Re: Autism One 2006 Conference

[Guest guest]

Thanks you said it better than I could even attempt to. Kassiane, hope

you don't leave this list. We need and value your perspective.

Melinda

[Guest guest]

--- In Autism_in_Girls , " earranga "

> Hope is Real. Healing is Real. Our Children Get Better.

Nice to know I'm broken. When will you people get it that IT HURTS.

I'm in a pissy enough mood today to say we have an epidemic of

intentionally hurtful NTs who'd rather have a dead child than an

autistic one. *waits for riot*

Why not the same outrage when people say your kids, and the adults

they'll grow up to be, are broken?

Incidentally, the TAAP crap is awfully like spamming.

> The most comprehensive conference on autism ever assembled is proud

> to bring together over a 120 of the world's leading authorities.

> Meet, learn, and be inspired by experts such as Kirby, Dr.

> Deth, Dr. Wakefield, Dr. Arthur Krigsman, Dan Olmsted,

> and over a hundred others.

How many autistic people? I went once and was one of TWO autistic

adults there. Is that changing?

> Because questions and answers do not stop at the boundary of a

> discipline Autism One brings together all the disciplines.

> Multivariate in presentation and cure autism bows to the collective

> weight of scientists working with practitioners working with

> therapists working with educators working with parents working to

> recover their children.

Recovery is a myth, unless someone isnt really autistic.

Cure NT ignorance now. I'm sick enough of this crap to leave this

list, between hearing DAVID KIRBY of all people called an expert and

all the spammy garbage allowed on here.

Thank you. I had a bad enough morning without being blasted with NT

bigotry. But that's the REAL epidemic.

-Autistic ADULT, and wouldn't have it any other way

[Guest guest]

I understand how you feel. Dealing with people's insensitivity towards my

autism was hard enough, but now I must somehow navigate through that and

defend my Asperger's son. is so bright and intellectually is

suffering because there just doesn't seem to be enough compassion,

understanding and acceptance. But we are not the only ones..my grandfather

spoke English as a second language. He spoke with an accent and many

treated him poorly. I would watch people talk down to him as if he were too

stupid to know any better.

We, with autism, are much like my grandfather. We also speak with an

" accent " in that we use words that are not always the best representation of

how we feel, and are often misperceived. We are like foreigners in strange

land. But just because we speak with an accent doesn't mean we think with

an accent. Many NT's forget that. (I hope my analogy makes sense).

Many of these " professionals " involved with autism get involved to prove

their own existence and in the end they are really the ones who benefit.

(Much like the car dealerships that want to file your tax returns " for free "

only so they can gain a guaranteed advance in cash while sinking you into a

loan disguised as a good deal). They attract masses of frustrated NT

parents who I think really love their children but who are at a loss for

answers. They turn to the " professionals " looking for a light that can

illuminate the path, but unfortunately all they usually get from the

" professionals " is a book of matches. The light fizzles out before you can

see the end.

This chat group, I think, represents that small (but growing) collection of

parents who see more in their children than the masses see. They are here

asking questions not just from other NT's but from autistics like you, me

and Sondra. They want inside our world.they want to learn our language and

appreciate our intelligence. We are not broken and I am confident every

member of this group knows it. What is TAAP really, but eye candy for the

window shopper? Is it more? No one REALLY knows yet, but in the meantime I

have decided not to let this kind of stuff drive me to pain, but to support

those (like Brittany Maier) that prove the world over that we are different,

not flawed.

Much neighborly love to you and I am sorry for your pain.

Nadine

Re: Autism One 2006 Conference

--- In Autism_in_Girls , " earranga "

> Hope is Real. Healing is Real. Our Children Get Better.

Nice to know I'm broken. When will you people get it that IT HURTS.

I'm in a pissy enough mood today to say we have an epidemic of

intentionally hurtful NTs who'd rather have a dead child than an

autistic one. *waits for riot*

Why not the same outrage when people say your kids, and the adults

they'll grow up to be, are broken?

Incidentally, the TAAP crap is awfully like spamming.

> The most comprehensive conference on autism ever assembled is proud

> to bring together over a 120 of the world's leading authorities.

> Meet, learn, and be inspired by experts such as Kirby, Dr.

> Deth, Dr. Wakefield, Dr. Arthur Krigsman, Dan Olmsted,

> and over a hundred others.

How many autistic people? I went once and was one of TWO autistic

adults there. Is that changing?

> Because questions and answers do not stop at the boundary of a

> discipline Autism One brings together all the disciplines.

> Multivariate in presentation and cure autism bows to the collective

> weight of scientists working with practitioners working with

> therapists working with educators working with parents working to

> recover their children.

Recovery is a myth, unless someone isnt really autistic.

Cure NT ignorance now. I'm sick enough of this crap to leave this

list, between hearing DAVID KIRBY of all people called an expert and

all the spammy garbage allowed on here.

Thank you. I had a bad enough morning without being blasted with NT

bigotry. But that's the REAL epidemic.

-Autistic ADULT, and wouldn't have it any other way

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

[Guest guest]

When I read something like this TAAP PSA for a conference like this

one, I mentally substitute the words " mercury poisoning " or " mercury

poisoned " every time I see a reference to " autism " .

All the people listed as experts are experts about mercury poisoning.

Parents who are interested in a CURE want their children CURED from

the biomedical effects of mercury poisoning (the food allergies, gut

problems, sleepless nights, viral issus that won't go away,

sensitivity to colors, dyes and preservatives in foods and

medications, seizures, the sensory sensitivities, the expressive and

receptive language deficits etc etc etc)

No one wants to change WHO our children ARE. And no one wants a

DEAD child, either. (You're being a bit dramatic here, I think.)

