Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 I'm another one who can't take iron (also autistic)...but I'm on a snotload of selenium for heavy metal poisoning (confirmed by blood test by an environmental doctor-lead, arsenic and mercury). And my levels are finally at normal but since like most autistic people I'm low in metallathion he wants me to keep taking all the detox stuff except the eating-tons-and- tons-of-cilantro (which is what the only relatively SAFE chelator is derived from anyway). Kassiane who suspects that doc is a bit towards the spectrum himself > > This is a wonderful plan for healthy babies. I got the link from the > Autism_iron list. One of the posters is an expert on iron and selenium, > well, more than that, he is brilliant. I highly recommend the > Autism-iron list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 I highly (no, extremely highly) recommend Autism-Mercury and frequent-dose-chelation as well as Andy Cutler PhD's books Amalgam Illness and Hair Test Interpretation for insight and information about the autism signs and symptoms which can actually be from toxic levels of mercury, iron, and other metals in the body. Andy's books are must-reads for parents of ASD children and people on the spectrum, themselves. Cilantro and cilantro-derived chelators are NOT safe. Despite their advertising and crapola about " clathration " . They can lead to re-distribution of mercury. Low metallothionein is due to still being mercury toxic. Blood tests are only good for current and recent exposure. Blood tests don't detect mercury that has been pulled out of the blood and been deposited in tissues. Also, " challenge " tests (urine, or blood drawn following a large dose of a chelator) are HIGHLY dangerous. Do you happen to know if you are low or high cysteine? If you are low then milk (especially fresh raw milk) can help. Selenium is really important. I hope you are not on a toxic form. Brazil nuts are the richest source of bioavailable NON-TOXIC selenium. HTH, .... > > I'm another one who can't take iron (also autistic)...but I'm on a > snotload of selenium for > heavy metal poisoning (confirmed by blood test by an environmental > doctor-lead, arsenic > and mercury). And my levels are finally at normal but since like most > autistic people I'm low > in metallathion he wants me to keep taking all the detox stuff except the > eating-tons-and- > tons-of-cilantro (which is what the only relatively SAFE chelator is > derived from anyway). > > Kassiane who suspects that doc is a bit towards the spectrum himself > > > > > > This is a wonderful plan for healthy babies. I got the link from the > > Autism_iron list. One of the posters is an expert on iron and selenium, > > well, more than that, he is brilliant. I highly recommend the > > Autism-iron list. > > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 The thing about cilantro is that most people do not understand how to take it properly. Cilantro removes mercury from the cells and the nerves, but the problem occurs when the mercury goes into the gut. You need a secondary chelator that removes the mercury from the gut such as disodium EDTA. (http://www.edtadirect.com/) The biggest problem with metals redistribution is not the use of cilantro, or any other chelator. It is actually the issue of constipation which causes the heavy metals to be recirculated. If the bowels are not working properly than any form of chelation can cause redistribution. I have used a cilantro " chelation pesto " with great success and no side effects. 4 cloves garlic 1/3 cup Brazil nuts (selenium) 1/3 cup sunflower seeds (cysteine) 1/3 cup pumpkin seeds (zinc, magnesium) 2 cups packed fresh cilantro (coriander, Chinese parsley) (vitamin A) 2/3 cup flaxseed oil 4 tablespoons lemon juice (vitamin C) 2 tsp dulse powder Sea salt to taste Process the cilantro and flaxseed oil in a blender until the coriander is chopped. Add the garlic, nuts and seeds, dulse and lemon juice and mix until the mixture is finely blended into a paste. Add a pinch to sea salt to taste and blend again. > I highly (no, extremely highly) recommend Autism- > Mercury and > frequent-dose-chelation as well as Andy Cutler > PhD's books > Amalgam Illness and Hair Test Interpretation for insight and > information > about the autism signs and symptoms which can actually be from > toxic levels > of mercury, iron, and other metals in the body. Andy's books are > must-reads > for parents of ASD children and people on the spectrum, themselves. > > Cilantro and cilantro-derived chelators are NOT safe. Despite their > advertising and crapola about " clathration " . They can lead to > re-distribution of mercury. > > Low metallothionein is due to still being mercury toxic. Blood tests > are only good for current and recent exposure. Blood tests don't > detect > mercury that has been pulled out of the blood and been deposited in > tissues. > Also, " challenge " tests (urine, or blood drawn following a large > dose of a > chelator) are HIGHLY dangerous. > > Do you happen to know if you are low or high cysteine? If you are > low then > milk (especially fresh raw milk) can help. > > Selenium is really important. I hope you are not on a toxic form. > Brazil > nuts are the richest source of bioavailable NON-TOXIC selenium. > > > HTH, > ... > > > >> >> I'm another one who can't take iron (also autistic)...but I'm on a >> snotload of selenium for >> heavy metal poisoning (confirmed by blood test by an environmental >> doctor-lead, arsenic >> and mercury). And my levels are finally at normal but since like most >> autistic people I'm low >> in metallathion he wants me to keep taking all the detox stuff >> except the >> eating-tons-and- >> tons-of-cilantro (which is what the only relatively SAFE chelator is >> derived from anyway). >> >> Kassiane who suspects that doc is a bit towards the spectrum himself >> >> >>> >>> This is a wonderful plan for healthy babies. I got the link from the >>> Autism_iron list. One of the posters is an expert on iron and >>> selenium, >>> well, more than that, he is brilliant. I highly recommend the >>> Autism-iron list. >> >> >> >> >> >> >> Autism_in_Girls-subscribe >> ------------------------ >> Autism_in_Girls-unsubscribe >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 > > I highly (no, extremely highly) recommend Autism-Mercury and > frequent-dose-chelation as well as Andy Cutler PhD's books > Amalgam Illness and Hair Test Interpretation for insight and information > about the autism signs and symptoms which can actually be from toxic levels > of mercury, iron, and other metals in the body. Andy's books are must-reads > for parents of ASD children and people on the spectrum, themselves. > > Cilantro and cilantro-derived chelators are NOT safe. Despite their > advertising and crapola about " clathration " . They can lead to > re-distribution of mercury. > > Low metallothionein is due to still being mercury toxic. Blood tests > are only good for current and recent exposure. Blood tests don't detect > mercury that has been pulled out of the blood and been deposited in tissues. > Also, " challenge " tests (urine, or blood drawn following a large dose of a > chelator) are HIGHLY dangerous. > > Do you happen to know if you are low or high cysteine? If you are low then > milk (especially fresh raw milk) can help. > > Selenium is really important. I hope you are not on a toxic form. Brazil > nuts are the richest source of bioavailable NON-TOXIC selenium. > They did a blood test because it was recent exposure; I'd just moved from an area where the ambient mercury is so high they're testing *everyone*. He also says challenge tests are dangerous. My doc said DMSA is a derivative of cilantro...and gave us very specific instructions. And an insane-feeling supplement/diet regimin. I'm on pill selenium, because there's days that eating nuts is just " ugh. food. no. " I get random food aversions...though Brazil nuts are in the Snack Cabinet. Cysteine I've got no idea about. I do know I'm not casein intolerant so long as I *am* gluten free (can only handle so many peptides or something), and we drink organic milk. Kassiane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 > > The thing about cilantro is that most people do not > understand how to take it properly. Cilantro removes > mercury from the cells and the nerves, but the problem > occurs when the mercury goes into the gut. You need a > secondary chelator that removes the mercury from the > gut such as disodium EDTA. (http://www.edtadirect.com/) > > The biggest problem with metals redistribution is not the use of > cilantro, > or any other chelator. It is actually the issue of constipation > which causes the > heavy metals to be recirculated. If the bowels are not working > properly than any form of chelation can cause redistribution. > > I have used a cilantro " chelation pesto " with great success and > no side effects. That sounds yummy. And has all the nutrients Im taking...and...heh. One of the side effects of taking all them, plus Omega 3s (certified metal free) is...ah...everything moves faster. Nothing reabsorbed here....