Re: Hello new to this support but not to RA

[Guest guest]

Welcome Steve. How awful that both you and your wife are suffering

with these wretched

autoimmune diseases. I can imagine how difficult it is for you to

work such long hours when

in so much pain. Have you tried Enbrel, Humira, Kineret or Remicade?

You've come to the right place to find people that understand what

you're going through.

a

On Nov 14, 2005, at 7:10 PM, Steve wrote:

> Hello there,

> well I have always avoided boards like this since I did not want to

> admit that I needed someone other than my wife to talk to about this

> disease, but I guess after having this crap for 3 years now and

> things getting so freaking bad, i guess I decided to venture out and

> see if anyone wanted to chat about this pain in the butt disease..

>

> For me it has now developed to the point of me wishing that it would

> all end, the pain is now all the time, it is in every joint in my

> body, it hurts so bad I can not get out of bed like a normal person,

> I have to roll to the edge and throw myself onto the floor and then

> work myself to death trying to get off of the floor, this taking 15

> to 20 minutes every morning before getting ready for work, it is now

> also to the point where I fall whenever my knees decide they want to

> give out, I can no longer trust my legs anymore nor can I trust any

> part of my body anymore, some days are ok but most are not, I have

> tried so many of there drugs to stop the pain and yes some might ease

> it for a few days but it just returns with a vengence and kicks my

> butt so much that i can not hardly move.

>

> But still I have to work 60 hours a week to make bills and get by,

> the people at work look at me funny when i cannot hardly walk and

> struggle through the day,but since the wife can not work and has had

> M.S. for 16 years now I am the only one making any money for us to

> live on, her Goverment check is a little over 2 hundred a month and

> who can live on that?

>

> I am not looking for any sympathy i guess I am just looking for

> someone to chat with about this disease, if I have bothered anyone

> please frogive me, sometimes you have to get it off your chest I

> guess.

>

> Thanks\

> Steve in Missouri

>

>

>

>

>

>

[Guest guest]

Hi Steve:

You didn't say how old you are. I'm 56 and have applied for Social

Security Disability. I've worked since I was 16 and according to

records am eligible to receive $1197 per month. I've been turned down

but am in the process of appealing. I've been told it's a long process

and of course no guarantees. You definitely sound like a " prime

candidate " . Check it out. You sound like you're suffering enough.

Carol in CA

On Nov 14, 2005, at 4:10 PM, Steve wrote:

> Hello there,

> well I have always avoided boards like this since I did not want to

> admit that I needed someone other than my wife to talk to about this

> disease, but I guess after having this crap for 3 years now and

> things getting so freaking bad, i guess I decided to venture out and

> see if anyone wanted to chat about this pain in the butt disease..

>

> For me it has now developed to the point of me wishing that it would

> all end, the pain is now all the time, it is in every joint in my

> body, it hurts so bad I can not get out of bed like a normal person,

> I have to roll to the edge and throw myself onto the floor and then

> work myself to death trying to get off of the floor, this taking 15

> to 20 minutes every morning before getting ready for work, it is now

> also to the point where I fall whenever my knees decide they want to

> give out, I can no longer trust my legs anymore nor can I trust any

> part of my body anymore, some days are ok but most are not, I have

> tried so many of there drugs to stop the pain and yes some might ease

> it for a few days but it just returns with a vengence and kicks my

> butt so much that i can not hardly move.

>

> But still I have to work 60 hours a week to make bills and get by,

> the people at work look at me funny when i cannot hardly walk and

> struggle through the day,but since the wife can not work and has had

> M.S. for 16 years now I am the only one making any money for us to

> live on, her Goverment check is a little over 2 hundred a month and

> who can live on that?

>

> I am not looking for any sympathy i guess I am just looking for

> someone to chat with about this disease, if I have bothered anyone

> please frogive me, sometimes you have to get it off your chest I

> guess.

>

> Thanks\

> Steve in Missouri

>

>

>

>

>

>

[Guest guest]

Hello there a,

Thank you for your reply it is nice to chat with people that

understand what is going on with someone like myself instead of those

that just can not seem to figure out why we act like we do, and to

answer your questions and Enbrel and so on, yes I have tried Enbrel,

Humira, and Remicade, however I have not tried the Kineret, the pther

3 worked fine at first but no longer seem to be doing anything for me

anymore, and have tried so many different pills that it would take

hours to list them all, the only thing that has helepd of course is

the Predisone but they will not let me have it anymore and probally

for the best , I have lost hair because of it, I have gained weight

because of it but it sure did make me feel better, but that is ok, i

have had over the years many pills that have made me feel better a

little but the one that turned me into mr moody was that

Sulfasalazine, they had me taking 1000mg twice a day and I became the

creature from hell, I was so moody I wanted to kill everyone and

everything, not sure why it did this to me but i try to stay away

from that drug, of course the up side is that it did help a little,

so when things are real bad I have to break down and use it.

