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> ummmm

> I don't know about people with autism being cured??

I'll share a couple of emails on OCD and autism, 2 are below.

>Everyone is unique, and not all people respond the same to

>treatments,meds,etc.

Yes, especially since it appears that there are more than one pathway to

OCD, autism, and the other disorders. From my layman's view, I don't think

that the boundaries of the disorders are as firm or defined as some think.

But, on to the anecdotes...

------

:

All of them rid the symptoms of OCD. I started with one, stopped, the

symptoms

returned, than started with another. They have stayed on a herb that is

known to kill Bartonella consistently now, since we have that in our house,

and one of my son's has the stretch-mark rash it causes. Thus, I just look

at the rash every day to see the effect the herbs have on it. The symptoms

were rid a long time ago, but the infection stays in your body, so

treatments have to continue

quite a while after the symptoms are gone.

Thus, any of and all of them rid symptoms at my house. The Mindlynx may have

worked by creating microflora needed to make the B vitamins to keep the OCD

away, but the pathogen remains, so it also has to be rid. We started with

Cat's Claw and Resveratrol and got great results. We then switched to

Cumanda in the evening and Samento in the morning, and got great results,

and now we switched to grapefruit seed extract and monolaurin. They all rid

and kept symptoms away, and shrunk the rash, which is still barely there. It

was almost gone till he ate a bunch of candy bars. Heck, goes to show you

how much diet is important. We took cod liver oil throughout, and the rash

would not shrink if he missed his dose of cod liver oil or did not take

those herbs. Thus, he needed both.

I really see lots of posts on success at ridding OCD, so keep the positive

outlook. I feel joy just imaginging your joy when you see those symptoms

rid. But ridding OCD can be quite difficult sometimes. We got a worsening

of symptoms for 3 weeks before the die-off was lessened. We used Burbur,

lithium orotate and Mellatonin to handle the die-off it created. Some got

few die-off

symptoms at my house, and some got really bad ones.

Love and prayers,

Heidi N

------

" kellyjeffmaxmark " kellyfincher@> wrote:

I'm one of the folks who gets better then leaves the group but first a thank

you to all who contribute. I've learned much from you

and appreciate the sense of community that I'm not alone.

My boys have been sick since their birth in 1992. I was angry and felt I

didn't deserve it since I planned for everything, except

how toxic vaccines are and that we lived in a house with Chlordane, and that

I passed genetic SNPs to them in our detox ability.

What a journey: diets, bio-med, bioset, chronic fatigue, neurotherapy,

occupational therapy, homeopathy, severe asthma and

allergies, OCD, anxiety, functional medicine docs, environmental docs,

pediatricians who want to put your kids on Luvox...you know, the usual when

biochemistry goes horribly wrong.

I'm thrilled to say that after patching up the detox SNPs, removing heavy

metals and pesticides, and one final piece of the puzzle,

Ashok Gupta's amygdala retraining, my boys say they're fine.

This subconscious part of the brain the size of an almond, was killing us.

After years of sickness, the amygdala gets stuck in

a threat mode. It will send out stress hormones forever, keeping you sick

forever. It must be specifically addressed by understanding the primitive

brain and why it's there ironically keep you from danger.

But in a toxic world, it gets amplified. Ashok has given us our lives back.

No more negative thoughts because they keep the stress hormones going. It is

not too early to

start the meditation programs with your toddlers. And for stressed out

parents too.

Good luck all. Peace at last.

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More anecdotes. Where there's smoke, there's fire...BTW, I'm not selling a

thing, this is all about information.

-----

You can go to You Tube and do a search for " 's Recovery Interview " to

see how he is today. When he was two, he broke everything in the house; at

three he took off outside on several occasions, and it took hours to find

him; at school, they put him in seclusion rooms because he was so

out-of-control, which I did not find out about till he was 14. He did

almost all the autism trauma stuff: head-banging, assaultive, destructive,

and out-of-control. The good news is that I never had any of those " teen

years " problems one typically has with teenagers. It was almost worth the

trauma and drama in the young years in exchange for blissful teen years.

Love and prayers,

Heidi N

-----

Christy:

Yes. I can't remember exactly, since at the time the idea of autism,

vaccines, etc. were not on my mind. But, if my memory serves me correct,

got 4 vaccines at once, and shortly after he had a fever of 103.7 with

diarrhea, and was not even acting sick. He was running around happy with

that fever. Shortly after all that, he started stuttering. The stuttering

kept getting worse over a 6-month time period, and then he could no longer

pronounce any words, just sounds. He had perfect speech at age 3.5 years,

and at age 4 years, he could not pronounce one word correctly. He had this

lost look in his eyes, like he was losing his ability to concentrate. He

also developed OCD, and would fit forever about things that were not

significant. It was like he got into a fit, and he just could not get out

of it. At this moment in time, I was at the beginning of learning about

recovery for my other son who was 10 years older.

was then placed on EFAs, first flax, then Salmon, then cod liver oil.

