wow, I've been missing but where is everyone?

[Guest guest]

I tried the peg intron with ribviran,, all 50 some wks, lost hair, weight, depressed, didn't work. that was in 2001. count went back up. found out i had lupus, went to a new gastro, he wanted me to start on one of the old treatments, i kind of scared me since i have since been diagnosed w/lupus. got 2 other opinions an they said absoulutely not, no treatment even this new one, as it has some of the intron in it and would mess me up with my lupus. from what I understand my liver only had a mild little bit if cirrosis. so i have been told to keep my liver happy, no drinking, watch what meds i take and wait for a less evasive treatment. the hep c specialist seemed to think (she is part of the researchers at Tulane) that it maybe just a couple of yrs along. only thing is many ppl don't have that long.I have

not heard much about the new treatment, but i can send you links that were given to me from the lupus webpage...i will send them as soon as i find them if you likeI am sorry you are in this too, It must be hard with grandkids and all. I have grand kids, but am not raising them. I read the posts but don't always respond. take care, etteTo: HepatitisCSupportGroupForDummies Sent: Thursday, October 27, 2011 8:24 PMSubject: wow, I've been missing but where is everyone?

Wow. I knew I had not been posting here or reading for that matter but I see no posts since Feb??? I am Beckyray, I have done two rounds of treatment. First eight years ago PegIntron and Ribovirin and this last year the Pegasis and Ribovirin. I am still not clear of the virus..don't recall the viral load but not that good. Good in that it reduced it but that is not much really the Dr said as it will simply go back up. I am in the middle range of the cirrhosis I think she said. Not too sick but its there. I was told we would start the new treatment that was released this past spring or summer but not til after the Drs conference on new treatment in Nov. My Dr.has heard that the new treatments is great but if it doesn't work it may make you immune to any future treatments with that family of meds. She said I only have a thirty percent chance of it working anyway. But we are game if it is not going to make me unable to use future discoveries. I

am bipolar the type that stays Hyper or manic most of the time but the treatments make me go the other way. I was lucky this last time as it went well with the psych meds. The first time I stopped all of them and ended up a mess. I made it through twenty six weeks I think it was and lost a lot of hair..got the gift of curls after the new grew in though..wonderful gift. I feel a bit better physically but know the day will get here that I will not feel so well. I wondered if any of you have tried the newest treatment? I don't know what it is called but it was just released this year. I don't know if she will run me through it or not after the conference but I hope so. I want this gone. I am fifty three and have three grandkids who will be underage for the next ten years that I am raising. I need my health.

Well, just tossing this out there to see if anyone is about. Beckyray in Tennessee

[Guest guest]

Hi Beckyrae,

The first time I tried tx my doc gave me a 15% chance of success. I already had had cirrhosis for years & I'd had Hep C for 22 years by then ( I caught it in 1969). I didn't respond but it was just interferon alone. A few years later I tried interferon & ribivirin & didn't respond that time either. I haven't tried tx since then - 19 years now. I figure, I'm still kicking dragon butt so who needs tx.

I'm slowing down somw but hey, I'm 61 now, could just be my age catching up to me (my mother - who is 81 says I'm lazy but not eerybody is like her, scrubbinng down walls at 80 !)

Anyways, it has been quiet around here with Deb off sick but Llinda & I are still here answering questions & handing out good advice .

Take Care,

SuZieMay you be in heaven half an hour before the devil knows you're dead

Subject: wow, I've been missing but where is everyone?To: HepatitisCSupportGroupForDummies Date: Thursday, October 27, 2011, 9:24 PM

Wow. I knew I had not been posting here or reading for that matter but I see no posts since Feb??? I am Beckyray, I have done two rounds of treatment. First eight years ago PegIntron and Ribovirin and this last year the Pegasis and Ribovirin. I am still not clear of the virus..don't recall the viral load but not that good. Good in that it reduced it but that is not much really the Dr said as it will simply go back up. I am in the middle range of the cirrhosis I think she said. Not too sick but its there. I was told we would start the new treatment that was released this past spring or summer but not til after the Drs conference on new treatment in Nov. My Dr.has heard that the new treatments is great but if it doesn't work it may make you immune to any future treatments with that family of meds. She said I only have a thirty percent chance of it working anyway. But we are game if it is not going to make me unable to use future discoveries. I am

bipolar the type that stays Hyper or manic most of the time but the treatments make me go the other way. I was lucky this last time as it went well with the psych meds. The first time I stopped all of them and ended up a mess. I made it through twenty six weeks I think it was and lost a lot of hair..got the gift of curls after the new grew in though..wonderful gift. I feel a bit better physically but know the day will get here that I will not feel so well. I wondered if any of you have tried the newest treatment? I don't know what it is called but it was just released this year. I don't know if she will run me through it or not after the conference but I hope so. I want this gone. I am fifty three and have three grandkids who will be underage for the next ten years that I am raising. I need my health. Well, just tossing this out there to see if anyone is about. Beckyray in Tennessee