New to group with 3 yr old w possible OCD

[Guest guest]

Am curious what experiences parents of OCD children had when their children were

young? 2-3 years old?

My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

Her tantrums last up to an hour sometimes with full screaming the whole time.

Anyone else experience this with their child? Usually she is very sweet and

very bright that people do not believe us when we say she has tanrums like this.

It's frustrating that some do not believe us. Recently, she got out of her car

seat in the 2 mile drive home. I had to pull over twice to buckle her back in.

She started a tanrum while we were out, so I had to carry her to the car and

forcibly put her in the car seat. That's why she escaped from her seat, she

didn't put herself in there so she was enraged.

When I open the car door for her to get out, she has to knock on the window 5

times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

She has to do everything by herself, but then can't, won't ask for help and then

melts down. I have no place to confine her when she rages as she climbs over

things. When my husband is home she prefers me to do anything for her, refusing

my husband's help.

My husband and I have been seeing a therapist who does work with children with

OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

Socially, she is " normal " . We are in a twin's playgroup that meets once a week

and my twins are one of the better behaved twins. Others have told me this, not

just my opinion. OF the two, she prefers to play alone most of the time

during the playgroups. She just turned 3 three months ago.

Her rages are awful to deal with and last a LONG time. I have her twin sister

in addition to a one year old daughter as well. I feel like they are neglected

at times while I have to deal with her.

Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

Oh, one more thing. What do you do when your child refuses to get dressed? Any

tips?

[Guest guest]

Sounds like my son was-he started at 18 months. Was diagnosed with sensory

processing disorder , got OT, while in OT around 31/2 he was given the

OCD/anxiety diagnosis but nothing was really done with it till he was 5. Have

they talked about sensory issues with you? Could be both.

Michele

>

> Am curious what experiences parents of OCD children had when their children

were young? 2-3 years old?

>

> My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

>

> Her tantrums last up to an hour sometimes with full screaming the whole time.

Anyone else experience this with their child? Usually she is very sweet and

very bright that people do not believe us when we say she has tanrums like this.

It's frustrating that some do not believe us. Recently, she got out of her car

seat in the 2 mile drive home. I had to pull over twice to buckle her back in.

She started a tanrum while we were out, so I had to carry her to the car and

forcibly put her in the car seat. That's why she escaped from her seat, she

didn't put herself in there so she was enraged.

>

> When I open the car door for her to get out, she has to knock on the window 5

times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

>

> She has to do everything by herself, but then can't, won't ask for help and

then melts down. I have no place to confine her when she rages as she climbs

over things. When my husband is home she prefers me to do anything for her,

refusing my husband's help.

>

> My husband and I have been seeing a therapist who does work with children with

OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

>

> Socially, she is " normal " . We are in a twin's playgroup that meets once a

week and my twins are one of the better behaved twins. Others have told me

this, not just my opinion. OF the two, she prefers to play alone most of the

time during the playgroups. She just turned 3 three months ago.

>

> Her rages are awful to deal with and last a LONG time. I have her twin sister

in addition to a one year old daughter as well. I feel like they are neglected

at times while I have to deal with her.

>

> Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

>

> Oh, one more thing. What do you do when your child refuses to get dressed?

Any tips?

>

[Guest guest]

HAS SHE BEEN EVALUATED FOR AUTISM/ASPERGERS?

>

> Am curious what experiences parents of OCD children had when their children

were young? 2-3 years old?

>

> My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

>

> Her tantrums last up to an hour sometimes with full screaming the whole time.

Anyone else experience this with their child? Usually she is very sweet and

very bright that people do not believe us when we say she has tanrums like this.

It's frustrating that some do not believe us. Recently, she got out of her car

seat in the 2 mile drive home. I had to pull over twice to buckle her back in.

She started a tanrum while we were out, so I had to carry her to the car and

forcibly put her in the car seat. That's why she escaped from her seat, she

didn't put herself in there so she was enraged.

>

> When I open the car door for her to get out, she has to knock on the window 5

times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

>

> She has to do everything by herself, but then can't, won't ask for help and

then melts down. I have no place to confine her when she rages as she climbs

over things. When my husband is home she prefers me to do anything for her,

refusing my husband's help.

