Re: Need advice

[Guest guest]

,

Are you on Social Security Disability? If you are you can work and make a

certain amount of money per month without losing your benefits, but if you

go over you can lose them and even though they will tell you it is really

easy to get back on disability if you need to, I have been told by many here

that it can take years. I personally think in your condition you are better

off not working and using your energy to focus on taking care of you and

your son. With this disease we have so little energy and I know you love

your job, but what do you have left for you and your son after working all

day. Nursing is not an easy job by any means and can be very physical as

well.

I know also in this economy many employers will just not put up with too

many absences. I was laid off due to my health issues and the Judge

basically said no one would employ me with my health issues.

You can call you local SS office to find out how much you can make. I think

they told me it was around 700 a month or so. Good luck to you.

Lynn

-- need advice

hello everyone! i hope everyone had a good Thanksgiving.i need some advice

from the group since ya'll know alot about this and really understand. i don

t post alot but i really enjoy reading all of them. i don't know what i'd do

without you. well i have had still's disease for 3 yrs. now and my first 2

yrs. was very bad i was out of work like many of you so i filed for

disabilty. to make a long story short after all the fight i was just granted

the disability. i am now back to work. i struggle very hard everyday to make

it to work and stay at work. i just recently had surgery for the 3rd time in

less than a year on my wrist and the dr said i'll continue to have surgery

because the arthritis is so bad that it will continue to produce the fluid

causing painful cyst that grow like tumors (very big very fast). i still

have fevers very often, always tired and the story goes on as you all know.

i constantly have to take off of work to go to my dr appts. and then have to

make up work

time. it is a constant struggle with work, my illness and taking care of

my 3 yr old son. well enough of all that. my question is what would you all

do? if i continue to work i lose the disability which as we all know if i'm

okay today i could end up in the hospital tomorrow. or does anyone know if

you can

work at all with disability. i hate to turn it down and then have to take

a leave of abscence from work without pay. i am a registered nurse and i

work in a nursing home doing case management. i would not want to lose

everything i went to school

for. i love my job but i'm so confused right now and i just wonder how

long can i keep struggling to make it. please give me some input. thank you

monique

---------------------------------

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[Guest guest]

Hi Dani and ,

I'm a nurse too! Strange isnt it? I'm " still " working, but have a lot of

pain. Due to my own fault by the way. I weaned myself off all of my meds. I

know I'm paying the price, but I have plans to restart seeing a rheumy again

soon.......I know shame on me.......

I work in critical care pediatrics and I cant give it up. I'm the sole

support for myself and my son (who's in college) and I know that I still have a

lot

of great nursing years left inside of me.

I wonder if it's something that we've all been exposed to in our

careers..........I know about the mycoplasmic connection and I did catch that

bug about 10

months prior to my dx in 2001..........something to think about..........

Well, I'm off to work (nights, 7p-7a) Good luck to you both..........

Beth G

in Houston

[Guest guest]

Dear ,

Hi my name is Danni and I am also a RN. I have been a nurse since I was 17. I

am 34 now. I am also having a rough time. I was diagnosed in May 2005. I have

been hospitalized several times since then and I have large tumors in my right

wrist too. I also walk with a cane since 8/05 and have a difficult time getting

around. I have alot of pain and swelling of several joints and run high fevers.

I have a hard time breathing at times. But, enough about me.

I just wanted you to know what I was going through so that I can tell you

that I understand you not wanting to give up being a nurse. I love being a nurse

but i also understand that if I am not feeling good than I am not taking care of

my patients to the best of my ability. A applied for disability in 9/05 and have

not heard anything yet. I am struggling. I can tell you that in some states you

can work part time and still receive disability. If you have a lawyer ask him

the rules of your state. I feel the pain in you in regards to not wanting to

give up nursing. I just want you to feel better and not feel you are somehow

letting people down by taking off time so that you can feel better. If you ever

need someone to vent please call me at . I can also tell you that

the Still's group and the wonderful , caring people associated with it helped me

to see that I am still a nurse even if I am not right now ,and they helped me,

beyond what I can express in words, to realize my health has to come first.

