Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 How'd it go yesterday with your heart? Thinking about you and I know others are too! Dina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 Yes, of course!!!!!! Sending positive EKG waves your way! Bonnie > > How'd it go yesterday with your heart? > Thinking about you and I know others are too! > Dina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Thanks, Dina. Haven't been in here lately, because have been too sick. Been doing a lot of " sofa " time. <sigh> Went up for genetic testing on Thursday. It is much more complicated than we knew. Won't have any answers for 6-8 weeks, then might still not. Just hoping and praying this is not something I passed on to Josh. He has enough to contend with, with OCD. He told me he is feeling stressed from all that is going on, yet I cannot find a way to get him up to his therapist right now. Too far away, and I've been too sick to drive. He says it is not OCD, just regular stress, but I worry that it will morph into OCD. We have to find a way to keep him from crumbling through all this too. Thanks for asking, Dina. Looking forward to and hoping for better days ahead. BJ > > How'd it go yesterday with your heart? > Thinking about you and I know others are too! > Dina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 BJ, So sorry to hear of your heart issues...sending positive vibes your way! Subject: Re: BJ To: Date: Saturday, October 3, 2009, 11:34 AM Thanks, Dina. Haven't been in here lately, because have been too sick. Been doing a lot of " sofa " time. <sigh> Went up for genetic testing on Thursday. It is much more complicated than we knew. Won't have any answers for 6-8 weeks, then might still not. Just hoping and praying this is not something I passed on to Josh. He has enough to contend with, with OCD. He told me he is feeling stressed from all that is going on, yet I cannot find a way to get him up to his therapist right now. Too far away, and I've been too sick to drive. He says it is not OCD, just regular stress, but I worry that it will morph into OCD. We have to find a way to keep him from crumbling through all this too. Thanks for asking, Dina. Looking forward to and hoping for better days ahead. BJ > > How'd it go yesterday with your heart? > Thinking about you and I know others are too! > Dina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 (((hugs))) BJ, sorry you're still feeling so lousy! Could Josh do a phone consult with his therapist? Sorry he's also feeling some stress with this but glad it hasn't pricked his OCD. Aside from results of the genetic testing, what's next for you? (hope all your testing is done!) > > > > How'd it go yesterday with your heart? > > Thinking about you and I know others are too! > > Dina > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Sorry it's not more straight forward with the testing. That is a long time to wait and then maybe not having all the answers you are looking for. Hopefully Josh hangs in there and his stress level/OCD doesn't increase. Take care, Dina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 You will be in my prayers BJ. Wierd that I took today to check these messages. It's been a while. Joei is doing good after a rough few months of learning what happens when she decides she doesn't want to be on meds. Thingns are better now. At least it led us to Luvox. She's off the anxiety med and the melatonin now. This is doing the trick. Good thing for the beginning of junior high. Thanks for all the help this group was to me when all of this was so confusing and scary. BJ--- you especially. You seemed to really get me and you voiced my fears before I was able to put them out there. I appreciate that. What a scary time. I had to step away from all the ocd online stuff because it was part of my little breakdown at the beginning of the year. I was " obsessed " with finding out about ocd! Imagine that! lol I " m moving and won't have this email address anymore because this carrier does not provide service. My grand mother passed a couple of weeks ago and Joei and I are moving into her little house on my parents property. Not looking forward to the close proximity, but in these hard times we do what we got to do! I wanted to make sure I said thank you before I unsubscribed. This group kept me going when I thought my world was crumbling. Bless you all and your kids. What a courageous group! ________________________________ To: Sent: Saturday, October 3, 2009 11:34:32 AM Subject: Re: BJ Thanks, Dina. Haven't been in here lately, because have been too sick. Been doing a lot of " sofa " time. <sigh> Went up for genetic testing on Thursday. It is much more complicated than we knew. Won't have any answers for 6-8 weeks, then might still not. Just hoping and praying this is not something I passed on to Josh. He has enough to contend with, with OCD. He told me he is feeling stressed from all that is going on, yet I cannot find a way to get him up to his therapist right now. Too far away, and I've been too sick to drive. He says it is not OCD, just regular stress, but I worry that it will morph into OCD. We have to find a way to keep him from