>

> My husband and I have been seeing a therapist who does work with children with

OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

>

> Socially, she is " normal " . We are in a twin's playgroup that meets once a

week and my twins are one of the better behaved twins. Others have told me

this, not just my opinion. OF the two, she prefers to play alone most of the

time during the playgroups. She just turned 3 three months ago.

>

> Her rages are awful to deal with and last a LONG time. I have her twin sister

in addition to a one year old daughter as well. I feel like they are neglected

at times while I have to deal with her.

>

> Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

>

> Oh, one more thing. What do you do when your child refuses to get dressed?

Any tips?

>

[Guest guest]

Hi y. My son was a lot like that. The clothes thing might be sensory

processing disorder. Most kids with Asperger's and OCD have this. Maybe you

could ask her about it. Also, at her age and size, it might be helpful to hold

her and restrain her if she is really out of control. That will keep her safe

until she wears out. My son is 8 eight and he repeats a lot of words too. He

is diagnosed with OCD and is highly gifted. He does not do very well socially so

I'm glad you have that going for you. I hope this was at least a little

helpful. Hang in there!

Walk by Faith

Tyler

________________________________

To:

Sent: Mon, October 12, 2009 8:49:35 PM

Subject: Re: New to group with 3 yr old w possible OCD

HAS SHE BEEN EVALUATED FOR AUTISM/ASPERGERS?

>

> Am curious what experiences parents of OCD children had when their children

were young? 2-3 years old?

>

> My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

>

> Her tantrums last up to an hour sometimes with full screaming the whole time.

Anyone else experience this with their child? Usually she is very sweet and

very bright that people do not believe us when we say she has tanrums like this.

It's frustrating that some do not believe us. Recently, she got out of her car

seat in the 2 mile drive home. I had to pull over twice to buckle her back in.

She started a tanrum while we were out, so I had to carry her to the car and

forcibly put her in the car seat. That's why she escaped from her seat, she

didn't put herself in there so she was enraged.

>

> When I open the car door for her to get out, she has to knock on the window 5

times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

>

> She has to do everything by herself, but then can't, won't ask for help and

then melts down. I have no place to confine her when she rages as she climbs

over things. When my husband is home she prefers me to do anything for her,

refusing my husband's help.

>

> My husband and I have been seeing a therapist who does work with children with

OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

>

> Socially, she is " normal " . We are in a twin's playgroup that meets once a

week and my twins are one of the better behaved twins. Others have told me

this, not just my opinion. OF the two, she prefers to play alone most of the

time during the playgroups. She just turned 3 three months ago.

>

> Her rages are awful to deal with and last a LONG time. I have her twin sister

in addition to a one year old daughter as well. I feel like they are neglected

at times while I have to deal with her.

>

> Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

>

> Oh, one more thing. What do you do when your child refuses to get dressed?

Any tips?

>

[Guest guest]

I have not had her formally evaluated, but have done a checklist or two on line

and the therapist has seen her twice and says it's not that.  She has met all

her milestones on time, makes eye contact, engages others, and has gotten better

at seeking friends out at playgroup, but does prefer to play by herself, but in

the same room at the other kids.  She will at times, seek out adults before

kids.

 

We do restrain her when possible.  I am home alone with them m-w and a sitter

comes to our house th/fri while I work.  What I am finding is restraining for up

to 45 min to an hour is not possible with 2 other small children in the house

(her 3 year old twin and the one year).  We've done that in the past, it seems

to enrage her more.

 

I do not have a place I can contain her when she rages now.  The gate at their

door she can now climb over.  When she gets enraged we see her go into " the

zone " as we call it.  THere's no talking to her when that happens.  Anyone else

find that?

 

I " ve thought emotionally disturbed as well.  WHen I was in my 20's I worked with

ED kids in the NYC schools.  How does one get " formally diagnosed " with OCD at

this young age?  What is treatment?

 

Today was a very frustrating day with her.

Subject: Re: Re: New to group with 3 yr old w possible OCD

To:

Date: Monday, October 12, 2009, 6:16 PM

 

Hi y. My son was a lot like that. The clothes thing might be sensory

processing disorder. Most kids with Asperger's and OCD have this. Maybe you

could ask her about it. Also, at her age and size, it might be helpful to hold

her and restrain her if she is really out of control. That will keep her safe

until she wears out. My son is 8 eight and he repeats a lot of words too. He is

diagnosed with OCD and is highly gifted. He does not do very well socially so

I'm glad you have that going for you. I hope this was at least a little helpful.

