Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 > ummmm > I don't know about people with autism being cured?? I'll share a couple of emails on OCD and autism, 2 are below. >Everyone is unique, and not all people respond the same to >treatments,meds,etc. Yes, especially since it appears that there are more than one pathway to OCD, autism, and the other disorders. From my layman's view, I don't think that the boundaries of the disorders are as firm or defined as some think. But, on to the anecdotes... ------ : All of them rid the symptoms of OCD. I started with one, stopped, the symptoms returned, than started with another. They have stayed on a herb that is known to kill Bartonella consistently now, since we have that in our house, and one of my son's has the stretch-mark rash it causes. Thus, I just look at the rash every day to see the effect the herbs have on it. The symptoms were rid a long time ago, but the infection stays in your body, so treatments have to continue quite a while after the symptoms are gone. Thus, any of and all of them rid symptoms at my house. The Mindlynx may have worked by creating microflora needed to make the B vitamins to keep the OCD away, but the pathogen remains, so it also has to be rid. We started with Cat's Claw and Resveratrol and got great results. We then switched to Cumanda in the evening and Samento in the morning, and got great results, and now we switched to grapefruit seed extract and monolaurin. They all rid and kept symptoms away, and shrunk the rash, which is still barely there. It was almost gone till he ate a bunch of candy bars. Heck, goes to show you how much diet is important. We took cod liver oil throughout, and the rash would not shrink if he missed his dose of cod liver oil or did not take those herbs. Thus, he needed both. I really see lots of posts on success at ridding OCD, so keep the positive outlook. I feel joy just imaginging your joy when you see those symptoms rid. But ridding OCD can be quite difficult sometimes. We got a worsening of symptoms for 3 weeks before the die-off was lessened. We used Burbur, lithium orotate and Mellatonin to handle the die-off it created. Some got few die-off symptoms at my house, and some got really bad ones. Love and prayers, Heidi N ------ " kellyjeffmaxmark " kellyfincher@> wrote: I'm one of the folks who gets better then leaves the group but first a thank you to all who contribute. I've learned much from you and appreciate the sense of community that I'm not alone. My boys have been sick since their birth in 1992. I was angry and felt I didn't deserve it since I planned for everything, except how toxic vaccines are and that we lived in a house with Chlordane, and that I passed genetic SNPs to them in our detox ability. What a journey: diets, bio-med, bioset, chronic fatigue, neurotherapy, occupational therapy, homeopathy, severe asthma and allergies, OCD, anxiety, functional medicine docs, environmental docs, pediatricians who want to put your kids on Luvox...you know, the usual when biochemistry goes horribly wrong. I'm thrilled to say that after patching up the detox SNPs, removing heavy metals and pesticides, and one final piece of the puzzle, Ashok Gupta's amygdala retraining, my boys say they're fine. This subconscious part of the brain the size of an almond, was killing us. After years of sickness, the amygdala gets stuck in a threat mode. It will send out stress hormones forever, keeping you sick forever. It must be specifically addressed by understanding the primitive brain and why it's there ironically keep you from danger. But in a toxic world, it gets amplified. Ashok has given us our lives back. No more negative thoughts because they keep the stress hormones going. It is not too early to start the meditation programs with your toddlers. And for stressed out parents too. Good luck all. Peace at last. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 More anecdotes. Where there's smoke, there's fire...BTW, I'm not selling a thing, this is all about information. ----- You can go to You Tube and do a search for " 's Recovery Interview " to see how he is today. When he was two, he broke everything in the house; at three he took off outside on several occasions, and it took hours to find him; at school, they put him in seclusion rooms because he was so out-of-control, which I did not find out about till he was 14. He did almost all the autism trauma stuff: head-banging, assaultive, destructive, and out-of-control. The good news is that I never had any of those " teen years " problems one typically has with teenagers. It was almost worth the trauma and drama in the young years in exchange for blissful teen years. Love and prayers, Heidi N ----- Christy: Yes. I can't remember exactly, since at the time the idea of autism, vaccines, etc. were not on my mind. But, if my memory serves me correct, got 4 vaccines at once, and shortly after he had a fever of 103.7 with diarrhea, and was not even acting sick. He was running around happy with that fever. Shortly after all that, he started stuttering. The stuttering kept getting worse over a 6-month time period, and then he could no longer pronounce any words, just sounds. He had perfect speech at age 3.5 years, and at age 4 years, he could not pronounce one word correctly. He had this lost look in his eyes, like he was losing his ability to concentrate. He also developed OCD, and would fit forever about things that were not significant. It was like he got into a fit, and he just could not get out of it. At this moment in time, I was at the beginning of learning about recovery for my other son who was 10 years older. was then