New to the group

[Guest guest]

,

Welcome! It's good to have you in the group. Sometimes it's trial and error

with the meds when it comes to Still's, we all react differently. I am on

Remicade and Methotrexate and was recently (finally) weaned off of Prednisone.

Hope things get better for you,

Gail - Visit me, your Kay Independent Beauty Consultant (5% of your

total order will be donated to the International Still's Disease Foundation)

http://www.marykay.com/glmurphy

MONIQUE THIBODEAUX wrote:

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this. I've

felt so good reading some of the emails from you and realizing how we are all

going through this. As you all know until you talk to someone else with the

disease and same crazy symptoms it makes you feel crazy. I've been on just about

every type of med and the first thing that worked was kineret but has started

wearing off. I was just recently started on imuran with the kineret and had to

stop two days ago d/t severe itching. I am just on prednisone 40 mg right now

and I go see my dr tomorrow. I don't know what will be next! I'll let everyone

know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

WELCOME ! Glad you found us, and I sure understand the relief it is to

know there really is a disease called Still's and it was not all in your head,

like many doc's can make you feel. I'm 25 years old living in california and I

was ill in 2002, Diagnosed in 2004. Again, glad you found us, do keep us posted

on your treatment/symptoms as we all can learn so much from eachother.

Lori in Cali

MONIQUE THIBODEAUX wrote:

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this. I've

felt so good reading some of the emails from you and realizing how we are all

going through this. As you all know until you talk to someone else with the

disease and same crazy symptoms it makes you feel crazy. I've been on just about

every type of med and the first thing that worked was kineret but has started

wearing off. I was just recently started on imuran with the kineret and had to

stop two days ago d/t severe itching. I am just on prednisone 40 mg right now

and I go see my dr tomorrow. I don't know what will be next! I'll let everyone

know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi ,

Glad you found and joined the list.

When I first got sick I would get the fevers only around 1PM or so. I was

having to leave work at about 2PM on a daily basis for over two weeks. Try

explaining that one to your boss. :-) I am sure he didn't know what the

heck was going on with me. Fortunately once it was diagnosed and he checked

out the Still's disease website he was much more understanding of the

condition and even pointed out the section on the recurring daily fevers.

I had not heard of the Imuran mentioned before. Thanks for posting about

it. I like knowing all the treatments available. Please be sure to keep

the list posted on your progress with the new medications.

Cheers,

Darv

Darvin Atkeson

http://www.liquidmoonlight.com <http://www.liquidmoonlight.com/>

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of MONIQUE THIBODEAUX

Sent: Wednesday, August 03, 2005 11:21 AM

To: stillsdisease

Subject: new to the group

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this.

I've felt so good reading some of the emails from you and realizing how we

are all going through this. As you all know until you talk to someone else

with the disease and same crazy symptoms it makes you feel crazy. I've been

on just about every type of med and the first thing that worked was kineret

but has started wearing off. I was just recently started on imuran with the

kineret and had to stop two days ago d/t severe itching. I am just on

prednisone 40 mg right now and I go see my dr tomorrow. I don't know what

will be next! I'll let everyone know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi

Welcome to the group! You have a very French name!!!!! Are you French? Well I am

!!! If you are French let me know, if not well you must have French ancestors

with a name like that!;-)

Gotta go , will post more later...

have a great day!!

MONIQUE THIBODEAUX a écrit :

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this. I've

felt so good reading some of the emails from you and realizing how we are all

going through this. As you all know until you talk to someone else with the

disease and same crazy symptoms it makes you feel crazy. I've been on just about

every type of med and the first thing that worked was kineret but has started

wearing off. I was just recently started on imuran with the kineret and had to

stop two days ago d/t severe itching. I am just on prednisone 40 mg right now

and I go see my dr tomorrow. I don't know what will be next! I'll let everyone

know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi I nam glad you found this group..patience is so important with

this disease. It is like your life goes on hold...I am hoping you get a

remission soon..and a long one too Hugs Liz NJ

[Guest guest]

Welcome ,

We are glad you found us too. Hope you will find all the love and support

you need here!

