Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 I hope everyone is having a good day. I'm still waiting on getting the Humira. My insurance company did approve it. But I am still recovering from surgery so my doctor said no on the drug until he gives me the go ahead (he has RA himself, so I trust him). It's been 2 1/2 months since my breast reduction and I still have open wounds. I'm so tired of it all, its another added thing I'm sick of. I'm worried about starting the Humira because my rheumy said that if you get sick on it, you can get real sick and to be honest, I get sick many many many times during the year, especially over the winter season. I get strep, bronchitis, ear infections, sinus infections, kidney infections, UTI's.... what does this mean now that I'm going to start the Humira. I'm scared to death of what is going to happen... I'm sure my fears are irrational. I've been so tired lately. I haven't been sleeping at all at night. I wake up 4-5 times a night and I can't feel my arms. Sometimes I wake up and can't feel my legs. I don't understand what is going on with me anymore. Sometimes I think that death would be welcome because then at least I would sleep. I know thats not how I'm supposed to think and I know that I'm prone to anxiety and depression. I take celexa and nortriptyline... but I'm not sure if they just aren't working anymore or if I've just gotten to the point where I can't take anymore. I don't know anymore. I know I'm feeling static now, not being able to do anything more for the pain as it gets worse and I'm trying to hold on, but it just seems as if it never ends. Thank you for all your support. kerri sue --------------------------------- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Kerry Sue, Your fears are not irrational at all, they are normal and to be expected. Taking a drug that makes you more susceptible to infection when you're already susceptible to infection is scary! Hopefully you wont have any trouble with it and it will give you relief. Finding the right med can be difficult, but if you do it can change your life. Hang in there. a On Oct 18, 2005, at 6:05 PM, kerri paquette wrote: > > I hope everyone is having a good day. I'm still waiting on getting > the Humira. My insurance company did approve it. But I am still > recovering from surgery so my doctor said no on the drug until he > gives me the go ahead (he has RA himself, so I trust him). It's > been 2 1/2 months since my breast reduction and I still have open > wounds. I'm so tired of it all, its another added thing I'm sick > of. I'm worried about starting the Humira because my rheumy said > that if you get sick on it, you can get real sick and to be honest, > I get sick many many many times during the year, especially over > the winter season. I get strep, bronchitis, ear infections, sinus > infections, kidney infections, UTI's.... what does this mean now > that I'm going to start the Humira. I'm scared to death of what is > going to happen... I'm sure my fears are irrational. I've been so > tired lately. I haven't been sleeping at all at night. I wake up > 4-5 times a night and I can't feel my arms. Sometimes I wake feel > my legs. I don't understand what is going on with me anymore. > Sometimes I think that death would be welcome because then at least > I would sleep. I know thats not how I'm supposed to think and I > know that I'm prone to anxiety and depression. I take celexa and > nortriptyline... but I'm not sure if they just aren't working > anymore or if I've just gotten to the point where I can't take > anymore. I don't know anymore. I know I'm feeling static now, not > being able to do anything more for the pain as it gets worse and > I'm trying to hold on, but it just seems as if it never ends. Thank > you for all your support. > > > > kerri sue > > > > --------------------------------- > Music Unlimited - Access over 1 million songs. Try it free. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 June, I have been so fatiqued lately, I can't even hardly get myself up. I am always in my pj's,(even take to school in them.) I don't feel like doing anything. I was thinking about going off the mtx. It's a tough situation, I know it helps the RA. Hugs, Tawny > > I have been reading with interest of the connection of mtx and exhaustion. I started 3 months ago adding mtx to the enbrel and all of a sudden I realized that this is exactly what is happening to me. Ever since the addition of the Mtx, I could easily, and have on many occasions, gone to bed before 8pm and slept 10-12 hours. > > On Dec. 2 I will be doing my first teaching session in 6 months but they are all first year med students, so most of the time will be spent letting them do some practice on me and hopefully I won't fall asleep. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2005 Report Share Posted November 27, 2005 From about my second week of methotrexate to my fourth or fifth, I literally couldn't get out of bed the day after taking it. I slept completely around the clock, but very fitfully and shallow with bizarre dreams. It was horrible. Now it's somewhat better. I found that if I make sure I don't take any pain pills or neurontin or anything else even mildly sedating on the day of and after taking mtx, I do better. Good luck with your students, laura June Dixon <juner24@...> wrote: I have been reading with interest of the connection of mtx and exhaustion. I started 3 months ago adding mtx to the enbrel and all of a sudden I realized that this is exactly what is happening to me. Ever since the addition of the Mtx, I could easily, and have on many occasions, gone to bed before 8pm and slept 10-12 hours. On Dec. 2 I will be doing my first teaching session in 6 months but they are all first year med students, so most of the time will be spent letting them do some practice on me and hopefully I won't fall asleep. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Hey Tawny Hope you are doing better, and had a great T-day. I had to get off MTX due to elevated liver... somethingorother?? They think the fatigue this time is due to the low hematocrit and hemoglobin, which it always is! They want me to go to another GI doc AGAIN.