*tries to whistle* Kassiane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hey! That was a little harsh! is a HUGE attribute to this group and has been for a LONG time. I have yet to see give wrong advice and trust me, many of us have asked for it over the last couple years. Chelation is certainly something that I know nothing about so I wont even get involved in the conversation about that. I think that if you are going to tell that " You are obviously not familiar with the chemical properties of what you are talking about. " Then you had better be able to back that up. is a pretty smart lady that perhaps you are under estimating. We all have different opinions on this group and that's what makes the group go round but it has to be done in a tactful way. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Listen, , I take EDTA from time to time. EDTA is NOT a chelator of mercury. PERIOD. I wouldn't bother with disodium EDTA, personally. Your advice, though well-meaning is WRONG. PERIOD. You are obviously not familiar with the chemical properties of what you are talking about. Unfortunately how constipated someone is, is not a controlling factor in the efficacy of a a particular chelator. Secondary schmecondary that is just WRONG. PERIOD. I have been on chelation lists for years and your well-meaning ideas have been debunked and exposed too many times to count by well-qualified, published chemists who are experts in the field chelation. Andy Cutler, PhD, is a frequent poster on both AutismMercury and Frequent-dose-chelation . Any legitimate chemist knows that what you are recommending is not a good idea. At best it is like playing Russian Roulette. I encourage you to check out the easily accessible lists, I've mentioned, or correspond with Andy Culter - or any knowledgeable chemistry professor. Also, btw, many of the moms of autistic kids (and the kids themselves) have undiagnosed autoimmune thyroid disease. Any source of iodine, such as seaweed (dulse), or iodized salt, can cause increased antibody attack against the thyroid. The only well-tolerated form of iodine (an essential nutrient) in the case of autoimmune thyroid is thyroid hormone therapy (preferrably Natural Armour Thyroid - not synthetic T4.) Leaving out the cilantro and the dulse it's a very nice recipe. Very respectfully, .... > > The thing about cilantro is that most people do not > understand how to take it properly. Cilantro removes > mercury from the cells and the nerves, but the problem > occurs when the mercury goes into the gut. You need a > secondary chelator that removes the mercury from the > gut such as disodium EDTA. (http://www.edtadirect.com/) > > The biggest problem with metals redistribution is not the use of > cilantro, > or any other chelator. It is actually the issue of constipation > which causes the > heavy metals to be recirculated. If the bowels are not working > properly than any form of chelation can cause redistribution. > > I have used a cilantro " chelation pesto " with great success and > no side effects. > > 4 cloves garlic > > 1/3 cup Brazil nuts (selenium) > > 1/3 cup sunflower seeds (cysteine) > > 1/3 cup pumpkin seeds (zinc, magnesium) > > 2 cups packed fresh cilantro (coriander, Chinese parsley) (vitamin A) > > 2/3 cup flaxseed oil > > 4 tablespoons lemon juice (vitamin C) > > 2 tsp dulse powder > > Sea salt to taste > > Process the cilantro and flaxseed oil in a blender until the > coriander is chopped. Add the garlic, nuts and seeds, dulse and lemon > juice and mix until the mixture is finely blended into a paste. Add a > pinch to sea salt to taste and blend again. > > > > > > > > > I highly (no, extremely highly) recommend Autism- > > Mercury and > > frequent-dose-chelation as well as Andy Cutler > > PhD's books > > Amalgam Illness and Hair Test Interpretation for insight and > > information > > about the autism signs and symptoms which can actually be from > > toxic levels > > of mercury, iron, and other metals in the body. Andy's books are > > must-reads > > for parents of ASD children and people on the spectrum, themselves. > > > > Cilantro and cilantro-derived chelators are NOT safe. Despite their > > advertising and crapola about " clathration " . They can lead to > > re-distribution of mercury. > > > > Low metallothionein is due to still being mercury toxic. Blood tests > > are only good for current and recent exposure. Blood tests don't > > detect > > mercury that has been pulled out of the blood and been deposited in > > tissues. > > Also, " challenge " tests (urine, or blood drawn following a large > > dose of a > > chelator) are HIGHLY dangerous. > > > > Do you happen to know if you are low or high cysteine? If you are > > low then > > milk (especially fresh raw milk) can help. > > > > Selenium is really important. I hope you are not on a toxic form. > > Brazil > > nuts are the richest source of bioavailable NON-TOXIC selenium. > > > > > > HTH, > > ... > > > > > > > >> > >> I'm another one who can't take iron (also autistic)...but I'm on a > >> snotload of selenium for > >> heavy metal poisoning (confirmed by blood test by an environmental > >> doctor-lead, arsenic > >> and mercury). And my levels are finally at normal but since like most > >> autistic people I'm low > >> in metallathion he wants me to keep taking all the detox stuff > >> except the > >> eating-tons-and- > >> tons-of-cilantro (which is what the only relatively SAFE chelator is > >> derived from anyway). > >> > >> Kassiane who suspects that doc is a bit towards the spectrum himself > >> > >> > >>> > >>> This is a wonderful plan for healthy babies. I got the link from the > >>> Autism_iron list. One of the posters is an expert on iron and > >>> selenium, > >>> well, more than that, he is brilliant. I highly recommend the > >>> Autism-iron list. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I very much appreciate that, Pennie. I never take my advice lightly, and would certainly never give advice about something as complex as chelation without complete confidence in what I was saying. I was primarily addressing Kassiane's specific circumstance based on what she had told us abput lab results and what I already know about her from the last couple of years. It is quite obvious that is extremely passionate about her views. What we often lose sight of is that as passionately as we may feel about something, there is going to also be someone who feels just as passionately about the opposite point of view. That's what these lists are for.....to give everyone a voice. There are many experts and many expert opinions, many of which contradict each other. If education and experience qualifies someone as an expert, then I would hope I could consider myself an expert. I do want to reply to 's concerns, but I've got a 50 mile drive in the pouring rain and fog to my first class, and I will reply sometime today between classes. Thanks again for your nice post. > Hey! That was a little harsh! is a HUGE attribute to this > group and > has been for a LONG time. I have yet to see give wrong advice > and trust > me, many of us have asked for it over the last couple years. > Chelation is > certainly something that I know nothing about so I wont even get > involved in the > conversation about that. I think that if you are going to tell > that " You > are obviously not familiar with the chemical properties of what > you are > talking about. " Then you had better be able to back that up. > is a pretty > smart lady that perhaps you are under estimating. We all have > different > opinions on this group and that's what makes the group go round > but it has to be > done in a tactful way. > > Pennie > Abby's Mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi! Penny - >> We all have different opinions on this group and that's what makes the group go round but it has to be done in a tactful way. I urge you refer back to my post on Dec 1, 2005 5:24 PM. You will see that I tried to be very diplomatic about steering to sources where she could learn for herself how incorrect, and dangerous, her ideas were. Mercury toxic people have suffered very serious, sometimes irreversible, damage following advice such as offered and then re-asserted. I haven't impugned 's intelligence, nor her motives, nor her experience. It is obvious that no one familiar with the physical, chemical, kinetic properties of mercury, cilantro, disodium EDTA would assert that cilantro and disodium EDTA are safe or appropriate to use in this way. That is not a matter of opinion. That is a matter of chemistry. You are free to use the CRC Handbook to see for yourself. Any professor of chemistry can explain the same thing to you. Say you are driving at top speed toward a cliff and I tell you in a pleasant voice to stop, and you not only don't stop but insist it is the correct direction because someone, who gives directions for a living, charged you for the directions and you are sure this is the correct direction. Besides you are smart and wonderful and you have never driven off a cliff before. What do you think I should do? Let you drive over the cliff? Or really get your attention that you are headed the wrong way? Chemistry is not an opinion, nor a popularity contest. It is chemistry. There is a tremendous amount of misleading information that is being promulgated regarding chelation by lots of healthcare professionals who should know better; by well-meaning people on the internet. .... > > Hey! That was a little harsh! is a HUGE attribute to this group and > has been for a LONG time. I have yet to see give wrong advice and > trust me, many of us have asked for it over the last couple years. Chelation > is > certainly something that I know nothing about so I wont even get involved > in the conversation about that. I think that if you are going to tell > that " You > are obviously not familiar with the chemical properties of what you are > talking about. " Then you had better be able to back that up. is a > pretty > smart lady that perhaps you are under estimating. We all have different > opinions on this group and that's what makes the group go round but it > has to be done in a tactful way. > > Pennie > Abby's Mom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Sorry, I misspelled your name, Pennie. > > Hi! Penny - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 It appears this particular subject is becoming frustrating to some of you. We have all done our best to provide insight and advice per our point of view and experience. The human mind and the human body's chemical balance are complex and surely we can all admit that even the best of science and minds do not have all the answers. If you are familiar with string theory you will know that not only did the first theories prove the " minds of the time " wrong, but that to remove the anomalies it took one man willing to look at all points of view and conclude that all point of view were different ways of looking at the same answer. What seemed like a group of opposing views later became a group of explanations at different levels to provide one large correct answer. Let me use the cliff analogy to explain. From 's point of view, Penny is ignoring obviously qualified advice and is directly aimed at driving off a cliff. From this we can conclude that from 's point of view, she is at ground level with the cliff looking out at a distance at Penny who is aimed toward the edge. From her point of view, Christiana cannot see anything lower than the top edge of the cliff. (Please don't read into this as me saying she is short sighted, but I am trying to give you a visual.) From Pennies point of view, she sees behind her yelling don't go, while seeing yet another professional on the other side of the gorge yelling go ahead. She cannot see below the top edge of the cliff either but can hear both yelling. Now, let's step aside from the analogy for a moment and look at the information in question. After careful research I learned that EDTA or ethylenediaminetetraacetic acid is a novel molecule for complexing metal ions. It is a polyprotic acid containing four carboxylic acid groups and two amine groups with lone pair electrons. EDTA is synthesized on an industrial scale from ethylenediamine, <http://www.scidiv.bcc.ctc.edu/wv/form-0.html> formaldehyde, and a source of cyanide (HCN or NaCN). I also learned that besides the four carboxylic group hydrogens, EDTA can add two more hydrogens onto the amine groups. The structures can be the fully protonated form (forms at very low pH or very acidic condition H6Y+2 ), the typical form found in many textbook (classic form H4Y ), and the fully deprotonated (all acidic H's removed, forms at very high pH or alkaline conditions Y-4 ) form. The unusual property of EDTA is its ability to chelate or complex metal ions in 1:1 metal-to-EDTA complexes. The fully deprotonated form (all acidic hydrogens removed) of EDTA binds to the metal ion. The equilibrium or formation constants for most metals, especially the transition metals, are very large, hence the reactions are shifted to the complex. Many of the reactions are pH dependent, especially the weaker forming complexes with Ca+2 or Mg+2. M+n + Y-4 MYn-4 Kf = (MYn-4)/(M+n)(Y-4) And the cow jumped over the moon.Ok, so we can see this chemically gets very complex especially if you do not have a chemical science background. However, most of us do not understand light to this degree, but stop believing in light because you can't understand its creation would sound ridiculous. In other words, there is something to say for what we gain or see in life experience. So, we turn to professionals for guidance. Dr. Muttart ND is quoted " EDTA, on the other hand, does not remove mercury as it is a very weak chelator of mercury. EDTA can be toxic when taken daily by mouth for a prolonged time. Treatment for mercury and arsenic is thus quite different when considering chelation therapy. DMSA (dimercaptosuccinic acid) is the most effective oral chelating agent and is used as an oral chelator of mercury and lead. " (http://www.docrebecca.com/news_18.html) While Dr. Theodore B. Hoekman is quoted " Mercury can be chelated in the peripheral tissues with EDTA and penicillamine. Even though the plasma levels can be reduced very efficiently, mercury forms alkyl ligands in the tissues. " (http://www.luminet.net/~wenonah/hydro/heavmet.htm). Right there are two professional with what appears to be directly opposing views. However, after careful analysis of the resourses these doctors quote to support their views, we find the case studies vary widely. One study used by Dr. Muttart examined the effects of HgCl2 exposure (five doses of 5.0 mg/kg between ages 8 to 12 days) on physiological parameters, on porphobilinogen synthase activity, and on mercury content in liver, kidneys and brain from suckling rats. This study done in 2005 concluded that 2,3-Dimercapto-1-propanol does not alter the