placed on EFAs, first flax, then Salmon, then cod liver oil. Each one worked dramatically for him. He is on much more now, but he did start responding right away. He can not eat wheat. The first time doesn't really effect him, but when he started sneaking wheat daily at school, he became a runner, totally out of control. So, he also responds well to the gf diet. All my kids are really the biomed poster children, they respond to all the common things done in biomed, but they have to have it all: diet, kill all pathogen types, nutrition, organic, no carpeting, detoxing, etc. Everything helped a little; altogether, they added up to a great recovery. But, all are still dependent upon things, so I have no cure answers, but certainly I have learned that there is hope for everyone. It's a matter of learning and trying. It does take some money and a lot of effort. So, no one needs to be hard on themselves, but rather give yourself credit for all you have done. For my opinion on vaccines, I no longer vaccinate. I have a website: www.heidinotes.com Love and prayers, Heidi N -------- You have to get the diet just right. Being gf (gluten-free. cf=casein-free) is only part of the solution. I remember when was gf-cf, organic. One day he drank a pepsi, and went from recovered enough to be in regular school to full autism symptoms for a week. So, it's not just the gluten that has to go to notice a difference. Love and prayers, Heidi N Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 These are in a more philosophic vein... " I say, throw the science out the window, and do what those who recovered their children did. That's how I succeeded. The number one thing causing success was treating for pleomorphic bacteria. Now, everyone says, but testing this or testing that or whatever. I say that if testing was good, then we would not be in this mess to begin with. Follow the success stories; that's the science. I trust the parents. One day, we might figure it all out; in the meantime, I recommend taking the short-cut -- do what others say recovered their children. " ------ The thinking before we learned all this about recovery is that illnesses have one cause, we take a pill and get better. But, actually, that has never been true. The Autism Recovery Movement has opened our eyes to a lot of crap we have been fed. It's our fault as well, for demanding to only take one pill, rather than demanding to get at the root cause of things. In the recovery journey, one learns that the immune state is the reason for the symptoms. This immune state is being caused by all pathogen types and gobs of toxins. Somewhere along the line, doctors just started handing out diagnoses like candy, saying " there is no known cause " and then not even testing for possible causes. View your child as medically ill. Toxins cause pathogens to stock-pile, and pathogens collect toxins, so one causes the other. Having reviewed as many recovery stories as I can find, I found that treating for bad bacteria got the most results, but most report improvements, and some report down-right miracles from only treating for worms, yeast or viruses. Most report significant improvements from chelation, but it has to be done correctly. And each child tolerates each chelation technique differently. So, what I am seeing, is it's best to treat for " all " pathogen types and do something to rid toxins, especially while killing pathogens. Killing pathogens is releasing toxins into their bodies, so you will need something to mop them up. I can not say the cause, but what I can say is that reversing it is taking a combination approach of treating for various pathogens types and detoxing. It most certainly is not being reversed by anti-virals alone. Although, occasionally, this may happen. As far as viruses go, I know that HHV6 and other herpes strains get a lot of the blame for inflicting damage to the immune system. But vaccines are in the mix as well. Relapse rates appear to be very high amongst those who do not stay on diets and supplements, and very low on those who do. So the real cause of autism is mainstream medical turning it's back on diagnoses like autism, instead of looking for the medical cause and then treating medically for it. I am in my forties, and I guarantee you that you will find almost no one my age or older who will tell you that we had this problem in our childhood. We did not have hyperactive kids at all or kids out of control at school. I moved every year and lived in crowded neighborhoods, and I always spent time running throughout the neighborhood. I saw one child with mental retardation growing up, about 5 in each grade level that went for extra help in reading or math, and maybe one kid in the whole school on psych meds. The only anxiety the kids had were the idea of getting spankings if they threw a spit-wad or got in a fight at school because they didn't do anything else. There was no hyperactivity, etc. Whatever is making our children ill is getting worse every year. Either way, once you have autism, you will likely need to treat for various toxin and pathogen types. Love and prayers, Heidi N Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 I may have missed a post--do you have a child with OCD you would like to talk about? Re: Nature of group? These are in a more philosophic vein... " I say, throw the science out the window, and do what those who recovered their children did. That's how I succeeded. The number one thing causing success was treating for pleomorphic bacteria. Now, everyone says, but testing this or testing that or whatever. I say that if testing was good, then we would not be in this mess to begin