Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Hi yes: It's absolutely normal to have the feelings you are experiencing with this dx of RA. RA is a frustrating and sometimes scary disease because there is no cure at this time, and the medical course of the disease varies from person to person, so there is no set way anyone can say that RA will affect you. You need time to grieve for the loss of your old self, the things that used to be easy which are now hard to do, the pain and fatigue, and all the other changes in our lives that RA causes. I have been dx with RA for 6-1/2 years - coping is something that takes time, and I still have days when it is overwhelming because of pain, fatigue, and just not feeling good. I'm only 51 and I had not planned at this age to be hobbling around like an old lady lol. Don't give up hope - there will be better days once you are prescribed the right medication or combo of medications to help control the pain and inflammation of RA. This sometimes takes time, I know it's hard to be patient when you are hurting, but you have to give the meds time to kick in. In the meantime, concentrate on taking care of yourself - rest, meditate, listen to music, read, take a warm bubble bath, whatever you enjoy - stress will increase your pain, so try to alleviate it as much as you can. I know it seems impossible to do, and impossible to continue on with what you are going through, but it will get better. There is life after RA! It may not be the life you had planned on, but with my meds I am able to do just about everything I want to most of the time - maybe a little slower, and with compromises - but I am grateful that we have the meds we do now, and there are more on the horizon, maybe even a cure someday. Hope this helps - hang in there - Kathe in CA --- theonlyerinyes <erinye@...> wrote: > Hi again, > > Guess I was a little vague. I've been on the net > for a long time and > I'm used to being obscure about everything. I guess > that really > doesn't matter all that much anymore. Thanks for > the responses I got > to my introduction. > > I'm in Southeast Missouri about an hour and a half > south of St. Louis > Mo. If anyone does know a good rheumatologist > around here or even a > good one in St Louis I would really be most > grateful... > > You know the thing that's getting me right now? I'm > absolutely > terrified. Seriously. I'm on some horrible > emotional rollercoaster. > I cry all the time or I want to cry all the time. > The more upset I > get the more my fingers and toes burn. I don't know > who to turn to. > I've been reading y'alls post and y'all seem like > your coping! I > can't even imagine it. Is it normal to feel like > your life is totally > over? It's killing me to type! I cannot eat > without pain. What is > the point? > > I guess I'll just have me a big ole helping of the > whine and cheese! > > > > > > > > Kathe in CA __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Hi yes: It's absolutely normal to have the feelings you are experiencing with this dx of RA. RA is a frustrating and sometimes scary disease because there is no cure at this time, and the medical course of the disease varies from person to person, so there is no set way anyone can say that RA will affect you. You need time to grieve for the loss of your old self, the things that used to be easy which are now hard to do, the pain and fatigue, and all the other changes in our lives that RA causes. I have been dx with RA for 6-1/2 years - coping is something that takes time, and I still have days when it is overwhelming because of pain, fatigue, and just not feeling good. I'm only 51 and I had not planned at this age to be hobbling around like an old lady lol. Don't give up hope - there will be better days once you are prescribed the right medication or combo of medications to help control the pain and inflammation of RA. This sometimes takes time, I know it's hard to be patient when you are hurting, but you have to give the meds time to kick in. In the meantime, concentrate on taking care of yourself - rest, meditate, listen to music, read, take a warm bubble bath, whatever you enjoy - stress will increase your pain, so try to alleviate it as much as you can. I know it seems impossible to do, and impossible to continue on with what you are going through, but it will get better. There is life after RA! It may not be the life you had planned on, but with my meds I am able to do just about everything I want to most of the time - maybe a little slower, and with compromises - but I am grateful that we have the meds we do now, and there are more on the horizon, maybe even a cure someday. Hope this helps - hang in there - Kathe in CA --- theonlyerinyes <erinye@...> wrote: > Hi again, > > Guess I was a little vague. I've been on the net > for a long time and > I'm used to being obscure about everything. I guess > that really > doesn't matter all that much anymore. Thanks for > the responses I got > to my introduction. > > I'm in Southeast Missouri about an hour and a half > south of St. Louis > Mo. If anyone does know a good rheumatologist > around here or even a > good one in St Louis I would really be most > grateful... > > You know the thing that's getting me right now? I'm > absolutely > terrified. Seriously. I'm on some horrible > emotional rollercoaster. > I cry all the time or I want to cry all the time. > The more upset I > get the more my fingers and toes burn. I don't know > who to turn to. > I've been reading y'alls post and y'all seem like > your coping! I > can't even imagine it. Is it normal to feel like > your life is totally > over? It's killing me to type! I cannot eat > without pain. What is > the point? > > I guess I'll just have me a big ole helping of the > whine and cheese! > > > > > > > > Kathe in CA __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.