but about 50 schools in the area are closed from it so it's a good possibility.Unfortunately they won't give me any prn meds for him (probably his age).Hang in there, it has to get better. Hugs, > > > > > > > > My 13 year old PANDAS son contracted the H1N1 virus this week and it has been sheer hell. He was already battling a sinus infection which had caused serious meltdowns, but was doing much better about 3 days after he was placed on antibiotics. Last Saturday, he got so stuck on something he wanted that his dad said no to, and held on to that anger for hours, eventually throwing a rock through his bedroom wall. 2 days later, he was sick in bed with the flu. The first few days weren't so bad because he was so sick, but then Thursday he had a 3 hour plus meltdown. I called the psychiatrist begging for some temporary Prednisone to calm any inflammation that might be occuring in his brain. He told me to give him Ativan as needed. Yesterday, we had at least 2 more meltdowns. Today he got stuck and just belligerent with his dad while I was at work. Dad did not respond well, doing the typical dad thing of demanding more respect, getting stricter etc. After I got home he melted down again, sticking his head in a bookcase and screaming " mom, help me! " over and over. I gave him an Ativan and called his therapist, who basically told me we've been through this before and the best thing I could do now was try to let him settle down. Well he did, and went out to play with his brother for a while and was laughing etc. But then, like the flick of a switch, he started up again, this time trying to pull out his eyelashes and eyebrows. I had to try and restrain him from doing this to himself. Then he ran to his room and kicked it so hard he broke the door jam and put a giant hole in the door. And all this is AFTER the Ativan. Then he wildly started looking for scissors so he could cut up all his money, so he wouldn't have to pay for the door damage - I'd have to spend my own money. He finally went to the couch and I thought he was settled down and so I went to try and talk with him and he started hitting me and pushing me away. Mind you, this is not a little kid. He is WAY stronger than me. So I have let him be on the couch. My husband wants to call the police, but to what end? I am just so frustrated because no one seems to understand how bad this is, and no one seems to know what to do except say " well, this seems to be a pattern when he gets sick " . The last time he got the flu, he ended up so bad we hospitalized him. But our city doesn't have a kids psych hospital, which means we'd have to drive him an hour away, and there's no way we'd be able to get him there. So as I'm writing this email, he pops up off the couch and asks what we're doing tonight (I had offerred to take him to the movies since he is feeling better about 3 hours ago). When I told him nothing anymore, he started threatening that I was going to get more tomorrow then. Basically, if I don't do what OCD is telling him he has to do he's going to get destructive and assaultive again. Hell, even if I do accommodate the OCD, it will only be temporary. I have no idea what to do anymore - his room looks like a war zone, I'm truly a little scared of him, he's supposed to go back to school Monday, but is so freaked about all the work he missed it's unlikely he'll be able to leave the house. I've been trying to be patient and calm and loving and rational, but now he is stuck in anger at me. Feeling helpless and trapped and not ready to face another minute of all this anger. Thanks for letting me vent.. > > > - in MI > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Hi and some ((((hugs))). I know when would get sick, his OCD ramped up, especially if a fever was present. Took some time after a few illnesses to settle back down. Is what is going on now similar to the past flu problems? How did that get better (prednisone, meds...)? > > > My 13 year old PANDAS son contracted the H1N1 virus this week and it has been sheer hell. He was already battling a sinus infection which had caused serious meltdowns, but was doing much better about 3 days after he was placed on antibiotics. Last Saturday, he got so stuck on something he wanted that his dad said no to, and held on to that anger for hours, eventually throwing a rock through his bedroom wall. 2 days later, he was sick in bed with the Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Wow! This is just a horrible experience for the whole family to endure. And your son is suffering so. The ativan is not having an effect. The therapist is telling you just to cope. But reading your story your son sounded out of control medically. He is not being helped by his current treatment plan. Something has to change. Some child psychiatrists are very very conservative to the point of not treating the illness/condition. I personally would want to explore in a very careful way mood stablizers that could be used for short term use like abilify or other medications that quiet outburst behaviors. If your husband is considering calling the police it really means things are out of control with the medication management. I felt like crying for you all the suffering in the family. It sounds so painful. Consider if your son hurts someone in the family. Social services, the police etc may not care that the ativan doesn't work or that this a medical triggered reaction. I hope you find a treatment for your suffering son. You may consider a pyschiatrist that deals with the autistic community. In the autism patients kids need medication to get them thru short periods of distress often. Also they have complicated emotional issues requiring a mix of medications. They are often treated for anxiety and outburst behaviors. And they are sensitive to medications often requiring the doctor to be skilled at managing side effects. best of luck finding treatment. Pam > > > > > > > > My 13 year old PANDAS son contracted the H1N1 virus this week and it has been sheer hell. He was already battling a sinus infection which had caused serious meltdowns, but was doing much better about 3 days after he was placed on antibiotics. Last Saturday, he got so stuck on something he wanted that his dad said no to, and held on to that anger for hours, eventually throwing a rock through his bedroom wall. 2 days later, he was sick in bed with the flu. The first few days weren't so bad because he was so sick, but then Thursday he had a 3 hour plus meltdown. I called the psychiatrist begging for some temporary Prednisone to calm any inflammation that might be occuring in his brain. He told me to give him Ativan as needed. Yesterday, we had at least 2 more meltdowns. Today he got stuck and just belligerent with his dad while I was at work. Dad did not respond well, doing the typical dad thing of demanding more respect, getting stricter etc. After I got home he melted down again, sticking his head in a bookcase and screaming " mom, help me! " over and over. I gave him an Ativan and called his therapist, who basically told me we've been through this before and the best thing I could do now was try to let him settle down. Well he did, and went out to play with his brother for a while and was laughing etc. But then, like the flick of a switch, he started up again, this time trying to pull out his eyelashes and eyebrows. I had to try and restrain him from doing this to himself. Then he ran to his room and kicked it so hard he broke the door jam and put a giant hole in the door. And all this is AFTER the Ativan. Then he wildly started looking for scissors so he could cut up all his money, so he wouldn't have to pay for the door damage - I'd have to spend my own money. He finally went to the couch and I thought he was settled down and so I went to try and talk with him and he started hitting me and pushing me away. Mind you, this is not a little kid. He is WAY stronger than me. So I have let him be on the couch. My husband wants to call the police, but to what end? I am just so frustrated because no one seems to understand how bad this is, and no one seems to know what to do except say " well, this seems to be a pattern when he gets sick " . The last time he got the flu, he ended up so bad we hospitalized him. But our city doesn't have a kids psych hospital, which means we'd have to drive him an hour away, and there's no way we'd be able to get him there. So as I'm writing this email, he pops up off the couch and asks what we're doing tonight (I had offerred to take him to the movies since he is feeling better about 3 hours ago). When I told him nothing anymore, he started threatening that I was going to get more tomorrow then. Basically, if I don't do what OCD is telling him he has to do he's going to get destructive and assaultive again. Hell, even if I do accommodate the OCD, it will only be temporary. I have no idea what to do anymore - his room looks like a war zone, I'm truly a little scared of him, he's supposed to go back to school Monday, but is so freaked about all the work he missed it's unlikely he'll be able to leave the house. I've been trying to be patient and calm and loving and rational, but now he is stuck in anger at me. Feeling helpless and trapped and not ready to face another minute of all this anger. Thanks for letting me vent.. > > > - in MI > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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