porphobilinogen synthase inhibition but decreases the mercury content in liver and kidney of suckling rats exposed to HgCl2 . Her findings are based on several other people's research too. Dr. Hoekman is based on research done in 2002 and ongoing at the American College for the Advancement of Medicine on 40 human test subjects receiving treatment through intravenous methods. The details are available on the ACAM site. He bases his research on several other people's research and his own clinical trials. Both are convincing but what detail is missing for me is what form of EDTA was tested, what other factors were involved such as purpose of test and who brought in second or third opinions. Science is ever evolving and we are all racing to catch up. Whatever the case, I think I have provided enough detail here to show my point..so back to the cliff analogy. Perhaps the doctor on the other side of the cliff sees a ledge just below the edge that neither Penny nor can see, just waiting to be explored. When one endeavors to know the mind of God and the world He created, one is bound to learn 2 unchanging Truths 1) We are all fallen human beings and as long as we live on the earth we can never know all the right answers for achieving ultimate perfection is not possible as a human and 2) The one who continues to step closer and closer to Truth is the one who realizes we must listen to everyone even the dull and ignorant to learn of the beautiful complexities of this world. Perhaps future research will show that in different environments and with different forms of these chemical structures will show both of you to be right or both of you to be wrong. Let us not assume that one does not respect the others input when one does not on the surface agree. Take it as another branch on the tree of life. Sorry for the long post, but a short post would not have done this point justice. Re: Re: link to Brewer Baby site Hi! Penny - >> We all have different opinions on this group and that's what makes the group go round but it has to be done in a tactful way. I urge you refer back to my post on Dec 1, 2005 5:24 PM. You will see that I tried to be very diplomatic about steering to sources where she could learn for herself how incorrect, and dangerous, her ideas were. Mercury toxic people have suffered very serious, sometimes irreversible, damage following advice such as offered and then re-asserted. I haven't impugned 's intelligence, nor her motives, nor her experience. It is obvious that no one familiar with the physical, chemical, kinetic properties of mercury, cilantro, disodium EDTA would assert that cilantro and disodium EDTA are safe or appropriate to use in this way. That is not a matter of opinion. That is a matter of chemistry. You are free to use the CRC Handbook to see for yourself. Any professor of chemistry can explain the same thing to you. Say you are driving at top speed toward a cliff and I tell you in a pleasant voice to stop, and you not only don't stop but insist it is the correct direction because someone, who gives directions for a living, charged you for the directions and you are sure this is the correct direction. Besides you are smart and wonderful and you have never driven off a cliff before. What do you think I should do? Let you drive over the cliff? Or really get your attention that you are headed the wrong way? Chemistry is not an opinion, nor a popularity contest. It is chemistry. There is a tremendous amount of misleading information that is being promulgated regarding chelation by lots of healthcare professionals who should know better; by well-meaning people on the internet. .... > > Hey! That was a little harsh! is a HUGE attribute to this group and > has been for a LONG time. I have yet to see give wrong advice and > trust me, many of us have asked for it over the last couple years. Chelation > is > certainly something that I know nothing about so I wont even get involved > in the conversation about that. I think that if you are going to tell > that " You > are obviously not familiar with the chemical properties of what you are > talking about. " Then you had better be able to back that up. is a > pretty > smart lady that perhaps you are under estimating. We all have different > opinions on this group and that's what makes the group go round but it > has to be done in a tactful way. > > Pennie > Abby's Mom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Okay, NOT to jump into this, but here I go, lol! I've been on the autism-mercury board for several years. I do not understand the intricacies of chelation the way that and seem to. I will say I do give Allie the Andy Cutler protocol. BUT, I've also seen a friend whose son appears to lost most of his autism characteristics & excreted a ton of mercury from TD-DMPS. I've also seen another little guy do nothing with TD-DMPS. I've talked with a mom whose son is considered " virtually non-autistic " who was following a local homeopath's protocol to the point our pediatric neuro was noting the protocol because he was so impressed with the progress. Each of these are different. I chose a specific protocol based on my understanding and have seen Allie improve from it. I think the best measure of the various chelation protocols is improvement. If you research something, it sounds reasonable, you try it and see good results, then it's a good thing. If you try it and see bad results, clearly it isn't good without some changes. I've read enough debate on the various chelation protocol methods to believe most of them help some people some of the time. That's what really matters here. Clearly, we don't wanna see anyone suffer anything, such as I think it was Kassiane posting a couple years ago she knows someone with significant kidney problems from chelation. If it's relatively safe, people are making progress, then it should never be completely dismissed, but safety and health should be the number one goal. IMHO, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Wow ! You're so smart! I wonder if chelation will end up being like a class of drugs today. For example, my husband gets nothing from ibuprofen. If he has a headache it does *nothing* for him, but he takes a Goody Powder and gets better quickly. I take a Goody Powder and get nothing but a stomach ache. But give me some ibuprofen and I'm good to go. I've wondered what in us is so different that these affect us so greatly. I've wondered with chelation if we will eventually find several compounds are like that with the population, some working for some, others working for others. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 My grandfather always said " A persons intelligence is not base on what facts he knows, but on knowing where to find the facts. " I do not catalog all of this information. It is all based on research and intellectual deduction. However, I appreciate the compliment. As a society we must understand there is no one size fits all. Individuality is something no one want to really acknowledge because it requires us to 1) work harder to find answers and 2) make us accountable for ourselves. Both effects are most certainly not the easy way out. They are theories that explain why one medicine works for your husband and not for you, but they are merely theories. As you said, we can do the best we can with what we know and keep on trying new things. Yet nothing even the brightest minds create or discover is the final answer. It is daunting to wake up and realize that despite all we know, we know very little. Re: link to Brewer Baby site Wow ! You're so smart! I wonder if chelation will end up being like a class of drugs today. For example, my husband gets nothing from ibuprofen. If he has a headache it does *nothing* for him, but he takes a Goody Powder and gets better quickly. I take a Goody Powder and get nothing but a stomach ache. But give me some ibuprofen and I'm good to go. I've wondered what in us is so different that these affect us so greatly. I've wondered with chelation