Well again thanks for the reply and hope to chat with you more

Steve

>

> > Hello there,

> > well I have always avoided boards like this since I did not want

to

> > admit that I needed someone other than my wife to talk to about

this

> > disease, but I guess after having this crap for 3 years now and

> > things getting so freaking bad, i guess I decided to venture out

and

> > see if anyone wanted to chat about this pain in the butt disease..

> >

> > For me it has now developed to the point of me wishing that it

would

> > all end, the pain is now all the time, it is in every joint in my

> > body, it hurts so bad I can not get out of bed like a normal

person,

> > I have to roll to the edge and throw myself onto the floor and

then

> > work myself to death trying to get off of the floor, this taking

15

> > to 20 minutes every morning before getting ready for work, it is

now

> > also to the point where I fall whenever my knees decide they want

to

> > give out, I can no longer trust my legs anymore nor can I trust

any

> > part of my body anymore, some days are ok but most are not, I have

> > tried so many of there drugs to stop the pain and yes some might

ease

> > it for a few days but it just returns with a vengence and kicks my

> > butt so much that i can not hardly move.

> >

> > But still I have to work 60 hours a week to make bills and get by,

> > the people at work look at me funny when i cannot hardly walk and

> > struggle through the day,but since the wife can not work and has

had

> > M.S. for 16 years now I am the only one making any money for us to

> > live on, her Goverment check is a little over 2 hundred a month

and

> > who can live on that?

> >

> > I am not looking for any sympathy i guess I am just looking for

> > someone to chat with about this disease, if I have bothered anyone

> > please frogive me, sometimes you have to get it off your chest I

> > guess.

> >

> > Thanks\

> > Steve in Missouri

> >

> >

> >

> >

> >

> >

[Guest guest]

Hello Carol,

and to answer your question I will turn 43 in December and yes I

have looked into how much I could get and it is about the same as

you, but sorry to say that amount would not pay for the mortage,and

all of the other bills that have to be paid, Yes I have thought about

going on disability but with the wife on it already and only getting

the small amount she gets I would not be able to afford the meds for

her and myself and all of the other bills, but thanks for your

response and you never know I may have to break down and do this one

day, lets just hope that something will happen so that all of us will

not have to deal with this kind of pain anymore.

Steve

>

> > Hello there,

> > well I have always avoided boards like this since I did not want

to

> > admit that I needed someone other than my wife to talk to about

this

> > disease, but I guess after having this crap for 3 years now and

> > things getting so freaking bad, i guess I decided to venture out

and

> > see if anyone wanted to chat about this pain in the butt

disease..

> >

> > For me it has now developed to the point of me wishing that it

would

> > all end, the pain is now all the time, it is in every joint in my

> > body, it hurts so bad I can not get out of bed like a normal

person,

> > I have to roll to the edge and throw myself onto the floor and

then

> > work myself to death trying to get off of the floor, this taking

15

> > to 20 minutes every morning before getting ready for work, it is

now

> > also to the point where I fall whenever my knees decide they

want to

> > give out, I can no longer trust my legs anymore nor can I trust

any

> > part of my body anymore, some days are ok but most are not, I

have

> > tried so many of there drugs to stop the pain and yes some might

ease

> > it for a few days but it just returns with a vengence and kicks

my

> > butt so much that i can not hardly move.

> >

> > But still I have to work 60 hours a week to make bills and get

by,

> > the people at work look at me funny when i cannot hardly walk and

> > struggle through the day,but since the wife can not work and has

had

> > M.S. for 16 years now I am the only one making any money for us

to

> > live on, her Goverment check is a little over 2 hundred a month

and

> > who can live on that?

> >

> > I am not looking for any sympathy i guess I am just looking for

> > someone to chat with about this disease, if I have bothered

anyone

> > please frogive me, sometimes you have to get it off your chest I

> > guess.

> >

> > Thanks\

> > Steve in Missouri

> >

> >

> >

> >

> >

> >

[Guest guest]

Steve,

It sounds like you've tried most of what's available. I know the

prednisone was a help,

but unfortunately it comes at such a high price when you consider the

side effects. It's the drug we love

to hate because it gives such good relief, but can cause more

problems. It's to bad the Sulfasalazine

works so well but affects your mood. Maybe Rituximab will offer some

relief when it is approved.

