Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Hi My name is Sharrie, I was just Dx with RA along with several other medical problems all of which I was told about over this past long summer. I'm 43 newly married (2nd time)and have to girls aes 17 and 19. We all just moved to Florida (my life dream) a year ago this month. Since April I have been sick with one thing after another starting with Mono, then major female problems that I must address(I had no idea I even had any problems), than herniated discs neck and low back and while being treated for all these compounding problems and trying to find why I have been sooo tired and in sooo much pain in my hips, feet, hands a lab tech mentioned I should check for RA after watching my RHeum factor go up very quick everytime I went to the Dr and so I went to a specialist and now this is the latest to add to my list. Needless to say I have been very depressed and could use some support. Thanx for listening(reading) my sob story!!! We all have one but sometimes it helps to share them Sharrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Welcome Sharrie. Congratulations on your recent marriage. I hope you have many years of happiness. I just moved to Florida 1 1/2 years ago after dreaming of it for many years also. I hope you weren't in the path of any of the hurricanes. I'm in Naples and have been lucky. Did your joint pain start after the mono? a On Oct 4, 2005, at 2:31 PM, sharriedsb7 wrote: > Hi > > My name is Sharrie, I was just Dx with RA along with several other > medical problems all of which I was told about over this past long > summer. I'm 43 newly married (2nd time)and have to girls aes 17 and > 19. We all just moved to Florida (my life dream) a year ago this > month. Since April I have been sick with one thing after another > starting with Mono, then major female problems that I must address(I > had no idea I even had any problems), than herniated discs neck and > low back and while being treated for all these compounding problems > and trying to find why I have been sooo tired and in sooo much pain > in my hips, feet, hands a lab tech mentioned I should check for RA > after watching my RHeum factor go up very quick everytime I went to > the Dr and so I went to a specialist and now this is the latest to > add to my list. Needless to say I have been very depressed and could > use some support. > Thanx for listening(reading) my sob story!!! > We all have one but sometimes it helps to share them > > Sharrie > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Welcome to the group, Sharrie! Sorry to hear that you've had such a rough time. Mononucleosis can cause a rheumatoid factor (RF) test to be positive. I'm assuming you saw a rheumatologist and that he or she based the diagnosis on more than the positive RF. Hope you will be feeling much better very soon. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Looking for support > Hi > > My name is Sharrie, I was just Dx with RA along with several other > medical problems all of which I was told about over this past long > summer. I'm 43 newly married (2nd time)and have to girls aes 17 and > 19. We all just moved to Florida (my life dream) a year ago this > month. Since April I have been sick with one thing after another > starting with Mono, then major female problems that I must address(I > had no idea I even had any problems), than herniated discs neck and > low back and while being treated for all these compounding problems > and trying to find why I have been sooo tired and in sooo much pain > in my hips, feet, hands a lab tech mentioned I should check for RA > after watching my RHeum factor go up very quick everytime I went to > the Dr and so I went to a specialist and now this is the latest to > add to my list. Needless to say I have been very depressed and could > use some support. > Thanx for listening(reading) my sob story!!! > We all have one but sometimes it helps to share them > > Sharrie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Welcome Sharrie!! My name is and I joined this group about a month ago and it has been a life-changing source of support and comfort. The people in this group have all gone through things similar to us, and perhaps because of their suffering, they have developed so much compassion and common sense. I hope you find as much support as I have. You are not alone. Blessings to you! sharriedsb7 <sharriedsb7@...