Danni

need advice

hello everyone! i hope everyone had a good Thanksgiving.i need some advice

from the group since ya'll know alot about this and really understand. i don't

post alot but i really enjoy reading all of them. i breathing at don't know what

i'd do

without you. well i have had still's disease for 3 yrs. now and my first 2 yrs.

was very bad i was out of work like many of you so i filed for disabilty. to

make a long story short after all the fight i was just granted the disability. i

am now back to work. i struggle very hard everyday to make it to work and stay

at work. i just recently had surgery for the 3rd time in less than a year on my

wrist and the dr said i'll continue to have surgery because the arthritis is so

bad that it will continue to produce the fluid causing painful cyst that grow

like tumors (very big very fast). i still have fevers very often, always tired

and the story goes on as you all know. i constantly have to take off of work to

go to my dr appts. and then have to make up work

time. it is a constant struggle with work, my illness and taking care of my 3

yr old son. well enough of all that. my question is what would you all do? if i

continue to work i lose the disability which as we all know if i'm okay today i

could end up in the hospital tomorrow. or does anyone know if you can

work at all with disability. i hate to turn it down and then have to take a

leave of abscence from work without pay. i am a registered nurse and i work in a

nursing home doing case management. i would not want to lose everything i went

to school

for. i love my job but i'm so confused right now and i just wonder how long

can i keep struggling to make it. please give me some input. thank you , monique

---------------------------------

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[Guest guest]

I just read your message. I am new to the group, and it seems like all of you I

am searching for a cause, not just a cure. I have very much thought about this

disease being brought on by something that we have been exposed to. I am an

archaeologist, and with my career I have traveled extensively and have worked in

some really awful conditions. I have been concerned also because of some of the

work that I have done involves excavations of burials. I believe that a lot of

bacteria is still in the soil, and archaeologists are always working unprotected

with what you touch and breathe in. I also have been diagnosed with mycoplasma 2

years ago and have been on antibiotics ever since and have been told I will most

likely have to take it for life. I have tried being off of it, but my health

pays dearly. I am sending you my best wishes and prayers. Mandy

Tenderheart2308@... wrote: Hi Dani and ,

I'm a nurse too! Strange isnt it? I'm " still " working, but have a lot of

pain. Due to my own fault by the way. I weaned myself off all of my meds. I

know I'm paying the price, but I have plans to restart seeing a rheumy again

soon.......I know shame on me.......

I work in critical care pediatrics and I cant give it up. I'm the sole

support for myself and my son (who's in college) and I know that I still have a

lot

of great nursing years left inside of me.

I wonder if it's something that we've all been exposed to in our

careers..........I know about the mycoplasmic connection and I did catch that

bug about 10

months prior to my dx in 2001..........something to think about..........

Well, I'm off to work (nights, 7p-7a) Good luck to you both..........

Beth G

in Houston

[Guest guest]

Hi ,

Most likely, you make too much money as a RN to work and collect disability.

Stress has a tremendous impact on our disease. I was working as a RN when

Stills Disease finally disabled me for good. As you know, Social Security makes

you jump through a lot of hoops with their paperwork. When I was filing, it

reduced me to tears many times. I wouldn't want to do it again. Your employer

should have disability insurance, too. You are entitled to collect Social

Security and disability from your employer's company. I do. Social Security

will need to know what you collect from your employer's disability insurance.

Ask your Rheumatologist and PCP what they recommend. From what you have

written, it sounds like it would be best to stay on disability. The Human

Resources Department of the hospital where you work should be able to help you

file for Long Term Disability. Best of luck to you. Keep us informed and ask

more questions if necessary.

In Peace,

Barbara

Ventura, CA

[Guest guest]

Well while we're counting - I'm a nurse as well. Or was. I stopped

working when I had my 3 children and thought about going back just

before I got ill. Now I'm not too employable, I suspect. Ah well. I'd

love to go back to A & E or anesthetics, which were two areas I

really enjoyed. I have huge admiration for anyone who is still able

to work with all the health problems Stills brings.