(went through this before, 2 yrs ago. found nothing.) which will mean a bunch of out patient tests which our sucky insurance does not pay the 1st thousand dollars on. AAHHH!! How's our little mama doing? When is she due again, I forgot. I had all the kids, grandkids, and exhubby over on thanksgiving. spent the next 3 days recuperating but it was worth it. Just about the time you get used to having them all home, it's time for them to leave again. (sigh) Oh, well, we just have to treasure the golden moments, right? And there is nothing wrong with taking your kids to school in your jammies. Some of the girls in Chas' dorm go to class in pajama pants and house shoes! Hugs & prayers for energy, and pain free days. Love Jane > > June, > > I have been so fatiqued lately, I can't even hardly get myself up. I > am always in my pj's,(even take to school in them.) I don't > feel like doing anything. I was thinking about going off the mtx. > It's a tough situation, I know it helps the RA. > Hugs, Tawny > > > > > --- In , " June Dixon " <juner24@r...> wrote: > > > > I have been reading with interest of the connection of mtx and > exhaustion. I started 3 months ago adding mtx to the enbrel and all > of a sudden I realized that this is exactly what is happening to me. > Ever since the addition of the Mtx, I could easily, and have on many > occasions, gone to bed before 8pm and slept 10-12 hours. > > > > On Dec. 2 I will be doing my first teaching session in 6 months but > they are all first year med students, so most of the time will be > spent letting them do some practice on me and hopefully I won't fall > asleep. > > > > Hugs > > June > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 Did the dreams stop? I had the same experience, the fatigue is better (I'm groggy the next day but I can function), but I have the most bizarre dreams the night I take it, and even the night after. They're almost more like hallucinations -- the walls drip blood, things are grabbing me. I KNOW that they're hallucinations even at the time, so I don't totally lose it, but it's definitely unpleasant. I was so glad that you posted this -- I've told my rheumy about the dreams and he looks at me like I'm completely NUTS!! I have been reading with interest of the connection of mtx and exhaustion. I started 3 months ago adding mtx to the enbrel and all of a sudden I realized that this is exactly what is happening to me. Ever since the addition of the Mtx, I could easily, and have on many occasions, gone to bed before 8pm and slept 10-12 hours. > > On Dec. 2 I will be doing my first teaching session in 6 months but they are all first year med students, so most of the time will be spent letting them do some practice on me and hopefully I won't fall asleep. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2005 Report Share Posted November 28, 2005 June, MTX makes me very tired too, but it is getting better with time. I'm glad you're back to teaching the med schools. I can bet you've influenced some med students to go into rheumatology. a On Nov 27, 2005, at 5:35 PM, June Dixon wrote: > I have been reading with interest of the connection of mtx and > exhaustion. I started 3 months ago adding mtx to the enbrel and all > of a sudden I realized that this is exactly what is happening to > me. Ever since the addition of the Mtx, I could easily, and have > on many occasions, gone to bed before 8pm and slept 10-12 hours. > > On Dec. 2 I will be doing my first teaching session in 6 months but > they are all first year med students, so most of the time will be > spent letting them do some practice on me and hopefully I won't > fall asleep. > > Hugs > June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 Tawny,, I am seeing my rheumy on Thursday and plan on asking if the Mtx could be the cause of my fatigue. I quite often go the whole day in my pj bottoms and one of Don's white t shirts which hangs down passed my knees but oh so comfy. Hugs June ----- Original Message ----- From: tdianaok June, I have been so fatiqued lately, I can't even hardly get myself up. I am always in my pj's,(even take to school in them.) I don't feel like doing anything. I was thinking about going off the mtx. It's a tough situation, I know it helps the RA. Hugs, Tawny > > I have been reading with interest of the connection of mtx and exhaustion. I started 3 months ago adding mtx to the enbrel and all of a sudden I realized that this is exactly what is happening to me. Ever since the addition of the Mtx, I could easily, and have on many occasions, gone to bed before 8pm and slept 10-12 hours. > > On Dec. 2 I will be doing my first teaching session in 6 months but they are all first year med students, so most of the time will be spent letting them do some practice on me and hopefully I won't fall asleep. > > Hugs > June > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 June, I called my doc's office today, and talked to the nurse about going off the mtx for awhile. She is going to talk to the rheumy, and call me back tomorrow. Girl, since I haven't taken the mtx, I feel almost normal:) I'm sure later on I will feel the effects of going off it. I just need a break from it. I'm tired of feeling like this, know what I mean? Sometimes, I don't even get up to eat, I just don't feel like it. I just love the comfy clothes. I have already let the family know, I want more pj's for Christmas. I love the spongebob ones:) We deal with so much, we deserve to be comfy in are lounging clothes. Let me know what the doc says. Take care, and God bless, Tawny > > Tawny,, I am seeing my rheumy on Thursday and plan on asking if the Mtx could be the cause of my fatigue. I quite often go the whole day in my pj bottoms and one of Don's white t shirts which hangs down passed my knees but oh so comfy. > > Hugs > June > ----- Original Message ----- > From: tdianaok > > > June, > > I have been so fatiqued lately, I can't even hardly get myself up. I > am always in my pj's,(even take to school in them.) I don't > feel like doing anything. I was thinking about going off the mtx. > It's a tough situation, I know it helps the RA. > Hugs, Tawny > > > > > --- In , " June Dixon " <juner24@r...> wrote: > > > > I have been reading with interest of the connection of mtx and > exhaustion. I started 3 months ago adding mtx to the enbrel and all > of a sudden I realized that this is exactly what is happening to me. > Ever since the addition of the Mtx, I could easily, and have on many > occasions, gone to bed before 8pm and slept 10-12 hours. > > > > On Dec. 2 I will be doing my first teaching session in 6 months but > they are all first year med students, so most of the time will be > spent letting them do some practice on me and hopefully I won't fall > asleep. > > > > Hugs > > June > > > > Quote Link to comment Share on other sites More sharing options...
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