> wrote:Hi My name is Sharrie, I was just Dx with RA along with several other medical problems all of which I was told about over this past long summer. I'm 43 newly married (2nd time)and have to girls aes 17 and 19. We all just moved to Florida (my life dream) a year ago this month. Since April I have been sick with one thing after another starting with Mono, then major female problems that I must address(I had no idea I even had any problems), than herniated discs neck and low back and while being treated for all these compounding problems and trying to find why I have been sooo tired and in sooo much pain in my hips, feet, hands a lab tech mentioned I should check for RA after watching my RHeum factor go up very quick everytime I went to the Dr and so I went to a specialist and now this is the latest to add to my list. Needless to say I have been very depressed and could use some support. Thanx for listening(reading) my sob story!!! We all have one but sometimes it helps to share them Sharrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 I hate to hear all that you are going thru.. I hope they can give you some help soon if you do have fibro. I know there are many meds you can try. I also know it is hard being a parent with a chronic disease let alone being a single parent. Hang in there. We are all hear to lend an ear and a shoulder. Joy bp101_brat <bp101_brat@...> wrote: I was diagnosed with seronegative RA in April 2006. I was sulfasalazine and plaquenil. I saw my Rheumy on Jan 2 nd and now she is questioning Lupus; which my FMD has thought all along. I have seven of the eleven criteria for the diease. I am so frustrated and in sooo much pain. It seems that sometimes the doctors poo poo the symptoms as not being as bad as they are. Since my dx in 4/06 I was also diagnosed with eplilepsey after a car accident. So now it has affected my heart lung and CNS....and still wont give the diagnosis offically as RA/Lupus. Please understand that I dont want Lupus; but I need answers and I am soo tired of the pain and discomfort I live everyday. I am a single mommy of two little girls; 4 & 6 yrs old. So I have to be able to get out of bed in teh morning. If anyone has any ideas to help this really frustrated single mommy please let me know. Lots of Thanks, Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hi : You have come to the right place for support and information. I have been with this group for four or five years now, and have learned so much more here than I ever could have on my own, or even through my doctors. I understand your urgency for a diagnosis, a name of the monster that is causing you so much pain so that you can fight it better. It sometimes takes a while to differentiate all of the immune system diseases as they can share symptoms, and even blood tests are not 100% effective in diagnosis at times. Your physical symptoms are where the doctors should be focusing - not everything is found in tests - your body is speaking for you, and you know yourself better than anybody. Until you get the diagnosis, you can always try the old hot showers/baths way of helping your pain, also rice socks are great on the joints, but at times ice is helpful to me as well. You just have to find out through trail and error. Does your doctor have you on any medication? You might want to see if he will try you on a steroid for a short while to see if this gives you some pain relief. You don't want to take it for long, but they can be great on the inflammation and pain. Please let us know what happens with you - we have all been where you are now and it's no fun, scary, and very overwhelming. We are here for you - you are no longer alone, okay? Kathe in CA " Until he extends the circle of his compassion to all living things, man will not himself find peace. " — Albert Schweitzer, French Nobel Peace Prize-winning mission doctor and theologian (1875-1965) ________________________________________________________________________________\ ____ Looking for earth-friendly autos? Browse Top Cars by " Green Rating " at Autos' Green Center. http://autos./green_center/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 > who doesn't understand what you are > going through just because " you don't look sick>>>>> > My own family doc said that when my rheumy diagnosed me (that he sent me to) and I told him! Why did he say that? Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 I totally understand your pain and the frustration at the limitations that RA can cause us. I live in the Chicago area and we are known for the bitter cold and snow/ice. It seems to have been even worse on me since my surgery on 12/6. I have started stretching my feet and legs while still in bed before stepping on the floor. I have found this to help a bit, especially since during my sleep my feet and legs become very stiff. I also have found that it is almost unbearable to start my day on my bad days but I am learning to press through the pain and keep moving. By mid-morning my joints seems to be less painful and I am able to move with less pain. I go back to work on Tuesday and I am concerned that my injured foot and RA will make my days tough. I know that the day will not be the worst part, it seems that when I get home from work and off my feet that the pain comes crashing down on me. I am listening to my body and getting great ideas and support here. Any ideas of how I can ease my body from crashing after I finish my work day? Lastly one of the greatest stress reliefs for me has been working on crafts. This crafting has been a blessing in keeping my fingers and hands limber. I highly encourage crafts as a stress buster and as a way to ease the RA. Take care all of you and thanks for all your support! Patti (Chicago) " Taking it one day at a time! " --- bp101_brat <bp101_brat@...