Re: Re: OCD and Aspergers-- Children who don't fit the description

[Guest guest]

Sheree,

My daughter is very similar.  She is 12 years old and has always been very

social and outgoing.  She has many traits of Asperger's, but was too social for

the diagnosis.  But I do consider her an Aspie.  Her two younger sisters are

diagnosed with Asperger's and she acts more Aspie than them half the time.  

But anyway.. She tends to talk about her obsessions a lot with other kids and

her obsessions tend to be socially acceptable and things that other kids are

generally into.  She's just into them 10X more.  But she LOVES to be in charge

and very much thrives on being in charge of groups of children.  She loves to

put together clubs and she HAS to be president, of course.  She is diagnosed

with Tourette's, OCD, ADHD (inattentive type), and " Asperger traits " .  She is

also diagnosed with SPD, dyscalculia, dysgraphia, and synesthesia.  I think she

also probably has hyperlexia.  She was a VERY early reader without any formal

instruction.  And she is still obsessed with words and reading. 

She is actually quite shy around adults these days, but very outgoing around

other children.  In fact, she never stops talking and cracking jokes when she's

around other kids.  She is very much the center of attention and the other kids

tend to gravitate toward her and follow her. 

It's interesting though because the Asperger's is VERY MUCH there with her.  She

is EXTREMELY rigid... With routines, with her thinking, with correcting other

people.  She has to be right all the time.  She gets upset very easily, flaps

her hands when she's excited, has a HUGE vocabulary and sounds like she's 30

when she talks, but still plays with dolls and is afraid to get her face wet. 

She is also VERY obsessive.  She cannot carry on a conversation without talking

about her obsessions.  She also has very little pragmatic language.  She talks a

lot, but never makes inquiries or asks questions to her peers.  No social

language at all.  She just spits out information about her obsessions or she

will throw out her encyclopedic knowledge about whatever topic is being

discussed.  And let me tell you, she is the epitome of the phrase " walking

encyclopedia " .  The child needs to go on Jeopardy. 

But I very much agree with you that there are kids in this category who don't

fit into any of the spectrum disorder categories, but still have those issues.

Misty

Aspie mom to 4 on the spectrum

 

________________________________

To:

Sent: Sunday, September 13, 2009 8:59:47 PM

Subject: Re: OCD and Aspergers-- Children who don't fit the

quit fit the description

 

I personally think there is another group of kids that have not been given

a label yet. They have a conglomerate of disorders and skirt Aspergers but

they are a little more social then an Asperger child. They tend to not

respond to medication and they are harder to treat. I know my son has gone to

some top psychiatrist and neurologist and they say he stumps them. Abilify

helped but then my son developed tardive dyskinesia from the med and now he

can't take it and many other medications. My son also had tourettes in his

equation too. We didn't realize that he had it until later.

My son is super social to some degree and LOVES AND THRIVES on being the

person in charge in events. He copes with his anxiety with crowds and people

by being the " PERSON IN CHARGE " . He has GREAT EYE CONTACT and expressive

language skills now ( he is turning 15 in a few days) but when he was little

went to therapy for expressive language problems. He has beyond words great

written skills and teachers loves to write and make up documents for

school and his boy scout troop and other events. My son is hard to describe..

but yet he has traits that are on the Aspergers spectrum. He wants the

teachers and the staff at school to know who he is and makes sure to speak to

the them. He likes to interact with his peers but he wants them to look up

to him instead of treating them as an equal. Many of these symptoms went

away though while he was on the Abilify but have returned since coming off of

it. He is extremely mature for his age in some areas but in other areas

he is below adv. He is very attached to me and obsesses over whether or not

I love him. I personally have not met anyone like him before so it is

hard to explain.

Sheree