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Re: fall and symptoms

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My symptoms are worse with barometric pressure drops. Watch for that

to see if there is a pattern. Cassy

--- In , " dreamer_plus " <dreamer_plus@w...>

wrote:

>

> Sure seems to me in fall and spring my symptoms greatly increase. I

live up in northern IL. I know the day of the tornados in Iowa I was

unale to walk or stand at all..and the ssame the week before when the

tornados were in Indiana. (I hope everyone is safe and well!)

> The middle of winter does not seem to hit as hard as the transitional

seasons. Is this my imagination?

> To my delight last year when we went out east to NYC, NJ, DC and PA I

was symptom free after the first week, until a few days after we got

back home. (and then it was thunderstorming here)

>

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Hi again dreamer. Hey! I live in Woodstock, IL. I was in Texas a few weeks

ago and I felt so much better while I was there. The last couple of weeks here

have been brutal. Yesterday the wind was howling and it felt like it was

going through my bones even though I was safely indoors. The weather here is

ridiculous. Have you heard the joke..You know you live near Chicago when you

use the air conditioner and the heater in the same day. I've done that several

times.

laura

dreamer_plus <dreamer_plus@...> wrote: Sure seems to me in fall and

spring my symptoms greatly increase. I live up in northern IL. I know the day

of the tornados in Iowa I was unale to walk or stand at all..and the ssame the

week before when the tornados were in Indiana. (I hope everyone is safe and

well!)

The middle of winter does not seem to hit as hard as the transitional seasons.

Is this my imagination?

To my delight last year when we went out east to NYC, NJ, DC and PA I was

symptom free after the first week, until a few days after we got back home.

(and then it was thunderstorming here)

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small world, I am in Woodstock, too! Up near the schools, towards the

government center.

- In , Bauman <ilovecats83160@y...> wrote:

>

> Hi again dreamer. Hey! I live in Woodstock, IL. I was in Texas a few weeks

ago and I felt so much better while I was there. The last couple of weeks here

have been brutal. Yesterday the wind was howling and it felt like it was

going through my bones even though I was safely indoors. The weather here is

ridiculous. Have you heard the joke..You know you live near Chicago when you

use the air conditioner and the heater in the same day. I've done that several

times.

>

> laura

>

> dreamer_plus <dreamer_plus@w...> wrote: Sure seems to me in fall and

spring my symptoms greatly increase. I live up in northern IL. I know the day

of the tornados in Iowa I was unale to walk or stand at all..and the ssame the

week before when the tornados were in Indiana. (I hope everyone is safe and

well!)

> The middle of winter does not seem to hit as hard as the transitional

seasons. Is this my imagination?

> To my delight last year when we went out east to NYC, NJ, DC and PA I was

symptom free after the first week, until a few days after we got back home.

(and then it was thunderstorming here)

>

>

>

>

>

>

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Wow! I know SO little about this disease! Is the weather why I'm

having so much pain all the sudden? I always have the headaches...I

guess the arthritis in my neck is pretty substantial. But, the

finger pain & the aching all over is pretty new. The fatigue has

been an on-going battle, but it's been at its absolute worst the

past couple of months. I can hardly get motivated enough to get

dressed most days. Ugh!

I absolutely love the cooler weather & the snow...it's easier on my

MS. But, I've entered a whole new world of pain since the weather

has turned colder. Now maybe I know why.

I'm just East of you guys that are in the Chicago area...about 1.5

hours South of South Bend. I see Chang (neurologist) and am supposed

to be seeing Ringwald (rheumotologist) sometime...Both are out of

Ft. Wayne. Chang comes to my area a couple days each week and

Ringwald I'll have to see in Ft. Wayne.

Is it 'normal' to wait 3 months or better to get an appointment with

a rheumy?! What a pain...literally & figuratively!!

It sounds like 'most' of us are relatively close...Indiana/Illinois

area. Is there any research out there involving areas of the country

& RA? Just curious...

Thanks!

Cami

Sure seems to

me in fall and spring my symptoms greatly increase. I live up in

northern IL. I know the day of the tornados in Iowa I was unale

to walk or stand at all..and the ssame the week before when the

tornados were in Indiana. (I hope everyone is safe and well!)

> > The middle of winter does not seem to hit as hard as the

transitional seasons. Is this my imagination?

> > To my delight last year when we went out east to NYC, NJ,

DC and PA I was symptom free after the first week, until a few

days after we got back home. (and then it was thunderstorming

here)

> >

> >

> >

> >

> >

> >

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It took me eight weeks to get my first appointment with a board certified

rheumatololgist. I still can't see him any more often than every six weeks,

even though he says I need to see him every month. I want to say, " Aren't you

rich enough yet? You still have to take new patients? " But then again I guess

the new patients would be SOL.

laura

Cami DeFries <gsplovers@...> wrote: Wow! I know SO little

about this disease! Is the weather why I'm

having so much pain all the sudden? I always have the headaches...I

guess the arthritis in my neck is pretty substantial. But, the

finger pain & the aching all over is pretty new. The fatigue has

been an on-going battle, but it's been at its absolute worst the

past couple of months. I can hardly get motivated enough to get

dressed most days. Ugh!