if we will eventually find several compounds are like that with the population, some working for some, others working for others. Debi Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I'm thinking it probably *is* something like that. Ibuprofin is also useless for me, but naproxen works *if it's inflammatory pain*. For a tension headache it's flexeril. And for other pain it's vicodin but NOT synthetic opiates *ever*. And for me, the " natural " chelation cut it. For the child I knew, the chelation protocol they used killed one of his kidneys...it had to be removed. If the natural chelation hadn't worked, I'd have been on DMSA...but the doc didn't want to go there because all 3 of my anticonvulsants are *also* through the kidneys. But sometimes being sensitive to everything is a good thing...like when trying to chelate metals with vitamins etc instead of DMSA, which is significantly harder on the kidneys. Kassiane > > Wow ! You're so smart! I wonder if chelation will end up being > like a class of drugs today. For example, my husband gets nothing from > ibuprofen. If he has a headache it does *nothing* for him, but he > takes a Goody Powder and gets better quickly. I take a Goody Powder > and get nothing but a stomach ache. But give me some ibuprofen and I'm > good to go. I've wondered what in us is so different that these affect > us so greatly. I've wondered with chelation if we will eventually find > several compounds are like that with the population, some working for > some, others working for others. > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi! - It is good of you to work so hard to try to put this in perspective. I'm certain that your grandpa would be proud of your efforts and he would likely agree that looking for the keys under the lamp post is not always productive when they were lost in the forest. The difficulty is not differing opinions but disregard of facts. Your efforts to present facts is very helpful. Yes, EDTA is a good chelator of calcium and aluminum (not expressly stated in you post.) " Weak chelator " does not imply that EDTA is a chelator of mercury, and certainly not that it is the safe chelator that some misinformed healthcare professionals believe it to be. It can however lead to random redistribution, as both Muttart and Hoekman have explained. Hoekman's quote about " mercury forms alkyl ligands in the tissues " is not a contradiction but rather a statement which supports and clarifies Muttart's quotation explaining why EDTA is potentially dangerous in the presence of mercury. Also when " mercury forms alkyl ligands in the tissues " the location of the tissues is not predictable, often with mercury crossing the BBB (blood brain barrier). When it mercury forms ligands in CNS tissue the result can be futher, unpredictable, often severe, often permanent damage. This is not opinion. The cases are recorded. No chelator is safe. There are dangers inherent in having toxic ions in our bodies and dangers in moving toxic metals either around in out bodies our completely out. The dangers can be minimized by following informed safe, frequent-low-dose chelation schedules with real chelators such as DMPS, DMSA, and ALA --- AFTER removing all current/ongoing sources of exposure such as dental amalgams and root canals (cadmium source.) Getting back to the use of EDTA (in any form, as a chelator of anything, other than as an oral chelator of calcium/aluminum). The recent death in Pennsylvannia of a young boy who was undergoing chelation therapy was very likely caused by his doctor's ignorance of, or utter disregard of, the chemical properties of EDTA and of the cardio-vascular system, in which calcium ions, and magnesium ions, play critical roles. Regardless of the form of EDTA (which is reported to have been Calcium EDTA IV " push " ) the IV EDTA chelated the the boy's calcium ( & magnesium) and stopped his heart. Again, physical properties are not Art Appreciation. You might say the boy died because of his doctor's opinion but I suggest it was because he disregarded the applicable, easily known, available, science. OK, since, you will see by any review of my posts or my appreciative exchanges even recent ones with , I am not a list troll, why would I be so adamant about this? If the above explanation doesn't adequately make the point, think of this. I have. Most of the people (or daughters of people) on this list very likely have some degree of mercury toxicity contributing to, if not directly causing, symptoms that make life quite challenging. If these unsafe ideas are implemented they might be some of the lucky ones, such as by her own report, who has not noticed side-effects. If on the other hand, the bullet is in the chamber -so to speak - of the chelation gun (sorry to use metaphors, it's an NT habit) then the moms or daughters could end up being another unfortunate anecdote. Sometimes the anecdotal cases that get worse can recover from a frequent-low-dose-chelation protocol. Sometimes, they can't. Do I want to see this happen to because her doctor is giving her wrong advice? Do I want to see this happen to anyone? BTW, in case we are tempted to think doctors always know what they are doing and what they are saying is correct, safe, and in our best interests, just look at the example above. Some of us also, now, know our docs were ignorant of the potential side-effects of vaccinations. I am pleased to help people find the information themselves. For example the manufacturer of DMSA can be contacted, directly, and they can explain that DMSA has nothing to do with cilantro. There are people who can answer the questions with facts. Facts that are not opinions. I appreciate this list and , and Pennie, Debi, , and everyone who makes this list the great list that it is. I hope that I have " backed up " my post, Pennie. If not, I urge you to talk with a knowledgeable pharmacist, chemistry professor, or the leading expert in chelation and author of two books on the subject, Andy Cutler, Ph.D. Once again I invite you to join the Autism-Mercury list which is a high-volume, international, list with the most informed chelation support available, perhaps in the world. BTW, , I have a similarly daunting commute and I not only feel for you, I pray that yours was easy and safe, today. I may be gone for part or all of the weekend. I'm sorry that in my human condition I couldn't think of a sweeter, clearer way to make my points. I really tried. I couldn't live with myself if someone got hurt for lack of facts. .... > > After careful research I learned that EDTA or > ethylenediaminetetraacetic acid is a novel molecule for complexing metal > ions. It is a polyprotic acid containing four carboxylic acid groups and > two amine groups with lone pair electrons. EDTA is synthesized on an > industrial scale from ethylenediamine, > <http://www.scidiv.bcc.ctc.edu/wv/form-0.html> formaldehyde, and a source > of > cyanide (HCN or NaCN). I also learned that besides the four carboxylic > group hydrogens, EDTA can add two more hydrogens onto the amine > groups. The > structures can be the fully protonated form (forms at very low pH or very > acidic condition H6Y+2 ), the typical form found in many textbook > (classic > form H4Y ), and the fully deprotonated (all acidic H's removed, forms at > very high pH or alkaline conditions Y-4 ) form. The unusual property of > EDTA is its ability to chelate or complex metal ions in 1:1 metal-to-EDTA > complexes. The fully deprotonated form (all acidic hydrogens removed) of > EDTA binds to the metal ion. The equilibrium or formation constants for > most metals, especially the transition metals, are very large, hence the > reactions are shifted to the complex. Many of the reactions are pH > dependent, especially the weaker forming complexes with Ca+2 or Mg+2. > > M+n + Y-4 MYn-4 Kf = (MYn-4)/(M+n)(Y-4) > > And the cow jumped over the moon.Ok, so we can see this chemically gets > very > complex especially if you do not have a chemical science background. > However, most