Lynn in WI

-- new to the group

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this. I

ve felt so good reading some of the emails from you and realizing how we are

all going through this. As you all know until you talk to someone else with

the disease and same crazy symptoms it makes you feel crazy. I've been on

just about every type of med and the first thing that worked was kineret but

has started wearing off. I was just recently started on imuran with the

kineret and had to stop two days ago d/t severe itching. I am just on

prednisone 40 mg right now and I go see my dr tomorrow. I don't know what

will be next! I'll let everyone know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Welcome ;

We are some family here and happy to help in any way we can. I'm nicknamed Melt

and diagnosed in 1977. Do pretty well today.

Smiles, Melt

hello everyone,

I'm , new to the mailing list.

[Guest guest]

Welcome !

I am glad you found us.....this is a wonderfully awesome Family and I personally

have met the best friend ever here.....and all are great folks!!!!!

I'm Larry, 45, married with 4 children, a Physical Therapist Assistant (have

been unable to work since first week of Jan. this year!

Anyway, keep coming back!!!

God Bless

Larry

MONIQUE THIBODEAUX wrote:

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this. I've

felt so good reading some of the emails from you and realizing how we are all

going through this. As you all know until you talk to someone else with the

disease and same crazy symptoms it makes you feel crazy. I've been on just about

every type of med and the first thing that worked was kineret but has started

wearing off. I was just recently started on imuran with the kineret and had to

stop two days ago d/t severe itching. I am just on prednisone 40 mg right now

and I go see my dr tomorrow. I don't know what will be next! I'll let everyone

know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

MARYLINE,

HELLO, I AM FRENCH. I WAS A FONTENOT AND MARRIED A THIBODEAUX. (I KNOW THATS

MOST OF THE JOKES THAT WE HEAR, BUT IT IS TRUE) HA HA. I AM FROM BATON ROUGE,

LA, BUT MY FAMILY IS FROM PORT BARRE AND OPELOUSAS, LA. WHERE ARE YOU FROM?

MONIQUE

line Barbat wrote:

Hi

Welcome to the group! You have a very French name!!!!! Are you French? Well I am

!!! If you are French let me know, if not well you must have French ancestors

with a name like that!;-)

Gotta go , will post more later...

have a great day!!

MONIQUE THIBODEAUX a écrit :

hello everyone,

I'm , new to the mailing list. I'm very happy to have found this. I've

felt so good reading some of the emails from you and realizing how we are all

going through this. As you all know until you talk to someone else with the

disease and same crazy symptoms it makes you feel crazy. I've been on just about

every type of med and the first thing that worked was kineret but has started

wearing off. I was just recently started on imuran with the kineret and had to

stop two days ago d/t severe itching. I am just on prednisone 40 mg right now

and I go see my dr tomorrow. I don't know what will be next! I'll let everyone

know.

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi ,

Welcome to the group. My name is Patti. I am 22 years old and diagnosed in

2002. Hope you find what you are looking for in this group. They are a great

bunch!

Patti~BC, Canada

>

>Reply-To: Stillsdisease

>To: stillsdisease

>Subject: new to the group

>Date: Wed, 3 Aug 2005 11:21:09 -0700 (PDT)

>

>

>hello everyone,

>I'm , new to the mailing list. I'm very happy to have found this.

>I've felt so good reading some of the emails from you and realizing how we

>are all going through this. As you all know until you talk to someone else

>with the disease and same crazy symptoms it makes you feel crazy. I've been

>on just about every type of med and the first thing that worked was kineret

>but has started wearing off. I was just recently started on imuran with the

>kineret and had to stop two days ago d/t severe itching. I am just on

>prednisone 40 mg right now and I go see my dr tomorrow. I don't know what

>will be next! I'll let everyone know.

>

>

>

>---------------------------------

> Start your day with Yahoo! - make it your home page

>

>

[Guest guest]

Welcome ! I am sorry to hear you were diagnosed with Stills. This

group is here to help you with any questions or concerns you might have about

AOSD. We also are here for support in trying times.........I have met so many

wonderful people through this group. And you will too. Hope you are feeling a

bit better......Carey in NJ

[Guest guest]

Welcome to the Stills family, ! My name is Barbara, age 46, and live

with my husband, , in Ventura, California. I'm glad you found our group,

too. Pull up a chair, read emails, join the chats when possible, and ask a lot

of questions.

Peace,

Barbara

[Guest guest]

Hi ,

I'm Tammi, age 47, and have had Stills since 1990. I live in WA state, have

4 kids, 3 still at home with one grandson, Hayden who is adorable (of course

lol!). It's nice to meet you, welcome.

