Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi Colleen, I have a 14 year old son who says the same thing to me and his sisters..no one knows what it is like for him. His older sister's response was that " yes, we don't know what it is like for you...but you don't know what it is like for the rest of us in the house " ! Without sounding mean, she hit the nail on the head. I realized my son had OCD while on vacation in mid July. He has been going to therapy since the end of July. We are seeing a wonderful therapist that I found on the ocfoundation.org website. She specializes in Cognitive-Behavioral therapy for OCD. I too was afraid for my son to see the GMA Special on OCD. It was aired just as I was learning about OCD, prior to him starting therapy. I thought and I still think (don't know if it's true) that he will pick up other peoples habits. Needless-to-say, he didn't watch that special. When I realized that he had OCD, I didn't even give it a name. I just reassured him that I was going to help in any way possible so that he could stop washing his hands and that I found a Dr. that could help as well. I was seeing a small improvement since the therapy sessions started - we go every Tuesday - unfortunately she is almost 1 hour from our home & is not covered by our insurance. But again, if it helps I'm OK with it. Since school has started, he's in his first year of high school, he has had a difficult time. He cannot wash his hands during the day anymore. His OCD is now getting worse - picking up more obsessions! That was expected with the stress of school starting per his therapist. Honestly, I didn't know he would pick up new habits..I just thought the hand washing would increase in minutes & the number of times. I've spent many hours in search of help beyond a therapist. I really don't want to turn to SSRI's - it seems there is some type of family history in my family that I am not comfortable turning to medications. I had 2 second cousins commit suicide - they were both on anti-depressants - both were boys and between the ages of 16 - 21. I know the SSRI's would make it easier for him to coupe, however, I am very scared to take that step based on this history!! So in my search of finding other ways to coupe I found a gentleman on the Michigan OCD get help website. He used to run support groups in my area. He is not a therapist. He agreed with my son's comment that " you don't know how he feels " . He suffers from OCD himself, don't know how old he was but sounded older based on this voice. I asked him how can I help understand what my son is going through. He recommended the book " What to do when your child has Obsessive Compulsive Disorder " by Aureen Pinto Wagner. This book can be ordered online at www.lighthouse_press.com. I tried to purchase it at a local book store, but they had to order it. So I don't have it yet, she also wrote a book for children with OCD. I found that one on the lighthouse website. My son is not too thrilled with me getting either book, but I am anyways! Sorry for the lenghty reply. I hope some of it helps! Best Wishes:) Kerrie - Macomb, MI ________________________________ To: Sent: Saturday, September 19, 2009 8:55:15 AM Subject: Can I cause new obssessions/compulsions? Hi, My daughter (13yrs) has mentioned many times that no one has what she has or knows what it's like for her. I found a program on abc.com about children with OCD and the hope of how it can be treated with SSRI's and ERP therapy. It was heart wrenching to watch, for me, but thought it had a happy ending so it would be of help. I am thinking that she will see the kids profiled and feel much better knowing there are some kids with even more severe degrees of it and have gotten through some really hard stuff. My only concern is, could she develop new obssesions and from getting ideas by watching this? I know that OCD is really tricky and she is not even close to finding the right SSRI for it and hasn't begun ERP yet. (still looking for a therapist covered by our insurance) Thanks for your input, Colleen Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 I don't think you will cause new obsessions/compulsions.? My kids both have OCD and couldn't be more different in their " issues. " ? They are often puzzled by each other's compulsions.? Kelley in NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 I read somewhere that new obsessions don't begin from seeing or hearing about other people's OCD. I can't tell you which book I read it in at this point though. OCD does change faces though, regardless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi Kerrie and Colleen too! Just wanted to say that OCD, and new thoughts, can be triggered by just about anything. You can't really prevent this. However, with a younger child I might protect from seeing something if I thought it would not ultimately be helpful. The theme, that " no one understands " , is