It is still in clinical trials but is showing great promise:

Rituximab Shows Promising Results in Treatment-Resistant Rheumatoid

Arthritis

http://www.medscape.com/viewarticle/506431

a

On Nov 14, 2005, at 11:28 PM, Steve wrote:

> Hello there a,

> Thank you for your reply it is nice to chat with people that

> understand what is going on with someone like myself instead of those

> that just can not seem to figure out why we act like we do, and to

> answer your questions and Enbrel and so on, yes I have tried Enbrel,

> Humira, and Remicade, however I have not tried the Kineret, the pther

> 3 worked fine at first but no longer seem to be doing anything for me

> anymore, and have tried so many different pills that it would take

> hours to list them all, the only thing that has helepd of course is

> the Predisone but they will not let me have it anymore and probally

> for the best , I have lost hair because of it, I have gained weight

> because of it but it sure did make me feel better, but that is ok, i

> have had over the years many pills that have made me feel better a

> little but the one that turned me into mr moody was that

> Sulfasalazine, they had me taking 1000mg twice a day and I became the

> creature from hell, I was so moody I wanted to kill everyone and

> everything, not sure why it did this to me but i try to stay away

> from that drug, of course the up side is that it did help a little,

> so when things are real bad I have to break down and use it.

>

> Well again thanks for the reply and hope to chat with you more

> Steve

[Guest guest]

Dear Steve,

What you get in this group is better than

sympathy--it's an empathy that comes from knowing how

you feel. You can vent all you want here and we'll

understand. The thing I hate the most about not being

able to walk when you first get out of bed is that I

usually wake up needing to go to the bathroom really,

really bad...so it's a race to see if I can " hold it "

long enough to get my legs working. Are you seeing a

competent rheumatologist? There are so many

medications available now. Prednisone is what allowed

me to get moving much more easily, but boy oh boy do

you pay for that privilege. Please hang in there.

Things can and do get better.

laura

--- Steve <grenpawn@...> wrote:

> Hello there,

> well I have always avoided boards like this since I

> did not want to

> admit that I needed someone other than my wife to

> talk to about this

> disease, but I guess after having this crap for 3

> years now and

> things getting so freaking bad, i guess I decided to

> venture out and

> see if anyone wanted to chat about this pain in the

> butt disease..

>

> For me it has now developed to the point of me

> wishing that it would

> all end, the pain is now all the time, it is in

> every joint in my

> body, it hurts so bad I can not get out of bed like

> a normal person,

> I have to roll to the edge and throw myself onto the

> floor and then

> work myself to death trying to get off of the floor,

> this taking 15

> to 20 minutes every morning before getting ready for

> work, it is now

> also to the point where I fall whenever my knees

> decide they want to

> give out, I can no longer trust my legs anymore nor

> can I trust any

> part of my body anymore, some days are ok but most

> are not, I have

> tried so many of there drugs to stop the pain and

> yes some might ease

> it for a few days but it just returns with a

> vengence and kicks my

> butt so much that i can not hardly move.

>

> But still I have to work 60 hours a week to make

> bills and get by,

> the people at work look at me funny when i cannot

> hardly walk and

> struggle through the day,but since the wife can not

> work and has had

> M.S. for 16 years now I am the only one making any

> money for us to

> live on, her Goverment check is a little over 2

> hundred a month and

> who can live on that?

>

> I am not looking for any sympathy i guess I am just

> looking for

> someone to chat with about this disease, if I have

> bothered anyone

> please frogive me, sometimes you have to get it off

> your chest I

> guess.

>

> Thanks\

> Steve in Missouri

>

>

>

>

__________________________________

FareChase: Search multiple travel sites in one click.

http://farechase.

[Guest guest]

Welcome Steve,

It is great to talk with someone that knows what you go through.

This group is a wonderful caring RA family, who is with you through

the good and bad times.

God bless, Tawny

>

> Hello there,

> well I have always avoided boards like this since I did not want

to

> admit that I needed someone other than my wife to talk to about

this

> disease, but I guess after having this crap for 3 years now and

> things getting so freaking bad, i guess I decided to venture out

and

> see if anyone wanted to chat about this pain in the butt disease..

>

> For me it has now developed to the point of me wishing that it

would

> all end, the pain is now all the time, it is in every joint in my

> body, it hurts so bad I can not get out of bed like a normal

person,

> I have to roll to the edge and throw myself onto the floor and then

> work myself to death trying to get off of the floor, this taking 15

> to 20 minutes every morning before getting ready for work, it is

now

> also to the point where I fall whenever my knees decide they want

to

> give out, I can no longer trust my legs anymore nor can I trust any

> part of my body anymore, some days are ok but most are not, I have

> tried so many of there drugs to stop the pain and yes some might

ease

> it for a few days but it just returns with a vengence and kicks my

> butt so much that i can not hardly move.

>

> But still I have to work 60 hours a week to make bills and get by,

> the people at work look at me funny when i cannot hardly walk and

> struggle through the day,but since the wife can not work and has

had

> M.S. for 16 years now I am the only one making any money for us to

> live on, her Goverment check is a little over 2 hundred a month and

> who can live on that?