Love to all.

C2(UK)

> Hi Dani and ,

>

> I'm a nurse too! Strange isnt it? I'm " still " working, but have a

> lot of

> pain. Due to my own fault by the way. I weaned myself off all of

> my meds. I

> know I'm paying the price, but I have plans to restart seeing a

> rheumy again

> soon.......I know shame on me.......

>

> I work in critical care pediatrics and I cant give it up. I'm the

> sole

> support for myself and my son (who's in college) and I know that I

> still have a lot

> of great nursing years left inside of me.

>

> I wonder if it's something that we've all been exposed to in our

> careers..........I know about the mycoplasmic connection and I did

> catch that bug about 10

> months prior to my dx in 2001..........something to think

> about..........

>

>

> Well, I'm off to work (nights, 7p-7a) Good luck to you

> both..........

>

> Beth G

> in Houston

>

>

>

[Guest guest]

To all

Work if you can but also know when to stop for your self and your family's

I know some are the family sole support .I also know that with disability it

is not much and not easy to make ends meet . (Been there doing that ) a few

words to all on this one file and then apeal on your own . Always fallow up

any thing you file if you hear nothing in 90 days but I would before that

like every 30 days if tuned down once you can do it again alone but I would

get a lawyer and no way would I not have one if tuned down two times .the

cost of a lawyer are set by ssi . Two get concealing for your self and your

family members as this will change your life in many ways and after a time

not all will seam so bad . I have been dignosed from 9/2001 then devorced in

2002 over it as I was no longer a paycheck to the ex ( My ex wife did that

to me ) do not self medicate ( I am guilty as sin on this one ) learn to

live life again but this time take the time to smell the flowers look at the

clouds take time out for the small things that when were working and rushing

threw life we miss this is a gift if you Take it this still thing has given

you. Time to enjoy the small thing. At lest for my self I now know I rushed

threw them before and have been given a second chance to enjoy what really

matters in life .I can tell you it is not your job .not what you have . What

you can do. Just take care of your self and then you can be good for your

family's and the world at large . This is how my life changed . Full time

worker I was my job my identity was my work now I am a man with time to see

and enjoy things that I passed by before .yes I do get depressed after all I

was raised that a man was to support his family and now I can not even

support my self but I have time to enjoy and set back and sort out what is

imported to me . This is what I found my faith and God , my kids and my

feunceee my family . I would love to work again but on most days I am okay

with things now has not been easy getting here but the trip has become worth

it . But if we do not take care of our self's then what good are we to our

kids or family's . Right

Have a good day all and look for the sunrises in your life

hugs all and lets kick some dragon butt okay!

Marty

[Guest guest]

Yay Marty!!!! You are so right, we are not our jobs!!! I was so caught up

in that, that I did not really know who I was at all.

Also, for those of you on a super tight budget, check out these websites.

www.lowermybills.com- you can find the lowest rates on insurance, phone,

cable etc here.

www.mybargainbuddy.com-subscribe to the newsletter and get the best info on

how to save money every day, super site!!

Email me privately if you want other tips on saving money and making what

you have stretch further. I went from living on apx. 43.000 a year when I

was working to nothing for 3 years and now I average apx. 12,000 on SS. I

am doing better with my money now than when I worked.