common, and is valid really. Ours was 15 at severe onset and said and felt this always. They generally don't have much energy left to worry about how it might be affecting those around them, plus self centred nature of a teen added, we found. Ours was not interested in hearing about anyone else with OCD, or to connect with anyone, and in fact would insist he was the only one who suffered as much as he did(somewhat individual to personality, age and stage, I suspect). Many girls I hear of want very much to connect with others and to talk about it. Also, OCD can swich from one thing to another, just the nature of it. Ours had contamination issues, and it could switch from needing to shower for long periods, to the opposite, not showering to avoid the stress of it all. OCD will search for things to worry and obsess about, and that can occur just within the mind, without any outside encouragement.... Ours has a great imagination that just fed into the OCD, never-endingly! Would also switch from contamination stuff to " just right " stuff, where things have to go a certain way, or finish a certain way, or feel a certain way. It would seem like the contamination stuff would disappear, and we would think it was better, but it had switched to something else, often that was hidden. Or our son was doing mental rituals in his head to counter it, and not have to do physical rituals that would be seen. In the end, with ours, there is nothing to see, it was all mental rituals, and could be hidden. So it can be hard to know sometimes what all is going on in their heads! You generally know if it is an OCD thing though, because there is a distinct reaction and added charge there. Kerrie, I can understand you concerns about medications. We have this history in our family too, and bipolar. I was very hesitant, but in the end there was no choice. If you discuss your concerns and give the family history, and then go very slowly with the meds, so that you can watch carefully. It is not an easy decision, but for many it can make such a difference. Alternately, there is something called inositol, a natural source of serotonin(easiest description). Here is a link that will give you more information about this - http://westsuffolkpsych.homestead.com/inositol_and_ocd.html You will also find some articles on OCD at this website, go to the homepage for links to. " Talking Back To OCD " , by March, is a good workbook you might look into. Aureen Pinto-Wagner's book is very good for all 'round coverage of everything OCD. Hang in there, and keep getting more information. The more you understand this disorder the better equipped you will be to work with it. Warmly, Barb Ontario, Canada Son 18, OCD, LD - doing quite well now, for one year! > > Hi Colleen, > > I have a 14 year old son who says the same thing to me and his sisters..no one knows what it is like for him. His older sister's response was that " yes, we don't know what it is like for you...but you don't know what it is like for the rest of us in the house " ! Without sounding mean, she hit the nail on the head. I realized my son had OCD while on vacation in mid July. He has been going to therapy since the end of July. We are seeing a wonderful therapist that I found on the ocfoundation.org website. She specializes in Cognitive-Behavioral therapy for OCD. I too was afraid for my son to see the GMA Special on OCD. It was aired just as I was learning about OCD, prior to him starting therapy. I thought and I still think (don't know if it's true) that he will pick up other peoples habits. Needless-to-say, he didn't watch that special. When I realized that he had OCD, I didn't even give it a name. I just reassured him that I was > going to help in any way possible so that he could stop washing his hands and that I found a Dr. that could help as well. I was seeing a small improvement since the therapy sessions started - we go every Tuesday - unfortunately she is almost 1 hour from our home & is not covered by our insurance. But again, if it helps I'm OK with it. Since school has started, he's in his first year of high school, he has had a difficult time. He cannot wash his hands during the day anymore. His OCD is now getting worse - picking up more obsessions! That was expected with the stress of school starting per his therapist. Honestly, I didn't know he would pick up new habits..I just thought the hand washing would increase in minutes & the number of times. I've spent many hours in search of help beyond a therapist. I really don't want to turn to SSRI's - it seems there is some type of family history in my family that I am not comfortable have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi Colleen - I used to worry a LOT about this as well. I'll tell you that before she had ERP therapy and learned to " beat up thoughts " that she does not want, and to recognize an OCD thought, that pretty much anything could get incorporated