crumbling through all this too. Thanks for asking, Dina. Looking forward to and hoping for better days ahead. BJ > > How'd it go yesterday with your heart? > Thinking about you and I know others are too! > Dina > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 BJ, There are a lot of us on this list who have benefited from both your wisdom and compassion. Know that we are keeping you in our prayers. Dorelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Wow, thank you, everyone. I haven't been in a lot lately because I haven't felt well. I sure miss the group. My hope is to get some answers and get my health back so I can participate more, and more regularly. For now, it is day to day. .. Some bad, some better. . Doing what I can, when I can. I truly appreciate all your kind words, warm regards, and prayers. It was a bright spot in my day to read all your kind words. I've also benefited from this group. When Josh was at his worst, it was the thing that held us together, at times. Hearing that I was able to help others, as we were helped here, is a blessing. Thanks. Hugs, BJ > > BJ, > > There are a lot of us on this list who have benefited from both > your wisdom and compassion. Know that we are keeping you in our > prayers. > > Dorelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Hi, Chris. Josh's therapist said Josh could call, or email him, any time he needed, at no cost, but Josh hasn't taken advantage of it. I think he is trying to work through it himself. . Which is good, yet I don't want it to get out of his control before he knows it. Could be I'm just over-worrying about him. It's hard to turn that worry off. . . .Where you worry it will all blow up again in times of stress. The genetic testing is more for information for Josh and family. My treatment is going to be the same, no matter the results due to the fact that my heart is going into scary rhythms that could result in my dropping dead. Next, for me, is getting back into the electrophysiologist, then most likely trying some more meds to see if my body will tolerate them. No luck with that so far. I'm having extreme reactions. If I can't tolerate them, then it will most likely be a defibrillator, to shock my heart out of the life-threatening rhythms when they happen. If they can identify a specific gene in me that is connected to what they suspect is Long QT Syndrome, they will be able to check specifically for the gene in other family members who have similar heart issues, and even those who don't (like Josh) to see if it is a risk they are unaware of. So the testing it done, for me, but the medication trials have begun. And since my physiology is such that its hyper sensitive to meds, it's not going well, so far. All have made me worse and make me so sick I cannot function, at all. Thank you for the hugs. Even cyber hugs are welcomed. ) Hugs, BJ > > > > > > How'd it go yesterday with your heart? > > > Thinking about you and I know others are too! > > > Dina > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Hi, Kathy. It's good to hear from you. I'm glad you chose today to come in, and I'm glad I was well enough to get online too. ) I'm so sorry to hear that Joei had a setback, but it sounds like it was a learning experience for her and she is stabilized again, which is good. I'm so sorry to hear of your grandma. I hope it works out well with you living so close to family. That can be a mixed bag, huh. lol I'm sorry to hear you won't have email, but glad you were able to stop in before unsubscribing. We are here if you ever have the need. Hope and pray the future is good to you. Hugs, BJ > > > > How'd it go yesterday with your heart? > > Thinking about you and I know others are too! > > Dina > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 So sorry - hope you feel better soon! Bonnie > > > > BJ, > > > > There are a lot of us on this list who have benefited from both > > your wisdom and compassion. Know that we are keeping you in our > > prayers. > > > > Dorelle > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Hello BJ, Thinking of you and hoping that you get to the bottom of things and feel better soon. I cannot tell you how much you and many others on this board have helped me. When DD has her flares - I feel so alone and everything feels out of control. Then, I can log into this wonderful group and I get so much help within a matter of minutes. It's truly been a Godsend. Sending positive thoughts your way, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 Bj, sorry to hear you've been so sick; I hope the medication trials work out for you. You're in my thoughts. Kathy, best wishes to you; didn't get on the group to see what your situation is but saw a post that you're unsubscribing; hope all works out for you and Joei. Debbie http://twochinadolls.blogspot.com ____________________________________________________________ Some like it hot. Click now for a reliable new water heater! http://thirdpartyoffers.netzero.net/TGL2241/fc/BLSrjpYTmDPGroQx9Y6Zgw6z3mlyrDntD\ Hjd1OqHGH2WDdB3hktGbUBzA68/ Quote Link to comment Share on other sites More sharing options...
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