>

> I am not looking for any sympathy i guess I am just looking for

> someone to chat with about this disease, if I have bothered anyone

> please frogive me, sometimes you have to get it off your chest I

> guess.

>

> Thanks\

> Steve in Missouri

>

[Guest guest]

Hello ,

yes i do know the fight for getting to the bathroom in the morning

and yes it is a fight, as for my rheumatologist he is good and had me

on prednisone and yes it made my hair fall out and made me gain

weight butit did make me feel so much better, but they decided that i

had been ob it long enough and took me off of it, the other bad thing

is had to change jobs and now no insurance so no doctor so of course

not much meds left to take now, and the ra is comming after me with a

vengence and wainting to kick my butt, having to type this message

with one hand because the right hand is triple in size today and

cannot bend it, but will get throuh this and will be allright, thanks

for the message though.

Steve

>

> > Hello there,

> > well I have always avoided boards like this since I

> > did not want to

> > admit that I needed someone other than my wife to

> > talk to about this

> > disease, but I guess after having this crap for 3

> > years now and

> > things getting so freaking bad, i guess I decided to

> > venture out and

> > see if anyone wanted to chat about this pain in the

> > butt disease..

> >

> > For me it has now developed to the point of me

> > wishing that it would

> > all end, the pain is now all the time, it is in

> > every joint in my

> > body, it hurts so bad I can not get out of bed like

> > a normal person,

> > I have to roll to the edge and throw myself onto the

> > floor and then

> > work myself to death trying to get off of the floor,

> > this taking 15

> > to 20 minutes every morning before getting ready for

> > work, it is now

> > also to the point where I fall whenever my knees

> > decide they want to

> > give out, I can no longer trust my legs anymore nor

> > can I trust any

> > part of my body anymore, some days are ok but most

> > are not, I have

> > tried so many of there drugs to stop the pain and

> > yes some might ease

> > it for a few days but it just returns with a

> > vengence and kicks my

> > butt so much that i can not hardly move.

> >

> > But still I have to work 60 hours a week to make

> > bills and get by,

> > the people at work look at me funny when i cannot

> > hardly walk and

> > struggle through the day,but since the wife can not

> > work and has had

> > M.S. for 16 years now I am the only one making any

> > money for us to

> > live on, her Goverment check is a little over 2

> > hundred a month and

> > who can live on that?

> >

> > I am not looking for any sympathy i guess I am just

> > looking for

> > someone to chat with about this disease, if I have

> > bothered anyone

> > please frogive me, sometimes you have to get it off

> > your chest I

> > guess.

> >

> > Thanks\

> > Steve in Missouri

> >

> >

> >

> >

>

>

>

>

> __________________________________

> FareChase: Search multiple travel sites in one click.

> http://farechase.

>

[Guest guest]

Hi there Twany,

glad to meet you and nice to know there are people out there to talk

to.

> >

> > Hello there,

> > well I have always avoided boards like this since I did not want

> to

> > admit that I needed someone other than my wife to talk to about

> this

> > disease, but I guess after having this crap for 3 years now and

> > things getting so freaking bad, i guess I decided to venture out

> and

> > see if anyone wanted to chat about this pain in the butt disease..

> >

> > For me it has now developed to the point of me wishing that it

> would

> > all end, the pain is now all the time, it is in every joint in my

> > body, it hurts so bad I can not get out of bed like a normal

> person,

> > I have to roll to the edge and throw myself onto the floor and

then

> > work myself to death trying to get off of the floor, this taking

15

> > to 20 minutes every morning before getting ready for work, it is

> now

> > also to the point where I fall whenever my knees decide they want

> to

> > give out, I can no longer trust my legs anymore nor can I trust

any

> > part of my body anymore, some days are ok but most are not, I

have

> > tried so many of there drugs to stop the pain and yes some might

> ease

> > it for a few days but it just returns with a vengence and kicks

my

> > butt so much that i can not hardly move.

> >

> > But still I have to work 60 hours a week to make bills and get

by,

> > the people at work look at me funny when i cannot hardly walk and

> > struggle through the day,but since the wife can not work and has

> had

> > M.S. for 16 years now I am the only one making any money for us

to

> > live on, her Goverment check is a little over 2 hundred a month

and

> > who can live on that?

> >

> > I am not looking for any sympathy i guess I am just looking for

> > someone to chat with about this disease, if I have bothered

anyone

> > please frogive me, sometimes you have to get it off your chest I

> > guess.

> >

> > Thanks\

> > Steve in Missouri

> >

>

[Guest guest]

Steve

Hi it's Carol from CA again. Do you realize that if you could get

qualified for SS Disability with that comes your medication

supplemented as well as utility bills possibly even doctors. Gosh

please check these opportunities further. Your attitude is great......

BUT you need some help!