Just wondering how your dr. appt. went and if you are still itching? Keep

us posted on how you are doing...

Tammi

[Guest guest]

Thanks to everyone for welcoming me to the group. I already feel like I know

some of you. Update: I went for my check up yesterday and he put me back on

kineret, I'm on 40mg of prednisone and tapering down. I actually feel better

today, and I hope it continues. Hope everyone else is doing as well as can be

expected. I'm interested in going to Vagas. I hope to see you there.

mncnotenuftime@... wrote:

Welcome ! I am sorry to hear you were diagnosed with Stills. This

group is here to help you with any questions or concerns you might have about

AOSD. We also are here for support in trying times.........I have met so many

wonderful people through this group. And you will too. Hope you are feeling a

bit better......Carey in NJ

[Guest guest]

Hi ,

Welcome to the Stills group. I'm B from CA. I've been on many meds

too! It seems to go with the disease. Hopefully, they'll come down on the

prednisone and you'll be feeling better as well. Have a pain free day!

[Guest guest]

Glad you are better today!!! Hope tomorrow is even better Hugs Liz

[Guest guest]

Sounds like you've all had enough stress in your lives and so it's not

surprising that an anxiety disorder would reveal itself at this time (as if you

didn't have enough to deal with already)! I'm hoping that your therapy will

help and that with time, your life will settled down and your daughter will get

better. It may be that she will learn some very good things about herself (she

already sounds terrific) and some coping skills that she can put to use in her

future as life seems to provide us all with stressors at some point or another.

Another thought...maybe some movies or books about family violence as a means of

exposure too? I sometimes wonder if multiple modes of exposure are best?

Hope things start looking up for you very soon

Bonnie

>

> I am new to the group. My 16-year old daughter was officially diagnosed with

OCD in 3/09. She went to a therapist from the OC Foundation. Her biggest

challenge was her bad thought, violent images OCD (harm to family members). One

of her ERPs for 8 weeks consisting of making stabbing motions with a kitchen

knife at myself or my husband, three times a week for about 40 minutes each

time. We were told to say things like " you are stabbing me in the chest " , " there

is blood on the floor " . Then we had to turn around so she could make stabbing

motions at us from behind, and we would say " you're stabbing me in the back " .

(It was horrible-the knife was actually inches away from us and very upsetting

to watch our child have to do something like this.)

>

> When she was first tested her Y-Bocs were at mid-20s and after 4 months of

therapy she tested at about an 8. When first tested, her obsessional beliefs

graph (especially for responsibility for others & perfectionism) was almost at

the top, after the 4 months of therapy her graph was way low in each category.

>

> At this point, her obessions have seemed to move to mostly other things like:

cheating on a test, gay thoughts, excessive doubting, . Seems like she is

having a wave every few weeks-although with start of school, it has been

stressful. She does her CBT strategies as best she can. Her therapist has her

call him as needed, with a scheduled monthly telephone session.

>

> She is not on any medications (it would have to be a last resort). She is

academically highly functioning-in two AP classes & the rest all Honors

classes-Junior in High School (lots & lots of stress!). She also got her

driver's license & a part-time job on the weekends. Has a good circle of

friends.

>

> It just has been so devastating to my husband and I that she has this to live

with. (My younger daughter-11 yrs old doesn't even know about it). All in the

same year for us: my daughter's OCD, my husband's business collapsed and our

house went into foreclosure, we've already moved two times.

>

> I started her on Inositol about 4 weeks ago, not sure if that's working or

not-she is up to 13g.

>

> I just don't know what to do at this point. My daughter hated going to

therapy-although she felt it helped her. She also still struggles with accepting

that she has OCD.

> When she feels the OCD wave coming she still gets scared (she said she worries

about how long it's going to last), it's sad-the tears, it's heart-breaking to

listen to and wait for it to subside.

>

> I personally was hoping she would do a lot better after weekly therapy for all

those months. Or maybe she is, I don't know if I am expecting too much too

soon.

>

> Thanks for listening. I've read the posts for the last few weeks and this is

an Amazing Supportive Group!

>

> Does anyone know a Naturopath in the Phoenix/sdale area?

> Also, when are people considered in recovery from OCD, can adolescents get

there quicker than adults?