with. Follow the success stories; that's the science. I trust the parents. One day, we might figure it all out; in the meantime, I recommend taking the short-cut -- do what others say recovered their children. " ------ The thinking before we learned all this about recovery is that illnesses have one cause, we take a pill and get better. But, actually, that has never been true. The Autism Recovery Movement has opened our eyes to a lot of crap we have been fed. It's our fault as well, for demanding to only take one pill, rather than demanding to get at the root cause of things. In the recovery journey, one learns that the immune state is the reason for the symptoms. This immune state is being caused by all pathogen types and gobs of toxins. Somewhere along the line, doctors just started handing out diagnoses like candy, saying " there is no known cause " and then not even testing for possible causes. View your child as medically ill. Toxins cause pathogens to stock-pile, and pathogens collect toxins, so one causes the other. Having reviewed as many recovery stories as I can find, I found that treating for bad bacteria got the most results, but most report improvements, and some report down-right miracles from only treating for worms, yeast or viruses. Most report significant improvements from chelation, but it has to be done correctly. And each child tolerates each chelation technique differently. So, what I am seeing, is it's best to treat for " all " pathogen types and do something to rid toxins, especially while killing pathogens. Killing pathogens is releasing toxins into their bodies, so you will need something to mop them up. I can not say the cause, but what I can say is that reversing it is taking a combination approach of treating for various pathogens types and detoxing. It most certainly is not being reversed by anti-virals alone. Although, occasionally, this may happen. As far as viruses go, I know that HHV6 and other herpes strains get a lot of the blame for inflicting damage to the immune system. But vaccines are in the mix as well. Relapse rates appear to be very high amongst those who do not stay on diets and supplements, and very low on those who do. So the real cause of autism is mainstream medical turning it's back on diagnoses like autism, instead of looking for the medical cause and then treating medically for it. I am in my forties, and I guarantee you that you will find almost no one my age or older who will tell you that we had this problem in our childhood. We did not have hyperactive kids at all or kids out of control at school. I moved every year and lived in crowded neighborhoods, and I always spent time running throughout the neighborhood. I saw one child with mental retardation growing up, about 5 in each grade level that went for extra help in reading or math, and maybe one kid in the whole school on psych meds. The only anxiety the kids had were the idea of getting spankings if they threw a spit-wad or got in a fight at school because they didn't do anything else. There was no hyperactivity, etc. Whatever is making our children ill is getting worse every year. Either way, once you have autism, you will likely need to treat for various toxin and pathogen types. Love and prayers, Heidi N = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 >I may have missed a post--do you have >a child with OCD you would like to > >talk about? Talk about? No - I have a daughter who will recover from OCD. In that effort, I continue to look for anecdotes (and hard science) that will hint where successful treatments are to be discovered, and share them with people who have not just resigned themselves to OCD. IMHO, the answers are not to be found in psychology or psychiatry, but in basic body health... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 Thank you Guy I appreciate your input. I do not think there are ever clear cut 'boundaries' to any disorder-one bleeds into another..and another.We are all complex and incredibly made. I never lose hope and continue on. I value everyone's opinions and ideas/thoughts. Thanks for sharing. In a message dated 10/22/2009 8:36:39 P.M. Eastern Standard Time, guyiii@... writes: > ummmm > I don't know about people with autism being cured?? I'll share a couple of emails on OCD and autism, 2 are below. >Everyone is unique, and not all people respond the same to >treatments,treatment Yes, especially since it appears that there are more than one pathway to OCD, autism, and the other disorders. From my layman's view, I don't think that the boundaries of the disorders are as firm or defined as some think. But, on to the anecdotes... ------ : All of them rid the symptoms of OCD. I started with one, stopped, the symptoms returned, than started with another. They have stayed on a herb that is known to kill Bartonella consistently now, since we have that in our house, and one of my son's has the stretch-mark rash it causes. Thus, I just look at the rash every day to see the effect the herbs have on it. The symptoms were rid a long time ago, but the infection stays in your body, so treatments have to continue quite a while after the symptoms are gone. Thus, any of and all of them rid symptoms at my house. The Mindlynx may have worked by creating microflora needed to make the B vitamins to keep the OCD away, but the pathogen remains, so it also has to be rid. We started with Cat's Claw and Resveratrol and got great results. We then switched to Cumanda in the evening and Samento in the morning, and got great results, and now we switched to grapefruit seed extract and monolaurin. They all rid and kept symptoms away, and shrunk the rash, which