new member?????

[Guest guest]

Hi I am looking for a suppot group to have someone to share with re;my

illness.i have been

disabled for 4 years now.i am 47 and a retired nurse.i have a diagnosis of fibro

and sjogrens

and am going to boston in a few weeks because they believe i have lupus.i have

been totally

frustrated with the medical system even though i was once a part of it.i am in

constant

pain,fall frequently,hands and feet swell and are numb,sheer ehaustion all the

time you name

it i have it at this point.it is definately an autoimmune disease-and seems to

be progressing-

now affecting my lungs and my vision.i have had just about every test known to

mankind.i

have had to manage my own care and it has been difficult and depressing.i really

have no life

left and spend most of my time going from bed-chair to my backyard.could use a

few new

friends who understand what all this is like......lynn