of us do not understand light to this degree, but stop > believing in light because you can't understand its creation would sound > ridiculous. In other words, there is something to say for what we gain or > see in life experience. > > So, we turn to professionals for guidance. Dr. Muttart ND is > quoted > " EDTA, on the other hand, does not remove mercury as it is a very weak > chelator of mercury. EDTA can be toxic when taken daily by mouth for a > prolonged time. Treatment for mercury and arsenic is thus quite different > when considering chelation therapy. DMSA (dimercaptosuccinic acid) is the > most effective oral chelating agent and is used as an oral chelator of > mercury and lead. " (http://www.docrebecca.com/news_18.html) While Dr. > Theodore B. Hoekman is quoted " Mercury can be chelated in the peripheral > tissues with EDTA and penicillamine. Even though the plasma levels can be > reduced very efficiently, mercury forms alkyl ligands in the tissues. " > (http://www.luminet.net/~wenonah/hydro/heavmet.htm). Right there are two > professional with what appears to be directly opposing views. However, > after careful analysis of the resourses these doctors quote to support > their > views, we find the case studies vary widely. One study used by Dr. > Muttart > examined the effects of HgCl2 exposure (five doses of 5.0 mg/kg between > ages > 8 to 12 days) on physiological parameters, on porphobilinogen synthase > activity, and on mercury content in liver, kidneys and brain from suckling > rats. This study done in 2005 concluded that 2,3-Dimercapto-1-propanol > does > not alter the porphobilinogen synthase inhibition but decreases the > mercury > content in liver and kidney of suckling rats exposed to HgCl2 . Her > findings are based on several other people's research too. Dr. Hoekman > is > based on research done in 2002 and ongoing at the American College for the > Advancement of Medicine on 40 human test subjects receiving treatment > through intravenous methods. The details are available on the ACAM site. > He bases his research on several other people's research and his own > clinical trials. > > Both are convincing but what detail is missing for me is what form of EDTA > was tested, what other factors were involved such as purpose of test and > who > brought in second or third opinions. Science is ever evolving and we are > all racing to catch up. Whatever the case, I think I have provided enough > detail here to show my point..so back to the cliff analogy. Perhaps the > doctor on the other side of the cliff sees a ledge just below the edge > that > neither Penny nor can see, just waiting to be explored. When > one > endeavors to know the mind of God and the world He created, one is bound > to > learn 2 unchanging Truths 1) We are all fallen human beings and as long as > we live on the earth we can never know all the right answers for achieving > ultimate perfection is not possible as a human and 2) The one who > continues > to step closer and closer to Truth is the one who realizes we must listen > to > everyone even the dull and ignorant to learn of the beautiful complexities > of this world. Perhaps future research will show that in different > environments and with different forms of these chemical structures will > show > both of you to be right or both of you to be wrong. > > Let us not assume that one does not respect the others input when one does > not on the surface agree. Take it as another branch on the tree of life. > > Sorry for the long post, but a short post would not have done this point > justice. > > > > > > > > > > Re: Re: link to Brewer Baby site > > > > Hi! Penny - > > >> We all have different opinions on this group and that's what makes the > group go round but it has to be done in a tactful way. > > I urge you refer back to my post on Dec 1, 2005 5:24 PM. You will see that > I > tried to be very diplomatic about steering to sources where she > could > learn for herself how incorrect, and dangerous, her ideas were. Mercury > toxic people have suffered very serious, sometimes irreversible, damage > following advice such as offered and then re-asserted. I haven't > impugned 's intelligence, nor her motives, nor her experience. It is > obvious that no one familiar with the physical, chemical, kinetic > properties > of mercury, cilantro, disodium EDTA would assert that cilantro and > disodium > EDTA are safe or appropriate to use in this way. That is not a matter of > opinion. That is a matter of chemistry. You are free to use the CRC > Handbook > to see for yourself. Any professor of chemistry can explain the same thing > to you. > > > > Say you are driving at top speed toward a cliff and I tell you in a > pleasant > voice to stop, and you not only don't stop but insist it is the correct > direction because someone, who gives directions for a living, charged you > for the directions and you are sure this is the correct direction. Besides > you are smart and wonderful and you have never driven off a cliff > before. What do you think I should do? Let you drive over the cliff? Or > really get your attention that you are headed the wrong way? > > Chemistry is not an opinion, nor a popularity contest. It is chemistry. > There is a tremendous amount of misleading information that is being > promulgated regarding chelation by lots of healthcare professionals who > should know better; by well-meaning people on the internet. > > > ... > > > > > > > > > Hey! That was a little harsh! is a HUGE attribute to this group > and > > has been for a LONG time. I have yet to see give wrong advice and > > trust me, many of us have asked for it over the last couple years. > Chelation > > is > > certainly something that I know nothing about so I wont even get > involved > > in the conversation about that. I think that if you are going to tell > > > that " You > > are obviously not familiar with the chemical properties of what you are > > talking about. " Then you had better be able to back that up. is a > > pretty > > smart lady that perhaps you are under estimating. We all have different > > opinions on this group and that's what makes the group go round but it > > has to be done in a tactful way. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Not to worry here, , I won't EVER think a doctor always knows what he's/she's doing. In fact, it's the opposite, lol! BTW, Allie can't use DMSA, she gets pneumonia with it. <sigh> We stick with ALA only for her. Debi > BTW, in case we are tempted to think doctors always know what they are doing > and what they are saying is correct, safe, and in our best interests, just > look at the example above. Some of us also, now, know our docs were ignorant > of the potential side-effects of vaccinations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 I understand your presentation of facts. I would like to make it clear that I never took one position over another and that was not the point of my post. My information was provided purely to show you what I learned in my limited research for I had never even studied chemistry until I read the posts. What I stated is what I acquired in an afternoon of research. My presentation of my knowledge was necessary to let those who are more knowledgeable than I clearly see the pieces of the puzzle that I have. May I also clarify that I never said you were presenting your opinion. I used the word " perspective " and I believe it was misconstrued as " opinion. " By presenting the story about string theory, I showed that in science there can sometimes be facts presented by a group of scientists out of valuable research and experimentation that seem like the answer. Then another group of scientists will conduct experiments and research and come up with a different set of facts. The difference is usually the variety and breadth of their experimentation because everyone won't think of everything to consider all of the time. I do not deny that which you present is fact according to valuable research and experimentation. My intervention