On Nov 15, 2005, at 10:47 AM, Steve wrote:

> Hello ,

> yes i do know the fight for getting to the bathroom in the morning

> and yes it is a fight, as for my rheumatologist he is good and had me

> on prednisone and yes it made my hair fall out and made me gain

> weight butit did make me feel so much better, but they decided that i

> had been ob it long enough and took me off of it, the other bad thing

> is had to change jobs and now no insurance so no doctor so of course

> not much meds left to take now, and the ra is comming after me with a

> vengence and wainting to kick my butt, having to type this message

> with one hand because the right hand is triple in size today and

> cannot bend it, but will get throuh this and will be allright, thanks

> for the message though.

>

> Steve

>

>

> >

> > > Hello there,

> > >  well I have always avoided boards like this since I

> > > did not want to

> > > admit that I needed someone other than my wife to

> > > talk to about this

> > > disease, but I guess after having this crap for 3

> > > years now and

> > > things getting so freaking bad, i guess I decided to

> > > venture out and

> > > see if anyone wanted to chat about this pain in the

> > > butt disease..

> > >

> > > For me it has now developed to the point of me

> > > wishing that it would

> > > all end, the pain is now all the time, it is in

> > > every joint in my

> > > body, it hurts so bad I can not get out of bed like

> > > a normal person,

> > > I have to roll to the edge and throw myself onto the

> > > floor and then

> > > work myself to death trying to get off of the floor,

> > > this taking 15

> > > to 20 minutes every morning before getting ready for

> > > work, it is now

> > > also to the point where I fall whenever my knees

> > > decide they want to

> > > give out, I can no longer trust my legs anymore nor

> > > can I trust any

> > > part of my body anymore, some days are ok but most

> > > are not, I have

> > > tried so many of there drugs to stop the pain and

> > > yes some might ease

> > > it for a few days but it just returns with a

> > > vengence and kicks my

> > > butt so much that i can not hardly move.

> > >

> > > But still I have to work 60 hours a week to make

> > > bills and get by,

> > > the people at work look at me funny when i cannot

> > > hardly walk and

> > > struggle through the day,but since the wife can not

> > > work and has had

> > > M.S. for 16 years now I am the only one making any

> > > money for us to

> > > live on, her Goverment check is a little over 2

> > > hundred a month and

> > > who can live on that?

> > >

> > > I am not looking for any sympathy i guess I am just

> > > looking for

> > > someone to chat with about this disease, if I have

> > > bothered anyone

> > > please frogive me, sometimes you have to get it off

> > > your chest I

> > > guess.

> > >

> > > Thanks\

> > > Steve in Missouri

> > >

> > >

> > >

> > >

> >

> >

> >

> >            

> > __________________________________

> > FareChase: Search multiple travel sites in one click.

> > http://farechase.

> >

>

>

>

>

>

>

>

>

>

[Guest guest]

Hey again Carol,

I know that none of this happened when my wife went on ss disability

14 years ago and she does not get but a little over 200 a month from

our lovely goverment, but ok you have my intrest now so tell me more

about the supplemented part you speak of, but then there is the wait

of getting qualified as we all know the first time they deny you and

there is that long wait, it took my wife almost 2 years to get her

disability approved but that was so long ago,this state has screwed

up so much of the disability that it is a fight to keep things going

on, with the wife on spindown it really sucks they want me to pay

them 550 dollars a month before they start paying for meds and she

only gets a little over 200 so it just gets real weird after that,

but thank you for your concern

> > >

> > > > Hello there,

> > > >  well I have always avoided boards like this since I

> > > > did not want to

> > > > admit that I needed someone other than my wife to

> > > > talk to about this

> > > > disease, but I guess after having this crap for 3

> > > > years now and

> > > > things getting so freaking bad, i guess I decided to

> > > > venture out and

> > > > see if anyone wanted to chat about this pain in the

> > > > butt disease..

> > > >

> > > > For me it has now developed to the point of me

> > > > wishing that it would

> > > > all end, the pain is now all the time, it is in

> > > > every joint in my

> > > > body, it hurts so bad I can not get out of bed like

> > > > a normal person,

> > > > I have to roll to the edge and throw myself onto the

> > > > floor and then

> > > > work myself to death trying to get off of the floor,

> > > > this taking 15

> > > > to 20 minutes every morning before getting ready for

> > > > work, it is now

> > > > also to the point where I fall whenever my knees

> > > > decide they want to

> > > > give out, I can no longer trust my legs anymore nor

> > > > can I trust any

> > > > part of my body anymore, some days are ok but most

> > > > are not, I have

> > > > tried so many of there drugs to stop the pain and

> > > > yes some might ease

> > > > it for a few days but it just returns with a

> > > > vengence and kicks my

> > > > butt so much that i can not hardly move.