The people who prepare PSA's and promotional materials for TAAP and

organizations like it are not deliberately trying to make people on

the spectrum upset.

Keep screaming from the rooftops, Kassiane, because a LOT of us ARE

listening to you, and are HEARING you, too, in that we don't want to

cure the AUTISM. We want to cure the effects of the mercury.

PennY

>

> --- In Autism_in_Girls , " earranga " <earranga@>

> > Hope is Real. Healing is Real. Our Children Get Better.

>

> Nice to know I'm broken. When will you people get it that IT HURTS.

>

> I'm in a pissy enough mood today to say we have an epidemic of

> intentionally hurtful NTs who'd rather have a dead child than an

> autistic one. *waits for riot*

>

> Why not the same outrage when people say your kids, and the adults

> they'll grow up to be, are broken?

>

> Incidentally, the TAAP crap is awfully like spamming.

>

> > The most comprehensive conference on autism ever assembled is

proud

> > to bring together over a 120 of the world's leading authorities.

> > Meet, learn, and be inspired by experts such as Kirby, Dr.

> > Deth, Dr. Wakefield, Dr. Arthur Krigsman, Dan

Olmsted,

> > and over a hundred others.

>

> How many autistic people? I went once and was one of TWO autistic

> adults there. Is that changing?

>

> > Because questions and answers do not stop at the boundary of a

> > discipline Autism One brings together all the disciplines.

> > Multivariate in presentation and cure autism bows to the

collective

> > weight of scientists working with practitioners working with

> > therapists working with educators working with parents working

to

> > recover their children.

>

> Recovery is a myth, unless someone isnt really autistic.

>

> Cure NT ignorance now. I'm sick enough of this crap to leave this

> list, between hearing DAVID KIRBY of all people called an expert

and

> all the spammy garbage allowed on here.

>

> Thank you. I had a bad enough morning without being blasted with NT

> bigotry. But that's the REAL epidemic.

>

> -Autistic ADULT, and wouldn't have it any other way

>

[Guest guest]

In a message dated 3/9/06 3:35:27 PM Eastern Standard Time,

liquidc2@... writes:

we are different,

not flawed.

well put

eric abbys dad

[Guest guest]

Yeah, I'd really like to " cure " my daughter from vomiting and going

to the hospital and " cure " her profound hatred for food. I'd also like

to " cure " my child's frustration from not being able to express how

she feels. I'd like to " cure " my daughter's inability to be able to

tell me if someone's been inapropriate with her.

I do not, however, look to " cure " her disinterest in social snittiness

with other little girls, or " cure " her love for " WHAT DID YOU SAY " 100

times over from Lion King. <g>

Debi

> Parents who are interested in a CURE want their children CURED from

> the biomedical effects of mercury poisoning (the food allergies, gut

> problems, sleepless nights, viral issus that won't go away,

> sensitivity to colors, dyes and preservatives in foods and

> medications, seizures, the sensory sensitivities, the expressive and

> receptive language deficits etc etc etc)

>

> No one wants to change WHO our children ARE. And no one wants a

> DEAD child, either.

[Guest guest]

Kassi,

I have to say, I stopped reading the TAAP postings a long time ago.

They are spam as far as I'm concerned. They are entirely too one

sided and biased.

Amnesty

>

> --- In Autism_in_Girls , " earranga " <earranga@>

> > Hope is Real. Healing is Real. Our Children Get Better.

>

> Nice to know I'm broken. When will you people get it that IT HURTS.

>

> I'm in a pissy enough mood today to say we have an epidemic of

> intentionally hurtful NTs who'd rather have a dead child than an

> autistic one. *waits for riot*

>

> Why not the same outrage when people say your kids, and the adults

> they'll grow up to be, are broken?

>

> Incidentally, the TAAP crap is awfully like spamming.

>

> > The most comprehensive conference on autism ever assembled is

proud

> > to bring together over a 120 of the world's leading authorities.

> > Meet, learn, and be inspired by experts such as Kirby, Dr.

> > Deth, Dr. Wakefield, Dr. Arthur Krigsman, Dan

Olmsted,

> > and over a hundred others.

>

> How many autistic people? I went once and was one of TWO autistic

> adults there. Is that changing?

>

> > Because questions and answers do not stop at the boundary of a

> > discipline Autism One brings together all the disciplines.

> > Multivariate in presentation and cure autism bows to the

collective

> > weight of scientists working with practitioners working with

> > therapists working with educators working with parents working to

> > recover their children.

>

> Recovery is a myth, unless someone isnt really autistic.

>

> Cure NT ignorance now. I'm sick enough of this crap to leave this

> list, between hearing DAVID KIRBY of all people called an expert and

> all the spammy garbage allowed on here.

>

> Thank you. I had a bad enough morning without being blasted with NT

> bigotry. But that's the REAL epidemic.

>

> -Autistic ADULT, and wouldn't have it any other way

>

[Guest guest]

Wow, I never really read messeges on this group but wanted to check

in and this post really got me. I am a parent of a beautiful little

girl and I am simply looking for a way to help her. It's nice that

you are able to voice your opinion on this topic but I am sorry my

daughter is not capable of doing this. These conferences are a

wonderful thing for those of us who are looking to find a way to

make our children HEALTHIER AND YES MAYBE A LITTE MORE 'NORMAL'! So

sorry you find that offensive. For Christ sake if there was a cure

for cancer would those suffering say NO THANKS, THIS IS HOW GOD MADE

ME???? How about not giving a diabetic that insulin shot---that

might make them better too. Autism is not part of your personality

it is a disorder that can be treated. You sound like a very bitter

and angy person; perhaps if your parents had the information that we

parents get from these conferences you would feel better too. I am

in no way saying you shouldn't have your own opinion about this but

TRY your best to be SENSATIVE to those of us who want to help our

kids get well!!!!