Each one worked dramatically for him. He is on much more now, but he did

start responding right away. He can not eat wheat. The first time doesn't

really effect him, but when he started sneaking wheat daily at school, he

became a runner, totally out of control. So, he also responds well to the

gf diet. All my kids are really the biomed poster children, they respond to

all the common things done in biomed, but they have to have it all: diet,

kill all pathogen types, nutrition, organic, no carpeting, detoxing, etc.

Everything helped a little; altogether, they added up to a great recovery.

But, all are still dependent upon things, so I have no cure answers, but

certainly I have learned that there is hope for everyone. It's a matter of

learning and trying. It does take some money and a lot of effort. So, no

one needs to be hard on themselves, but rather give yourself credit for all

you have done.

For my opinion on vaccines, I no longer vaccinate. I have a website:

www.heidinotes.com

Love and prayers,

Heidi N

--------

You have to get the diet just right. Being gf (gluten-free. cf=casein-free)

is only part of the solution. I remember when was gf-cf, organic. One

day he drank a pepsi, and went from recovered enough to be in regular school

to full autism symptoms for a week. So, it's not just the gluten that has

to go to notice a difference.

Love and prayers,

Heidi N

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These are in a more philosophic vein...

" I say, throw the science out the window, and do what those who recovered

their children did. That's how I succeeded. The number one thing causing

success was treating for pleomorphic bacteria. Now, everyone says, but

testing this or testing that or whatever. I say that if testing was good,

then we would not be in this mess to begin with. Follow the success stories;

that's the science. I trust the parents. One day, we might figure it all

out; in the meantime, I

recommend taking the short-cut -- do what others say recovered their

children. "

------

The thinking before we learned all this about recovery is that illnesses

have one cause, we take a pill and get better. But, actually, that has

never been true. The Autism Recovery Movement has opened our eyes to a lot

of crap we have been fed. It's our fault as well, for demanding to only

take one pill, rather than demanding to get at the root cause of things. In

the recovery journey, one learns that the immune state is the reason for the

symptoms. This immune state is being caused by all pathogen types and gobs

of toxins. Somewhere along the line, doctors just started handing out

diagnoses like candy, saying " there is no known cause " and then not even

testing for possible causes.

View your child as medically ill. Toxins cause pathogens to stock-pile, and

pathogens collect toxins, so one causes the other. Having reviewed as many

recovery stories as I can find, I found that treating for bad bacteria got

the most results, but most report improvements, and some report down-right

miracles from only treating for worms, yeast or viruses. Most report

significant improvements from chelation, but it has to be done correctly.

And each child tolerates each chelation technique differently. So, what I

am seeing, is it's best to treat for " all " pathogen types and do something

to rid toxins, especially while killing pathogens. Killing pathogens is

releasing toxins into their bodies, so you will need something to mop them

up. I can not say the cause, but what I can say is that reversing it is

taking a combination approach of treating for various pathogens types and

detoxing. It most certainly is not being reversed by anti-virals alone.

Although, occasionally, this may happen. As far as viruses go, I know that

HHV6 and other herpes strains get a lot of the blame for inflicting damage

to the immune system. But vaccines are in the mix as well. Relapse rates

appear to be very high amongst those who do not stay on diets and

supplements, and very low on those who do.

So the real cause of autism is mainstream medical turning it's back on

diagnoses like autism, instead of looking for the medical cause and then

treating medically for it. I am in my forties, and I guarantee you that you

will find almost no one my age or older who will tell you that we had this

problem in our childhood. We did not have hyperactive kids at all or kids

out of control at school. I moved every year and lived in crowded

neighborhoods, and I always spent time running throughout the neighborhood.

I saw one child with mental retardation growing up, about 5 in each grade

level that went for extra help in reading or math, and maybe one kid in the

whole school on psych meds. The only anxiety the kids had were the idea of

getting spankings if they threw a spit-wad or got in a fight at school

because they didn't do anything else. There was no hyperactivity, etc.

Whatever is making our children ill is getting worse every year. Either

way, once you have autism, you will likely need to treat for various toxin

and pathogen types.

Love and prayers,

Heidi N

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I may have missed a post--do you have a child with OCD you would like to talk

about?

Re: Nature of group?

These are in a more philosophic vein...

