RE: Re: PANDAS VIDEO FROM THE TODAY SHOW

[Guest guest]

Hi ,

Who is the PANDAS specialist in Chicago that you know of? At this point my

daughter is doing quite well but it is good to have this name just in case,

and we live outside of Chicago.

_____

From:

[mailto: ] On Behalf Of susangalway

Sent: Friday, September 25, 2009 11:36 AM

To:

Subject: Re: PANDAS VIDEO FROM THE TODAY SHOW

Antibiotics worked for our child, and we were about 6 months in, on a 3rd

episode. However, we were also doing intensive ERP - I think that is the

right combo. It was like the antibiotics calmed her mind, but the compulsive

behavior was still a habit - like her mind had learned OCD. She was doing

very well before the antibiotics - able to function through ERP. However,

afterwards, the gains were like a runaway train. An exposure that would have

taken 1-2 weeks to break down, was only a day or 2.

Here is a recommendation from another site for an ERP therapist - not sure

how close this is to you, but she is rumored to be good, and you will want

one on your team:

Kathleen Norris, MA, LPC

Answers for Anxiety Counseling

2600 Tibbets Drive- Suite C

Bedford, TX 76022 US

Phone: (817)237-9889

Fax:

Email: kathleen-norris@ <mailto:kathleen-norris%40sbcglobal.net>

sbcglobal.net

I only know of 2 doctors that really specialize in PANDAS - one in Chicago,

the other in Baltimore. Let me know if you need contact info. They do phone

consults, I believe, and will work with a local doctor if you have one

willing to learn. We have had the best luck with a Neurologist, but many

parents use a pediatrician. You may also want to ask for a referral on the

Latitudes forum for PANDAS.

in NC

>

> I noticed in the video that the boy was treated with atibiotics, and this

was a year into his OCD symptoms. I thought that atibiotics didn't work

unless it was immediately after syptoms appear.

>

> Also, does anyone know of a docor in the Austin area (or we can drive to

Houston, San or Dallas if needed) who treats PANDAS kids. I'm

convinced my child has it. He acts just like the boy in the video and his

came on overnight. He also has a history of tics. I asked his psychiatrist

and he refuses to give the steriod, telling me to ask his pediatrician. Now

I'm thinking I need to go to someone familiar with PANDAS, rather than

expend energy trying to educate as I did with psychiatrist, only to be told

to knock on another door. Thanks!

>

> Anita in Austin

>