Tina

>

> --- In Autism_in_Girls , " earranga " <earranga@>

> > Hope is Real. Healing is Real. Our Children Get Better.

>

> Nice to know I'm broken. When will you people get it that IT HURTS.

>

> I'm in a pissy enough mood today to say we have an epidemic of

> intentionally hurtful NTs who'd rather have a dead child than an

> autistic one. *waits for riot*

>

> Why not the same outrage when people say your kids, and the adults

> they'll grow up to be, are broken?

>

> Incidentally, the TAAP crap is awfully like spamming.

>

> > The most comprehensive conference on autism ever assembled is

proud

> > to bring together over a 120 of the world's leading authorities.

> > Meet, learn, and be inspired by experts such as Kirby, Dr.

> > Deth, Dr. Wakefield, Dr. Arthur Krigsman, Dan

Olmsted,

> > and over a hundred others.

>

> How many autistic people? I went once and was one of TWO autistic

> adults there. Is that changing?

>

> > Because questions and answers do not stop at the boundary of a

> > discipline Autism One brings together all the disciplines.

> > Multivariate in presentation and cure autism bows to the

collective

> > weight of scientists working with practitioners working with

> > therapists working with educators working with parents working

to

> > recover their children.

>

> Recovery is a myth, unless someone isnt really autistic.

>

> Cure NT ignorance now. I'm sick enough of this crap to leave this

> list, between hearing DAVID KIRBY of all people called an expert

and

> all the spammy garbage allowed on here.

>

> Thank you. I had a bad enough morning without being blasted with NT

> bigotry. But that's the REAL epidemic.

>

> -Autistic ADULT, and wouldn't have it any other way

>

[Guest guest]

I think my daughter is a beautiful and amazing little girl. It

makes me so sad that many in our society view her as " disabled " and

only see her differences, not her strengths or her unique

perspective of the world.

Lori

-- In Autism_in_Girls , abbysdad42@... wrote:

>

>

> In a message dated 3/9/06 3:35:27 PM Eastern Standard Time,

> liquidc2@... writes:

>

> we are different,

> not flawed.

>

>

>

> well put

>

> eric abbys dad

>

>

>

[Guest guest]

Lets use some critical thinking skills.

1. I'm autistic. I think I have more to say on what it's like to be autistic

than you do.

2. NORMAL people are the reason NOT NORMAL people have PTSD.

3. Cancer and diabetes kill people. Autism DOESNT, except via chelation and

murder.

4. Who the HELL are you to tell me that autism isn't part of who I am? Youve

never been

autistic.

THINK, people. If you have brains, use them.

Kassiane

>

> Wow, I never really read messeges on this group but wanted to check

> in and this post really got me. I am a parent of a beautiful little

> girl and I am simply looking for a way to help her. It's nice that

> you are able to voice your opinion on this topic but I am sorry my

> daughter is not capable of doing this. These conferences are a

> wonderful thing for those of us who are looking to find a way to

> make our children HEALTHIER AND YES MAYBE A LITTE MORE 'NORMAL'! So

> sorry you find that offensive. For Christ sake if there was a cure

> for cancer would those suffering say NO THANKS, THIS IS HOW GOD MADE

> ME???? How about not giving a diabetic that insulin shot---that

> might make them better too. Autism is not part of your personality

> it is a disorder that can be treated. You sound like a very bitter

> and angy person; perhaps if your parents had the information that we

> parents get from these conferences you would feel better too. I am

> in no way saying you shouldn't have your own opinion about this but

> TRY your best to be SENSATIVE to those of us who want to help our

> kids get well!!!!

>

> Tina

[Guest guest]

Thank you Tina for saying that. Kassi, I too am sorry

that maybe your parents did not try as hard as some of

us parents are trying and maybe they did and they just

did not have the recourses that are available to us

today, but I watch my daughters crying and screaming

and hurting themselves because they don't know how to

express to me what they want or what they need. It

rips my heart into pieces standing by and not only am

I unable to help, but I don't even know what they want

because they don't and can't tell me. I try guessing,

I ask them anything that I can, anything that I think

that they might want. And they just scream and beat

their head into a wall or bite themselves or pull

their hair. Then they throw things at me and try to

bite me and they cry more. I sometimes end up figuring

out what they wanted and then they are fine. But

sometimes I can't guess, because I don't know. The

other day my daughter cried and screamed and did this

for 25 minutes while I tried to show her options, and

tried to use sign language and tried to use any words

or pictures I could think of. I could not guess and

she was very sad and mad all at once. Finally I told

her I could not help her, that I loved her and gave

her a hug, but that until she could tell me or point

to what she wanted I would have to leave. She just

kept saying NO, No mommy, but that doesn't tell me

what to do. Finally she cried Snowman. Normally people

would think what does that have to do with anything.