into the OCD. It was a hard time, and I often felt guilty for telling her something - when in reality, other kids would not have had an issue with it. If she has OCD, anything can get twisted about. So in my opinion, there is not much point in avoidance. Just get the EPR therapy! I'd let her watch, if she is relatively mature. If not, then perhaps books would be more appropriate. I know there are some great books about OCD for teens. Maybe someone will recommend here - mine are all more for the 10 and under crowd. I'll keep my thoughts for you about an ERP therapist that your insurance will cover. all my best - in NC. > > Hi, > > My daughter (13yrs) has mentioned many times that no one has what she has or knows what it's like for her. I found a program on abc.com about children with OCD and the hope of how it can be treated with SSRI's and ERP therapy. It was heart wrenching to watch, for me, but thought it had a happy ending so it would be of help. I am thinking that she will see the kids profiled and feel much better knowing there are some kids with even more severe degrees of it and have gotten through some really hard stuff. My only concern is, could she develop new obssesions and from getting ideas by watching this? I know that OCD is really tricky and she is not even close to finding the right SSRI for it and hasn't begun ERP yet. (still looking for a therapist covered by our insurance) > > Thanks for your input, > Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 That's so funny! sometimes we read a book with dd8 about someone else, or meet someone with different compulsions, and she will actually say " how can they think that mom! " . Which just makes me smile - and then we talk about empathy, and how to relate back to her fears. She has cousins with OCD, so that helps to normalize. I did find that she would pick up a fear or compulsion that was related to her area (scrupulosity and contamination) but would not pick up tapping or hoarding, etc. Once the ERP really kicked in, then she was better able to handle learning things in her area of concern. Which is a good thing, because 3rd graders seem to talk about barfing and poision, etc ALL THE TIME! in NC. > > I don't think you will cause new obsessions/compulsions.? My kids both have OCD and couldn't be more different in their " issues. " ? They are often puzzled by each other's compulsions.? Kelley in NV > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi Colleen, what with all the books, plus ones for kids, about OCD and giving situations/OC behaviors in them, I don't think she'll " pick up " any new obsessions from watching it. Usually the books, hearing about others, meeting others at a support group or at the OCD conference, etc., benefits them. That said, can't say it might not prick any present OC behaviors, a chance it could. Say, if she's worried about germs constantly, maybe something in the show might be said about a " germy object " that she hadn't thought about before and start to avoid touching (e.g., money). Another - my son suffers from scrupulosity type OCD. I had a " touch " of this myself in the past but hadn't been bothered by it in years much. So when his scrupe began and was severe and I, of course, began thinking/worrying so much about his suffering and what his thoughts/worries might be (he wouldn't be specific), have to say this pricked my thoughts back up; only I can shrug them off, but they do pop in my head now. -- Like with this " doubting disease " of OCD there is no 100% certainty on anything. (okay, besides what, death & taxes?) Anyway - I'd go for her watching it. > > Hi, > > My daughter (13yrs) has mentioned many times that no one has what she has or knows what it's like for her. I found a program on abc.com about children with OCD and the hope of how it can be treated with SSRI's and ERP therapy. It was heart wrenching to watch, for me, but thought it had a happy ending so it would be of help. I am thinking that she will see the kids profiled and feel much better knowing there are some kids with even more severe degrees of it and have gotten through some really hard stuff. My only concern is, could she develop new obssesions and from getting ideas by watching this? I know that OCD is really tricky and she is not even close to finding the right SSRI for it and hasn't begun ERP yet. (still looking for a therapist covered by our insurance) > > Thanks for your input, > Colleen > > > Colleen > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi Barb, Thank you for the information on inositol. I may give that a try... sounds promising. The book Talking Back to OCD, is that helpful in ways for me to help coach my son? I never realized how horrible OCD is. People toss the term OCD around all the time not really knowing what real OCD does to a person. It is devasting watching the pain my son is going through. Thank you and glad to hear your son is doing