Hang in there!

Walk by Faith

Tyler

____________ _________ _________ __

From: joseyneely <joseyneelyyahoo (DOT) com>

To: @ yahoogroups. com

Sent: Mon, October 12, 2009 8:49:35 PM

Subject: Re: New to group with 3 yr old w possible OCD

HAS SHE BEEN EVALUATED FOR AUTISM/ASPERGERS?

>

> Am curious what experiences parents of OCD children had when their children

were young? 2-3 years old?

>

> My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

>

> Her tantrums last up to an hour sometimes with full screaming the whole time.

Anyone else experience this with their child? Usually she is very sweet and very

bright that people do not believe us when we say she has tanrums like this. It's

frustrating that some do not believe us. Recently, she got out of her car seat

in the 2 mile drive home. I had to pull over twice to buckle her back in. She

started a tanrum while we were out, so I had to carry her to the car and

forcibly put her in the car seat. That's why she escaped from her seat, she

didn't put herself in there so she was enraged.

>

> When I open the car door for her to get out, she has to knock on the window 5

times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

>

> She has to do everything by herself, but then can't, won't ask for help and

then melts down. I have no place to confine her when she rages as she climbs

over things. When my husband is home she prefers me to do anything for her,

refusing my husband's help.

>

> My husband and I have been seeing a therapist who does work with children with

OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

>

> Socially, she is " normal " . We are in a twin's playgroup that meets once a week

and my twins are one of the better behaved twins. Others have told me this, not

just my opinion. OF the two, she prefers to play alone most of the time

during the playgroups. She just turned 3 three months ago.

>

> Her rages are awful to deal with and last a LONG time. I have her twin sister

in addition to a one year old daughter as well. I feel like they are neglected

at times while I have to deal with her.

>

> Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

>

> Oh, one more thing. What do you do when your child refuses to get dressed? Any

tips?

>

[Guest guest]

Have you tried giving your daughter choices (both being options that are

acceptable to you)? I have found that with kids that age, giving them a choice

can break down a lot of resistance. So, for dressing, you could give her a

choice of 2-3 outfits and also ask her to choose how and where she would like to

put the clothes on. (For a 3 year old, I would only give her 2-3 choices as too

many choices will just make it difficult for her to choose.) A book that helped

me a lot when my daughter was around that age was " Rasing your spirited child "

(by Kurcinka). She suggests that if there are only certain clothes that

your kid will wear, it is worth it to go shopping for whatever that is, rather

than engage in daily battle about clothing. My daughter wore only shirts with

Spongebob on it for awhile. I hunted for them on eBay! It made getting dressed

in the morning so much easier. She has since been diagnosed with OCD and

sensory processing disorder (which often go together). And now, she is much

less picky about clothes (though she still will not wear dresses).

Sue

> >

> > Am curious what experiences parents of OCD children had when their children

were young? 2-3 years old?

> >

> > My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

> >

> > Her tantrums last up to an hour sometimes with full screaming the whole

time. Anyone else experience this with their child? Usually she is very sweet

and very bright that people do not believe us when we say she has tanrums like

this. It's frustrating that some do not believe us. Recently, she got out of

her car seat in the 2 mile drive home. I had to pull over twice to buckle her

back in. She started a tanrum while we were out, so I had to carry her to the

car and forcibly put her in the car seat. That's why she escaped from her seat,

she didn't put herself in there so she was enraged.

> >

> > When I open the car door for her to get out, she has to knock on the window

5 times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

> >

> > She has to do everything by herself, but then can't, won't ask for help and

then melts down. I have no place to confine her when she rages as she climbs

over things. When my husband is home she prefers me to do anything for her,

refusing my husband's help.

> >

> > My husband and I have been seeing a therapist who does work with children

with OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

> >

> > Socially, she is " normal " . We are in a twin's playgroup that meets once a

week and my twins are one of the better behaved twins. Others have told me

this, not just my opinion. OF the two, she prefers to play alone most of the

time during the playgroups. She just turned 3 three months ago.

> >

> > Her rages are awful to deal with and last a LONG time. I have her twin

sister in addition to a one year old daughter as well. I feel like they are

neglected at times while I have to deal with her.

> >

> > Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

> >

> > Oh, one more thing. What do you do when your child refuses to get dressed?