But for years now I have sang a song to her about a

snowman. She never said anything about it, I never

knew she was even paying attention, and I sing her a

lot of other songs, so when I tried guessing if she

wanted singing, I had started singing a different song

earlier. Well once she said that one word, I sang her

the song and she was sooooo happy and said I love you

and hugged me and it was a wonderful moment. That was

her personality Kassi, not the screaming and

tantruming because she is fed up and doesn't know how

to say words to me and I can not read minds. Maybe you

also wish that we " NT people " as you keep calling us

in a negative way, could read your mind. Sometimes

even NT people wish that someone could read their mind

too, so that they didn't have to try so hard either,

but that is not possible. Not in the world we live in

currently. So it is not that we want the People who

have Autism to go away Kassi. We of anyone, love our

children and spouses and friends who are afflicted

with Autism. We even love you Kassi. Even if you don't

believe that. We love you for being willing to help us

understand you and how you think so that we can better

understand our angels. But please don't critisise us

for wanting to help our families. Our children have

illness. The thing is, you are confused thinking that

we want to get rid of our children and want to take

away their sparkling personalities. Of course we don't

want to do that, we only want to eliminate the

sickness part of autism. The part where for some

reason they are unable to express themselves and how

they feel and the part where they are able to use the

bathroom and not a diaper, and the part where they can

maybe someday be ok on their own and be able to stand

up for themselves if we have to go to the bathroom, or

to work, or when we age and one day pass away. That is

what we want. We don't want them to all look alike and

act alike. You are right that " The World " or " the

Media " as a whole tends to want to eliminate

individualism. But that has nothing to do with Autism,

they don't want any one one to be unique or stand out.

They portray on the media that all women should be

skiny, big busted, sweet and sassy at the same time

and always know the right thing to do and say and

always tilt their head so that they don't get a double

chin and always sit with perfect posture and wear

heals. The reality of it is that we sometimes want to

eat junk food, wear sweat clothes not say anything to

anyone, just go to bed early, not comb our hair, not

excersize, not worry about what everyone else thinks

and just be comfy and not have to be sweet or think

about others. Of course then, especially as parents we

have to overcome that impulse as well and find a happy

medium. We have to take care of our children even when

they are being rude and throwing things at us, even

when they wipe Poo on our house and even when our

husband says the house looks like crap, what did you

do all day. In other words Kassi, the thing is, maybe

you have had a hard life, many of us have, whether we

are autistic or not, whether are hair is black or

blond whether we have boobs or no boobs, whether we

live in China or America, it doesn't matter, life is

life, and it is hard. And maybe you see many people

who are in a different stage of life than you right

now. Maybe the ones you focus on, have things better

than you and maybe they don't understand you, so in

your own way you throw tantrums on this site and get

mad in your letters. And it's ok to be upset and have

feelings, but please try and not hurt others during

your tantrums. I tell my girls, that go ahead and

throw a tantrum if you must, as long as you don't hurt

anybody, and as long as it is in your room when you

throw it. And even though they can't communicate well,

they understand that and so they do. So please do the

same. Tell us your opinion just like we are sharing

ours, but don't " throw things " at us and don't " Lash

out " at all NTs as many of us are NTs and we are not

like the people you are angry at.

I hope that this makes sence, if not please ask,

instead of taking it offensively, because it was not

meant that way.

Sincerely, Esther

--- cuch1986 wrote:

> Wow, I never really read messeges on this group but

> wanted to check

> in and this post really got me. I am a parent of a

> beautiful little

> girl and I am simply looking for a way to help her.

> It's nice that

> you are able to voice your opinion on this topic but

> I am sorry my

> daughter is not capable of doing this. These

> conferences are a

> wonderful thing for those of us who are looking to

> find a way to

> make our children HEALTHIER AND YES MAYBE A LITTE

> MORE 'NORMAL'! So

> sorry you find that offensive. For Christ sake if

> there was a cure

> for cancer would those suffering say NO THANKS, THIS

> IS HOW GOD MADE

> ME???? How about not giving a diabetic that insulin

> shot---that

> might make them better too. Autism is not part of

> your personality

> it is a disorder that can be treated. You sound like

> a very bitter

> and angy person; perhaps if your parents had the

> information that we

> parents get from these conferences you would feel

> better too. I am

> in no way saying you shouldn't have your own opinion

> about this but

> TRY your best to be SENSATIVE to those of us who

> want to help our

> kids get well!!!!

>

> Tina

>

> >

> > --- In Autism_in_Girls , " earranga "

> <earranga@>

> > > Hope is Real. Healing is Real. Our Children Get

> Better.

> >

> > Nice to know I'm broken. When will you people get

> it that IT HURTS.

> >

> > I'm in a pissy enough mood today to say we have an

> epidemic of

> > intentionally hurtful NTs who'd rather have a dead

> child than an

> > autistic one. *waits for riot*

> >

> > Why not the same outrage when people say your

> kids, and the adults

> > they'll grow up to be, are broken?

> >

> > Incidentally, the TAAP crap is awfully like

> spamming.

> >

> > > The most comprehensive conference on autism ever

> assembled is

> proud

> > > to bring together over a 120 of the world's

> leading authorities.

> > > Meet, learn, and be inspired by experts such as

> Kirby, Dr.

> > > Deth, Dr. Wakefield, Dr. Arthur

> Krigsman, Dan

> Olmsted,

> > > and over a hundred others.

> >

> > How many autistic people? I went once and was one

> of TWO autistic

> > adults there. Is that changing?

> >

> > > Because questions and answers do not stop at the

> boundary of a

> > > discipline Autism One brings together all the

> disciplines.

> > > Multivariate in presentation and cure autism

> bows to the

> collective

> > > weight of scientists working with practitioners

> working with

> > > therapists working with educators working with

> parents working

> to

> > > recover their children.

> >

> > Recovery is a myth, unless someone isnt really

> autistic.

> >

> > Cure NT ignorance now. I'm sick enough of this

> crap to leave this

> > list, between hearing DAVID KIRBY of all people

> called an expert

> and

> > all the spammy garbage allowed on here.

> >

> > Thank you. I had a bad enough morning without

> being blasted with NT

> > bigotry. But that's the REAL epidemic.

