Intros & updates

April 17, 2010

Hi Everyone,

My name is ette, I live in New Iberia, Louisiana, I have been a member here for a long time, but discontinued email as so much was happening in my life I could not keep up.

I was diagnosed in 1999, but have had Hep C since 1972 when I was given a blood transfusion more than once after my son was born. My husband had it also. Smaller viral load than mine. we both went under tx(2001) at the same time with the Peg/intron/ribiviran combo. His and is still clear now for 10 yrs. Mine did not. Probably cos I had the virus longer but who knows. My specialist was out of New Orleans but after Katrina lost contact with him and had to use a different one which I am unhappy with so I will be going back to New Orleans soon. He is more likely to guide me to another tx.

Went back to work in 2003 after recovering from the side effects and gained strength, but just after that my only son (30yrs) drowned in a work related accident Dec 23 2003, so my life was turned upside down from that and a wrongful death suit i filed for unsafe working conditions. In 2009 I had some sort of health issue I am still trying to find out what it is. Not sure if it is Hep C related or Rhem Arthiritis or Lupus. Am still waiting for labs. I am having respiratory issues too. Never having smoked in my entire life, have COPD, but not bad enought yet to have oxygen all the time. Just at nite with a cpap machine for my apnea.\

I have been re educating myself on my health issues so excuse me if I don't use the same abbreviations or don't understand the ones ya'll write as things have changed since I have been here last. I do read and appreciate the links this group provides as it has helped me with trying of re educate myself and catch up with new findings.

ette Hoeber

To: hepatitiscsupportgroupfordummies Sent: Sat, April 17, 2010 4:59:13 AMSubject: Intros & updates

Hello Everybody, It's that time again - time to introduce yourself to our new members & update the oldies on how things are going in your life. I'll start, k? I'm SuZie, one of the moderators & a long time member (since Deb & Liz started the group) I live in Thunder Bay, Ontario, Canada (the GWN) with my roomie Sir SpYke the Fuzzy, a well- loved & very pushy Birman cat. I was dx'd HCV+ in 1990 but I've had it since 1969 when, in my "hippie" days, I was using injection drugs for a few years. BTW, haven't touched the stuff in 25 years (or alcohol since I was diagnosed but that never was my D O C anyways) Tried tx(treatment) twice, once interferon alone & once interferon & ribivirin. I wanted to try again with the present combo but

by that time the doctors said my cirrhosis had "decompensated" & tx could do more harm than good so, since then I've been geting by on my own. In Sept 2007 the docs found a growth on my liver & jumped to the conclusion that I had cancer. I spent the next 2 years flying back & forth from here to Toronto to see the docs at the T P Clinic there - 2,000 km a trip there & back - until last August when they finally figured out what I'd known all along. I didn't have liver cancer, now they say it's a regenerative nodule & I only have to go to Toronto twice a year & one of my doctors is holding out hope that I might be able to qualify for a study on the new tx coming out. Any questions anyone has, ask. I've been around here & other facets of HCV education & tx for 20+ years now, you wouldn't believe the files I have on just about anything hep related. Let us know

who you are & how you are & if you have any questions. We're here to listen & help if we can.SuZie & Sir SpYke the Magnificent, a k a He Who Must Be ObeyedWhen I play with my cat, how do I know that he is not passing time with me rather than I with him? - - Montaigne

April 18, 2010

Well… I am another moderator for this

dummies group. My name is Llinda (llooney llinda who llives on llama llane), or

, and I reside in north-central Idaho… waaaay out in the boonies. I

raise llamas, white doves, white fantail doves and homing pigeons. I have 13

parrots (and two hatchling lovebirds), of which over half are rescues. I also

have 6 cats and three large dogs… all of these are rescues. I’ve

recently adopted 4 ducklings and can’t wait until they are old enough to

stay out doors overnight. Inside in their large cage they make an unbelievable

daily mess, and I’ve adopted 8 young chickens of various types. Oh, I’ve

also one semi-patient hubby of 32+ years.

I have the most common form of HCV in this

country, type 1A. I’m not sure how I contracted this disease and it drove

me buggy for quite awhile trying to figure it out, but I finally realized it doesn’t

matter how. It is quite possible that in my younger years I was stoned enough

to become careless at some point… it could have happened, lol. Whatever, I’ve

got it and that’s that.