> wrote: > I was diagnosed with seronegative RA in April 2006. > I was sulfasalazine > and plaquenil. I saw my Rheumy on Jan 2 nd and now > she is questioning > Lupus; which my FMD has thought all along. I have > seven of the eleven > criteria for the diease. I am so frustrated and in > sooo much pain. It > seems that sometimes the doctors poo poo the > symptoms as not being as > bad as they are. Since my dx in 4/06 I was also > diagnosed with > eplilepsey after a car accident. So now it has > affected my heart lung > and CNS....and still wont give the diagnosis > offically as RA/Lupus. > Please understand that I dont want Lupus; but I need > answers and I am > soo tired of the pain and discomfort I live > everyday. I am a single > mommy of two little girls; 4 & 6 yrs old. So I have to > be able to get out > of bed in teh morning. If anyone has any ideas to > help this really > frustrated single mommy please let me know. > Lots of Thanks, > > > ________________________________________________________________________________\ ____ Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Games. http://videogames./platform?platform=120121 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 -Kathe~ Thank you for words of kindness and support. You are right it is like a monster killing me slowly somedays; if not physically then mentally. It is so hard to get up and face the day and be happy and cheerful for my beautiful little girls. As I said I am a single mommy and to be completely honest they are the shining light at the end of my tunnel. I am very afraid for their futures; I know what I feel everyday and hope with all my heart they never have to feel even a minute of the pain I do everyday of my life. I am on Plaquenil for my RA and prednisone. I am down to 10 mg; but was as high as 80mg daily. I called the doctor today asking for some pain relief; and they increased my steriods. I will never get off them at this point!! I do very warm baths alot. I can only hope that things will get better. I am walking in May 5K to raise money for Arthritis Foundation. I dont care if I cry the whole walk; I am finishing the whole walk/run. I am also part of the Joints in Motion group; training with a trainer for a marathon......which I will end up walking. I was a long distance runner for years; but I will finish this race!!! I just hope they can figure out what is going on with me and help me feel better real soon!!! Thank you again for all your words of support and kindness! -- In , Kathe Sabetzadeh <lv2ryd@...> wrote: > > Hi : > > You have come to the right place for support and > information. I have been with this group for four or > five years now, and have learned so much more here > than I ever could have on my own, or even through my > doctors. > > I understand your urgency for a diagnosis, a name of > the monster that is causing you so much pain so that > you can fight it better. It sometimes takes a while > to differentiate all of the immune system diseases as > they can share symptoms, and even blood tests are not > 100% effective in diagnosis at times. Your physical > symptoms are where the doctors should be focusing - > not everything is found in tests - your body is > speaking for you, and you know yourself better than > anybody. > > Until you get the diagnosis, you can always try the > old hot showers/baths way of helping your pain, also > rice socks are great on the joints, but at times ice > is helpful to me as well. You just have to find out > through trail and error. Does your doctor have you on > any medication? You might want to see if he will try > you on a steroid for a short while to see if this > gives you some pain relief. You don't want to take it > for long, but they can be great on the inflammation > and pain. > > Please let us know what happens with you - we have all > been where you are now and it's no fun, scary, and > very overwhelming. We are here for you - you are no > longer alone, okay? > Kathe in CA > > > > > > > > > > " Until he extends the circle of his compassion to all living things, man will not himself find peace. " > — Albert Schweitzer, French Nobel Peace Prize-winning mission doctor and theologian (1875-1965) > > > > > ______________________________________________________________________ ______________ > Looking for earth-friendly autos? > Browse Top Cars by " Green Rating " at Autos' Green Center. > http://autos./green_center/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Thanks . I too felt 100% better on the Pred. but finally I was able to wean off of it. There are days like today when I miss it, but I am praying that tommorrow will be a better day, aren't we all?, lol. I had surgery to repair tarsal tunnel. Its similar to carpal tunnel, but much rarer, its found in a lot of RA females 40+. Stay warm and take care. Patti (Chicago) " Taking it one day at a time! " --- bp101_brat <bp101_brat@...