> >

> > -Autistic ADULT, and wouldn't have it any other

> way

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

>

> Thank you Tina for saying that. Kassi, I too am sorry

> that maybe your parents did not try as hard as some of

> us parents are trying and maybe they did and they just

> did not have the recourses that are available to us

> today,

a. and b. But given that I have a friend with SEVERE PTSD from ABA (adult. one

of the

original " indistinguishable from peers.) I think I'll stick with what I got,

minus the peer

abuse. Thanks anyway.

>but I watch my daughters crying and screaming

> and hurting themselves because they don't know how to

> express to me what they want or what they need. It

> rips my heart into pieces standing by and not only am

> I unable to help, but I don't even know what they want

> because they don't and can't tell me.

I'll give you $100 if you can tell me where I said I'm against progress, if

you'll give me

$100 and an apology when you see it isn't there, because it isn't true. Teaching

communication skills isnt the same thing as curing autism.

I try guessing,

> I ask them anything that I can, anything that I think

> that they might want. And they just scream and beat

> their head into a wall or bite themselves or pull

> their hair. Then they throw things at me and try to

> bite me and they cry more. I sometimes end up figuring

> out what they wanted and then they are fine. But

> sometimes I can't guess, because I don't know. The

> other day my daughter cried and screamed and did this

> for 25 minutes while I tried to show her options, and

> tried to use sign language and tried to use any words

> or pictures I could think of.

Hi. Im bipolar. I could easily throw an hours long tantrum. Again, teaching

communication

and frustration management isn't cure. *hates repeating herself. has said this

over 2000

times*.

I could not guess and

> she was very sad and mad all at once. Finally I told

> her I could not help her, that I loved her and gave

> her a hug, but that until she could tell me or point

> to what she wanted I would have to leave. She just

> kept saying NO, No mommy, but that doesn't tell me

> what to do. Finally she cried Snowman. Normally people

> would think what does that have to do with anything.

> But for years now I have sang a song to her about a

> snowman. She never said anything about it, I never

> knew she was even paying attention, and I sing her a

> lot of other songs, so when I tried guessing if she

> wanted singing, I had started singing a different song

> earlier. Well once she said that one word, I sang her

> the song and she was sooooo happy and said I love you

> and hugged me and it was a wonderful moment. That was

> her personality Kassi, not the screaming and

> tantruming because she is fed up and doesn't know how

> to say words to me and I can not read minds.

Screaming and tantrumming cover up the happiness that people call their

personalities.

Fine.

Now lets pretend there are autistic people who don't tantrum. Are they without

personality

if they can't speak? No. Are there non autistic people who are more likely to

throw a hissy

fit than others? yes. It's part of their personality. Really. It is. Stoicism vs

something I can't

remember.

Like it or not, autism is IN OUR BRAINS. It isn't vaccines. It isnt measles in

the gut. It is A

BRAIN DIFFERENCE. Check out the scans sometime.

>Maybe you

> also wish that we " NT people " as you keep calling us

> in a negative way, could read your mind.

NT=Neurotypical. No one is normal. You don't know that I always use it

negatively. Kindly

don't try to read my mind, you don't even know me, my skills, or lack thereof.

You just

have a pile of assumptions.

>Sometimes

> even NT people wish that someone could read their mind

> too, so that they didn't have to try so hard either,

> but that is not possible.

You read each other's minds all the time. It's subtle, but you do it. I went to

high school

not long ago. I remember.

>So it is not that we want the People who

> have Autism to go away Kassi. We of anyone, love our

> children and spouses and friends who are afflicted

> with Autism.

It's damned insulting to call it an affliction. Autism as a whole doesn't suck.

Communication problems suck. Frustration intolerance sucks. Other people's

attitudes

suck. Autism, itself, isn't that bad.

>We even love you Kassi. Even if you don't

> believe that. We love you for being willing to help us

> understand you and how you think so that we can better

> understand our angels. But please don't critisise us

> for wanting to help our families. Our children have

> illness. The thing is, you are confused thinking that

> we want to get rid of our children and want to take

> away their sparkling personalities. Of course we don't

> want to do that, we only want to eliminate the

> sickness part of autism.

I have illnesses too. They're called pituitary failure and celiac disease. Well,

and epilepsy is

kind of on the line. Autism DOES NOT MAKE PEOPLE SICK AND DOES NOT KILL THEM.

Read

some old skool Jim Sinclair.

>The part where for some

> reason they are unable to express themselves and how

> they feel and the part where they are able to use the

> bathroom and not a diaper, and the part where they can

> maybe someday be ok on their own and be able to stand

> up for themselves if we have to go to the bathroom, or

> to work, or when we age and one day pass away. That is

> what we want. We don't want them to all look alike and

> act alike.

Teaching self advocacy and independance skill is a better way to achieve an

independant,

or semi independant, life for autistic people than trying to rewire them is.

>You are right that " The World " or " the

> Media " as a whole tends to want to eliminate

> individualism. But that has nothing to do with Autism,

> they don't want any one one to be unique or stand out.

Except Paris Hilton *barfs*

> We have to take care of our children even when

> they are being rude and throwing things at us, even

> when they wipe Poo on our house and even when our

> husband says the house looks like crap, what did you

> do all day. In other words Kassi, the thing is, maybe

> you have had a hard life, many of us have, whether we

> are autistic or not, whether are hair is black or

> blond whether we have boobs or no boobs, whether we

> live in China or America, it doesn't matter, life is

> life, and it is hard.

uhhuh. it is. I didn't need the condescension. Y'all seem to avoid the points

that 1. at an

autism conference, where the hell are the autistic people?

and

2. AUTISM PARENTS DON'T HAVE A MONOPOLY ON HARD LIVES. Guess what? over 90% of

autistic people are sexually abused. Uh-huh. Get angry about that one and change

that for

a while.

