Cognitive Research / Cure Ds? / Changing Minds Foundation

[Guest guest]

it said it was damaged - not decoded right as an attached fileroxTo: DownSyndromeInfoExchange Sent: Tue, August 24, 2010 8:54:26 PMSubject: [DownSyndromeInfoExchange] Re: Cognitive Research / Cure Ds? / Changing Minds

Foundation

Sorry - trying to figure out why not - it is a pdf file - any

suggestions anyone?

Christy

>

> said i could not open it

>

> rox

>

>

>

>

>

> ________________________________

> From: Christy S kayc0911@...

> To: DownSyndromeInfoExchange

> Sent: Tue, August 24, 2010 8:27:44 PM

> Subject: [DownSyndromeInfoExchange] Cognitive Research / Cure Ds? /

Changing

> Minds Foundation [1 Attachment]

>

>

> [Attachment(s) from Christy S included below]

> I know there are many parents that are interested in learning more

about what

> can be done to improve their child's cognition. Some may or may not

have heard

> about the Changing Minds Foundation and their protocol to improve

cognition in

> children with Down syndrome. I went to the Changing Minds Foundation's

> conference in July. When I started writing the attached article, I

envisioned a

> one page summary of the conference. After much thought, my writing

evolved into

> more of an ABC's and 123's of current cognitive research and how it

fits into

> the CMF's protocol to improve cognition. In the article, I have

attempted to

> "pull it all together" into one easy to read format for both parents

and

> professionals alike.

>

>

> I would just like to state up front (in response to a statement

someone is sure

> to post) that yes. . . . I do realize that children with Down syndrome

will

> always have trisomy 21, yes - I do realize and acknowledge that this

third copy

> of chromosome 21 will always be a part of their genetic make-up. I

know that

> this is a common response by parents and professionals when the words

"cure" and

> "Down syndrome" occur in the same sentence. Please read the article in

its

> entirety before responding. Give it some thought. Let me know what you

think!

>

> When you are finished reading, be sure to go to

> http://www.changingmindsfoundation.org/documents/videoblog.html and

watch the

> video blogs (success stories) of children that are taking the

protocol.

>

>

> Christy

> Tristen's mom (35 months old, has been on the CMF protocol since he

was 13 1/2

> months old)

>

[Guest guest]

I was able to open it & read it with no problems.

Sharon

From:

DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of rox

weigel

Sent: Tuesday, August 24, 2010 10:04 PM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange] Re: Cognitive Research / Cure

Ds? / Changing Minds Foundation

it

said it was damaged - not decoded right as an attached file

rox

From: kayc0911

To: DownSyndromeInfoExchange

Sent: Tue, August 24, 2010 8:54:26 PM

Subject: [DownSyndromeInfoExchange] Re: Cognitive Research / Cure Ds? /

Changing Minds Foundation

Sorry - trying to figure out why not - it is a pdf file - any

suggestions anyone?

Christy

>

> said i could not open it

>

> rox

>

>

>

>

>

> ________________________________

> From: Christy S kayc0911@...

> To: DownSyndromeInfoExchange

> Sent: Tue, August 24, 2010 8:27:44 PM

> Subject: [DownSyndromeInfoExchange] Cognitive Research / Cure Ds? /

Changing

> Minds Foundation [1 Attachment]

>

>

> [Attachment(s) from Christy S included below]

> I know there are many parents that are interested in learning more

about what

> can be done to improve their child's cognition. Some may or may not

have heard

> about the Changing Minds Foundation and their protocol to improve

cognition in

> children with Down syndrome. I went to the Changing Minds Foundation's

> conference in July. When I started writing the attached article, I

envisioned a

> one page summary of the conference. After much thought, my writing

evolved into

> more of an ABC's and 123's of current cognitive research and how it

fits into

> the CMF's protocol to improve cognition. In the article, I have

attempted to

> " pull it all together " into one easy to read format for both

parents

and

> professionals alike.