" I say, throw the science out the window, and do what those who recovered

their children did. That's how I succeeded. The number one thing causing

success was treating for pleomorphic bacteria. Now, everyone says, but

testing this or testing that or whatever. I say that if testing was good,

then we would not be in this mess to begin with. Follow the success stories;

that's the science. I trust the parents. One day, we might figure it all

out; in the meantime, I

recommend taking the short-cut -- do what others say recovered their

children. "

------

The thinking before we learned all this about recovery is that illnesses

have one cause, we take a pill and get better. But, actually, that has

never been true. The Autism Recovery Movement has opened our eyes to a lot

of crap we have been fed. It's our fault as well, for demanding to only

take one pill, rather than demanding to get at the root cause of things. In

the recovery journey, one learns that the immune state is the reason for the

symptoms. This immune state is being caused by all pathogen types and gobs

of toxins. Somewhere along the line, doctors just started handing out

diagnoses like candy, saying " there is no known cause " and then not even

testing for possible causes.

View your child as medically ill. Toxins cause pathogens to stock-pile, and

pathogens collect toxins, so one causes the other. Having reviewed as many

recovery stories as I can find, I found that treating for bad bacteria got

the most results, but most report improvements, and some report down-right

miracles from only treating for worms, yeast or viruses. Most report

significant improvements from chelation, but it has to be done correctly.

And each child tolerates each chelation technique differently. So, what I

am seeing, is it's best to treat for " all " pathogen types and do something

to rid toxins, especially while killing pathogens. Killing pathogens is

releasing toxins into their bodies, so you will need something to mop them

up. I can not say the cause, but what I can say is that reversing it is

taking a combination approach of treating for various pathogens types and

detoxing. It most certainly is not being reversed by anti-virals alone.

Although, occasionally, this may happen. As far as viruses go, I know that

HHV6 and other herpes strains get a lot of the blame for inflicting damage

to the immune system. But vaccines are in the mix as well. Relapse rates

appear to be very high amongst those who do not stay on diets and

supplements, and very low on those who do.

So the real cause of autism is mainstream medical turning it's back on

diagnoses like autism, instead of looking for the medical cause and then

treating medically for it. I am in my forties, and I guarantee you that you

will find almost no one my age or older who will tell you that we had this

problem in our childhood. We did not have hyperactive kids at all or kids

out of control at school. I moved every year and lived in crowded

neighborhoods, and I always spent time running throughout the neighborhood.

I saw one child with mental retardation growing up, about 5 in each grade

level that went for extra help in reading or math, and maybe one kid in the

whole school on psych meds. The only anxiety the kids had were the idea of

getting spankings if they threw a spit-wad or got in a fight at school

because they didn't do anything else. There was no hyperactivity, etc.

Whatever is making our children ill is getting worse every year. Either

way, once you have autism, you will likely need to treat for various toxin

and pathogen types.

Love and prayers,

Heidi N

=

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>I may have missed a post--do you have >a child with OCD you would like to

> >talk about?

Talk about? No - I have a daughter who will recover from OCD.

In that effort, I continue to look for anecdotes (and hard science) that

will hint where successful treatments are to be discovered, and share them

with people who have not just resigned themselves to OCD.

IMHO, the answers are not to be found in psychology or psychiatry, but in

basic body health...

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Share on other sites

Thank you Guy

I appreciate your input. I do not think there are ever clear cut

'boundaries' to any disorder-one bleeds into another..and another.We are all

complex

and incredibly made.

I never lose hope and continue on.

I value everyone's opinions and ideas/thoughts. Thanks for sharing.

In a message dated 10/22/2009 8:36:39 P.M. Eastern Standard Time,

guyiii@... writes:

> ummmm

> I don't know about people with autism being cured??

I'll share a couple of emails on OCD and autism, 2 are below.

>Everyone is unique, and not all people respond the same to

>treatments,treatment

Yes, especially since it appears that there are more than one pathway to

OCD, autism, and the other disorders. From my layman's view, I don't think

that the boundaries of the disorders are as firm or defined as some think.

But, on to the anecdotes...

------

:

All of them rid the symptoms of OCD. I started with one, stopped, the

symptoms

returned, than started with another. They have stayed on a herb that is

known to kill Bartonella consistently now, since we have that in our

house,

and one of my son's has the stretch-mark rash it causes. Thus, I just look

at the rash every day to see the effect the herbs have on it. The symptoms

were rid a long time ago, but the infection stays in your body, so

treatments have to continue

quite a while after the symptoms are gone.

Thus, any of and all of them rid symptoms at my house. The Mindlynx may

have

worked by creating microflora needed to make the B vitamins to keep the

OCD

away, but the pathogen remains, so it also has to be rid. We started with

Cat's Claw and Resveratrol and got great results. We then switched to

Cumanda in the evening and Samento in the morning, and got great results,

and now we switched to grapefruit seed extract and monolaurin. They all

rid

and kept symptoms away, and shrunk the rash, which is still barely there.