And I got sick of the condescension about 3 sentences in.

And maybe you see many people

> who are in a different stage of life than you right

> now. Maybe the ones you focus on, have things better

> than you and maybe they don't understand you, so in

> your own way you throw tantrums on this site and get

> mad in your letters. And it's ok to be upset and have

> feelings, but please try and not hurt others during

> your tantrums.

So other people can hurt me but I cant hurt them? That's bullshit. yes I said

bullshit.

How am I supposed to know what hurts others? Everyone who has attacked me has

been a

right asshole, but I say anything and there's 30 people jumping down my throat.

i want a

damned cognitive interpreter because I've degenerated to bad words. The next

thing I type

will probably include the f-word.

>Tell us your opinion just like we are sharing

> ours, but don't " throw things " at us and don't " Lash

> out " at all NTs as many of us are NTs and we are not

> like the people you are angry at.

Except that many many people here would subject their children to potentially

deadly

treatments instead of teaching them to live in the world as they are.

You dont know if you are or are not like the people I am angry at. A lot of

things

expressed have made me angry, and I am angry at the words. The manic phase is

feuling

the typing.

> I hope that this makes sence, if not please ask,

> instead of taking it offensively, because it was not

> meant that way.

OK, try again without talking to me like I'm 4. And without saying autistic

people, as a

group, are sick. And without accusing me of tantrumming. At least 5 other

people,

including the person you thanked, threw words at me.

I can smell hypocricy miles away. Product of full mainstreaming.

Kassiane,

pissed off, manic, sick of BS, and armed with a large vocabulary

[Guest guest]

Kassi, what if, say mercury, is what is responsible for the brain

functioning differences in people with autism? I think in many of the

cases the mercury (or inability to excrete it & other metals) is what

leads to the brain differences, at least in the cases of autism that

have metal poisoning. I guess what I'm getting at is that when many

of the symptoms that are associated with autism are treated, esp in

very young people, the brain differences lessen/go away (like with

Seroussi's son). *IF* that is the case in at least some cases, how do

you feel about that.

I know you've said that cancer & diabetes aren't like autism. But I

know people who have had cancer who's outlook completely changes. The

way they perceive info changes and the way they react to info

changes. I know my mental processes have profoundly changed (for the

better, I believe) since having a child with autism. That's why I see

the similarities in these, because a life-altering experience does

alter one's life & the way they mentally function, just like you

describe those with autism. Heck, I just saw a show on the 1,000lb

man & they showed when fat people eat their favorite foods, the MRI

shows profound brain changes. Gee, I thought that Big Mac was doing

something to me <g>/

Just curious what your thoughts are on it all.

[Guest guest]

> Kassi, what if, say mercury, is what is responsible for the brain

> functioning differences in people with autism? I think in many of the

> cases the mercury (or inability to excrete it & other metals) is what

> leads to the brain differences, at least in the cases of autism that

> have metal poisoning. I guess what I'm getting at is that when many

> of the symptoms that are associated with autism are treated, esp in

> very young people, the brain differences lessen/go away (like with

> Seroussi's son). *IF* that is the case in at least some cases, how do

> you feel about that.

The brain changes are in structures that develop before birth. Autism and real

mercury

poisoning (remember, I've had both. Classical metal poisoning. Classical signs.

None of

this 'novel form' stuff. The kind that can kill you fairly fast) just aren't in

the same ballpark.

If what someone ACTUALLY has is exacerbated by mercury and food and such, ok

then.

The parent has a responsibility to seek out a responsible source of information,

testing,

and treatment. A lot of the persons used in the treatment of " mercury induced

autism "

have their licensces suspended-did before they went into altmed-and are using

dangerous

methods.

> I know you've said that cancer & diabetes aren't like autism. But I

> know people who have had cancer who's outlook completely changes. The

> way they perceive info changes and the way they react to info

> changes. I know my mental processes have profoundly changed (for the

> better, I believe) since having a child with autism. That's why I see

> the similarities in these, because a life-altering experience does

> alter one's life & the way they mentally function, just like you

> describe those with autism. Heck, I just saw a show on the 1,000lb

> man & they showed when fat people eat their favorite foods, the MRI

> shows profound brain changes. Gee, I thought that Big Mac was doing

> something to me <g>/

>

> Just curious what your thoughts are on it all.

Autism isnt like cancer and diabetes because autism doesn't kill people.

Diabetes is easier

to manage, but it's no walk in the park, and CAN kill you. So can my adrenal

failure.

PLEASE cure that. PLEASE cure my epilepsy. That might change how my autism

manifests

(less prednisone rage and anticonvulsant stupidness for all!) but it doesn't

change the part

of me that can't go away. The diabetes insipidus, on the other hand, is mainly a

BIG PAIN

as long as I have water and a bathroom available. All this is stuff in my brain.

Only autism

colors my world 24/7.

As for the 1000 pound man--my roommate and I have a theory that there's a mosaic

prader-willi gene hiding in some of those people. Why not? There's mosaic

Down's, there's

mosaic s and Kleinfelter's, I've got a mecp2 mutation in the mosaic

way...kid I

worked with was mosaic Angelmans but presented as mostly severely autistic.

So those are my thoughts.

My other thoughts are that autistic people have feelings too, and that autistics

who arent

parents may not know much about raising kids, but they know a lot about BEING

autistic

kids. Some of us even know a bit about dealing with kids, too. That's different

from being

a parent, but it's more than people give credit for.