>

>

> I would just like to state up front (in response to a statement

someone is sure

> to post) that yes. . . . I do realize that children with Down syndrome

will

> always have trisomy 21, yes - I do realize and acknowledge that this

third copy

> of chromosome 21 will always be a part of their genetic make-up. I

know that

> this is a common response by parents and professionals when the words

" cure " and

> " Down syndrome " occur in the same sentence. Please read the

article in

its

> entirety before responding. Give it some thought. Let me know what you

think!

>

> When you are finished reading, be sure to go to

> http://www.changingmindsfoundation.org/documents/videoblog.html

and

watch the

> video blogs (success stories) of children that are taking the

protocol.

>

>

> Christy

> Tristen's mom (35 months old, has been on the CMF protocol since he

was 13 1/2

> months old)

>

[Guest guest]

Ok, I'm going to try to attach the article again and see if it opens. If not, I'll work on getting it fixed tomorrow.

Christy

I know there are many parents that are interested in learning more about what can be done to improve their child's cognition. Some may or may not have heard about the Changing Minds Foundation and their protocol to improve cognition in children with Down syndrome. I went to the Changing Minds Foundation's conference in July. When I started writing the attached article, I envisioned a one page summary of the conference. After much thought, my writing evolved into more of an ABC's and 123's of current cognitive research and how it fits into the CMF's protocol to improve cognition. In the article, I have attempted to "pull it all together" into one easy to read format for both parents and professionals alike.

I would just like to state up front (in response to a statement someone is sure to post) that yes. . . . I do realize that children with Down syndrome will always have trisomy 21, yes - I do realize and acknowledge that this third copy of chromosome 21 will always be a part of their genetic make-up. I know that this is a common response by parents and professionals when the words "cure" and "Down syndrome" occur in the same sentence. Please read the article in its entirety before responding. Give it some thought. Let me know what you think!

When you are finished reading, be sure to go to http://www.changingmindsfoundation.org/documents/videoblog.html and watch the video blogs (success stories) of children that are taking the protocol.

Christy

Tristen's mom (35 months old, has been on the CMF protocol since he was 13 1/2 months old)

[Guest guest]

thank you i finally got to read itTo: DownSyndromeInfoExchange Sent: Wed, August 25, 2010 10:55:46 PMSubject: [DownSyndromeInfoExchange] Re: Cognitive Research / Cure Ds? / Changing Minds Foundation

Thanks Pat. It is now also posted at the following links if people are still having trouble opening it:

http://www.changingmindsaboutdownsyndrome.blogspot.com/ (part 1 posted today - more tomorrow) No login required to read

https://sites.google.com/site/superdownsyndrome/controversy/cure

Christy

> > [Attachment(s) from Christy S included below]> Ok, I'm going to try to attach the article again and see if it opens. If not, I'll work on getting it fixed tomorrow.> > Christy> > > > I know there are many parents that are interested in learning more about what can be done to improve their child's cognition. Some may or may not have heard about the Changing Minds Foundation and their protocol to improve cognition in children with Down syndrome. I went to the Changing Minds Foundation's conference in July. When I started writing the attached article, I envisioned a one page

summary of the conference. After much thought, my writing evolved into more of an ABC's and 123's of current cognitive research and how it fits into the CMF's protocol to improve cognition. In the article, I have attempted to "pull it all together" into one easy to read format for both parents and professionals alike. > > I would just like to state up front (in response to a statement someone is sure to post) that yes. . . . I do realize that children with Down syndrome will always have trisomy 21, yes - I do realize and acknowledge that this third copy of chromosome 21 will always be a part of their genetic make-up. I know that this is a common response by parents and professionals when the words "cure" and "Down syndrome" occur in the same sentence. Please read the article in its entirety before responding. Give it some thought. Let me know what you think!> > When you are finished reading, be sure to go to http://www.changingmindsfoundation.org/documents/videoblog.html and watch the video blogs (success stories) of children that are taking the protocol. > > Christy> Tristen's mom (35 months old, has been on the CMF protocol since he was 13 1/2 months old)>

[Guest guest]