I am finally on disability (a 2 point 7

year battle) for 4 herniated discs in my neck, copd and autoimmune arthritis (probably

caused by the HCV). I do work part time out of my home doing computer repair,

now there’s a love/hate relationship J.

My biopsy showed minimal damage to my

liver, talk about lucky there. I did a full year of ribo/peg tx (treatment) in

2004-05 and cleared the virus, it was a rough path but worth it. I’ve not

been tested since 6 months post tx but liver function remains normal so I am

doing great.

I am also here to help, just holler if you

need me… My email is llinda@....

April 18, 2010

Hi, My name is Sherry and I live in Indiana. I found this group in 2006 right

after being told I had HEP Cbut have never really posted much. I do a lot of

reading and have learned quite a bit. I have (from what I am told) the hardest

type of HEP C to treat - Geno type 1A. I have never done any type of treatment

mostly because of all the things I have read about it. My liver bioposy was

good, get my blood work done every 6 months, so far so good except of course the

viral load which does sky rocket every so often. I don't drink and I am told

that helps a lot. I have been trying to get SSI since April 2007 and have been

turned down by Social Security and turned down at first hearing last yr. The

worse thing I notice about HEP C is the fatigue - it's terrible. And I have

depression which doesnt help and I have just been told I have fibromylgia (not

sure of spelling). I am 52 and work part time. Guess that's about it on me - I

do enjoy the board, a lot of very nice people on here and a lot of good

information. I do have a question now. The past couple of weeks, my whole body

itches all the time. My head, arms, legs, back, stomach, chest. No rash - no

bites - nothing- just itch itch. Anyone else have this problem or any ideas?

Sorry if it's a dumb question, but the few times I have asked a question on

here, I have gotten help. And no changes in soap, food, bedding, nothing.

Thank you and God Bless to everyone!

>

> Well. I am another moderator for this dummies group. My name is Llinda

> (llooney llinda who llives on llama llane), or , and I reside in

> north-central Idaho. waaaay out in the boonies. I raise llamas, white doves,

> white fantail doves and homing pigeons. I have 13 parrots (and two hatchling

> lovebirds), of which over half are rescues. I also have 6 cats and three

> large dogs. all of these are rescues. I've recently adopted 4 ducklings and

> can't wait until they are old enough to stay out doors overnight. Inside in

> their large cage they make an unbelievable daily mess, and I've adopted 8

> young chickens of various types. Oh, I've also one semi-patient hubby of 32+

> years.

>

> I have the most common form of HCV in this country, type 1A. I'm not sure

> how I contracted this disease and it drove me buggy for quite awhile trying

> to figure it out, but I finally realized it doesn't matter how. It is quite

> possible that in my younger years I was stoned enough to become careless at

> some point. it could have happened, lol. Whatever, I've got it and that's

> that.

>

> I am finally on disability (a 2 point 7 year battle) for 4 herniated discs

> in my neck, copd and autoimmune arthritis (probably caused by the HCV). I do

> work part time out of my home doing computer repair, now there's a love/hate

> relationship J.

>

> My biopsy showed minimal damage to my liver, talk about lucky there. I did a

> full year of ribo/peg tx (treatment) in 2004-05 and cleared the virus, it

> was a rough path but worth it. I've not been tested since 6 months post tx

> but liver function remains normal so I am doing great.

>

> I am also here to help, just holler if you need me. My email is

> llinda@...

>

April 18, 2010

Hi Sherry, itching is a fairly common symptom of hcv. Some people

use oatmeal baths to help. Aveeno helps a lot too.

Hi, My name is Sherry and I live in Indiana. I

found this group in 2006 right after being told I had HEP Cbut have never

really posted much. I do a lot of reading and have learned quite a bit. I have

(from what I am told) the hardest type of HEP C to treat - Geno type 1A. I have

never done any type of treatment mostly because of all the things I have read

about it. My liver bioposy was good, get my blood work done every 6 months, so

far so good except of course the viral load which does sky rocket every so

often. I don't drink and I am told that helps a lot. I have been trying to get

SSI since April 2007 and have been turned down by Social Security and turned

down at first hearing last yr. The worse thing I notice about HEP C is the

fatigue - it's terrible. And I have depression which doesnt help and I have

just been told I have fibromylgia (not sure of spelling). I am 52 and work part

time. Guess that's about it on me - I do enjoy the board, a lot of very nice

people on here and a lot of good information. I do have a question now. The

past couple of weeks, my whole body itches all the time. My head, arms, legs,

back, stomach, chest. No rash - no bites - nothing- just itch itch. Anyone else

have this problem or any ideas? Sorry if it's a dumb question, but the few

times I have asked a question on here, I have gotten help. And no changes in

soap, food, bedding, nothing.

