Sound sensitivity or Hyperacussis?

[Guest guest]

Dear Kassi, Sondra, lynn,

I happened to stumble onto a hyperacussis

message board, and as I read, it described 's debilitating sound

issues to a T. The big concern I have is that she's scheduled for AIT

in December, and some of the Hyperacussis sufferers have had AIT and

were WORSE after the therapy! I have to determine whether she has sound

sensitivity-just the component of Autism, or true hyperacussis. I 've

done some research and written some letters, and have some phone calls

to make. Just wondered if any of you are familiar with this problem

and/or had any thoughts about it? I certainly don't want her hooked up

to the wrong equipment and have her left with more painful hearing than

before. Thanks in advance, and Warm wishes! Joan-'s mom

[Guest guest]

I dont know how to tell the difference, but...if you arent sure about a

treatment...DONT DO

IT! There's probably a reason your gut is freaking out.

Kassiane

who's considering having a chunk of her brain taken out for seizures, and won't

look twice

>

> Dear Kassi, Sondra, lynn,

> I happened to stumble onto a hyperacussis

> message board, and as I read, it described 's debilitating sound

> issues to a T. The big concern I have is that she's scheduled for AIT

> in December, and some of the Hyperacussis sufferers have had AIT and

> were WORSE after the therapy! I have to determine whether she has sound

> sensitivity-just the component of Autism, or true hyperacussis. I 've

> done some research and written some letters, and have some phone calls

> to make. Just wondered if any of you are familiar with this problem

> and/or had any thoughts about it? I certainly don't want her hooked up

> to the wrong equipment and have her left with more painful hearing than

> before. Thanks in advance, and Warm wishes! Joan-'s mom

>

[Guest guest]

Hi Joan,

It is most likely that she does not have hyperacusis, but rather,

hyper-acute hearing. This is the case with most autistic people with

sound sensitivity. Has she always had these same difficulties? My

daughter was definitely born with hyper-acute hearing. Generally

hyperacusis is the result of some sort of insult resulting in sound

intolerance, such as chronic exposure to noise, head injury or a side

effect from drugs. If she has had experience with any of those,

resulting in tinnitus, then she might possibly have hyperacusis IN

ADDITION to hyper-acute hearing. Most autistic people respond well

to AIT and other sound therapies, while those with tinnitus/

hyperacusis (but not autism) do not. I would say unless you have a

good reason to suspect tinnitus due to an injury or insult such as I

described, then I would go ahead with the AIT. We have used in-home

Tomatis type CDs with my daughter and it has done wonders.

> Dear Kassi, Sondra, lynn,

> I happened to stumble onto a

> hyperacussis

> message board, and as I read, it described 's debilitating sound

> issues to a T. The big concern I have is that she's scheduled for AIT

> in December, and some of the Hyperacussis sufferers have had AIT and

> were WORSE after the therapy! I have to determine whether she has

> sound

> sensitivity-just the component of Autism, or true hyperacussis. I 've

> done some research and written some letters, and have some phone calls

> to make. Just wondered if any of you are familiar with this problem

> and/or had any thoughts about it? I certainly don't want her hooked up

> to the wrong equipment and have her left with more painful hearing

> than

> before. Thanks in advance, and Warm wishes! Joan-'s mom

>

>

>

>

>

>

[Guest guest]

Are you having increased seizures? I hear that surgery can work wonders...

Debi

>

> I dont know how to tell the difference, but...if you arent sure

about a treatment...DONT DO

> IT! There's probably a reason your gut is freaking out.

>

> Kassiane

> who's considering having a chunk of her brain taken out for

seizures, and won't look twice

>

[Guest guest]

I had a friend in high school who had that surgery done and it was a

miraculous difference! Long recovery though. And then afterwards he

started doing drugs that brought them back...but I know you are

smarter than that!

Amnesty

> >

> > I dont know how to tell the difference, but...if you arent sure

> about a treatment...DONT DO

> > IT! There's probably a reason your gut is freaking out.

> >

> > Kassiane

> > who's considering having a chunk of her brain taken out for

> seizures, and won't look twice

> >

>

[Guest guest]

Yeah. I'm having a totally rediculous number of seizures, was in the hospital

for status

epilepticus, and am out of meds to try that don't have a contraindication.

Woohoo. At the

end of the month I go for an extended EEG to start the surgury evaluation

process...at this

point, they can take just about whatever part of my brain they want. 20 seizures

a day is

too many. 8 is average lately. blargh.

Kassiane

> >

> > I dont know how to tell the difference, but...if you arent sure

> about a treatment...DONT DO

> > IT! There's probably a reason your gut is freaking out.

> >

> > Kassiane

> > who's considering having a chunk of her brain taken out for

> seizures, and won't look twice

> >

>

[Guest guest]

What are the cd's you talked about ? Also what is AIT ? I would like to

know what I can do for my daughter whom is 6 and is so sound sensitive

most of the time she runs from the house to the van covering her ears.

If she hears ANY loud vehicles she freaks on us. Pleading to stop them

from coming. Toilets in public are another big issue. Is there

something real important I should be doing now? Some little things are

just to much to bare sometimes.

and Shellbe 6 ASD

[Guest guest]

I'm sorry you're having so much difficulty. Keep us posted on what's

going on. I'm sure that must be a horrible way to try and live life,

you're such a beautiful, energetic lady.

Debi

>

> Yeah. I'm having a totally rediculous number of seizures, was in the

hospital

[Guest guest]

Info about AIT (auditory integration therapy)

http://www.vision3d.com/adhd/index.shtml#AIT

CD's we used;

http://www.vision-audio.com/

>

> What are the cd's you talked about ? Also what is AIT ? I would like to

> know what I can do for my daughter whom is 6 and is so sound sensitive

> most of the time she runs from the house to the van covering her ears.

> If she hears ANY loud vehicles she freaks on us. Pleading to stop them

> from coming. Toilets in public are another big issue. Is there

> something real important I should be doing now? Some little things are

> just to much to bare sometimes.

>

> and Shellbe 6 ASD

>