better! Gives me the hope I am looking for. Kerrie ________________________________ To: Sent: Saturday, September 19, 2009 2:26:34 PM Subject: Re: Can I cause new obssessions/compulsions? Hi Kerrie and Colleen too! Just wanted to say that OCD, and new thoughts, can be triggered by just about anything. You can't really prevent this. However, with a younger child I might protect from seeing something if I thought it would not ultimately be helpful. The theme, that " no one understands " , is common, and is valid really. Ours was 15 at severe onset and said and felt this always. They generally don't have much energy left to worry about how it might be affecting those around them, plus self centred nature of a teen added, we found. Ours was not interested in hearing about anyone else with OCD, or to connect with anyone, and in fact would insist he was the only one who suffered as much as he did(somewhat individual to personality, age and stage, I suspect). Many girls I hear of want very much to connect with others and to talk about it. Also, OCD can swich from one thing to another, just the nature of it. Ours had contamination issues, and it could switch from needing to shower for long periods, to the opposite, not showering to avoid the stress of it all. OCD will search for things to worry and obsess about, and that can occur just within the mind, without any outside encouragement. ... Ours has a great imagination that just fed into the OCD, never-endingly! Would also switch from contamination stuff to " just right " stuff, where things have to go a certain way, or finish a certain way, or feel a certain way. It would seem like the contamination stuff would disappear, and we would think it was better, but it had switched to something else, often that was hidden. Or our son was doing mental rituals in his head to counter it, and not have to do physical rituals that would be seen. In the end, with ours, there is nothing to see, it was all mental rituals, and could be hidden. So it can be hard to know sometimes what all is going on in their heads! You generally know if it is an OCD thing though, because there is a distinct reaction and added charge there. Kerrie, I can understand you concerns about medications. We have this history in our family too, and bipolar. I was very hesitant, but in the end there was no choice. If you discuss your concerns and give the family history, and then go very slowly with the meds, so that you can watch carefully. It is not an easy decision, but for many it can make such a difference. Alternately, there is something called inositol, a natural source of serotonin(easiest description) . Here is a link that will give you more information about this - http://westsuffolkp sych.homestead. com/inositol_ and_ocd.html You will also find some articles on OCD at this website, go to the homepage for links to. " Talking Back To OCD " , by March, is a good workbook you might look into. Aureen Pinto-Wagner' s book is very good for all 'round coverage of everything OCD. Hang in there, and keep getting more information. The more you understand this disorder the better equipped you will be to work with it. Warmly, Barb Ontario, Canada Son 18, OCD, LD - doing quite well now, for one year! > > Hi Colleen, > > I have a 14 year old son who says the same thing to me and his sisters..no one knows what it is like for him. His older sister's response was that " yes, we don't know what it is like for you...but you don't know what it is like for the rest of us in the house " ! Without sounding mean, she hit the nail on the head. I realized my son had OCD while on vacation in mid July. He has been going to therapy since the end of July. We are seeing a wonderful therapist that I found on the ocfoundation. org website. She specializes in Cognitive-Behaviora l therapy for OCD. I too was afraid for my son to see the GMA Special on OCD. It was aired just as I was learning about OCD, prior to him starting therapy. I thought and I still think (don't know if it's true) that he will pick up other peoples habits. Needless-to- say, he didn't watch that special. When I realized that he had OCD, I didn't even give it a name. I just reassured him that I was > going to help in any way possible so that he could stop washing his hands and that I found a Dr. that could help as well. I was seeing a small improvement since the therapy sessions started - we go every Tuesday - unfortunately she is almost 1 hour from our home & is not covered by our insurance. But again, if it helps I'm OK with it. Since school has started, he's in his first year of high school, he has had a difficult time. He cannot wash his hands during the day anymore. His OCD is now getting worse - picking up more obsessions! That was expected with the stress of school starting per his therapist. Honestly, I didn't know he would pick up new habits..I just thought the hand washing would increase in minutes & the