I also posted on our Brazilian website Inclusive, http://www.inclusive.org.br/?p=17019PatSent from my iPad

Thanks Pat. It is now also posted at the following links if people are still having trouble opening it:

http://www.changingmindsaboutdownsyndrome.blogspot.com/ (part 1 posted today - more tomorrow) No login required to read

https://sites.google.com/site/superdownsyndrome/controversy/cure

Christy

> > [Attachment(s) from Christy S included below]> Ok, I'm going to try to attach the article again and see if it opens. If not, I'll work on getting it fixed tomorrow.> > Christy> > > > I know there are many parents that are interested in learning more about what can be done to improve their child's cognition. Some may or may not have heard about the Changing Minds Foundation and their protocol to improve cognition in children with Down syndrome. I went to the Changing Minds Foundation's conference in July. When I

started writing the attached article, I envisioned a one page summary of the conference. After much thought, my writing evolved into more of an ABC's and 123's of current cognitive research and how it fits into the CMF's protocol to improve cognition. In the article, I have attempted to "pull it all together" into one easy to read format for both parents and professionals alike. > > I would just like to state up front (in response to a statement someone is sure to post) that yes. . . . I do realize that children with Down syndrome will always have trisomy 21, yes - I do realize and acknowledge that this third copy of chromosome 21 will always be a part of their genetic make-up. I know that this is a common response by parents and professionals when the words "cure" and "Down syndrome" occur in the same sentence. Please read the article in its entirety before responding. Give it some thought. Let me know what you think!> >

When you are finished reading, be sure to go to http://www.changingmindsfoundation.org/documents/videoblog.html and watch the video blogs (success stories) of children that are taking the protocol. > > Christy> Tristen's mom (35 months old, has been on the CMF protocol since he was 13 1/2 months old)>

[Guest guest]

that used to happen to me, and it was because I didn't have the most recent version of Adobe..once I updated, the problem was solved

 

it said it was damaged - not decoded right as an attached filerox

To: DownSyndromeInfoExchange Sent: Tue, August 24, 2010 8:54:26 PM

Subject: [DownSyndromeInfoExchange] Re: Cognitive Research / Cure Ds? / Changing Minds

Foundation

 

Sorry - trying to figure out why not - it is a pdf file - any

suggestions anyone?

Christy

>

> said i could not open it

>

> rox

>

>

>

>

>

> ________________________________

> From: Christy S kayc0911@...

> To: DownSyndromeInfoExchange

> Sent: Tue, August 24, 2010 8:27:44 PM

> Subject: [DownSyndromeInfoExchange] Cognitive Research / Cure Ds? /

Changing

> Minds Foundation [1 Attachment]

>

>

> [Attachment(s) from Christy S included below]

> I know there are many parents that are interested in learning more

about what

> can be done to improve their child's cognition. Some may or may not

have heard

> about the Changing Minds Foundation and their protocol to improve

cognition in

> children with Down syndrome. I went to the Changing Minds Foundation's

> conference in July. When I started writing the attached article, I

envisioned a

> one page summary of the conference. After much thought, my writing

evolved into

> more of an ABC's and 123's of current cognitive research and how it

fits into

> the CMF's protocol to improve cognition. In the article, I have

attempted to

> " pull it all together " into one easy to read format for both parents

and

> professionals alike.

>

>

> I would just like to state up front (in response to a statement

someone is sure

> to post) that yes. . . . I do realize that children with Down syndrome

will

> always have trisomy 21, yes - I do realize and acknowledge that this

third copy

> of chromosome 21 will always be a part of their genetic make-up. I

know that

> this is a common response by parents and professionals when the words

" cure " and

> " Down syndrome " occur in the same sentence. Please read the article in

its

> entirety before responding. Give it some thought. Let me know what you

think!

>

> When you are finished reading, be sure to go to

> http://www.changingmindsfoundation.org/documents/videoblog.html and

watch the

> video blogs (success stories) of children that are taking the

protocol.