Lynn

-- Re: need advice

To all

Work if you can but also know when to stop for your self and your family's

I know some are the family sole support .I also know that with disability it

is not much and not easy to make ends meet . (Been there doing that ) a few

words to all on this one file and then apeal on your own . Always fallow up

any thing you file if you hear nothing in 90 days but I would before that

like every 30 days if tuned down once you can do it again alone but I would

get a lawyer and no way would I not have one if tuned down two times .the

cost of a lawyer are set by ssi . Two get concealing for your self and your

family members as this will change your life in many ways and after a time

not all will seam so bad . I have been dignosed from 9/2001 then devorced in

2002 over it as I was no longer a paycheck to the ex ( My ex wife did that

to me ) do not self medicate ( I am guilty as sin on this one ) learn to

live life again but this time take the time to smell the flowers look at the

clouds take time out for the small things that when were working and rushing

threw life we miss this is a gift if you Take it this still thing has given

you. Time to enjoy the small thing. At lest for my self I now know I rushed

threw them before and have been given a second chance to enjoy what really

matters in life .I can tell you it is not your job .not what you have . What

you can do. Just take care of your self and then you can be good for your

family's and the world at large . This is how my life changed . Full time

worker I was my job my identity was my work now I am a man with time to see

and enjoy things that I passed by before .yes I do get depressed after all I

was raised that a man was to support his family and now I can not even

support my self but I have time to enjoy and set back and sort out what is

imported to me . This is what I found my faith and God , my kids and my

feunceee my family . I would love to work again but on most days I am okay

with things now has not been easy getting here but the trip has become worth

it . But if we do not take care of our self's then what good are we to our

kids or family's . Right

Have a good day all and look for the sunrises in your life

hugs all and lets kick some dragon butt okay!

Marty

[Guest guest]

Lynn:

thanks for the web sights. I will look into them as saving money has always

been something I enjoy LOL . Ya I know what you mean I went from living on

75 k a year with the wife to 40 k when I became ill to nothing also for

three years . My mom gave me $250.00 a month to live on that had to cover my

cell phone bill (only contact I had with my lawyer and kids in Idaho as I

was in calif at the time ) my auto insurance and to feed my self all month .

The hardest part was feeding my self as I was living no were and every thing

had to be eaten out let me tell you I know were to get a hot dog . Chips

and a drink for dinner at less then 2 bucks a shot LOL. Still even like hot

dogs to LOL. To now living on about 14,000.00 a year not easy but can be

done . I also now enjoy life more then ever Sept when I was spending time

with my kids some thing the ex never lets me do now and both live over 700

miles away so travail money is not there just money to live month to month (

or as most know it check to check ) I know I would love to go back to work

but what scars me is how long could I work? Just past the 5 year point so I

have to go threw every thing again to get ssdi? That is why I do not besides

I can not find any thing that will let me set my hours as I need them call

in when ever I need to ect . So tell I find my own business that I can work

any hour I want or day I will have to be happy on ssdi . But at lest I get

in to the national parks for free and the state ones at a very low cost .

But I now get to smell the flowers as I have slowed down like it or not but

now I also know what is inported to me in life not how do I keep up with the

or a I got to have this or that life . The bigger better home car ect

Take care all

hugs all and lets kick some dragon butt okay!

Marty

-- Re: need advice

Yay Marty!!!! You are so right, we are not our jobs!!! I was so caught up

in that, that I did not really know who I was at all.

[Guest guest]

Beth,

I can tell by the e-mail that you enjoy Nursing. I know I really enjoy it

too. I was working until 8/05. As far as you being the sole income, I can

relate. My Dad and my oldest brother (who has parkinsons) live with me. My dad

takes care of my brother and since they live with me I feel I should pay

everything. I think nurses are the most stobburn people you will ever meet. WE

all love to help others but never ourselves. I sometimes try to find a reason

that I was sticken with stills. I feel like this disease has taken alot from me.

I loved going to work and I was the clown of the medical department. I just hope

Beth, that you will not let yourself suffer like I did. I put off being treated

til I was so sick I needed to be hospitalized. If there is ever a time you need

someone to vent to about nursing e-mail me at blondedolphin172@.... I can

also tell you that all the nurses in the stills group have helped me enormously.

Please take there advice... They know more than anyone about how we feel.

Danni

Re: need advice

Well while we're counting - I'm a nurse as well. Or was. I stopped

working when I had my 3 children and thought about going back just

before I got ill. Now I'm not too employable, I suspect. Ah well. I'd

love to go back to A & E or anesthetics, which were two areas I

really enjoyed. I have huge admiration for anyone who is still able

to work with all the health problems Stills brings.

