Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Hang in there, Kerrie. It will get better. My 10 y.o. son was exactly like that 4 months ago, the whole house was contaminated and he would stand in one spot for hours, and sleep with both arms and legs raised in the air, in the middle of the night, and have constant rages. Thanks for the encouragement and support of many people here (---thanks a lot galway and !---), we fought thru it, and it is much better now. In fact he is reading this post with me now and asked me to reply, and following are his own words......Bruce Hi, I'm . I have OCD, and now I still have it. A few months ago, I wasn't doing anything. I stood there for a long time, doing nothing. When it was time for school, for the first few days, I would be coming in late. Then I said to my teacher that I have OCD. She asked me to try not to be late. and since then, except for a few days, I was at school on time. The days when I was late, my dad forced me to get to school, and now, I'm not late for school, and I don't stand there for a whole day anymore. If your son would like to, he could talk with me on skype. I didn't know exactly what helped, but I now believe what other people are saying that it may have to get worse (to the worst) for it to get better. I was determined to not let dropped from the school and for the first 2 wks of the semester, we fought every morning for 1~2 hrs until he was calm enough to walk into the classroom. He now just told me that those fights were " flood exposures " to him and it was what helped. I'm relatively new to this OCD thing and if any what I think may help is to try not to give in to OCD demands as much as possible and as long as the daily life is still bearable......Again hang in there. There is hope..........Bruce > > Thank you to everyone who responded last week on a way to get my son out of the shower. It really is helpful to read others experiences and hear how each of you dealt with it. My cry for help was on Wednesday or Thursday evening - I can't remember. This past week has been shear torture for him and for his Dad & I. Friday he went into the garage at 1:30 in the afternoon and was unable to come back into the house until 7:30 that evening. Our house is now contaminated. He was experiencing extreme anxiety throughout the weekend. Does anyones child have such a fear of germs that they are actually paralyzed in one spot for 2 to 3 hours? We had many of these episodes this past weekend. My husband and I considered several times of taking him to the ER. His therapist was out of town at the time and I turned to the family Dr. for some meds. The Dr. gave him Xanex today. .5mg once a day. His nights are complete horror for him. The > sensation of germs and feeling dirty bring him such distress that I don't know how much more he can handle mentally. I know Xanex only takes the edge off. Once bedtime hit it started all over again. OCD set in and took over. No relief in sight. He went to bed at 9:00 and just finally was able to fall asleep at 1:30 am. Called the Dr. and said to give him another .5mg at 11:30pm. He cried and twitched, felt the germs crawling on him and held his arms straight up in the air for 2 more hours until he fell asleep. He has not attended school since last Wednesday. I don't know when he will be able to return. He walks with his arms in the air flapping his hands as to not wash his hands. We are going to see a psychiatrist this week. Hopefully the meds prescribed by him will help him function and be happy again! I know those meds take a while to work and then hopefully we can start back on his weekly therapy. His OCD has spiraled out of > control this past couple of weeks. My heart breaks for him...he is in such pain! > > I know several people who have posted on this sight have pulled their child out of school. How was it? How were they able to return without a lot of questions? Kids can be so cruel! Once you are faced with something as horrible as OCD, I don't think there is any room for any more harassment - especially by his peers. > > Please Help! > > Kerrie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Kerrie: I can truly emphasize with you since this sounds a lot like my son who is 13. I lived your nightmare and still do to a lesser extent. We actually did take him to the ER and that was a mistake. It took four hours and they could only give him valium. Told us to take him to the mental hospital, children's ward. So we did. We did get him medication prescribed quickly there, but the nurses there were not used to OCD patients. Mostly they see suicidal teens. One nurse took away all his soap, locked his bathroom, and took up all hand sanitizers. My son stood in his room all night, feeling " unclean. " No one noticed this . He then couldn't take his medicine because the whole place was now " unclean. " One nurse lectured me on how I had to be stricter with him to " cure " his OCD. I told the attending psychiatrist and he called in the head nurse to tell her they were making his OCD worse by not letting him clean, but it was too late, my son wanted out of there, so I signed him out. For weeks he ate one time a day, after spitting for a long period of time to " clean " his mouth. It's been 2 months and he can go 8 hours now without spitting, his rituals are lessoned and he lets some things slide that used to bother him. It's been slow, and he still doesn't want to leave the house, has a long way to go. We're also looking into PANDAS now as he has symptoms of having that. As to school, he's being home schooled . We're in Texas, so I don't know if it's the same where you live, but there is very little help or understanding with kids with certain disabilities. I tried to keep him there for 7th grade when his OCD wasn't as bad as now, but discovered the schools were too overwhelmed with a multitude of other problems. They treated him horribly, teachers, administrators and yes, some kids made fun of him as certain types of kids will (and adults for that matter). You are doing right by keeping your son at home. My son is actually learning much more than he did in school. We're doing a lot of unschooling, in other words letting him lead the way according to his interests (except for math). You could take him to a mental hospital if you can't get him in to a psychiatrist soon in order to get him on a medication right away, but that would be the only reason in my opinion. This is getting long. If you want to chat more feel free to email me personally. Anita in TX This past week has been shear torture for him and for his Dad & I. Friday he went into the garage at 1:30 in the afternoon and was unable to come back into the house until 7:30 that evening. Our house is now contaminated. He was experiencing extreme anxiety throughout the weekend. Does anyones child have such a fear of germs that they are actually paralyzed in one spot for 2 to 3 hours? We had many of these episodes this past weekend. My husband and I considered several times of taking him to the ER. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 I'm so sorry your family is having such a difficult time!? I feel awful for your poor son.? My response is about pulling your son out of school.? I normally don't suggest people do that but your son is having such a hard time, as a parent I would really consider it.? The OCD is like an illness and if he were coughing or vomiting as severly as he is obsessing or compulsing, you would not feel the least bit uncomfortable pulling him out until he was well again.? He might need time to heal from his condition. Once he is treated successfully for the OCD and he can function better, school will be easier.? For now, the goal is just to get him better and if he is having a hard time with school too, I wouldn't make him go.? Good luck--Kelley in NV Son in Shower Thank you to everyone who responded last week on a?way to get my son out of the shower.? It really is helpful to read others experiences and hear how each of you dealt with it.? My cry for help was on Wednesday or Thursday evening?- I can't remember.? This past week has been shear torture for him and for his Dad & I.? Friday he went into the garage at 1:30 in the afternoon and was unable to come back into the house until 7:30 that evening.? Our house is now contaminated.? ?He was experiencing extreme anxiety throughout the weekend.? Does anyones child have such a fear of germs that they are actually paralyzed in one spot for 2 to 3 hours?? We had many of these episodes this past weekend.? My husband and I considered several times of taking him to the ER.? His therapist was out of town at the time and I turned to the family Dr. for some meds.? The Dr. gave him Xanex today.? .5mg once a day.? His nights are complete horror for him.? The sensation of germs and feeling dirty bring him such distress that I don't know how much more he can handle mentally.? I know Xanex only takes the edge off.? Once bedtime hit it started all over again.?OCD set in and took over. ?No relief in sight.? He went to bed at 9:00 and just finally was able to fall asleep at 1:30 am.? Called the Dr. and said to give him another .5mg at 11:30pm. ? He cried and twitched, felt the germs crawling on him and held his arms straight up in the air for 2 more hours until he fell asleep.? He has not attended school since last Wednesday.? I don't know when he will be able to return.? He walks with his arms in the air flapping his hands as to not wash his hands.? We are going to see a psychiatrist this week.? Hopefully the meds prescribed by him will help him function and be happy again! I know those meds take a while to work and then hopefully we can start back on his weekly therapy.? His OCD has spiraled out of control this past couple of weeks.? My heart breaks for him...he is in such pain! I know several people who have posted on this sight have pulled their child out of school.? How was it?? How were they able to return without a lot of questions?? Kids can be so cruel!? Once you are faced with something as horrible as OCD, I don't think there is any room for any more harassment - especially by his peers. Please Help! Kerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 I am so sorry to read your son is suffering so very much. My first thought was it the return to school and the stress of school that triggered the increase anxiety? My daughter refused to go to school last March and didn't return until this fall and at a different school. If your son can manage to get up and go to school for one or two periods calmly I would opt for that. It is hard to return to school if you are out completely. My daughter would not return to school because the longer she was out the more worried she got about what the kids would say. Our school is not willing to help her either so they preferred a special ed school for her. This fall we don't let our daughter pick classes or the time of day she goes to school because then she is thinking too much. If she complains we remind her it is just for the first period and she can call me after that. This is our strategy this fall and it working at keeping her OCD in check. We slowly increased the length of day by one period at a time each week. We are up to lunch. I don't know if this would have worked last spring. Her anxiety and panic was too high. She is on zoloft now 50mg but it is not enough the OCD is still there but not as extreme. Still she can only manage a partial day and no homework. If we try to do too much the OCD comes back. At this point we at least have a peaceful and happy house even though school is modified (partial day and no homework). I hope your son is feeling better really soon. And take care yourself! Pam she is. Sh > > Thank you to everyone who responded last week on a way to get my son out of the shower. It really is helpful to read others experiences and hear how each of you dealt with it. My cry for help was on Wednesday or Thursday evening - I can't remember. This past week has been shear torture for him and for his Dad & I. Friday he went into the garage at 1:30 in the afternoon and was unable to come back into the house until 7:30 that evening. Our house is now contaminated. He was experiencing extreme anxiety throughout the weekend. Does anyones child have such a fear of germs that they are actually paralyzed in one spot for 2 to 3 hours? We had many of these episodes this past weekend. My husband and I considered several times of taking him to the ER. His therapist was out of town at the time and I turned to the family Dr. for some meds. The Dr. gave him Xanex today. .5mg once a day. His nights are complete horror for him. The > sensation of germs and feeling dirty bring him such distress that I don't know how much more he can handle mentally. I know Xanex only takes the edge off. Once bedtime hit it started all over again. OCD set in and took over. No relief in sight. He went to bed at 9:00 and just finally was able to fall asleep at 1:30 am. Called the Dr. and said to give him another .5mg at 11:30pm. He cried and twitched, felt the germs crawling on him and held his arms straight up in the air for 2 more hours until he fell asleep. He has not attended school since last Wednesday. I don't know when he will be able to return. He walks with his arms in the air flapping his hands as to not wash his hands. We are going to see a psychiatrist this week. Hopefully the meds prescribed by him will help him function and be happy again! I know those meds take a while to work and then hopefully we can start back on his weekly therapy. His OCD has spiraled out of > control this past couple of weeks. My heart breaks for him...he is in such pain! > > I know several people who have posted on this sight have pulled their child out of school. How was it? How were they able to return without a lot of questions? Kids can be so cruel! Once you are faced with something as horrible as OCD, I don't think there is any room for any more harassment - especially by his peers. > > Please Help! > > Kerrie > > > > > Quote Link to comment Share on other sites More sharing options...
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