Thank you and God Bless to everyone!

April 18, 2010

Welcome lloney llinda who llives on llama llane (I love this) lol..... so happy that you cleared, I did treatment a few years ago but never cleared so am patiently waiting for the next treatment to come out.... I know you'll enjoy your time with us...

Anya~~~~~~~~~'Dance like no one is watching. Sing like no one is listening. Love like you've never been hurt and live like it's heaven on Earth.' ~Mark Twain~

Intros & updates

Well… I am another moderator for this dummies group. My name is Llinda (llooney llinda who llives on llama llane), or , and I reside in north-central Idaho… waaaay out in the boonies. I raise llamas, white doves, white fantail doves and homing pigeons. I have 13 parrots (and two hatchling lovebirds), of which over half are rescues. I also have 6 cats and three large dogs… all of these are rescues. I’ve recently adopted 4 ducklings and can’t wait until they are old enough to stay out doors overnight. Inside in their large cage they make an unbelievable daily mess, and I’ve adopted 8 young chickens of various types. Oh, I’ve also one semi-patient hubby of 32+ years.

I have the most common form of HCV in this country, type 1A. I’m not sure how I contracted this disease and it drove me buggy for quite awhile trying to figure it out, but I finally realized it doesn’t matter how. It is quite possible that in my younger years I was stoned enough to become careless at some point… it could have happened, lol. Whatever, I’ve got it and that’s that.

I am finally on disability (a 2 point 7 year battle) for 4 herniated discs in my neck, copd and autoimmune arthritis (probably caused by the HCV). I do work part time out of my home doing computer repair, now there’s a love/hate relationship J.

My biopsy showed minimal damage to my liver, talk about lucky there. I did a full year of ribo/peg tx (treatment) in 2004-05 and cleared the virus, it was a rough path but worth it. I’ve not been tested since 6 months post tx but liver function remains normal so I am doing great.

I am also here to help, just holler if you need me… My email is llindawildblue (DOT) net.

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06:31:00

April 18, 2010

Hi, I have the same problem with itchiness, scalp, inside of my ears, private parts, bottom of feet, back of legs, the whole body.... sometimes I just want to go outside and roll around naked on the driveway... The Dr. prescribed an antihistamine(sp?) for me, don't know if its working or not, maybe it would be worse without it.

*sigh*

Thanks for listening.

O yea, I'm Anya/Babs from British Columbia, Canada and I've known that I've had HepC for about 6 years. I'm type B and have extreme fatigue, whole body aches. I don't work and seriously don't know how people do work. I'm also extremely obese although I've started a walking program out at the lake, little tho' it maybe. *My walking program not the lake* lol

I don't post much. I'm very depressed right now. Hubby is going in for surgery on Tuesday and trying to keep a happy face around him and then waking up in the middle of the night and crying is taking its toll on me.

Take care all.

Anya~~~~~~~~~'Dance like no one is watching. Sing like no one is listening. Love like you've never been hurt and live like it's heaven on Earth.' ~Mark Twain~

