Re: My recent post from my blog.

[Guest guest]

Hi Sue,

Certainly thinking of you and Sammy and upcoming surgery.

Over Thanksgiving, I became acquainted with a PE teacher at 's school who

asked about his limp. He then went on to tell me that he had Perthes Disease at

age 10 and did have surgery. They chipped off the end of the femur. He is now

in his mid 40's and just had hip replacement. Arthritis started about 10 years.

To watch him walk down the hall, you would never know that anything was ever

wrong.

Have courage,

Marsha

>

> Hi everyone,

>

> I thought we could all use a good laugh today! ENJOY!

>

> Thursday, December 2, 2010

>

> Speaking of Sammy....!!!!

>

> I didn't want you to think that Sam's diagnosis of Perthes Disease or his

> upcoming surgery has slowed him down much. His personality and creativeness

> is still very much on target.

>

> For example...the other day I sat down with Sam and his Ipad to go over some

> of his academics. I told him let's start with some math and then we will

> move on to writing. I searched and searched on his Ipad for his math

> app....but it seemed to have disappeared. I then looked for his writing app.

> and surprisingly that was gone too along with his receptive word cards, and

> the keynote program where I keep his site words and reading presentations.

> His other map app. was gone, his level 3 books all evaporated into thin air.

> The only thing left on the Ipad were my personal apps and Sam's games.

> Hmmm....I looked at Sam who was attentively waiting for me to get started

> with him and I asked,

>

> " Sam, what happened to your math program? "

>

> He said... " Where math go??? " " What happened? "

>

> I then asked...

>

> " Sam, did you delete your math app.?

>

> He said, " NNooo " ...but then he smiled, a mischievous grin that gave him

> away.

>

> I said, " Did you delete all your school apps? "

>

> He just smiled and grinned again.

>

> What an absolute stinker! Unfortunately for Sam he doesn't realize yet that

> the apps. are stored on my computer and that I just had to reload them. Hee

> Hee

>

> For the next story I have to ask Ellen and the NACD staff to stop reading.

> Really...this story won't interest you at all. Are you signed off??

>

> Probably not and I will hear about it but then I can check if they are

> reading the blog or not. AHA!

>

> Sooooo, I have a couple of Sam's favorite movies loaded on his Ipad for

> emergency situations like medical appointments (of which we have had many

> lately) to help keep him calm and entertained. The favorite movies are Wild

> Hogs (love that movie too) and Like Mike. When we are not in those

> situations I use the restrictions area to turn them off so he can not view

> them. It's sort of a stimming issue, watching the same movie, or same scene

> of the movie over and over again. Not really a NACD approved function.

> Anyway, after our last appointment I turned them off with my secret code.

>

> That same day Sam was on his Ipad and I was in the next room folding laundry

> when I heard what sounded like a movie playing from the Ipad. I rushed into

> the next room and saw Sam promptly turn off the Ipad. I asked him if he was

> watching a movie and he told me " No Mom, no movies. " I returned to my

> folding and a few moments later I heard what sounded like a movie starting

> up again. I walked in and he turned it off again. I asked for his Ipad which

> he handed to me and checked to see if the movies were indeed turned

> off...and they were. I handed it back to him and resumed my folding only to

> hear a movie start up yet again. I snuck into the next room and entered the

> room Sam was in from the opposite entrance since he had positioned himself

> to see me and sure enough he was watching some type of movie on the Ipad. I

> snuck up on him and when Buddy entered the room from the opposite direction

> I watched him turn off the Ipad and realized that Sam had figured out how to

> watch the instant movies on the Netflix app.

>

> And I'm supposed to believe that Sam is cognitively delayed...I think not.

>

> So today, I notice the dog playing with an older chew toy...a ball that you

> put a treat inside. Buddy brought me the ball to throw and I noticed that

> something was inside but it wasn't a treat. Inside Buddy's ball was one of

> the Numicon pegs from Sam's math set. I had recently started working with

> Sam on Numicon and I guess this was his way of showing me what he thought of

> the concept. Nice, real nice Sammy! Sam has also been known to take my many

> manipulative's that I use to teach him math and push them down a hole in the

> floor next to the masonry fireplace in our parlor. I could never find them

> until Jeff yelled at me one day for dumping a bunch of junk in the

> stationary sink downstairs. I had no idea what he was talking about until he

> brought me handfuls of my many missing manipulative's (toy monsters, little

> plastic gingerbread men, pom-pom pigs...). You have to understand that this

> hole is tiny which meant Sam was pushing these down one by one. When I

> brought them out the next day Sam looked at them confused and then went and

> checked out the hole. I think he had thought they somehow crawled back up.

> He confirmed that the next day when the hole was stuffed with a piece of

> paper.

>

> And let's not forget my earlier post of Sam ripping up his number cards and

> then blaming it on the dog.

>

> Ahhh...the inner workings of Sam Mayer's mind. What a character!!!

>

> Sam may not be able to express himself eloquently through words but his

> actions demonstrate volumes about his capabilities. You just keep me

> guessing Sam...I never get bored with you around!

>

>

>

>

>

> Sue Mayer

>

> Mom to Sam (9) with Down syndrome, Brain Injury, Apraxia, Dysphagia,

> Respiratory/Immune Issues, Bi-Lateral Conductive Hearing Loss and now

> Perthes or as I like to say " Yada, Yada,Yada "

>

> <http://www.suemayer-specialneedsmom.blogspot.com/>

> www.suemayer-specialneedsmom.blogspot.com

>