number of times. I've spent many hours in search of help beyond a therapist. I really don't want to turn to SSRI's - it seems there is some type of family history in my family that I am not comfortable have been removed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Hi again Kerrie, Yes, I found the workbook helpful, and I think you would get some strategies out of it. It is the ERP approach spelled out basically. Can't remember now, everything in it, read so many books. But it is in the format of a workbook, so it could provide a structure for you to work from. Do you think your son would be willing to work with you? Ours really would not, but still it gave me ideas, and helped me be clear on what needed to happen, even if we couldn't do it! Can be the toughest part, getting them on board. It IS devastating to watch your child suffer, I understand, as does everyone here. As difficult as it is, know that your son can learn how to manage it, and to get his life back. I remember feeling that would never happen, and really did lose hope for a while, as our son seemed lost to us. But eventually when medications were stabilized, and the anxiety reduced, he was what I call " ready, willing, and able " to take it on. Do take care of yourself! Caring for someone with OCD really takes it's toll, and can take you down too. It will get easier with time, and crazy as it sounds, becomes your " normal " . Hugs to you! Barb > > > > Hi Colleen, > > > > I have a 14 year old son who says the same thing to me and his sisters..no one knows what it is like for him. His older sister's response was that " yes, we don't know what it is like for you...but you don't know what it is like for the rest of us in the house " ! Without sounding mean, she hit the nail on the head. I realized my son had OCD while on vacation in mid July. He has been going to therapy since the end of July. We are seeing a wonderful therapist that I found on the ocfoundation. org website. She specializes in Cognitive-Behaviora l therapy for OCD. I too was afraid for my son to see the GMA Special on OCD. It was aired just as I was learning about OCD, prior to him starting therapy. I thought and I still think (don't know if it's true) that he will pick up other peoples habits. Needless-to- say, he didn't watch that special. When I realized that he had OCD, I didn't even give it a name. I just reassured him that I > was > > going to help in any way possible so that he could stop washing his hands and that I found a Dr. that could help as well. I was seeing a small improvement since the therapy sessions started - we go every Tuesday - unfortunately she is almost 1 hour from our home & is not covered by our insurance. But again, if it helps I'm OK with it. Since school has started, he's in his first year of high school, he has had a difficult time. He cannot wash his hands during the day anymore. His OCD is now getting worse - picking up more obsessions! That was expected with the stress of school starting per his therapist. Honestly, I didn't know he would pick up new habits..I just thought the hand washing would increase in minutes & the number of times. I've spent many hours in search of help beyond a therapist. I really don't want to turn to SSRI's - it seems there is some type of family history in my family that I am not comfortable have been > removed] > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 I haven't shown the ABC episode to my 11-yr. old daughter, , but it's because she has contamination fears. I'm afraid that if she sees the girl who washed out the washer before doing laundry, will start wondering about the cleanliness of our washer. We have lots of issues already with clothes being dirty because they touched the floor, or pillows being dirty because they touched the sofa! Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Colleen, was this a 20/20 episode, or what was the name? Thanks, Sent via BlackBerry by AT & T Can I cause new obssessions/compulsions? Hi, My daughter (13yrs) has mentioned many times that no one has what she has or knows what it's like for her. I found a program on abc.com about children with OCD and the hope of how it can be treated with SSRI's and ERP therapy. It was heart wrenching to watch, for me, but thought it had a happy ending so it would be of help. I am thinking that she will see the kids profiled and feel much better knowing there are some kids with even more severe degrees of it and have gotten through some really hard stuff. My only concern is, could she develop new obssesions and from getting ideas by watching this? I know that OCD is really tricky and she is not even close to finding the right SSRI for it and hasn't begun ERP yet. (still looking for a therapist covered by our insurance) Thanks for your input, Colleen Colleen Quote Link to comment Share on other sites More sharing options...
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