It

was almost gone till he ate a bunch of candy bars. Heck, goes to show you

how much diet is important. We took cod liver oil throughout, and the rash

would not shrink if he missed his dose of cod liver oil or did not take

those herbs. Thus, he needed both.

I really see lots of posts on success at ridding OCD, so keep the positive

outlook. I feel joy just imaginging your joy when you see those symptoms

rid. But ridding OCD can be quite difficult sometimes. We got a worsening

of symptoms for 3 weeks before the die-off was lessened. We used Burbur,

lithium orotate and Mellatonin to handle the die-off it created. Some got

few die-off

symptoms at my house, and some got really bad ones.

Love and prayers,

Heidi N

------

" kellyjeffmaxmark " kellyfincher@> wrote:

I'm one of the folks who gets better then leaves the group but first a

thank

you to all who contribute. I've learned much from you

and appreciate the sense of community that I'm not alone.

My boys have been sick since their birth in 1992. I was angry and felt I

didn't deserve it since I planned for everything, except

how toxic vaccines are and that we lived in a house with Chlordane, and

that

I passed genetic SNPs to them in our detox ability.

What a journey: diets, bio-med, bioset, chronic fatigue, neurotherapy,

occupational therapy, homeopathy, severe asthma and

allergies, OCD, anxiety, functional medicine docs, environmental docs,

pediatricians who want to put your kids on Luvox...you know, the usual

when

biochemistry goes horribly wrong.

I'm thrilled to say that after patching up the detox SNPs, removing heavy

metals and pesticides, and one final piece of the puzzle,

Ashok Gupta's amygdala retraining, my boys say they're fine.

This subconscious part of the brain the size of an almond, was killing us.

After years of sickness, the amygdala gets stuck in

a threat mode. It will send out stress hormones forever, keeping you sick

forever. It must be specifically addressed by understanding the primitive

brain and why it's there ironically keep you from danger.

But in a toxic world, it gets amplified. Ashok has given us our lives

back.

No more negative thoughts because they keep the stress hormones going. It

is

not too early to

start the meditation programs with your toddlers. And for stressed out

parents too.

Good luck all. Peace at last.

Link to comment
Share on other sites

Hi Guy - it's so hard when you have a child with OCD - you are right to search

for answers in many directions. While my child's OCD is caused by PANDAS, and

therefore needs to be treated both medically and psychologically, there are many

children with purely genetically caused OCD. Whatever the reason for the OCD,

especially if severe, it is a devestating disease that can leave parents feeling

helpless. There are so many branches of science that you can search to help for

the right answers for your child. Some relatively common areas to explore a

medical " cause of OCD " are PANDAS, Lupus, Celiac, Thyroid, and Lyme.

What ever the " reason " for the OCD in your child, I would strongly recommend ERP

(Exposure & Ritual Prevention) therapy. It is very natural, and is proven to

help children and adults. And even if it does not, it provides training in

great life skills. This therapy can be done at the same time that you are

exploring basic body health alternatives. You seem to be very good at research,

so you may also enjoy reading the many scientific studies that have been done on

the effectiveness of ERP therapy. It is often more effective than medication,

and is longer lasting. There are quite a few of those posted in the Files

section of this group.

In terms of SSRI and medication, this is a personal choice and often one of

necessity, and no parent takes this decision lightly. We are careful here to

suggest all options to parents without dismissing valid options such as

medication. This is understandably a very sensitive topic.

I am pleased you are considering all options and have complete faith in your

daughter. That is a great place to be and a true one. Children can recover and

live a wonderful life despite the presence of OCD, however that disease

manifests in their life. Thanks for sharing your ideas with the group.

Best - in NC.

>

> >I may have missed a post--do you have >a child with OCD you would like to

> > >talk about?

>

> Talk about? No - I have a daughter who will recover from OCD.

>

> In that effort, I continue to look for anecdotes (and hard science) that

> will hint where successful treatments are to be discovered, and share them

> with people who have not just resigned themselves to OCD.

>

> IMHO, the answers are not to be found in psychology or psychiatry, but in

> basic body health...

>

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Yes,thank you ,Louis- Sue in NY

________________________________

To:

Sent: Sat, October 24, 2009 12:10:04 PM

Subject: Re: Nature of Group?

 

Thank you, Louis. Kelley in NV

=

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>

Ditto Louis, I don't know what I'd do without the group

Terry

> Thank you, Louis. I always know you'll handle these things well. We

> appreciate all of your hard work on our behalf.

> Dina

>

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