> wrote: > > Patti~ > Thank you for your reply. What kind of surgery did > you have??? Im > sorry that it seems to have gotten worse since your > surgery. I live > in Central PA; and we too are known for the cold. > Although till this > week it has been in the 50's. So now we hit 20 and > my joints are > really bad. My doctor increased the ever popular > prednisone. I will > never get off of it; but when my dose is high I feel > better. Take > care of you and I hope all goes well with going back > to work. > > > > > > > > > > > > > > > > I was diagnosed with seronegative RA in April > 2006. > > > I was sulfasalazine > > > and plaquenil. I saw my Rheumy on Jan 2 nd and > now > > > she is questioning > > > Lupus; which my FMD has thought all along. I > have > > > seven of the eleven > > > criteria for the diease. I am so frustrated and > in > > > sooo much pain. It > > > seems that sometimes the doctors poo poo the > > > symptoms as not being as > > > bad as they are. Since my dx in 4/06 I was also > > > diagnosed with > > > eplilepsey after a car accident. So now it has > > > affected my heart lung > > > and CNS....and still wont give the diagnosis > > > offically as RA/Lupus. > > > Please understand that I dont want Lupus; but I > need > > > answers and I am > > > soo tired of the pain and discomfort I live > > > everyday. I am a single > > > mommy of two little girls; 4 & 6 yrs old. So I > have to > > > be able to get out > > > of bed in teh morning. If anyone has any ideas > to > > > help this really > > > frustrated single mommy please let me know. > > > Lots of Thanks, > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ > ______________ > > Be a PS3 game guru. > > Get your game face on with the latest PS3 news and > previews at > Games. > > > http://videogames./platform?platform=120121 > > > > > ________________________________________________________________________________\ ____ We won't tell. Get more on shows you hate to love (and love to hate): TV's Guilty Pleasures list. http://tv./collections/265 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 , Welcome to the family!! You will find all the support you need here. If you are having a bad day and need to vent, then go right ahead and vent to us. We are all here for each other. It can be difficult talking to someone who doesn't know anything about the disease or talking to someone who doesn't understand what you are going through just because " you don't look sick " . I've heard that so many times that I started to think that I was a hypochondriac!!! Then having to take care of two children on your own!! Geesh, girl!!! They are at a great age. But, make sure that you take some time for YOU!! You can't keep going without making a little time for yourself. We are here for you. Don't be afraid to ask questions. There are NO stupid questions, so please, don't hold it all in. It will just eat at you and make your symptoms worse. So, please ask anything that comes to mind, ok?!? Take care. I look forward to hearing from you......Hugs and Prayers, marina --- In , " bp101_brat " <bp101_brat@...> wrote: > > I was diagnosed with seronegative RA in April 2006. I was sulfasalazine > and plaquenil. I saw my Rheumy on Jan 2 nd and now she is questioning > Lupus; which my FMD has thought all along. I have seven of the eleven > criteria for the diease. I am so frustrated and in sooo much pain. It > seems that sometimes the doctors poo poo the symptoms as not being as > bad as they are. Since my dx in 4/06 I was also diagnosed with > eplilepsey after a car accident. So now it has affected my heart lung > and CNS....and still wont give the diagnosis offically as RA/Lupus. > Please understand that I dont want Lupus; but I need answers and I am > soo tired of the pain and discomfort I live everyday. I am a single > mommy of two little girls; 4 & 6 yrs old. So I have to be able to get out > of bed in teh morning. If anyone has any ideas to help this really > frustrated single mommy please let me know. > Lots of Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 great chatting with you today online melissa! hope we can hook up again. Faith --- In , " bp101_brat " <bp101_brat@...> wrote: > > I was diagnosed with seronegative RA in April 2006. I was sulfasalazine > and plaquenil. I saw my Rheumy on Jan 2 nd and now she is questioning > Lupus; which my FMD has thought all along. I have seven of the eleven > criteria for the diease. I am so frustrated and in sooo much pain. It > seems that sometimes the doctors poo poo the symptoms as not being as > bad as they are. Since my dx in 4/06 I was also diagnosed with > eplilepsey after a car accident. So now it has affected my heart lung > and CNS....and still wont give the diagnosis offically as RA/Lupus. > Please understand that I dont want Lupus; but I need answers and I am > soo tired of the pain and discomfort I live everyday. I am a single > mommy of two little girls; 4 & 6 yrs old. So I have to be able to get out > of bed in teh morning. If anyone has any ideas to help this really > frustrated single mommy please let me know. > Lots of Thanks, > > Quote Link to comment Share on other sites More sharing options...
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