I absolutely love the cooler weather & the snow...it's easier on my

MS. But, I've entered a whole new world of pain since the weather

has turned colder. Now maybe I know why.

I'm just East of you guys that are in the Chicago area...about 1.5

hours South of South Bend. I see Chang (neurologist) and am supposed

to be seeing Ringwald (rheumotologist) sometime...Both are out of

Ft. Wayne. Chang comes to my area a couple days each week and

Ringwald I'll have to see in Ft. Wayne.

Is it 'normal' to wait 3 months or better to get an appointment with

a rheumy?! What a pain...literally & figuratively!!

It sounds like 'most' of us are relatively close...Indiana/Illinois

area. Is there any research out there involving areas of the country

& RA? Just curious...

Thanks!

Cami

Sure seems to

me in fall and spring my symptoms greatly increase. I live up in

northern IL. I know the day of the tornados in Iowa I was unale

to walk or stand at all..and the ssame the week before when the

tornados were in Indiana. (I hope everyone is safe and well!)

> > The middle of winter does not seem to hit as hard as the

transitional seasons. Is this my imagination?

> > To my delight last year when we went out east to NYC, NJ,

DC and PA I was symptom free after the first week, until a few

days after we got back home. (and then it was thunderstorming

here)

> >

> >

> >

> >

> >

> >

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I am trying to figure out how much is weather and how much is life stress.

I have been doing kinda bad the last few weeks.

I was seeing swanson, but he retired in august and they have not yet replaced

him. Healthcare here? YIKES I could write a book and it would be ugly! My

friend sued our hosp cuz she had her child in ER and sent him home, he died.

They won. 8 mil.

My friends eye dr - friend complained 2 years about her vision, he blamed her

MS, turns out she had melanoma in her eye, she died in March.....cuz it had been

spreading the whole 2 years.

hubby had a motorcycle accident. ambulance took him in...they released him

without even doing tests.no xrays, nothing, I took him to VA and they kept him

almost a month. They told me my sons eye was fine. Yeah a week later an eye

surgeon in chicago said my sons eye was far from fine, $36,000 later and one

surgery.no salvaged vision and 1-3 more surgeries upcoming....

Nope, healthcare does not trickle out to us.

My dtr sees a child psychiatrist in Chicago at UIC, my son sees a neuro a

geneticist and an orthopod at SHriners in Chicago and now and eye surgeon in

Hyde Park Univ of Chic, and a psychiatrist and a neuro at UIC.

Hubby goes strictly to great lakes......VA. Healthcare here stinks.

- In , Bauman <ilovecats83160@y...> wrote:

>

> Whoa dreamer!!!

>

> I live in Applewood. Is this weather wreaking havoc with your pain levels?

What rheumatologist do you see here? I see Dr. . He's knowledgeable about

RA but things fibro is a state of mind. I've also seen Ferley (Neurologist

and wonderful person), Swanson( rheum), Rusthoven(podiatrist), ez,Raj,

Melnicoff, Melitou, and quite a few others. Chicago is supposed to have such

great health care, but it doesn't seem to trickle down to McHenry County.

>

> Have a wonderful week! Feel free to e-mail me personally if you want to

talk local stuff.

>

> laura

>

> dreamer_plus <dreamer_plus@w...> wrote:

> small world, I am in Woodstock, too! Up near the schools, towards the

government center.

>

>

> - In , Bauman <ilovecats83160@y...> wrote:

> >

> > Hi again dreamer. Hey! I live in Woodstock, IL. I was in Texas a few

weeks ago and I felt so much better while I was there. The last couple of

weeks here have been brutal. Yesterday the wind was howling and it felt like

it was going through my bones even though I was safely indoors. The weather

here is ridiculous. Have you heard the joke..You know you live near Chicago

when you use the air conditioner and the heater in the same day. I've done

that several times.

> >

> > laura

> >

> > dreamer_plus <dreamer_plus@w...> wrote: Sure seems to me in fall

and spring my symptoms greatly increase. I live up in northern IL. I know

the day of the tornados in Iowa I was unale to walk or stand at all..and the

ssame the week before when the tornados were in Indiana. (I hope everyone is

safe and well!)

> > The middle of winter does not seem to hit as hard as the transitional

seasons. Is this my imagination?

> > To my delight last year when we went out east to NYC, NJ, DC and PA I

was symptom free after the first week, until a few days after we got back

home. (and then it was thunderstorming here)

> >

> >

> >

> >

> >

> >

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