> Any advice would be truly appreciated,

> Toni K

>

[Guest guest]

Hi Toni, welcome! Well it seems your daughter has made lots of progress, going

down the scale from mid-20's to so low. ERP really does help and I applaud her

for her progress and huge effort with it (and you & dad for having to

participate in the knife one!). Now that she has got the " hang of it " with

exposures, does she tend to come up with some herself and work on things, or

still rely more on her therapist? (asking since she's 16 and has had all those

months/weeks of doing CBT/ERP)

One of my 3 sons is diagnosed with OCD, also Aspergers. His OCD began in 6th

grade; had lots of compulsions, some rituals he had to do. We used inositol all

thru middle school, worked well for him. He was at around 13-14 grams too,

though more on days he needed it. I wasn't sure how well it was working either

(if at all) at first but the longer he was on it, the better he got. Short

story - OCD picked back up later in 8th, different reasons we went for

prescription and he began Celexa and took that 9th and 10th grades, it also

worked very well for him. He stopped Celexa at end of 10th, OCD came back

mid-11th grade (whole new OCD) with bad thoughts, scrupulosity type things, and

have since tried inositol again but no luck this time. (yes, LOL, that was the

short version) He's 20 now, in college, still suffers with the scrupe/thoughts

but refuses meds. SIGH! Still did well in school and college though, smart

kid!

Is OCD affecting her work at school? We had to set up a 504 Plan for to

get accommodations & modifications regarding work, tests, etc. Was a huge help

during the rough times.

As to recovery from OCD - well I'm not sure. Maybe when it's so far in the

background that it's no longer controlling the person, they can just shrug off

things and not follow thru with compulsions.... had some great years

(on inositol and later Celexa). But, per him, OCD was still " there " but I

didn't see it myself, had to ask him if OCD was still " around. "

single mom, 3 sons

, 20, with OCD, dysgraphia and Aspergers

, 20, (twin - not identical)

Randall, 24

>

> I am new to the group. My 16-year old daughter was officially diagnosed with

OCD in 3/09. She went to a therapist from the OC Foundation. Her biggest

challenge was her bad thought, violent images OCD (harm to family members). One

of her ERPs for 8 weeks consisting of making stabbing motions with a kitchen

knife at myself or my husband, three times a week for about 40 minutes each

time. We were told to say things like " you are stabbing me in the chest " , " there

is blood on the floor " . Then we had to turn around so

[Guest guest]

Dear

Thank you for responding to my e-mail and sharing your son's experience with

OCD.

In my daughter's case-she dreaded doing the exposures.  Not sure how effective

they really were, but she really did the best she could with them.    At this

point, she is using the CBT strategies when OCD pops up. Pscyhologist had

explained to her doing " mini exposures " when needed (I don't think she has done

those).  Her therapist has told her to contact him if she gets the OCD for more

than 3 days in a row.  She had her monthly telephone session with him this past

Sunday-and for the first time she did not share with myself or my husband ( even

though I would like to know everything, I feel it's good that she is finally

taking the responsibilty to deal with it herself-that may help her the most!)

As far as Y-Bocs scores: aren't they always better the weeks where it's waning?

Is the Obsessional Beliefs  Graph a better indicator?

As far as school she is stressed, but is doing academically way above average. 

She is a perfectionist when it comes to her schoolwork (not good). The

school/teachers are unaware of her situation.

At this stage, her OCD seems to be jumping all over the place to try to get her

(bad thoughts/moral scrup/superstitious/checking/; gets caught in pathological

doubt). 

The decision I am trying to deal with is:  How long do we wait & say enough

suffering, let's try some meds & get some relief from this-or would meds just

create a whole new can of worms?  She is not on any meds. 

I wish your son good luck in college, sounds like he is doing well.  Question

for you: why does he refuse meds?  My daughter doesn't want to do meds

either-personally I don't want her to either but when do you just say enough is

enough.

Honestly, I am so worn out over all I've read, researched, worried, waxed,

waned, etc. etc. 