was twofold; 1) I wanted to remove the " heat " arising unintentionally in the discussion to facilitate better learning for all of us and 2) to remind us all that science is an ever evolving area of study. What may prove as a fact today on our current scales and experimentation may quite easily change by a strange discovery and insight by someone.like a Swiss paten clerk. I never took a position nor did I intend to indicate that you were merely presenting opinion. My position on the argument is controversial on its own because I really don't see the need to self medicate or keep such particular control over my diet. The difference may be because I do not seek to " cure " autism anymore than I seek to cure homosexuality, genius or skinny people. I quite honestly cannot see the problem with autism to the extent most make of it. I do not feel deprived, lesser or disabled being autistic, but it is the prejudice and unwillingness of others to exert mental effort beyond that of the accepted (or measured) norm that usually alienates me. I see myself as an individual with a gift to see the world through unconventional eyes. Truthfully, the ruler by which we measure normalcy is imaginary. One cannot prove what is normal or its causes any more than one can prove what is abnormal. We make educated estimates, theories and hypotheses based on what we think we can see and allow this to govern our lives. I live outside the box. Should the world make a place for those who do not fit our perception of normal, we would find more peace than ever imagined possible. I admit my opinion on this is bias. I cannot call myself a member of this society and not realize that some information comes with more press and fanfare, and others just seem conclusively factual. I appreciate your attention to morality and compassion, , by caring for the heath and welfare of another so greatly that you feel such strong words are necessary. I also appreciate and her willingness to openly expose her hard earned knowledge, putting it out there for all to see, realizing that such a presentation of this knowledge makes it open to analyzation and possible ridicule. It was never either of your intention to mislead, but to inform. I only wanted to bring us back to a point of open mindedness and thoughtful exchange so that we might all learn and refocus. Perhaps it should be remembered in the future that when one appears thirsty or asks for a drink, we must resist the urge to give them a bucket. Re: Re: link to Brewer Baby site > > > > Hi! Penny - > > >> We all have different opinions on this group and that's what makes the > group go round but it has to be done in a tactful way. > > I urge you refer back to my post on Dec 1, 2005 5:24 PM. You will see that > I > tried to be very diplomatic about steering to sources where she > could > learn for herself how incorrect, and dangerous, her ideas were. Mercury > toxic people have suffered very serious, sometimes irreversible, damage > following advice such as offered and then re-asserted. I haven't > impugned 's intelligence, nor her motives, nor her experience. It is > obvious that no one familiar with the physical, chemical, kinetic > properties > of mercury, cilantro, disodium EDTA would assert that cilantro and > disodium > EDTA are safe or appropriate to use in this way. That is not a matter of > opinion. That is a matter of chemistry. You are free to use the CRC > Handbook > to see for yourself. Any professor of chemistry can explain the same thing > to you. > > > > Say you are driving at top speed toward a cliff and I tell you in a > pleasant > voice to stop, and you not only don't stop but insist it is the correct > direction because someone, who gives directions for a living, charged you > for the directions and you are sure this is the correct direction. Besides > you are smart and wonderful and you have never driven off a cliff > before. What do you think I should do? Let you drive over the cliff? Or > really get your attention that you are headed the wrong way? > > Chemistry is not an opinion, nor a popularity contest. It is chemistry. > There is a tremendous amount of misleading information that is being > promulgated regarding chelation by lots of healthcare professionals who > should know better; by well-meaning people on the internet. > > > ... > > > > > > > > > Hey! That was a little harsh! is a HUGE attribute to this group > and > > has been for a LONG time. I have yet to see give wrong advice and > > trust me, many of us have asked for it over the last couple years. > Chelation > > is > > certainly something that I know nothing about so I wont even get > involved > > in the conversation about that. I think that if you are going to tell > > > that " You > > are obviously not familiar with the chemical properties of what you are > > talking about. " Then you had better be able to back that up. is a > > pretty > > smart lady that perhaps you are under estimating. We all have different > > opinions on this group and that's what makes the group go round but it > > has to be done in a tactful way. > > > > Pennie > > Abby's Mom > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 This is my first chance to get back to my computer after a very long day. As I mentioned this morning, we had some pretty hard rains here today and as we very recently had horrible brush fires, there is no vegetation left on many of the hillsides to keep them from sliding in the rain. A hillside on my daughter's school playground collapsed with children playing underneath. Lots of the kids, my daughter included, had to be taken to the hospital and treated for various injuries, luckily none too serious. has some scrapes and bruises, but seems to be handling things very well, so we are fortunate. I did not expect such voluminous reactions to this topic, but as tired as I am right now, I am happy that so many of my own sentiments have already been expressed by and Debi, and I need not reiterate them now. Essentially this is what it boils down to for me. Kassi posted that among other things, she had been eating cilantro as part of her detox program. I know a lot about Kassi's situation, since have been following it for quite some time now. She has posted test results, health issues, meds and supplements she is on, etc. Kassi is a member of our family here and I have come to care about her very much. I merely wanted to point out to her that cilantro could work very well in her particular circumstance, as she had in fact been using it, with apparently no problems to date. Kassi is very diligent about researching her own treatments and knows very well her risks and contraindications. To say that cilantro is always dangerous for everyone is just not the case. Every protocol, chelation or supplement or whatever, has the potential to be harmful. I have seen horror stories written about every chelator. Does this mean they are all dangerous and do not work? It means that they must be used correctly and each case must be looked at individually, taking many factors into consideration. I would not recommend cilantro to everyone wishing to chelate, nor would I recommend any other protocol to everyone. I have used cilantro personally, but for my daughter's detox I have chosen to forego chelators entirely and exclusively use homeopathy and energy medicine. She has dumped, mercury, arsenic, lead, aluminum, and most recently uranium, all without chelation. As for the EDTA, it was merely a suggestion for use to rid the gut on unbound metal toxins, deposited there after cilantro pulls them out of the tissues. There are many other options as well, including activated charcoal and Terramin, among others. I never give any advice on this list that I do not feel 100% confidence in, based on what we know now as scientists. I also know that knowledge is constantly evolving and all we can do is use the knowledge and experience we have at any given time, always being open to new information. That's what real science is all about. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Praises that is okay! Thanks, , for all your help over the last few years and for your friendship. I appreciate you! PennY > > This is my first chance to get back to my computer after a very long > day. As I mentioned this morning, we had some pretty hard rains here > today and as we very recently had horrible brush fires, there is no > vegetation left on many of the hillsides to keep them from sliding in > the rain. A hillside on my daughter's school playground collapsed > with children playing underneath. Lots of the kids, my daughter > included, had to be taken to the hospital and treated for various > injuries, luckily none too serious. has some scrapes and > bruises, but seems to be handling things very well, so we are fortunate. > > I did not expect such voluminous reactions to this topic, but as > tired as I am right now, I am happy that so many of my own sentiments > have already been expressed by and Debi, and I need not > reiterate them now. > > Essentially this is what it boils down to for me. Kassi posted that > among other things, she had been eating cilantro as part of her detox > program. I know a lot about Kassi's situation, since have been > following it for quite some time now. She has posted test results, > health issues, meds and supplements she is on, etc. Kassi is a > member of our family here and I have come to care about her very > much. I merely wanted to point out to her that cilantro could work > very well in her particular circumstance, as she had in fact been > using it, with apparently no problems to date. Kassi is very > diligent about researching her own treatments and knows very well her > risks and contraindications. To say that cilantro is always > dangerous for everyone is just not the case. Every protocol, > chelation or supplement or whatever, has the potential to be > harmful. I have seen horror stories written about every chelator. > Does this mean they are all dangerous and do not work? It means that > they must be used correctly and each case must be looked at > individually, taking many factors into consideration. I would not > recommend cilantro to everyone wishing to chelate, nor would I > recommend any other protocol to everyone. I have used cilantro > personally, but for my daughter's detox I have chosen to forego > chelators entirely and exclusively use homeopathy and energy > medicine. She has dumped, mercury, arsenic, lead, aluminum, and most > recently uranium, all without chelation. As for the EDTA, it was > merely a suggestion for use to rid the gut on unbound metal toxins, > deposited there after cilantro pulls them out of the tissues. There > are many other options as well, including activated charcoal and > Terramin, among others. > > I never give any advice on this list that I do not feel 100% > confidence in, based on what we know now as scientists. I also know > that knowledge is constantly evolving and all we can do is use the > knowledge and experience we have at any given time, always being open > to new information. That's what real science is all about. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 WAY across town PennY! LOL. Its quite a drive to get to each others houses so we don't get to see each other very often. PennY is a lovely lady with 3 beautiful children. When Kassi stayed with us a couple of years ago we went to PennY's house. Her whole family is very sweet and I feel fortunate to know her. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 , I did not seek the diet for Allie to " cure " her autism, but to aleviate her gut issues and stop poisoning her body. As well, the chelation that I seek is to remove poisons from her body. If she loses autism characteristics, that tells me that she has the characteristics because of health-related issues, not because that's just who she is. I realize that some parents are not like that and also think it's great that you are happy with your body, your health, and your state of being. Just please know that many of us parents aren't seeking cures or changing their child into something they aren't, but only to allow them to have health. I'll never forget about a week after Allie went gfcf I gave her some 100% cherry juice. Wanting to be a good mom I went to the health food store and bought all natural juices. Allie cried and had diarrhea all afternoon. From that instance I did some research and realized she could not tolerate salicylates. Once that additional item was removed from her diet, she stopped having pain and chronic diarrhea. I cannot imagine the pain she was feeling in her little tummy and am so thankful God gave me the understanding to help her. As well, knowing my child has toxic levels of metals trapped inside her body is very scary. I wouldn't want any child to have toxicity hurting her nervous system, especially my children. Yes, it hurts me to think the center field of Allie's vision might be skewed because I want her to have a healthy vision. Yes it hurts me to think that Allie wants to say something and her body won't let her. But I don't see her as less a person or defective, only that I want to help her to have the ability to say what ever she wants; if she chooses to say nothing, that's her perfect right and I won't think any less of her. Just like my daughter who is NT, she has breathing problems, I take her to the doc, check into dietary changes, give her meds. Because she is happier and able to run better in gym doesn't mean I thought less of her running ability, it means I'm helping her to be able to run if she wants or not to run. Debi My position on the argument is controversial on its own > because I really don't see the need to self medicate or keep such particular > control over my diet. The difference may be because I do not seek to " cure " > autism anymore than I seek to cure homosexuality, genius or skinny people. > I quite honestly cannot see the problem with autism to the extent most make > of it. I do not feel deprived, lesser or disabled being autistic, but it is > the prejudice and unwillingness of others to exert mental effort beyond that > of the accepted (or measured) norm that usually alienates me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 I also am quite...anti cure really. I do diet for reasons of celiac disease and trying to control truly life threatening seizures that come in clusters and stop my breathing. As for chelation, I was diagnosed with heavy metal poisoning at 23. It presented as a systemic arthritic condition. I was stuck in bed for 4 months, couldn't go outside without getting sick, needed ankle, knee, elbow, and wrist braces. I had a facial rash that had everyone screaming " LUPUS! " . I went from 115 pounds to 85 (at 5'4 " or so). That's why I did chelation. NOT to cure autism. And I am just as autistic as I ever was...though my food allergies are better, and I can again do gymnastics, thank diety-of-choice. It was for physical health. Like , I am content to be autistic...but I personally am not content to watch my sensory integration, coordination, seizure control, tolerated foods, and energy level go down the drain. My physical health really matters to me...epilepsy kills. It killed me for 60 seconds once and I didn't want it to get that chance again, nor was I content to live in bed and on white rice. As a healthy autistic, however, I am more than content. Kassiane > > , I did not seek the diet for Allie to " cure " her autism, but to > aleviate her gut issues and stop poisoning her body. As well, the > chelation that I seek is to remove poisons from her body. If she loses > autism characteristics, that tells me that she has the characteristics > because of health-related issues, not because that's just who she is. > I realize that some parents are not like that and also think it's > great that you are happy with your body, your health, and your state > of being. Quote Link to comment Share on other sites More sharing options...
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