Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 WElcome to the group Lynn...........so sorry to hear of your illnesses but you have come to the right place for some love and understanding.............these people are the most compassionate I have ever met...............it is nice to have those that can understand what you are going thru..................sounds like you are having a rough time. I was diagnosed with RA about 2 years ago and have fibro too. I see the dr again in a couple weeks and hopefully will get a change in meds. I work fulltime and it is a daily struggle................. Just wanted to say welcome and if you need someone.........please write. gentle hugs Pat in So Ore. --- lynn8953 <lynn8953@...> wrote: > Hi I am looking for a suppot group to have someone > to share with re;my illness.i have been > disabled for 4 years now.i am 47 and a retired > nurse.i have a diagnosis of fibro and sjogrens > and am going to boston in a few weeks because they > believe i have lupus.i have been totally > frustrated with the medical system even though i was > once a part of it.i am in constant > pain,fall frequently,hands and feet swell and are > numb,sheer ehaustion all the time you name > it i have it at this point.it is definately an > autoimmune disease-and seems to be progressing- > now affecting my lungs and my vision.i have had > just about every test known to mankind.i > have had to manage my own care and it has been > difficult and depressing.i really have no life > left and spend most of my time going from bed-chair > to my backyard.could use a few new > friends who understand what all this is > like......lynn > > > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 pat this is lynn do you have im messenger it is so much easier to talk there-thank you for the welcome.lynn8953@... --- Alvarez <bureau97504@...> wrote: > WElcome to the group Lynn...........so sorry to hear > of your illnesses but you have come to the right > place > for some love and understanding.............these > people are the most compassionate I have ever > met...............it is nice to have those that can > understand what you are going > thru..................sounds like you are having a > rough time. > > I was diagnosed with RA about 2 years ago and have > fibro too. I see the dr again in a couple weeks and > hopefully will get a change in meds. > > I work fulltime and it is a daily > struggle................. > > Just wanted to say welcome and if you need > someone.........please write. > > gentle hugs > Pat in So Ore. > > --- lynn8953 <lynn8953@...> wrote: > > > Hi I am looking for a suppot group to have > someone > > to share with re;my illness.i have been > > disabled for 4 years now.i am 47 and a retired > > nurse.i have a diagnosis of fibro and sjogrens > > and am going to boston in a few weeks because they > > believe i have lupus.i have been totally > > frustrated with the medical system even though i > was > > once a part of it.i am in constant > > pain,fall frequently,hands and feet swell and are > > numb,sheer ehaustion all the time you name > > it i have it at this point.it is definately an > > autoimmune disease-and seems to be progressing- > > now affecting my lungs and my vision.i have had > > just about every test known to mankind.i > > have had to manage my own care and it has been > > difficult and depressing.i really have no life > > left and spend most of my time going from > bed-chair > > to my backyard.could use a few new > > friends who understand what all this is > > like......lynn > > > > > > > > > > > > > > > > > > __________________________________ > - PC Magazine Editors' Choice 2005 > http://mail. > KEEP IN TOUCH LYNN KNUREK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 yes I do use messenger bureau97504 and i added you to my list , hope to talk soon Pat --- lynn knurek <lynn8953@...> wrote: > pat this is lynn do you have im messenger it is so > much easier to talk there-thank you for the > welcome.lynn8953@... > > --- Alvarez <bureau97504@...> wrote: > > > WElcome to the group Lynn...........so sorry to > hear > > of your illnesses but you have come to the right > > place > > for some love and understanding.............these > > people are the most compassionate I have ever > > met...............it is nice to have those that > can > > understand what you are going > > thru..................sounds like you are having a > > rough time. > > > > I was diagnosed with RA about 2 years ago and > have > > fibro too. I see the dr again in a couple weeks > and > > hopefully will get a change in meds. > > > > I work fulltime and it is a daily > > struggle................. > > > > Just wanted to say welcome and if you need > > someone.........please write. > > > > gentle hugs > > Pat in So Ore. > > > > --- lynn8953 <lynn8953@...> wrote: > > > > > Hi I am looking for a suppot group to have > > someone > > > to share with re;my illness.i have been > > > disabled for 4 years now.i am 47 and a retired > > > nurse.i have a diagnosis of fibro and sjogrens > > > and am going to boston in a few weeks because > they > > > believe i have lupus.i have been totally > > > frustrated with the medical system even though i > > was > > > once a part of it.i am in constant > > > pain,fall frequently,hands and feet swell and > are > > > numb,sheer ehaustion all the time you name > > > it i have it at this point.it is definately an > > > autoimmune disease-and seems to be progressing- > > > now affecting my lungs and my vision.i have had > > > just about every test known to mankind.i > > > have had to manage my own care and it has been > > > difficult and depressing.i really have no life > > > left and spend most of my time going from > > bed-chair > > > to my backyard.could use a few new > > > friends who understand what all this is > > > like......lynn > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > > - PC Magazine Editors' Choice 2005 > > http://mail. > > > > > KEEP IN TOUCH LYNN KNUREK > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
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