Kassiane

who intends to become a foster parent for special needs kids after she goes back

to

school, and has a bigger place to live

[Guest guest]

Mainstreaming, in my day, included a lot of hypocrites. Teachers who yelled at

you for

screaming when the other girls cut your hair. Principals who suspended you when

the

other kids locked you in a locker. Girls loving how you did your hair and then

stealing your

term paper and shredding it.

Stuff like that.

Kassiane

having a PTSD day

>

> In a message dated 3/14/06 12:23:44 AM Eastern Standard Time,

> kassihatestwistin@... writes:

>

> I can smell hypocricy miles away. Product of full mainstreaming.

> I understand the first sentence but what does mainstreaming have to do with

> it?

>

> Pennie

> Abby's Mom

>

>

>

>

>

[Guest guest]

Behaviors like that aren't from mainstreaming, it's from idiots. I

have to say the kids in Allie's gened kindergarten love on her so much

the teacher has to get them to stop hugging her and babying her, lol.

Debi

> >

> > In a message dated 3/14/06 12:23:44 AM Eastern Standard Time,

> > kassihatestwistin@ writes:

> >

> > I can smell hypocricy miles away. Product of full mainstreaming.

> > I understand the first sentence but what does mainstreaming have

to do with

> > it?

> >

> > Pennie

> > Abby's Mom

> >

> >

> >

> >

> >

[Guest guest]

Very well put Esther. Your story about how your daughter couldn't

express her need to hear the snowman song really got me--I'm glad

your were able to figure it out that time,even if it took you so

long. It is so frustrating for my daughter and me when she can't

communicate her needs or worse yet her pains.

I agree with what you say to Kassi as well. Kassi we " NT Parents "

can learn so much from what you have to say. Please continue to help

educate us on what it is like to be a person with autism because my

daughter is unable to verbalize this to us. Just try and understand

a mom's point of view when we want to find treatments that can help

ease our childrens suffering (my daughter has a lot of gut issues

that cause her pain but she can't tell me so we are always using our

non-verbal skills to help her communicate. If there is a way to get

her to say a few words that can help us help her why would anyone be

against that?)

Thanks again.

Tina

> > >

> > > --- In Autism_in_Girls , " earranga "

> > <earranga@>

> > > > Hope is Real. Healing is Real. Our Children Get

> > Better.

> > >

> > > Nice to know I'm broken. When will you people get

> > it that IT HURTS.

> > >

> > > I'm in a pissy enough mood today to say we have an

> > epidemic of

> > > intentionally hurtful NTs who'd rather have a dead

> > child than an

> > > autistic one. *waits for riot*

> > >

> > > Why not the same outrage when people say your

> > kids, and the adults

> > > they'll grow up to be, are broken?

> > >

> > > Incidentally, the TAAP crap is awfully like

> > spamming.

> > >

> > > > The most comprehensive conference on autism ever

> > assembled is

> > proud

> > > > to bring together over a 120 of the world's

> > leading authorities.

> > > > Meet, learn, and be inspired by experts such as

> > Kirby, Dr.

> > > > Deth, Dr. Wakefield, Dr. Arthur

> > Krigsman, Dan

> > Olmsted,

> > > > and over a hundred others.

> > >

> > > How many autistic people? I went once and was one

> > of TWO autistic

> > > adults there. Is that changing?

> > >

> > > > Because questions and answers do not stop at the

> > boundary of a

> > > > discipline Autism One brings together all the

> > disciplines.

> > > > Multivariate in presentation and cure autism

> > bows to the

> > collective

> > > > weight of scientists working with practitioners

> > working with

> > > > therapists working with educators working with

> > parents working

> > to

> > > > recover their children.

> > >

> > > Recovery is a myth, unless someone isnt really

> > autistic.

> > >

> > > Cure NT ignorance now. I'm sick enough of this

> > crap to leave this

> > > list, between hearing DAVID KIRBY of all people

> > called an expert

> > and

> > > all the spammy garbage allowed on here.

> > >

> > > Thank you. I had a bad enough morning without

> > being blasted with NT

> > > bigotry. But that's the REAL epidemic.

> > >

> > > -Autistic ADULT, and wouldn't have it any other

> > way

> > >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Kassie,

Thank you so very much for your insight. I read your other post on

what it was like to grow up as a child with autism and what those

children did to you is horrific to say the least. Kids can be cruel

especially girls and I wish there were some kind of sensativity

lessons to give kids in the school setting to have respect for

others. Many times parents do not do the job that they are suppose

to on this and what a shame. I would be devastated if this happened

to my little girl. How powerless your parents must have felt and how

sad it must have been for you.

I agree with you that autism is not a death sentence as cancer and

Diabetes can be, perhaps my analogy wasn't equal but I just wanted

to point out that there are things that parents can do to help ease

some of the negative symptoms of autism. Not a cure--although I

would love to see a cure for autism and other nuerological

disorders. I Know that upsets you and that is not my intent but as a

parent I just want my child to be as independant, healthy and happy

as she can be. The way she is now this may be impossible if I don't

act now. I NEVER said that gentetic studies to eliminate or abort

children with defects should be done--that is purely disgusting and

not part of my character to even think! I never said that mercury

alone was the cause of autism and I never promoted the use of

chelation but there are many other treatments that have been shown

to help including vitamins, minerals, hyperbarics etc...--all with

little to no negative side effects (like chelation can have). I am

glad that Autism One promotes on all these Yahoo groups to help

people like me and my daughter. It is hard for me to see your point

because I did not grow up with autism.