> > > >

> > > > But still I have to work 60 hours a week to make

> > > > bills and get by,

> > > > the people at work look at me funny when i cannot

> > > > hardly walk and

> > > > struggle through the day,but since the wife can not

> > > > work and has had

> > > > M.S. for 16 years now I am the only one making any

> > > > money for us to

> > > > live on, her Goverment check is a little over 2

> > > > hundred a month and

> > > > who can live on that?

> > > >

> > > > I am not looking for any sympathy i guess I am just

> > > > looking for

> > > > someone to chat with about this disease, if I have

> > > > bothered anyone

> > > > please frogive me, sometimes you have to get it off

> > > > your chest I

> > > > guess.

> > > >

> > > > Thanks\

> > > > Steve in Missouri

> > > >

> > > >

> > > >

> > > >

> > >

> > >

> > >

> > >            

> > > __________________________________

> > > FareChase: Search multiple travel sites in one click.

> > > http://farechase.

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hey a,

Will have to look into that and see what happens, I am always

willing to go for anything that will releave some of the pain

>

> > Hello there a,

> > Thank you for your reply it is nice to chat with people that

> > understand what is going on with someone like myself instead of

those

> > that just can not seem to figure out why we act like we do, and to

> > answer your questions and Enbrel and so on, yes I have tried

Enbrel,

> > Humira, and Remicade, however I have not tried the Kineret, the

pther

> > 3 worked fine at first but no longer seem to be doing anything

for me

> > anymore, and have tried so many different pills that it would take

> > hours to list them all, the only thing that has helepd of course

is

> > the Predisone but they will not let me have it anymore and

probally

> > for the best , I have lost hair because of it, I have gained

weight

> > because of it but it sure did make me feel better, but that is

ok, i

> > have had over the years many pills that have made me feel better a

> > little but the one that turned me into mr moody was that

> > Sulfasalazine, they had me taking 1000mg twice a day and I became

the

> > creature from hell, I was so moody I wanted to kill everyone and

> > everything, not sure why it did this to me but i try to stay away

> > from that drug, of course the up side is that it did help a

little,

> > so when things are real bad I have to break down and use it.

> >

> > Well again thanks for the reply and hope to chat with you more

> > Steve

>

>

>

>

[Guest guest]

Steve...

I'm not talking about " State Disability " I'm talking about Social

Security Disability. I applied through the Social Security Office here

in Modesto. I retired from the school district here in town and with

17 years seniority was able to keep the medical insurance. I pay

dearly for it but with all my medical expenses lately I would be

screwed without it (can I say that) ?

Anyway Steve from what I understand from others receiving Social

Security Disability it qualifies you for social security medical

benefits as well. Here in California if you are on a " fixed " income

the utility companies have programs as well, such as reduced rates. A

friend of mine has MS. We have very hot summers here and she a reduced

rate from the electric company due to her medical disability. I

learned these things from word of mouth. From what you're saying you

and your wife are " MORE " than qualified! You've paid your DUES - to

say the least!!

Check it out....... I have all fingers crossed for you. It truly

broke my heart to hear your pain. I want this for you...

On Nov 15, 2005, at 3:24 PM, Steve wrote:

> Hey again Carol,

> I know that none of this happened when my wife went on ss disability

> 14 years ago and she does not get but a little over 200 a month from

> our lovely goverment, but ok you have my intrest now so tell me more

> about the supplemented part you speak of, but then there is the wait

> of getting qualified as we all know the first time they deny you and

> there is that long wait, it took my wife almost 2 years to get her

> disability approved but that was so long ago,this state has screwed

> up so much of the disability that it is a fight to keep things going

> on, with the wife on spindown it really sucks they want me to pay

> them 550 dollars a month before they start paying for meds and she

> only gets a little over 200 so it just gets real weird after that,

> but thank you for your concern

>

>

> > >  >

> > >  > > Hello there,

> > >  > >  well I have always avoided boards like this since I

> > >  > > did not want to

> > >  > > admit that I needed someone other than my wife to

> > >  > > talk to about this

> > >  > > disease, but I guess after having this crap for 3

> > >  > > years now and

> > >  > > things getting so freaking bad, i guess I decided to

> > >  > > venture out and

> > >  > > see if anyone wanted to chat about this pain in the

> > >  > > butt disease..

> > >  > >

> > >  > > For me it has now developed to the point of me

> > >  > > wishing that it would

> > >  > > all end, the pain is now all the time, it is in

> > >  > > every joint in my

> > >  > > body, it hurts so bad I can not get out of bed like

> > >  > > a normal person,

> > >  > > I have to roll to the edge and throw myself onto the

> > >  > > floor and then

> > >  > > work myself to death trying to get off of the floor,

> > >  > > this taking 15

> > >  > > to 20 minutes every morning before getting ready for

> > >  > > work, it is now

> > >  > > also to the point where I fall whenever my knees

> > >  > > decide they want to

> > >  > > give out, I can no longer trust my legs anymore nor

> > >  > > can I trust any

> > >  > > part of my body anymore, some days are ok but most

> > >  > > are not, I have

> > >  > > tried so many of there drugs to stop the pain and

> > >  > > yes some might ease

> > >  > > it for a few days but it just returns with a

> > >  > > vengence and kicks my

> > >  > > butt so much that i can not hardly move.