Re: Intros & updates

Hi, My name is Sherry and I live in Indiana. I found this group in 2006 right after being told I had HEP Cbut have never really posted much. I do a lot of reading and have learned quite a bit. I have (from what I am told) the hardest type of HEP C to treat - Geno type 1A. I have never done any type of treatment mostly because of all the things I have read about it. My liver bioposy was good, get my blood work done every 6 months, so far so good except of course the viral load which does sky rocket every so often. I don't drink and I am told that helps a lot. I have been trying to get SSI since April 2007 and have been turned down by Social Security and turned down at first hearing last yr. The worse thing I notice about HEP C is the fatigue - it's terrible. And I have depression which doesnt help and I have just been told I have fibromylgia (not sure of spelling). I am 52 and work part time. Guess that's about it on me - I do enjoy the board, a lot of very nice people on here and a lot of good information. I do have a question now. The past couple of weeks, my whole body itches all the time. My head, arms, legs, back, stomach, chest. No rash - no bites - nothing- just itch itch. Anyone else have this problem or any ideas? Sorry if it's a dumb question, but the few times I have asked a question on here, I have gotten help. And no changes in soap, food, bedding, nothing. Thank you and God Bless to everyone!>> Well. I am another moderator for this dummies group. My name is Llinda> (llooney llinda who llives on llama llane), or , and I reside in> north-central Idaho. waaaay out in the boonies. I raise llamas, white doves,> white fantail doves and homing pigeons. I have 13 parrots (and two hatchling> lovebirds), of which over half are rescues. I also have 6 cats and three> large dogs. all of these are rescues. I've recently adopted 4 ducklings and> can't wait until they are old enough to stay out doors overnight. Inside in> their large cage they make an unbelievable daily mess, and I've adopted 8> young chickens of various types. Oh, I've also one semi-patient hubby of 32+> years. > > I have the most common form of HCV in this country, type 1A. I'm not sure> how I contracted this disease and it drove me buggy for quite awhile trying> to figure it out, but I finally realized it doesn't matter how. It is quite> possible that in my younger years I was stoned enough to become careless at> some point. it could have happened, lol. Whatever, I've got it and that's> that.> > I am finally on disability (a 2 point 7 year battle) for 4 herniated discs> in my neck, copd and autoimmune arthritis (probably caused by the HCV). I do> work part time out of my home doing computer repair, now there's a love/hate> relationship J.> > My biopsy showed minimal damage to my liver, talk about lucky there. I did a> full year of ribo/peg tx (treatment) in 2004-05 and cleared the virus, it> was a rough path but worth it. I've not been tested since 6 months post tx> but liver function remains normal so I am doing great.> > I am also here to help, just holler if you need me. My email is> llinda@...>

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.437 / Virus Database: 271.1.1/2818 - Release Date: 04/18/10 06:31:00

April 18, 2010

Uhhhh… Just for the record Anya… I am a

moderator here, lol. Been here for many years, LOLOLOL. I joined this group in

2004. I’m pretty quiet most of the time.

(still llooney though)

Welcome lloney llinda who

llives on llama llane (I love this) lol..... so happy that you cleared, I did

treatment a few years ago but never cleared so am patiently waiting for the

next treatment to come out.... I know you'll enjoy your time with us...