Love to all.

C2(UK)

> Hi Dani and ,

>

> I'm a nurse too! Strange isnt it? I'm " still " working, but have a

> lot of

> pain. Due to my own fault by the way. I weaned myself off all of

> my meds. I

> know I'm paying the price, but I have plans to restart seeing a

> rheumy again

> soon.......I know shame on me.......

>

> I work in critical care pediatrics and I cant give it up. I'm the

> sole

> support for myself and my son (who's in college) and I know that I

> still have a lot

> of great nursing years left inside of me.

>

> I wonder if it's something that we've all been exposed to in our

> careers..........I know about the mycoplasmic connection and I did

> catch that bug about 10

> months prior to my dx in 2001..........something to think

> about..........

>

>

> Well, I'm off to work (nights, 7p-7a) Good luck to you

> both..........

>

> Beth G

> in Houston

>

>

>

[Guest guest]

Hi Marty,

I think your e-mail touches home. We are not our jobs. I think some people

identify themself with a specific job. I know I am guilty. I love being a nurse.

I also have to try and find away of understanding that right now i am not able

to be working. I just applied for SSI. I think I have sent them everything

except blood and I think the next batch of papers will ask for it .... It is

difficult when all of us are used to higher incomes. I think for me , since not

being able to work, I am thankful for family and friends. I am so glad I have

the group. Sometimes we do not always take the time to look around and enjoy

life. Thanks for making me stop for a moment and look around.

Danni

Re: need advice

To all

Work if you can but also know when to stop for your self and your family's

I know some are the family sole support .I also know that with disability it

is not much and not easy to make ends meet . (Been there doing that ) a few

words to all on this one file and then apeal on your own . Always fallow up

any thing you file if you hear nothing in 90 days but I would before that

like every 30 days if tuned down once you can do it again alone but I would

get a lawyer and no way would I not have one if tuned down two times .the

cost of a lawyer are set by ssi . Two get concealing for your self and your

family members as this will change your life in many ways and after a time

not all will seam so bad . I have been dignosed from 9/2001 then devorced in

2002 over it as I was no longer a paycheck to the ex ( My ex wife did that

to me ) do not self medicate ( I am guilty as sin on this one ) learn to

live life again but this time take the time to smell the flowers look at the

clouds take time out for the small things that when were working and rushing

threw life we miss this is a gift if you Take it this still thing has given

you. Time to enjoy the small thing. At lest for my self I now know I rushed

threw them before and have been given a second chance to enjoy what really

matters in life .I can tell you it is not your job .not what you have . What

you can do. Just take care of your self and then you can be good for your

family's and the world at large . This is how my life changed . Full time

worker I was my job my identity was my work now I am a man with time to see

and enjoy things that I passed by before .yes I do get depressed after all I

was raised that a man was to support his family and now I can not even

support my self but I have time to enjoy and set back and sort out what is

imported to me . This is what I found my faith and God , my kids and my

feunceee my family . I would love to work again but on most days I am okay

with things now has not been easy getting here but the trip has become worth

it . But if we do not take care of our self's then what good are we to our

kids or family's . Right

Have a good day all and look for the sunrises in your life

hugs all and lets kick some dragon butt okay!

Marty

[Guest guest]

Dani.

Thanks so much for your kind words..........I'm very lucky to have a great

employer and fellow employees that pitch in and help me.........You're so right

about nurses being so stubborn tho..........I work my butt off for those 12

hours, then I come home and collapse........I'm tired of being tired.....On

another note. My son is going to school in Texas, he wants to be a prof.

football player (who am I to tell him he cant?) I asked him what his

charity of choice would be when he " makes it big " He said it would be the

Still's

Foundation. He said it breaks his heart that he's not here enough to help

me anymore.........Am I lucky or what?

beth g

Houston

[Guest guest]

Hi again Danni.