Kassie I wish you all the best and glad there are good people like

you out there who want to take in foster children with special

needs. You have a good heart and keep fighting for what you believe

in, you rock girl!

Tina

> > Kassi, what if, say mercury, is what is responsible for the

brain

> > functioning differences in people with autism? I think in many

of the

> > cases the mercury (or inability to excrete it & other metals) is

what

> > leads to the brain differences, at least in the cases of autism

that

> > have metal poisoning. I guess what I'm getting at is that when

many

> > of the symptoms that are associated with autism are treated, esp

in

> > very young people, the brain differences lessen/go away (like

with

> > Seroussi's son). *IF* that is the case in at least some cases,

how do

> > you feel about that.

>

> The brain changes are in structures that develop before birth.

Autism and real mercury

> poisoning (remember, I've had both. Classical metal poisoning.

Classical signs. None of

> this 'novel form' stuff. The kind that can kill you fairly fast)

just aren't in the same ballpark.

> If what someone ACTUALLY has is exacerbated by mercury and food

and such, ok then.

> The parent has a responsibility to seek out a responsible source

of information, testing,

> and treatment. A lot of the persons used in the treatment

of " mercury induced autism "

> have their licensces suspended-did before they went into altmed-

and are using dangerous

> methods.

>

> > I know you've said that cancer & diabetes aren't like autism.

But I

> > know people who have had cancer who's outlook completely

changes. The

> > way they perceive info changes and the way they react to info

> > changes. I know my mental processes have profoundly changed (for

the

> > better, I believe) since having a child with autism. That's why

I see

> > the similarities in these, because a life-altering experience

does

> > alter one's life & the way they mentally function, just like you

> > describe those with autism. Heck, I just saw a show on the

1,000lb

> > man & they showed when fat people eat their favorite foods, the

MRI

> > shows profound brain changes. Gee, I thought that Big Mac was

doing

> > something to me <g>/

> >

> > Just curious what your thoughts are on it all.

>

>

> Autism isnt like cancer and diabetes because autism doesn't kill

people. Diabetes is easier

> to manage, but it's no walk in the park, and CAN kill you. So can

my adrenal failure.

> PLEASE cure that. PLEASE cure my epilepsy. That might change how

my autism manifests

> (less prednisone rage and anticonvulsant stupidness for all!) but

it doesn't change the part

> of me that can't go away. The diabetes insipidus, on the other

hand, is mainly a BIG PAIN

> as long as I have water and a bathroom available. All this is

stuff in my brain. Only autism

> colors my world 24/7.

>

> As for the 1000 pound man--my roommate and I have a theory that

there's a mosaic

> prader-willi gene hiding in some of those people. Why not? There's

mosaic Down's, there's

> mosaic s and Kleinfelter's, I've got a mecp2 mutation in the

mosaic way...kid I

> worked with was mosaic Angelmans but presented as mostly severely

autistic.

>

> So those are my thoughts.

>

> My other thoughts are that autistic people have feelings too, and

that autistics who arent

> parents may not know much about raising kids, but they know a lot

about BEING autistic

> kids. Some of us even know a bit about dealing with kids, too.

That's different from being

> a parent, but it's more than people give credit for.

>

> Kassiane

>

> who intends to become a foster parent for special needs kids after

she goes back to

> school, and has a bigger place to live

>

[Guest guest]

>

> Kassie,

>

> Thank you so very much for your insight. I read your other post on

> what it was like to grow up as a child with autism and what those

> children did to you is horrific to say the least. Kids can be cruel

> especially girls and I wish there were some kind of sensativity

> lessons to give kids in the school setting to have respect for

> others. Many times parents do not do the job that they are suppose

> to on this and what a shame. I would be devastated if this happened

> to my little girl. How powerless your parents must have felt and how

> sad it must have been for you.

Heh. My parents just blamed it on me. I am A Study In the Effects of Neglect

onthe Strong-

Willed Autistic Child. The kids here have something I didn't have: parents who

will fight for

them. And I commend that, in all of you, even if there are things I get most

vocal about.

>

> I agree with you that autism is not a death sentence as cancer and

> Diabetes can be, perhaps my analogy wasn't equal but I just wanted

> to point out that there are things that parents can do to help ease

> some of the negative symptoms of autism. Not a cure--although I

> would love to see a cure for autism and other nuerological

> disorders. I Know that upsets you and that is not my intent but as a

> parent I just want my child to be as independant, healthy and happy

> as she can be.

Autism isn't inconsistant with these goals. Making autism the enemy can be

though.

(my top 3 wishlist for neurological cures: epilepsy, multiple sclerosis, fixing

TBIs).

>The way she is now this may be impossible if I don't

> act now. I NEVER said that gentetic studies to eliminate or abort

> children with defects should be done--that is purely disgusting and

> not part of my character to even think! I never said that mercury

> alone was the cause of autism and I never promoted the use of

> chelation but there are many other treatments that have been shown

> to help including vitamins, minerals, hyperbarics etc...--all with

> little to no negative side effects (like chelation can have). I am

> glad that Autism One promotes on all these Yahoo groups to help

> people like me and my daughter. It is hard for me to see your point

> because I did not grow up with autism.

Hyperbarics actually does have side effects. Overoxegenation promotes certain

types of

seizures. I'm all about the nutritional treatments, if they help-Im gluten free

and no-

artificials.

The studies to hunt out the genes are mostly being promoted by CAN, as I recall.

DAN and

those who think it's all mercury find it a waste of time.

> Kassie I wish you all the best and glad there are good people like

> you out there who want to take in foster children with special

> needs. You have a good heart and keep fighting for what you believe

> in, you rock girl!

Actually I prefer spinning *grin*

Kassiane