Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 I have no idea if what I'm about to suggest might help, especially if there are major diarrhea or gut problems. Evan has spina bifida in addition to the DS and therefore it is highly probable he may never be potty trained. But we give him enemas --with soap and water only and researching this has told me many people do this kind of enema daily with no side effects or problems. In fact they consider it to be healthy. It has been a much much better way for us in that we can schedule them and no longer have to worry about bm's at the worst of times. I wish we had started doing this from about age 2 on. Would've saved me a lot of trouble. The nurse in the SB clinic tells me they are now recommending them much earlier. In Evan's case though he only needs an enema every 2 or 3 days. I know. I wish it were daily but it's a waste of time, he's just not gonna go every day. The SB clinic thinks we're doing great with this so . . . I have posted before that giving an enema before baths and swimming is absolutely a life saver.Evan has a vesicostomy which is a hole which drips constantly from the bladder so he wears a Serenity incontinent pad over that with a Good-nite pullup on for any extra leakage. Just thought this might help someone.Priscilla Kendrick, married 33 years to Darrel and parents of 9 kids including Evan, 14, born with Down Syndrome and Spina Bifida "My strength is made perfect in weakness." "My grace is sufficient." II Corinthians 12:9 KJV 4a. i am becoming a mentally deranged unstable mother and I need to vent Posted by: " Dinkins-Borkowski" julie@... phoebebork I cannot potty train her. Every blow out diaper, every poopie mess leaves me crying & sobbing uncontrollably and I know that cannot be good. To add insult to injury, her poops are the grossest kind you can ever imagine with the gut issues she has! It has been six years of 24 x7 diapering, and I do not think the mothers of typical kids have any idea what that does to a person. I have tried everything and now it just makes me wonder, is the yelling screaming and punishment phase what will work? I hate to think that way, but I am at my wits end and I feel like the padded cell is where I am headed next. At least there I wont have to change diapers, right? I hate the way I feel and our home life is truly suffering. Peace, D-B Quote Link to comment Share on other sites More sharing options...
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