Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Was she on the Prozac for a while and still experiencing the hyper behavior and sleeplessness? I ask, because it is a common side effect of SSRIs to cause some hyper behavior when first starting them. Our son experienced that both times he started them. IF that does not go away after a period of time, (thinking it was a few weeks here, and sometimes would flare up a bit again with med increases), then you should be concerned about Bipolar Disorder. It got pretty extreme at times too. He would say he felt like he couldn't stop moving. And he would comment that he felt " so hyper " , while laughing a bit crazily. It would pass though. He also experienced sleeplessness with the antidepressants. We had him take them in the morning instead of at night. But, even that didn't help completely. So, we started having him take Benadryl at night to help. The Benadryl eventually stopped working, so we switched to Melatonin. But, it seems the biggest thing that helped, was just time. His body eventually adjusted to the meds and the insomnia went away. It doesn't help that they are dealing with the OCD at bed time, where they have nothing to distract their mind, so it is worse. That used to keep our son awake too. I'm so sorry that she was feeling better and had to go off the meds. It's so hard to watch our kids suffer. I know what you mean about college. We are dealing with a flare up right now, and also trying to get college stuff in place. Not sure how it's all going to work out. I guess we can only do what we can do though. Hope something I shared was helpful. BJ > > Hi, I haven't posted in a while. My daughter is 18 now, a senior in high > school. She is having a very hard time with finding medication(s) to > help her OCD and depression. The SSRI's (like Prozac) cause her to not > be able to sleep at all, even with a sleep medication. That's > unfortunate, because her OCD and her mood were so good on the SSRI's... > for the first time in her life, she was happy and active and outgoing. > She was so happy and active that her doctor thought she was becoming > hypomanic at one point. He said she might have a tendency toward being > bi-polar and that the SSRI's could push someone with this tendency into > a manic state and cause them to develop full-blown bi-polar disorder > when they ordinarily wouldn't have. So, he took her off the SSRI and put > her on Lamictal (lamotrigine). But her depression has been getting much > worse since then. So, he decided to add back a little of the SSRI, but > then she couldn't sleep again. > > Has anyone else in the group had a child who reacted to the meds in this > way? (Not being able to sleep at all... even with sleep meds? And then > becoming hypomanic?) If so, what did you do? > > Any suggestions or advice from anyone would be appreciated. We're just > about at our wits end. I was really hoping we could get her medications > regulated before she starts to college next year. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 I can't really address the manic part, because we didn't see that with our daughter, but the sleep disturbance ... YIKES! We ended up giving Zoloft in the morning, and that helped alot. With our dd, though, it was more sleepiness. She would sleep and sleep. We figured out it was because we were giving it at night and it would keep her from falling asleep, but once she did, she was impossible to get up in the am. It did wonders for her anxiety and ocd though. Now she wants to wean off, go figure! She is 17, I hear you about college. Hope you can find something that works! Tina > > > > Hi, I haven't posted in a while. My daughter is 18 now, a senior in high > > school. She is having a very hard time with finding medication(s) to > > help her OCD and depression. The SSRI's (like Prozac) cause her to not > > be able to sleep at all, even with a sleep medication. That's > > unfortunate, because her OCD and her mood were so good on the SSRI's... > > for the first time in her life, she was happy and active and outgoing. > > She was so happy and active that her doctor thought she was becoming > > hypomanic at one point. He said she might have a tendency toward being > > bi-polar and that the SSRI's could push someone with this tendency into > > a manic state and cause them to develop full-blown bi-polar disorder > > when they ordinarily wouldn't have. So, he took her off the SSRI and put > > her on Lamictal (lamotrigine). But her depression has been getting much > > worse since then. So, he decided to add back a little of the SSRI, but > > then she couldn't sleep again. > > > > Has anyone else in the group had a child who reacted to the meds in this > > way? (Not being able to sleep at all... even with sleep meds? And then > > becoming hypomanic?) If so, what did you do? > > > > Any suggestions or advice from anyone would be appreciated. We're just > > about at our wits end. I was really hoping we could get her medications > > regulated before she starts to college next year. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 This is exactly what happened to my son on Prozac. He then had to be hospitalized. He wound up on mood stabilizing meds (many of them) only to be hospitalized on them as well. Still the extreme anxiety and then explosiveness occurred even on the gold standard Lithium. The only thing that has helped him stay out of the hospital has been CBT/ERP. He remains on mood stabilizers as they can be used to treat med resistant OCD. However, he's been well for a while now and we are beginning to remove them. If your daughter is not getting ERP therapy, I would strongly suggest it and I also would encourage you to question the Prozac. My son got better when he was taken off Prozac and given a low dose of Seroquel and Ativan as needed. We tried other SSRI's once off the prozac to no avail (even tried neurontin, ect). Some people just can't tolerate those meds and yet I don't believe in our case that it defines my son as bipolar because his primary and overriding symptoms have stemmed from his anxiety and not depression and mania. Also, as I mentioned, the mood stabilizers didn;t prevent the recurrence of symptoms (panic, anxiety, aggitation, explosiveness, violent behavior - in that order). Hope you can get on the right track soon. Bonnie > > Hi, I haven't posted in a while. My daughter is 18 now, a senior in high > school. She is having a very hard time with finding medication(s) to > help her OCD and depression. The SSRI's (like Prozac) cause her to not > be able to sleep at all, even with a sleep medication. That's > unfortunate, because her OCD and her mood were so good on the SSRI's... > for the first time in her life, she was happy and active and outgoing. > She was so happy and active that her doctor thought she was becoming > hypomanic at one point. He said she might have a tendency toward being > bi-polar and that the SSRI's could push someone with this tendency into > a manic state and cause them to develop full-blown bi-polar disorder > when they ordinarily wouldn't have. So, he took her off the SSRI and put > her on Lamictal (lamotrigine). But her depression has been getting much > worse since then. So, he decided to add back a little of the SSRI, but > then she couldn't sleep again. > > Has anyone else in the group had a child who reacted to the meds in this > way? (Not being able to sleep at all... even with sleep meds? And then > becoming hypomanic?) If so, what did you do? > > Any suggestions or advice from anyone would be appreciated. We're just > about at our wits end. I was really hoping we could get her medications > regulated before she starts to college next year. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 I am curious, Judy, is this your son that you think may have PANDAS? We did not try SSRI's, but know there is a lot of conversation about non-responsiveness to SSRI's in that community. Unfortunately, this has not been researched yet, either way, so it is antidotal. I also worry about the " alphabet kids " . Some likely do have co-morbid issues. But Meg received 3 diagnosis before the 2 that brought her treatment and remission (OCD & PANDAS). I think we got lucky that this was found before it got worse, and we picked up even more diagnosis. Her challenges were solved (for now) by using ERP therapy for the OCD, and treating the underlying medical issue. in NC > > I'm going to second Bonnie's post. My son, (now 8) has a diagnosis of bipolar disorder along with OCD, Tourettes, and ADHD. I believe he has the diagnosis of bipolar because he went " manic " on every SSRI we tried, and we have tried them all. My son almost ended up hospitalized, but I refused becasue he was 5 yrs old when this happened. He ended up having to go into partial hospitalization though.He has also been on several different mood stabilizers. > Just because a child has a " manic " or hypomanic " reaction to a SSRI doesn NOT mean they are bipolar, although many doctors jump to the extreme and diagnose this. > > How are her moods? Is there a family history of bipolar? > > My almost 13 yr old daughter has a diagnosis of bipolar also,(as well as ADHD , OCD,ODD, PDD,) all depending on the doctor she sees, and tolerates the SSRI'S with no problem and has no improvement with mood stabilizers.she has alos been hospitalized twice and in partial. > > I hope you find some answers soon!!! I'm still trying to find concrete answers after seeing literally dozens of doctors!!!! > > Hugs > judy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Me too. I am always interested to hear about your son. How is he doing? Did you find a helpful pandas doc? We are on the hunt again after only 2 months, as our neurolgist is moving to nebraska! Bummer for us, likely good for kids out there. Good docs can be so hard to find. > > > > I'm going to second Bonnie's post. My son, (now 8) has a diagnosis of bipolar disorder along with OCD, Tourettes, and ADHD. I believe he has the diagnosis of bipolar because he went " manic " on every SSRI we tried, and we have tried them all. My son almost ended up hospitalized, but I refused becasue he was 5 yrs old when this happened. He ended up having to go into partial hospitalization though.He has also been on several different mood stabilizers. > > Just because a child has a " manic " or hypomanic " reaction to a SSRI doesn NOT mean they are bipolar, although many doctors jump to the extreme and diagnose this. > > > > How are her moods? Is there a family history of bipolar? > > > > My almost 13 yr old daughter has a diagnosis of bipolar also,(as well as ADHD , OCD,ODD, PDD,) all depending on the doctor she sees, and tolerates the SSRI'S with no problem and has no improvement with mood stabilizers. she has alos been hospitalized twice and in partial. > > > > I hope you find some answers soon!!! I'm still trying to find concrete answers after seeing literally dozens of doctors!!!! > > > > Hugs > > judy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Wow, Judy! (to late stage lyme) I hope the antibiotics help. I know it is bad news, but at least you have an answer to part of the puzzle. I pray they can turn things around for him. Hugs, BJ > > Hi , > I had to take my son to a pediatric lyme specialist first to rule out the lyme. Unfortunatley, he was diagnosed with chronic late stage lyme, so if he does have PANDAS, I would think all of his antibiotics he is presently on would be taking care of that for now!!!!!! > > He is on two antibiotics for 5 months, than we return and he may possibly need an IV. > > (sigh!!!) > > I hope you find a good doctor!!!!!! > > Hugs > Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2009 Report Share Posted October 21, 2009 Hey! Wow, that actually seems (oddly) like good news! Not that I want him to have anything, but knowing and treating is so much better than the alternative. They may have told you this, but Lyme & Lupus have nearly identical presentations to PANDAS, in terms of OCD. So you may be on the right path - which is so cool! Lyme was the first thing they ruled out with my daughter. Don't worry too much about the IVIG (I assume that is what you mean by IV), there are many great success stories and this procedure is SO much safer than it was 10 years ago. I am so thrilled that you found a doctor that knows how to test for this & am very hopeful that the antibiotics will be a huge help. Congratulations on being such a persistent mom. We all know how hard that can be in the face of the often skeptical medical community when it come to the intersection of mental and physical health. in NC > > > > > > Hi , > > I had to take my son to a pediatric lyme specialist first to rule out the lyme. Unfortunatley, he was diagnosed with chronic late stage lyme, so if he does have PANDAS, I would think all of his antibiotics he is presently on would be taking care of that for now!!!!!! > > > > He is on two antibiotics for 5 months, than we return and he may possibly need an IV. > > > > (sigh!!!) > > > > I hope you find a good doctor!!!!!! > > > > Hugs > > Judy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Lyme disease can affect the brain and that can affect behavior certainly, but that doesn't indicate PANDAS to my knowledge. Lyme disease can cause an encephalopathy specific to Lyme Disease which can affect anyone of any age when the disease is later stages. The antibiotics are standard for anyone having those symptoms. Regardless, I hope to hear great news over the next couple of months! Bonnie > > > > > > I'm going to second Bonnie's post. My son, (now 8) has a diagnosis of bipolar disorder along with OCD, Tourettes, and ADHD. I believe he has the diagnosis of bipolar because he went " manic " on every SSRI we tried, and we have tried them all. My son almost ended up hospitalized, but I refused becasue he was 5 yrs old when this happened. He ended up having to go into partial hospitalization though.He has also been on several different mood stabilizers. > > > Just because a child has a " manic " or hypomanic " reaction to a SSRI doesn NOT mean they are bipolar, although many doctors jump to the extreme and diagnose this. > > > > > > How are her moods? Is there a family history of bipolar? > > > > > > My almost 13 yr old daughter has a diagnosis of bipolar also,(as well as ADHD , OCD,ODD, PDD,) all depending on the doctor she sees, and tolerates the SSRI'S with no problem and has no improvement with mood stabilizers. she has alos been hospitalized twice and in partial. > > > > > > I hope you find some answers soon!!! I'm still trying to find concrete answers after seeing literally dozens of doctors!!!! > > > > > > Hugs > > > judy > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2009 Report Share Posted October 22, 2009 Hi Bonnie - you are quite correct. Lyme disease can cause neuropsychiatric symptoms. So can PANDAS, Thyroid issues and Lupus. None of these diseases are necessarily, or even likely to be co-morbid to my understanding. They simply all have the same Neuropyschological presentation of OCD and they are the first things a Neurologist will test a child for, when they have Sudden Onset OCD. Best - in NC > > > > > > > > I'm going to second Bonnie's post. My son, (now 8) has a diagnosis of bipolar disorder along with OCD, Tourettes, and ADHD. I believe he has the diagnosis of bipolar because he went " manic " on every SSRI we tried, and we have tried them all. My son almost ended up hospitalized, but I refused becasue he was 5 yrs old when this happened. He ended up having to go into partial hospitalization though.He has also been on several different mood stabilizers. > > > > Just because a child has a " manic " or hypomanic " reaction to a SSRI doesn NOT mean they are bipolar, although many doctors jump to the extreme and diagnose this. > > > > > > > > How are her moods? Is there a family history of bipolar? > > > > > > > > My almost 13 yr old daughter has a diagnosis of bipolar also,(as well as ADHD , OCD,ODD, PDD,) all depending on the doctor she sees, and tolerates the SSRI'S with no problem and has no improvement with mood stabilizers. she has alos been hospitalized twice and in partial. > > > > > > > > I hope you find some answers soon!!! I'm still trying to find concrete answers after seeing literally dozens of doctors!!!! > > > > > > > > Hugs > > > > judy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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