Any tips?

> >

>

[Guest guest]

I don't think you will get a DX of OCD at such a young age.

But even more helpful is to press for a DX of Pervasive

Developmental Disorder Not Otherwise Speciified (PDD-NOS). On the

basis of severe issues with emotional regulation. The schools

know how to help kids with with developmental disorders. You will

get your child into a special needs preschool, you will get

OT, you can ask for a functional behavior analysis for any behavior issues in

school. The problem with the DX of mood disorder or anxiety disorder is that

there is not a lot of therapy for young kids.

I found myself stuck with the OCD DX and no outside support.

The autism community understands head banging and raging. You will

find help there.

Our daughter had similar issues from infancy. There are no infant

treatments for OCD. And therapy has not worked for our daughter sh e

is too resisitent.

But we have made great strides with working with folks from the

autism community. Behaviorists have been very helpful to us.

OT didn't help much at all, but we saw the triggers more clearly.

The behaviorist have been helpful in helping us reduce

stimulation and work on shaping behaviors we need.

Medication geared to reducing anxiety and reducing rages is

often prescribed in young children in the sutism community as

young as 5. But there are perhaps some cases even younger.

Dr. Stanley Greenspan is a child psychiatrists and he developed a

therapy for emotional regulation issues in infants and children

called Floortime. We used this method too.

We waited too long and let our daughter suffer too long.

But finally at age 11 we started on zoloft and the rages

for her stopped. She is still OCD but the rages stopped.

Some of the autism community kids use rispedal to modulate

rages.

If you do see a child neurologist or psychistrist

video tape a rage. Document how often and how long they last and

what you think the triggers are. For us they were very predictable.

Transitions were always the trigger. I never got anywhere

until I started tapping her and MDs could see for themselves.

I am so sorry that you little one is suffering so much, and you too

I am sure.

I wish that you find a solution soon.

Pam

> >

> > Am curious what experiences parents of OCD children had when their children

were young? 2-3 years old?

> >

> > My 3 yr old is a twin (fraternal girls). L has banged her head during

rages/tanrums for close to 2 years. We've always stopped her from doing that,

but a recent visit to a pedi neurologist told us to let her bang her head. Let

her play it out for herself.

> >

> > Her tantrums last up to an hour sometimes with full screaming the whole

time. Anyone else experience this with their child? Usually she is very sweet

and very bright that people do not believe us when we say she has tanrums like

this. It's frustrating that some do not believe us. Recently, she got out of her

car seat in the 2 mile drive home. I had to pull over twice to buckle her back

in. She started a tanrum while we were out, so I had to carry her to the car and

forcibly put her in the car seat. That's why she escaped from her seat, she

didn't put herself in there so she was enraged.

> >

> > When I open the car door for her to get out, she has to knock on the window

5 times before I can open the door. We are potty training and she picked it up

sooner than her twin, but there are MANY routines she has to do. Noting

involving cleaning like I've read earlier. We have to be in the bathroom with

her, she makes us pretend to " sleep " , she'll whisper things while we " sleep "

(like breakfast bar and fruit snack - her fav snacks). She has to follow me

around the house and walk in front. If I do get to go into another room without

her, she'll scream and come running " I find you! Go Back! "

> >

> > She has to do everything by herself, but then can't, won't ask for help and

then melts down. I have no place to confine her when she rages as she climbs

over things. When my husband is home she prefers me to do anything for her,

refusing my husband's help.

> >

> > My husband and I have been seeing a therapist who does work with children

with OCD, but not this young. We go and talk and vent with her. She brought up

possible OCD as did the pedi neurololgist.

> >

> > Socially, she is " normal " . We are in a twin's playgroup that meets once a

week and my twins are one of the better behaved twins. Others have told me this,

not just my opinion. OF the two, she prefers to play alone most of the time

during the playgroups. She just turned 3 three months ago.

> >

> > Her rages are awful to deal with and last a LONG time. I have her twin

sister in addition to a one year old daughter as well. I feel like they are

neglected at times while I have to deal with her.

> >

> > Any similar stories? Does this sound like OCD? I want to help her before

school starts. I am a teacher myself (part time) and know how school can be for

some kids.

> >

> > Oh, one more thing. What do you do when your child refuses to get dressed?

Any tips?

> >

>

>