I need to learn how to take a break from it-don't know if that's possible,

Regards,

Toni

Subject: Re: New to the Group

To:

Date: Monday, October 5, 2009, 10:00 PM

 

Hi Toni, welcome! Well it seems your daughter has made lots of progress, going

down the scale from mid-20's to so low. ERP really does help and I applaud her

for her progress and huge effort with it (and you & dad for having to

participate in the knife one!). Now that she has got the " hang of it " with

exposures, does she tend to come up with some herself and work on things, or

still rely more on her therapist? (asking since she's 16 and has had all those

months/weeks of doing CBT/ERP)

One of my 3 sons is diagnosed with OCD, also Aspergers. His OCD began in 6th

grade; had lots of compulsions, some rituals he had to do. We used inositol all

thru middle school, worked well for him. He was at around 13-14 grams too,

though more on days he needed it. I wasn't sure how well it was working either

(if at all) at first but the longer he was on it, the better he got. Short story

- OCD picked back up later in 8th, different reasons we went for prescription

and he began Celexa and took that 9th and 10th grades, it also worked very well

for him. He stopped Celexa at end of 10th, OCD came back mid-11th grade (whole

new OCD) with bad thoughts, scrupulosity type things, and have since tried

inositol again but no luck this time. (yes, LOL, that was the short version)

He's 20 now, in college, still suffers with the scrupe/thoughts but refuses

meds. SIGH! Still did well in school and college though, smart kid!

Is OCD affecting her work at school? We had to set up a 504 Plan for to

get accommodations & modifications regarding work, tests, etc. Was a huge help

during the rough times.

As to recovery from OCD - well I'm not sure. Maybe when it's so far in the

background that it's no longer controlling the person, they can just shrug off

things and not follow thru with compulsions. ... had some great years

(on inositol and later Celexa). But, per him, OCD was still " there " but I didn't

see it myself, had to ask him if OCD was still " around. "

single mom, 3 sons

, 20, with OCD, dysgraphia and Aspergers

, 20, (twin - not identical)

Randall, 24

>

> I am new to the group. My 16-year old daughter was officially diagnosed with

OCD in 3/09. She went to a therapist from the OC Foundation. Her biggest

challenge was her bad thought, violent images OCD (harm to family members). One

of her ERPs for 8 weeks consisting of making stabbing motions with a kitchen

knife at myself or my husband, three times a week for about 40 minutes each

time. We were told to say things like " you are stabbing me in the chest " , " there

is blood on the floor " . Then we had to turn around so

[Guest guest]

Hi Tony, well refuses meds because he wants to defeat this on his own.

His words. And he doesn't think all of " this " is OCD. The OCD makes his

thoughts more frequent, makes him obsess more, etc., but doesn't cause the

thoughts or all of them. It's just *him.*

With his OCD (scrupulosity) type thoughts being mixed up with his religious

faith, I suspect he also thinks the devil is the cause of at least some of it.

So also has to defeat on his own.

I also suspect knowing that meds could *possibly* cause suicidal thoughts

bothered him before, back when he refused to start back on any prescription in

high school. He's in his 3rd college year now, I don't know if that is still

part of it. Even though he was on Celexa in 9th and 10th grades and did great

on it, he will say that he doesn't feel the Celexa helped much. (yep,

apparently OCD got better on its own! he beat it...)

Since you already started inositol powder, I'd go ahead and give it the full

" trial " unless you feel your daughter is in such distress you want to shoot for

prescription now. Prescription SSRIs sometimes show improvement that first

month but can take longer, varies with people; believe it's a 12 week trial for

each med that is suggested. We only tried the Celexa, it worked well. So

luckily didn't have to try more than one SSRI, which can happen, finding *the*

one that works best (sometimes side effects are too bothersome or bad, though

's only one with Celexa was tiredness).

For myself, I found my breaks where I could. Chocolate, ice cream, new books,

driving the long way home, renting movies, getting out in the yard.... Even

just 5 or 10 minutes here & there during the day helped keep me sane! (and this

group helped the most!)

>

> Dear

> Thank you for responding to my e-mail and sharing your son's experience with

OCD.

> In my daughter's case-she dreaded doing the exposures.  Not sure how effective

they really were, but she really did the best she could with them.    At this

point, she is using the CBT strategies when OCD pops up. Pscyhologist had

explained to her doing " mini exposures " when needed (I don't think she has done

those).  Her therapist has told her to contact him if she gets the OCD for more

than 3 days in a row.  She had her monthly telephone session with him this past

Sunday-and for the first time she did not share with myself or my husband ( even

though I would like to know everything, I feel it's good that she is finally

taking the responsibilty to deal with it herself-that

[Guest guest]

> Hi

Tony....

Oops, think that should have read " Hi Toni " with an " i " - sorry!

[Guest guest]

Welcome, Diane. It is very stressful and overwhelming when you first get a

diagnosis.