> > >  > >

> > >  > > But still I have to work 60 hours a week to make

> > >  > > bills and get by,

> > >  > > the people at work look at me funny when i cannot

> > >  > > hardly walk and

> > >  > > struggle through the day,but since the wife can not

> > >  > > work and has had

> > >  > > M.S. for 16 years now I am the only one making any

> > >  > > money for us to

> > >  > > live on, her Goverment check is a little over 2

> > >  > > hundred a month and

> > >  > > who can live on that?

> > >  > >

> > >  > > I am not looking for any sympathy i guess I am just

> > >  > > looking for

> > >  > > someone to chat with about this disease, if I have

> > >  > > bothered anyone

> > >  > > please frogive me, sometimes you have to get it off

> > >  > > your chest I

> > >  > > guess.

> > >  > >

> > >  > > Thanks\

> > >  > > Steve in Missouri

> > >  > >

> > >  > >

> > >  > >

> > >  > >

> > >  >

> > >  >

> > >  >

> > >  >            

> > >  > __________________________________

> > >  > FareChase: Search multiple travel sites in one click.

> > >  > http://farechase.

> > >  >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hey there Carol,

my wife does get Social Security Disability but they screw her

because I am fully employed and they get away with murder because of

it, umm anyway I will look into it and see what happens if i end up

on disability alon/g with her, i am hoping that it will cause hers to

go up as well and then we can try from there, the hard part is as we

know they always deny the first time and then there is the long wait

to get approved for it, have to figure out a way to make it over that

long haul till it is approved and not sure if I can, I also do thank

you for keeping your

fingers crossed because between you an/d me I know deep in my heart

that I can not continue to work like I am for much lon/ger it is

getting hard to walk and hard to move, but hey thanks for the replies

and will let you know what happens.

> > > >  >

> > > >  > > Hello there,

> > > >  > >  well I have always avoided boards like this since I

> > > >  > > did not want to

> > > >  > > admit that I needed someone other than my wife to

> > > >  > > talk to about this

> > > >  > > disease, but I guess after having this crap for 3

> > > >  > > years now and

> > > >  > > things getting so freaking bad, i guess I decided to

> > > >  > > venture out and

> > > >  > > see if anyone wanted to chat about this pain in the

> > > >  > > butt disease..

> > > >  > >

> > > >  > > For me it has now developed to the point of me

> > > >  > > wishing that it would

> > > >  > > all end, the pain is now all the time, it is in

> > > >  > > every joint in my

> > > >  > > body, it hurts so bad I can not get out of bed like

> > > >  > > a normal person,

> > > >  > > I have to roll to the edge and throw myself onto the

> > > >  > > floor and then

> > > >  > > work myself to death trying to get off of the floor,

> > > >  > > this taking 15

> > > >  > > to 20 minutes every morning before getting ready for

> > > >  > > work, it is now

> > > >  > > also to the point where I fall whenever my knees

> > > >  > > decide they want to

> > > >  > > give out, I can no longer trust my legs anymore nor

> > > >  > > can I trust any

> > > >  > > part of my body anymore, some days are ok but most

> > > >  > > are not, I have

> > > >  > > tried so many of there drugs to stop the pain and

> > > >  > > yes some might ease

> > > >  > > it for a few days but it just returns with a

> > > >  > > vengence and kicks my

> > > >  > > butt so much that i can not hardly move.

> > > >  > >

> > > >  > > But still I have to work 60 hours a week to make

> > > >  > > bills and get by,

> > > >  > > the people at work look at me funny when i cannot

> > > >  > > hardly walk and

> > > >  > > struggle through the day,but since the wife can not

> > > >  > > work and has had

> > > >  > > M.S. for 16 years now I am the only one making any

> > > >  > > money for us to

> > > >  > > live on, her Goverment check is a little over 2

> > > >  > > hundred a month and

> > > >  > > who can live on that?

> > > >  > >

> > > >  > > I am not looking for any sympathy i guess I am just

> > > >  > > looking for

> > > >  > > someone to chat with about this disease, if I have

> > > >  > > bothered anyone

> > > >  > > please frogive me, sometimes you have to get it off

> > > >  > > your chest I

> > > >  > > guess.

> > > >  > >

> > > >  > > Thanks\

> > > >  > > Steve in Missouri

> > > >  > >

> > > >  > >

> > > >  > >

> > > >  > >

> > > >  >

> > > >  >

> > > >  >

> > > >  >            

> > > >  > __________________________________

> > > >  > FareChase: Search multiple travel sites in one

click.