Anya

~~~~~~~~~

'Dance like no one is watching. Sing like no one is listening.

Love like you've never been hurt and live like it's heaven on Earth.'

~Mark Twain~

April 18, 2010

well, I'm not on that much, lol.. sorry for the confusion llinda... lol.. you make me laugh...

Anya~~~~~~~~~'Dance like no one is watching. Sing like no one is listening. Love like you've never been hurt and live like it's heaven on Earth.' ~Mark Twain~

RE: Intros & updates

Uhhhh… Just for the record Anya… I am a moderator here, lol. Been here for many years, LOLOLOL. I joined this group in 2004. I’m pretty quiet most of the time.

(still llooney though)

Welcome lloney llinda who llives on llama llane (I love this) lol..... so happy that you cleared, I did treatment a few years ago but never cleared so am patiently waiting for the next treatment to come out.... I know you'll enjoy your time with us...

Anya~~~~~~~~~'Dance like no one is watching. Sing like no one is listening. Love like you've never been hurt and live like it's heaven on Earth.' ~Mark Twain~

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.437 / Virus Database: 271.1.1/2818 - Release Date: 04/18/10 06:31:00

No virus found in this outgoing message.

Checked by AVG - www.avg.com

Version: 8.5.437 / Virus Database: 271.1.1/2818 - Release Date: 04/18/10

06:31:00

April 18, 2010

Thanks for responding . Would it just start out of the blue like this? I

have not had this problem ever before.

>

> Hi Sherry, itching is a fairly common symptom of hcv. Some people use

> oatmeal baths to help. Aveeno helps a lot too.

>

> _____

>

> Hi, My name is Sherry and I live in Indiana. I found this group in 2006

> right after being told I had HEP Cbut have never really posted much. I do a

> lot of reading and have learned quite a bit. I have (from what I am told)

> the hardest type of HEP C to treat - Geno type 1A. I have never done any

> type of treatment mostly because of all the things I have read about it. My

> liver bioposy was good, get my blood work done every 6 months, so far so

> good except of course the viral load which does sky rocket every so often. I

> don't drink and I am told that helps a lot. I have been trying to get SSI

> since April 2007 and have been turned down by Social Security and turned

> down at first hearing last yr. The worse thing I notice about HEP C is the

> fatigue - it's terrible. And I have depression which doesnt help and I have

> just been told I have fibromylgia (not sure of spelling). I am 52 and work

> part time. Guess that's about it on me - I do enjoy the board, a lot of very

> nice people on here and a lot of good information. I do have a question now.

> The past couple of weeks, my whole body itches all the time. My head, arms,

> legs, back, stomach, chest. No rash - no bites - nothing- just itch itch.

> Anyone else have this problem or any ideas? Sorry if it's a dumb question,

> but the few times I have asked a question on here, I have gotten help. And

> no changes in soap, food, bedding, nothing.

>

> Thank you and God Bless to everyone!

>

April 18, 2010

The itching comes and goes for me.

Subject: Re: Intros & updatesTo: HepatitisCSupportGroupForDummies Date: Sunday, April 18, 2010, 6:24 PM

Thanks for responding . Would it just start out of the blue like this? I have not had this problem ever before. >> Hi Sherry, itching is a fairly common symptom of hcv. Some people use> oatmeal baths to help. Aveeno helps a lot too.> > > > > > _____ > > > > Hi, My name is Sherry and I live in Indiana. I found this group in 2006> right after being told I had HEP Cbut have never really posted much. I do a> lot of reading and have learned quite a bit. I have (from what I am told)> the hardest type of HEP C to treat - Geno type 1A. I

have never done any> type of treatment mostly because of all the things I have read about it. My> liver bioposy was good, get my blood work done every 6 months, so far so> good except of course the viral load which does sky rocket every so often. I> don't drink and I am told that helps a lot. I have been trying to get SSI> since April 2007 and have been turned down by Social Security and turned> down at first hearing last yr. The worse thing I notice about HEP C is the> fatigue - it's terrible. And I have depression which doesnt help and I have> just been told I have fibromylgia (not sure of spelling). I am 52 and work> part time. Guess that's about it on me - I do enjoy the board, a lot of very> nice people on here and a lot of good information. I do have a question now.> The past couple of weeks, my whole body itches all the time. My head, arms,> legs, back, stomach,

chest. No rash - no bites - nothing- just itch itch.> Anyone else have this problem or any ideas? Sorry if it's a dumb question,> but the few times I have asked a question on here, I have gotten help. And> no changes in soap, food, bedding, nothing. > > Thank you and God Bless to everyone!>

April 18, 2010

Hi Sherry,I am Ann and I also have had the same itching that you do...When it happens i take benadryl for it.. Its crazy to itch like that, and sometimes when it happens its like around my eyes, my mouth..There is never a rash...I have not had an episode in 6 months at least...I was told it has something to do with the hep c virus...Bet cha lots of others have had the same problem...take care annFrom: brokerulrich

To: HepatitisCSupportGroupForDummies Sent: Sun, April 18, 2010 2:40:41 PMSubject: Re: Intros & updates

Hi, My name is Sherry and I live in Indiana. I found this group in 2006 right after being told I had HEP Cbut have never really posted much. I do a lot of reading and have learned quite a bit. I have (from what I am told) the hardest type of HEP C to treat - Geno type 1A. I have never done any type of treatment mostly because of all the things I have read about it. My liver bioposy was good, get my blood work done every 6 months, so far so good except of course the viral load which does sky rocket every so often. I don't drink and I am told that helps a lot. I have been trying to get SSI since April 2007 and have been turned down by Social Security and turned down at first hearing last yr. The worse thing I notice about HEP C is the fatigue - it's terrible. And I have depression which doesnt help and I have just been told I have fibromylgia (not sure of spelling). I am 52 and work part time. Guess that's about it on me - I do enjoy the

board, a lot of very nice people on here and a lot of good information. I do have a question now. The past couple of weeks, my whole body itches all the time. My head, arms, legs, back, stomach, chest. No rash - no bites - nothing- just itch itch. Anyone else have this problem or any ideas? Sorry if it's a dumb question, but the few times I have asked a question on here, I have gotten help. And no changes in soap, food, bedding, nothing.