Have you been able to do much reading on OCD? Learning about it helped me to be

less stressed because I felt like I had a bit more control and felt hopeful that

there was something that could be done to improve things, rather than just

enduring.

Here are a few of my favorite books. . ..

What to do when your Child has Obsessive-Compulsive Disorder by Aureen

Pinto Wagner Ph.D.

Freeing Your Child from Obsessive-Compulsive Disorder by Tamar E. Chansky

Helping Your Child With Ocd: A Workbook for Parents of Children With

Obsessive-Compulsive Disorder by Lee Fitzgibbons and Cherry Pedrick

Talking Back to OCD by March

They define what OCD is and what is normal behavior with OCD. They also

describe the only therapy known to work with OCD, which is called CBT/ERP

(cognitive behavioral therapy and exposure and response prevention). The last

two book are workbooks that can walk you through the therapy.

Our son had a lot of contamination issues with his OCD. The ERP therapy helped

quite a bit. He still reacts, at times, but not nearly like he used to. His

OCD was so severe he also needed medication. Some can improve with therapy

alone, but depending on the severity, others might need the assist of meds.

For you. . .Try to find some time to yourself. Just to catch your breath. I

know it is hard. Even if you can take a few extra minutes in the bathroom to

try to clear your mind, it can help.

Do you have any family around who can help out too, by giving you an occasional

break?

Another thing that used to help our son was to have him invite a friend over.

He was able to control his OCD better when a friend was around. I think partly

because he was distracted and partly because he didn't want them to see his OCD

and think he was odd. That always gave me a little break too.

Glad you found us.

BJ

>

> My youngest daughter (aged 13) has been diagnosed with OCD - germophobia and I

find it all very stressful for me to deal with.  I can only imagine how it is

for her.  I am a single parent and just dealing with her odd behaviors is very

stressful for me - also the extra expense.  Any suggestions on beating the

stress would be very well received.  I have a great job, but have to spend long

hours.

>

> Diane GS

>

>

>

>

>

[Guest guest]

*Is she on medication? I have 3 sons with OCD and they take Luvox, Zoloft

and Proazac. It controls their symptoms well. We tried biofeedback therapy

for my youngest son, but it did not work. I know a lot of families are

reluctant to try medication and this is not a comment about their choice.

However, without my kids medication, none of them would be leading a normal

life. **If you want, you can check out their stories on my blog at*

http://5kidswdisabilities.wordpress.com.

*Good luck! Lindsey sen*

>

>

> My youngest daughter (aged 13) has been diagnosed with OCD

> - germophobia and I find it all very stressful for me to deal with. I can

> only imagine how it is for her. I am a single parent and just dealing with

> her odd behaviors is very stressful for me - also the extra expense. Any

> suggestions on beating the stress would be very well received. I have a

> great job, but have to spend long hours.

>

> Diane GS

>

> [

>

[Guest guest]

Thank you for referring me to some good books on OCD. My daughter has been on

medication for about 5 months. She is pretty good - when she takes it. I can

always tell when she doesn't take it. She gets very argumentive and fidgety. I

am ordering two books on CBT/ERP to help. I feel so thankful to have found such

a supportive group. As bad as it sounds, I actually find a bit of comfort

knowing my daughter is not the only one with this.

> >

> > My youngest daughter (aged 13) has been diagnosed with OCD - germophobia and

I find it all very stressful for me to deal with.  I can only imagine how it is

for her.  I am a single parent and just dealing with her odd behaviors is very

stressful for me - also the extra expense.  Any suggestions on beating the

stress would be very well received.  I have a great job, but have to spend long

hours.

> >

> > Diane GS

> >

> >

> >

> >

> >

[Guest guest]

I'm glad the medication is helping her. Why does she sometimes not take it? Or

is she just forgetful?

OCD can be so isolating. It's good to find others who understand what you are

going through, for support. Only those who live it really seem to get it. This

group has been a blessing to me.

BJ

> > >

> > > My youngest daughter (aged 13) has been diagnosed with OCD

- germophobia and I find it all very stressful for me to deal with.  I can only

imagine how it is for her.  I am a single parent and just dealing with her odd

behaviors is very stressful for me - also the extra expense.  Any suggestions on

beating the stress would be very well received.  I have a great job, but have to

spend long hours.

> > >

> > > Diane GS

> > >

> > >

> > >

> > >

> > >