> > > >  > http://farechase.

> > > >  >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Wow Steve, I really want this for both of you. Hopefully due to your

condition the feds won't jerk you around. I have heard that in extreme

cases there are first time approvals. Obviously yours is beyond

extreme! The fact that both of you are disabled may work to your

benefit. Additionally the fact that you have continued to try and work

with this debilitating disease.

Perhaps when you're asked for doctors names give the ones you are no

longer seeing. About the utilities, I think you could probably check

now - bases on your medical expenses and medical condition of both you

and your wife. I know this support is really valuable and that is due

to people sharing their experiences.

Keep me posted.

Carol

On Nov 16, 2005, at 3:30 PM, Steve wrote:

> Hey there Carol,

> my wife does get Social Security Disability but they screw her

> because I am fully employed and they get away with murder because of

> it, umm anyway I will look into it and see what happens if i end up

> on disability alon/g with her, i am hoping that it will cause hers to

> go up as well and then we can try from there, the hard part is as we

> know they always deny the first time and then there is the long wait

> to get approved for it, have to figure out a way to make it over that

> long haul till it is approved and not sure if I can, I also do thank

> you for keeping your

> fingers crossed because between you an/d me I know deep in my heart

> that I can not continue to work like I am for much lon/ger it is

> getting hard to walk and hard to move, but hey thanks for the replies

> and will let you know what happens.

>

> > >  > >  >

> > >  > >  > > Hello there,

> > >  > >  > >  well I have always avoided boards like this since

I

> > >  > >  > > did not want to

> > >  > >  > > admit that I needed someone other than my wife to

> > >  > >  > > talk to about this

> > >  > >  > > disease, but I guess after having this crap for 3

> > >  > >  > > years now and

> > >  > >  > > things getting so freaking bad, i guess I decided to

> > >  > >  > > venture out and

> > >  > >  > > see if anyone wanted to chat about this pain in the

> > >  > >  > > butt disease..

> > >  > >  > >

> > >  > >  > > For me it has now developed to the point of me

> > >  > >  > > wishing that it would

> > >  > >  > > all end, the pain is now all the time, it is in

> > >  > >  > > every joint in my

> > >  > >  > > body, it hurts so bad I can not get out of bed like

> > >  > >  > > a normal person,

> > >  > >  > > I have to roll to the edge and throw myself onto the

> > >  > >  > > floor and then

> > >  > >  > > work myself to death trying to get off of the floor,

> > >  > >  > > this taking 15

> > >  > >  > > to 20 minutes every morning before getting ready for

> > >  > >  > > work, it is now

> > >  > >  > > also to the point where I fall whenever my knees

> > >  > >  > > decide they want to

> > >  > >  > > give out, I can no longer trust my legs anymore nor

> > >  > >  > > can I trust any

> > >  > >  > > part of my body anymore, some days are ok but most

> > >  > >  > > are not, I have

> > >  > >  > > tried so many of there drugs to stop the pain and

> > >  > >  > > yes some might ease

> > >  > >  > > it for a few days but it just returns with a

> > >  > >  > > vengence and kicks my

> > >  > >  > > butt so much that i can not hardly move.

> > >  > >  > >

> > >  > >  > > But still I have to work 60 hours a week to make

> > >  > >  > > bills and get by,

> > >  > >  > > the people at work look at me funny when i cannot

> > >  > >  > > hardly walk and

> > >  > >  > > struggle through the day,but since the wife can not

> > >  > >  > > work and has had

> > >  > >  > > M.S. for 16 years now I am the only one making any

> > >  > >  > > money for us to

> > >  > >  > > live on, her Goverment check is a little over 2

> > >  > >  > > hundred a month and

> > >  > >  > > who can live on that?

> > >  > >  > >

> > >  > >  > > I am not looking for any sympathy i guess I am just

> > >  > >  > > looking for

> > >  > >  > > someone to chat with about this disease, if I have

> > >  > >  > > bothered anyone

> > >  > >  > > please frogive me, sometimes you have to get it off

> > >  > >  > > your chest I

> > >  > >  > > guess.

> > >  > >  > >

> > >  > >  > > Thanks\

> > >  > >  > > Steve in Missouri

> > >  > >  > >

> > >  > >  > >

> > >  > >  > >

> > >  > >  > >

> > >  > >  >

> > >  > >  >

> > >  > >  >

> > >  > >  >      

     

> > >  > >  > __________________________________

> > >  > >  > FareChase: Search multiple travel sites in one

> click.

> > >  > >  > http://farechase.

> > >  > >  >

> > >  > >

> > >  > >

> > >  > >

> > >  > >

> > >  > >

> > >  > >

> > >  > >

> > >  > >

> > >  > >