>

>

> Christy

> Tristen's mom (35 months old, has been on the CMF protocol since he

was 13 1/2

> months old)

>

[Guest guest]

Christy,

I was very impressed with , I didn't continue to watch a lot more.

At the conference, did Craig Garner or the other scientists make any reference

to the possibility that the GABA antagonist may eliminate or lessen the need for

a norepinephrine drug? I know that Dr. Saheli mentioned normalizing the GABA

system could affect norepinephrine in his paper of norepinephrine. Have any

experiments been done to measure norepinephrine in the mouse brain, specifically

in the prefrontal cortex after GABA normalization with PTZ? Was anything said?

Dr. Saheli is considering looking at Strattera as well as Droxidopa with

Carbidopa. Do you folks know that Droxidopa would most likely be a drug that

would have to be given three times a day because it has a short half-life? That

sounds like a real pain.

Personally, I hope that the GABA antagonist could take care of the

norepinephrine issue to a large extent. Less drugs.

Marsha

>

> I know there are many parents that are interested in learning more about what

> can be done to improve their child's cognition.  Some may or may not have

heard

> about the Changing Minds Foundation and their protocol to improve cognition in

> children with Down syndrome.  I went to the Changing Minds Foundation's

> conference in July.  When I started writing the attached article, I envisioned

a

> one page summary of the conference.  After much thought, my writing evolved

into

> more of an ABC's and 123's of current cognitive research and how it fits into

> the CMF's protocol to improve cognition.  In the article, I have attempted to

> " pull it all together " into one easy to read format for both parents and

> professionals alike. 

>

>

> I would just like to state up front (in response to a statement someone is

sure

> to post) that yes. . . . I do realize that children with Down syndrome will

> always have trisomy 21, yes - I do realize and acknowledge that this third

copy

> of chromosome 21 will always be a part of their genetic make-up.  I know that

> this is a common response by parents and professionals when the words " cure "

and

> " Down syndrome " occur in the same sentence.  Please read the article in its

> entirety before responding.  Give it some thought.  Let me know what you

think!

>

> When you are finished reading, be sure to go to

> http://www.changingmindsfoundation.org/documents/videoblog.html  and watch the

> video blogs (success stories) of children that are taking the protocol. 

>

>

> Christy

> Tristen's mom (35 months old, has been on the CMF protocol since he was 13 1/2

> months old)

>

[Guest guest]

Marsha,

No, none of the speakers discussed the possibility you mentioned. If you did not get a chance to watch 's video story of being on the protocol, I recommend watching it to parents of school-aged children. It contains interviews with her school aide and the principal of her school (in addition to her parents) noting the difference in her behavior and performance in the general education classsroom pre-protocol and post-protocol.

Video clips of children on the protocol http://www.changingmindsfoundation.org/success_stories.html

Christy

> >> > I know there are many parents that are interested in learning more about what > > can be done to improve their child's cognition. Some may or may not have heard > > about the Changing Minds Foundation and their protocol to improve cognition in > > children with Down syndrome. I went to the Changing Minds Foundation's > > conference in July. When I started writing the attached article, I envisioned a > > one page summary of the conference. After much thought, my writing evolved into > > more of an ABC's and 123's of current cognitive research and how it fits into > > the CMF's protocol to improve cognition. In the article, I have attempted to > > "pull it all together" into one easy to read format for both parents and > > professionals alike. > > > > > > I would just like to state up front (in response to a statement someone is sure > > to post) that yes. . . . I do realize that children with Down syndrome will > > always have trisomy 21, yes - I do realize and acknowledge that this third copy > > of chromosome 21 will always be a part of their genetic make-up. I know that > > this is a common response by parents and professionals when the words "cure" and > > "Down syndrome" occur in the same sentence. Please read the article in its > > entirety before responding. Give it some thought. Let me know what you think!> > > > When you are finished reading, be sure to go to > > http://www.changingmindsfoundation.org/documents/videoblog.html and watch the > > video blogs (success stories) of children that are taking the protocol. > > > > > > Christy> > Tristen's mom (35 months old, has been on the CMF protocol since he was 13 1/2 > > months old)> >>