Marty's email does hit home..........We are not our jobs. I guess I'm just

lucky that I have found my calling, and I truly believe it's a calling for

me. Out of High School I went to a local college and thought that I was going

to change the world with a psychology degree. I got bored, worked for

Deere in Moline Illinois, did some modeling.........Joined the Marines in

1981, did 4 years. Moved on to computer work in Baltimore after my son was

born.

Then I went to nursing school when I was 31...........My work is such a

welcome distraction for me..We all have such a great purpose in this group and

it doesn't matter if we're employed or not...taking care of ourselves and

being here for each other is what counts.............

Beth.

[Guest guest]

Beth,

I agree that we all have a purpose. I love helping others and I think my

frustration comes from not being able to do it now. I have such a control issue

and I am not able to control stills. I think being in this group is very

important. I would not be able to fight without everyone's help and

encouragement.

Danni

Re: need advice

Hi again Danni.

Marty's email does hit home..........We are not our jobs. I guess I'm just

lucky that I have found my calling, and I truly believe it's a calling for

me. Out of High School I went to a local college and thought that I was going

to change the world with a psychology degree. I got bored, worked for

Deere in Moline Illinois, did some modeling.........Joined the Marines in

1981, did 4 years. Moved on to computer work in Baltimore after my son was

born.

Then I went to nursing school when I was 31...........My work is such a

welcome distraction for me..We all have such a great purpose in this group and

it doesn't matter if we're employed or not...taking care of ourselves and

being here for each other is what counts.............

Beth.

[Guest guest]

I miss going to work as a nurse too. It has been ..lets see...June of 1993

that I last worked. My little one is in Kindergarten now but I can't count on

my health. Just recently I slept 14 hours a day and fell asleep on my bed

with my coat and boots on. Not too impressive...not resume material...then

there are good days...I am also so so so grateful for this group. Hoping you

all

have a good day today Love Liz

[Guest guest]

Beth,

You are very lucky to have a son who loves you. I hope he does make his

dreams come true. I will keep that in my prayers. I know what you mean about

running for 12 hours and then by the time you leave your house to go to work and

back your day became a 14 hour day. I have to tell you that I admire you

continuing to work. I hope that you remember to take the time to care for you so

that you can continue to help others. I know your son wants you to be careful

and take care of you so that you are not in pain. With me I see how this disease

affects my fiance But I can not imagine what your son feels. Take care of

yourself. When I first started in the group I was working alot and had to be

hospitalized. The members in the still's group really helped to realize I had to

take care of myself. I have a very hard time with that. I thank God everyday for

the friends I have in the group. They have been my lifesavers.

Love,

Danni

Re: need advice

Dani.

Thanks so much for your kind words..........I'm very lucky to have a great

employer and fellow employees that pitch in and help me.........You're so right

about nurses being so stubborn tho..........I work my butt off for those 12

hours, then I come home and collapse........I'm tired of being tired.....On

another note. My son is going to school in Texas, he wants to be a prof.

football player (who am I to tell him he cant?) I asked him what his

charity of choice would be when he " makes it big " He said it would be the

Still's

Foundation. He said it breaks his heart that he's not here enough to help

me anymore.........Am I lucky or what?

beth g

Houston

[Guest guest]

I agree that we are all more than a jod or a paycheck. I think that we all feel

like we should do more for the people in our lives. I do not think that we

realize what the people in our lives really want. The other day my Dad was

driving me to the doctors an hour and a half away. While we were in the car my

father asked me what I want for christmas. I told him I wanted nothing. My Dad

told me that I never ask for anything but yet you do for everyone else. My Dad (

who was in the marines and an MP) never shows any emotion started to cry and

told me that all he wanted for christmas was for me to be painfree. I just

cried. I can understand you want to give more but trust me all she wants

is you. I am realizing that the people in my life want me not material

posessions. Do not bet yourself up. I know it's easier said than done. I know I

do not need anyone else to beat me up I manage to do it to myself.

Danni

Re: need advice

Hi again Danni.