is still barely there. It was almost gone till he ate a bunch of candy bars. Heck, goes to show you how much diet is important. We took cod liver oil throughout, and the rash would not shrink if he missed his dose of cod liver oil or did not take those herbs. Thus, he needed both. I really see lots of posts on success at ridding OCD, so keep the positive outlook. I feel joy just imaginging your joy when you see those symptoms rid. But ridding OCD can be quite difficult sometimes. We got a worsening of symptoms for 3 weeks before the die-off was lessened. We used Burbur, lithium orotate and Mellatonin to handle the die-off it created. Some got few die-off symptoms at my house, and some got really bad ones. Love and prayers, Heidi N ------ " kellyjeffmaxmark " kellyfincher@> wrote: I'm one of the folks who gets better then leaves the group but first a thank you to all who contribute. I've learned much from you and appreciate the sense of community that I'm not alone. My boys have been sick since their birth in 1992. I was angry and felt I didn't deserve it since I planned for everything, except how toxic vaccines are and that we lived in a house with Chlordane, and that I passed genetic SNPs to them in our detox ability. What a journey: diets, bio-med, bioset, chronic fatigue, neurotherapy, occupational therapy, homeopathy, severe asthma and allergies, OCD, anxiety, functional medicine docs, environmental docs, pediatricians who want to put your kids on Luvox...you know, the usual when biochemistry goes horribly wrong. I'm thrilled to say that after patching up the detox SNPs, removing heavy metals and pesticides, and one final piece of the puzzle, Ashok Gupta's amygdala retraining, my boys say they're fine. This subconscious part of the brain the size of an almond, was killing us. After years of sickness, the amygdala gets stuck in a threat mode. It will send out stress hormones forever, keeping you sick forever. It must be specifically addressed by understanding the primitive brain and why it's there ironically keep you from danger. But in a toxic world, it gets amplified. Ashok has given us our lives back. No more negative thoughts because they keep the stress hormones going. It is not too early to start the meditation programs with your toddlers. And for stressed out parents too. Good luck all. Peace at last. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2009 Report Share Posted October 23, 2009 Hi Guy - it's so hard when you have a child with OCD - you are right to search for answers in many directions. While my child's OCD is caused by PANDAS, and therefore needs to be treated both medically and psychologically, there are many children with purely genetically caused OCD. Whatever the reason for the OCD, especially if severe, it is a devestating disease that can leave parents feeling helpless. There are so many branches of science that you can search to help for the right answers for your child. Some relatively common areas to explore a medical " cause of OCD " are PANDAS, Lupus, Celiac, Thyroid, and Lyme. What ever the " reason " for the OCD in your child, I would strongly recommend ERP (Exposure & Ritual Prevention) therapy. It is very natural, and is proven to help children and adults. And even if it does not, it provides training in great life skills. This therapy can be done at the same time that you are exploring basic body health alternatives. You seem to be very good at research, so you may also enjoy reading the many scientific studies that have been done on the effectiveness of ERP therapy. It is often more effective than medication, and is longer lasting. There are quite a few of those posted in the Files section of this group. In terms of SSRI and medication, this is a personal choice and often one of necessity, and no parent takes this decision lightly. We are careful here to suggest all options to parents without dismissing valid options such as medication. This is understandably a very sensitive topic. I am pleased you are considering all options and have complete faith in your daughter. That is a great place to be and a true one. Children can recover and live a wonderful life despite the presence of OCD, however that disease manifests in their life. Thanks for sharing your ideas with the group. Best - in NC. > > >I may have missed a post--do you have >a child with OCD you would like to > > >talk about? > > Talk about? No - I have a daughter who will recover from OCD. > > In that effort, I continue to look for anecdotes (and hard science) that > will hint where successful treatments are to be discovered, and share them > with people who have not just resigned themselves to OCD. > > IMHO, the answers are not to be found in psychology or psychiatry, but in > basic body health... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 Thank you, Louis. Kelley in NV = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2009 Report Share Posted October 24, 2009 Yes,thank you ,Louis- Sue in NY ________________________________ To: Sent: Sat, October 24, 2009 12:10:04 PM Subject: Re: Nature of Group? Â Thank you, Louis. Kelley in NV = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Thank you, Louis. I always know you'll handle these things well. We appreciate all of your hard work on our behalf. Dina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 > Ditto Louis, I don't know what I'd do without the group Terry > Thank you, Louis. I always know you'll handle these things well. We > appreciate all of your hard work on our behalf. > Dina > Quote Link to comment Share on other sites More sharing options...
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