Re: RE: They don't get it.

[Guest guest]

Dear Tracie:

Ha ha ha ha ha ha ha--THREE HEADS--I love that. I'm going to use that one.

Hahahahaha.

laura

tracierae143 <tracierae143@...> wrote:

Wow,

I have been reading all the posts and they all hit so close to home

that it is scary. My brother just put me on the hot seat the other

day asking if he could come up for Christmas and Thanksgiving. I

was like I have to take it day by day, I cannot always tell how I am

going to feel. He was like what is the big deal, DUH! I said the

cooking for everyone for one! HELLO! Sometimes they just don't get

it ever I think. Some people are beyond getting it, do you know what

I mean. It is like they just don't want to believe it or don't want

to hear it.

Now I know I don't post much but this happened as well the other day

and I just burst out crying. My 14-year-old daughter said " I don't

get what the big deal is if I bring home a bug or something. " I

tried to explain for the 500th time and she said she still did not

get it so finally I had to be blatantly blunt with her and say okay,

you talk about your friend having the flu at school today right next

to you, vomiting (EWWW), and then you act like it is no big deal.

Well if you catch that bug and bring it home to me, then I can get

very sick, DEATHLY sick because of my three immunosuppressants

(Humira, MTX, and Prednisone). All I ask of you is to come home

when you have been exposed, go straight to the bathroom wash your

hands, and change your clothes. Is that such a big deal? I know

she is only 14, but for her to sit there and say I just don't get

your disease after we have been over and over and over this a

million times; I was totally heartbroken. If I cannot make my

family understand the disease, then how the heck am I going to make

anyone else understand it? I don't want to scare her to death, but

geez, I just don't know.

All that being said, I totally get what you all are going through

trying to get your children and family members and even friends to

understand. It is one of the most frustrating parts of an

autoimmune disease. Just because we don't have three heads does not

mean we are not sick!!!!

Anyway, that was my 2 cents, thanks for listening. Any advice for

dealing with teenagers would be greatly appreciated, LOL.

Gentle hugs,

Tracie in Maine

[Guest guest]

Dear Tracie:

Ha ha ha ha ha ha ha--THREE HEADS--I love that. I'm going to use that one.

Hahahahaha.

laura

tracierae143 <tracierae143@...> wrote:

Wow,

I have been reading all the posts and they all hit so close to home

that it is scary. My brother just put me on the hot seat the other

day asking if he could come up for Christmas and Thanksgiving. I

was like I have to take it day by day, I cannot always tell how I am

going to feel. He was like what is the big deal, DUH! I said the

cooking for everyone for one! HELLO! Sometimes they just don't get

it ever I think. Some people are beyond getting it, do you know what

I mean. It is like they just don't want to believe it or don't want

to hear it.

Now I know I don't post much but this happened as well the other day

and I just burst out crying. My 14-year-old daughter said " I don't

get what the big deal is if I bring home a bug or something. " I

tried to explain for the 500th time and she said she still did not

get it so finally I had to be blatantly blunt with her and say okay,

you talk about your friend having the flu at school today right next

to you, vomiting (EWWW), and then you act like it is no big deal.

Well if you catch that bug and bring it home to me, then I can get

very sick, DEATHLY sick because of my three immunosuppressants

(Humira, MTX, and Prednisone). All I ask of you is to come home

when you have been exposed, go straight to the bathroom wash your

hands, and change your clothes. Is that such a big deal? I know

she is only 14, but for her to sit there and say I just don't get

your disease after we have been over and over and over this a

million times; I was totally heartbroken. If I cannot make my

family understand the disease, then how the heck am I going to make

anyone else understand it? I don't want to scare her to death, but

geez, I just don't know.

All that being said, I totally get what you all are going through

trying to get your children and family members and even friends to

understand. It is one of the most frustrating parts of an

autoimmune disease. Just because we don't have three heads does not

mean we are not sick!!!!

Anyway, that was my 2 cents, thanks for listening. Any advice for

dealing with teenagers would be greatly appreciated, LOL.

Gentle hugs,

Tracie in Maine