Marty's email does hit home..........We are not our jobs.

[Guest guest]

We have done DMSA capsules, I prefer ALA 'cause Allie seems to get

respiratory illness resulting in pneumonia when we used DMSA. I would

suggest considering a 3-4 hr dosage rather than 8 hr as some DAN! docs

recommend. (Someone pls correct me if I'm wrong on this, I think it's

the DMPS that's considered safe every 8 hrs) The reason is the

half-life of the DMSA is closer to 3-4 hrs and when you go 8 hrs

you're sorta putting the child on a roller-coaster effect. That said,

the issue of dosages is of big debate, there are those who do well

with 8hr, but if she doesn't respond as well as you'd hoped I would

put out the dosage issue because it could make all the diff in the

world. The smaller the dosage the safer & you wanna make sure you're

doing labs regularly to check organ function (I can't remember if it's

liver or kidneys for DMSA)to ensure everything is okay.

As to removing dairy, I would recommend Karyn Seroussi's " Unraveling

The Mysteries of Autism and PDD " . It's a great book. Also,

www.gfcfdiet.com is good and gfcfrecipes Yahoo! group has some

wonderful people on it to help.

HTH,

Debi

-

[Guest guest]

Hi! Puddin'-

Your name reminds me - my dad used to say " Puddin' Tame, ask me again I'll

tell you the same! " LOL

The best two books are by Andy Cutler, PhD, *Amalgam Illness*, and *Hair

Test Interpretation*. The very best list for reliably safe chelation

information, IMHO, is Autism-Mercury AT Yahoogroups DOT com (you know, how

to type that properly into your browser, right? with punctuation signs and

no spaces.) Get a hair test from Doctors Data Inc (DDI) and never be

persuaded to do " challenge " tests with any chelator - also, never do any IV

chelation. (I'm serious, any chelator that some doc wants to use IV can be

used more safely on a low-frequent-dose chelation schedule.)

If soemone doesn't agree with Andy Cutler's chelation advice then I say -

kick 'em to the curb!

HTH,

....

>

> Hi all. I took my daughter to see a DAN dr. today,

> first visit. I was wondering if anyone has done oral

> chelation. DMSA capsules. I thought I was ready to do

> all this,but then I started thinking and worrying. Is

> this safe. Any Advice? Also he recommended we remove

> all dairy from her diet. Any good books on how to get

> started?Thanks, Puddin'

>

[Guest guest]

It's kidneys, more than liver, but getting both checked.

AND making sure mercury *is actually an issue*. Not because some DAN doc says

all

autistics are toxic, because that isn't necessarily the case. I suggest

independant

verification, but that's largely because I don't trust most DAN docs, they

killed one kid and

have taken organs.

Kassiane

who was mercury arsenic and other stuff toxic, chelated, and is stilllllll

autistic

>

> We have done DMSA capsules, I prefer ALA 'cause Allie seems to get

> respiratory illness resulting in pneumonia when we used DMSA. I would

> suggest considering a 3-4 hr dosage rather than 8 hr as some DAN! docs

> recommend. (Someone pls correct me if I'm wrong on this, I think it's

> the DMPS that's considered safe every 8 hrs) The reason is the

> half-life of the DMSA is closer to 3-4 hrs and when you go 8 hrs

> you're sorta putting the child on a roller-coaster effect. That said,

> the issue of dosages is of big debate, there are those who do well

> with 8hr, but if she doesn't respond as well as you'd hoped I would

> put out the dosage issue because it could make all the diff in the

> world. The smaller the dosage the safer & you wanna make sure you're

> doing labs regularly to check organ function (I can't remember if it's

> liver or kidneys for DMSA)to ensure everything is okay.

>

> As to removing dairy, I would recommend Karyn Seroussi's " Unraveling

> The Mysteries of Autism and PDD " . It's a great book. Also,

> www.gfcfdiet.com is good and gfcfrecipes Yahoo! group has some

> wonderful people on it to help.

>

> HTH,

> Debi

>

> -

>