Thank You

[Guest guest]

Dear Melt,

Thanks for answering so fast. Hope you are feeling better. B

[Guest guest]

Dear Danni,

Just got back from my trip to Ireland. I am so sorry to hear you have been so

ill. I never had the fluid around my heart, but my fevers did continue through

the first 4-5 months. This too shall pass. I hope you are resting up a storm.

When it got too bad I would take a tablet for nausea that made me sleep and get

me through a few hours. It seemed to help my general condition too....all of

which is a small effort to say I wish I could make it all better!! Thinking of

you and praying too for your relief and recovery.

[Norton AntiSpam] Thank you

Dear Stilligans,

I want to take a few minutes and thank all of you from the bottom of my

heart. I am so sorry it has taken me so long to write but due to pain and my

treatments I have felt so bad. I want to tell all of you that the flowers were

beautiful and made my day so much better. I appreciate all of your prayers and

love. It helps to know that others have been where you are.

I spent over 2 weeks in the hospital because of fluid around my heart. I

went to a pain management doctor 2 days ago and after 2 hours of tourture he

told me that there is something wrong with my left shoulder and right hip but he

can not help me because my disease is to complicated. I have been put on enbrel

50 mg weekly and my prednisone is 60mg per day . I am on oxycodone for pain and

have physical therapy in my home 3 times per week. I am still experiencing alot

of chest pain at times and I am so tired all the time.

I am so glad that there are such caring people in this world. I know I

would not get through this hard time without all of you. Thank you seems to

little to say for all you have done for me.

Love,

Danni

[Guest guest]

Dear Kate,

Hi, my name is Danni. I was also recently hospitalized as well. I can

understand what pain you are in because I also had bleeding ulcers and Mallery

weiss tears( lacerations of the espogus). I am so sorry to hear you are in so

much discomfort from decreaseing your prednisone. I don't think doctors or

nurses can understand what we are going through. I have been a nurse snce I was

17( LPN 1989 and RN 1992). I had alot of trouble explaining my illness to the

doctors and nurses when I was hospitalized.

I have to tell you that I owe alot to the Stilligans. They were so helpful and

supportive during my worst times and gave me the will to fight. This group is

filled with so many wonderful people that gives so unconditionally. I am praying

that you feel better soon. I am glad to hear you are staying with your

parents.You need support right now. If you ever need to talk or just vent my

e-mail is blondedolphin172@... . E-mail me your number so that when you

need to vent I can call you. I have to tell you that if it wasn't for calling my

friends in the group I never would have got through my hardest times and I want

to Thank all of my supporters.

Danni

Thank you

Hello all,

I have finally got round to posting a big thank you to everyone for

their messages and cards after my recent hospital stay. Your support

and kind wishes really have helped a great deal and have been much

appreciated.

I ended up in hospital with 2 gastric ulcers and a very inflamed

stomach right the way through as a result of the steroids.

Unfortunately, when I started the cocktail of drugs they didn't think

to put me on a stomach protecting one as I'm only young and they

didn't think I'd be affected! Anyway, although the ulcers were

extremely painful, it was only the start of the saga! The hospital

decided that I needed to reduce the pred quickly to reduce the

chances of the ulcers reappearing. Prior to the ulcers I was reducing

by 2.5mg a month which was going ok really. The RD nurse, in her

wisdom, decided that my new dropping regime should be 2.5mg a week.

Well, as you can all imagine I'm sure, this threw my body into a

complete frenzy it was just way too fast. I've stopped dropping and

have got an earlier appointment to see the RD as the MTX isn't

effective enough unfortunately but at the moment things are sore.

I'm staying with my parents until things improve again which I'm

hoping will be very soon.

Hope everyone had a fantastic time in Vegas! I'm really looking

forward to hearing all about it.

Thank you all again for all your good wishes. This is such a

supportive group-I'm really glad I found you all.

Love

Kate

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute for

medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical or

professional medical services. You should consult your physician on specific

medical questions, particularly in matters requiring diagnosis or medical

attention. The International Still's Disease Foundation makes no representations

or warranties with respect to any treatment, action, application, medication or

preparation by any person following the information offered or provided within

this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Dear Kate,

Hi, my name is Danni. I was also recently hospitalized as well. I can

understand what pain you are in because I also had bleeding ulcers and Mallery

weiss tears( lacerations of the espogus). I am so sorry to hear you are in so

much discomfort from decreaseing your prednisone. I don't think doctors or

nurses can understand what we are going through. I have been a nurse snce I was

17( LPN 1989 and RN 1992). I had alot of trouble explaining my illness to the

doctors and nurses when I was hospitalized.

I have to tell you that I owe alot to the Stilligans. They were so helpful and

supportive during my worst times and gave me the will to fight. This group is

filled with so many wonderful people that gives so unconditionally. I am praying

that you feel better soon. I am glad to hear you are staying with your

parents.You need support right now. If you ever need to talk or just vent my

e-mail is blondedolphin172@... . E-mail me your number so that when you

need to vent I can call you. I have to tell you that if it wasn't for calling my

friends in the group I never would have got through my hardest times and I want

to Thank all of my supporters.

Danni

Thank you

Hello all,

I have finally got round to posting a big thank you to everyone for

their messages and cards after my recent hospital stay. Your support

and kind wishes really have helped a great deal and have been much

appreciated.

I ended up in hospital with 2 gastric ulcers and a very inflamed

stomach right the way through as a result of the steroids.

Unfortunately, when I started the cocktail of drugs they didn't think

to put me on a stomach protecting one as I'm only young and they

didn't think I'd be affected! Anyway, although the ulcers were

extremely painful, it was only the start of the saga! The hospital

decided that I needed to reduce the pred quickly to reduce the

chances of the ulcers reappearing. Prior to the ulcers I was reducing

by 2.5mg a month which was going ok really. The RD nurse, in her

wisdom, decided that my new dropping regime should be 2.5mg a week.

Well, as you can all imagine I'm sure, this threw my body into a

complete frenzy it was just way too fast. I've stopped dropping and

have got an earlier appointment to see the RD as the MTX isn't

effective enough unfortunately but at the moment things are sore.

I'm staying with my parents until things improve again which I'm

hoping will be very soon.

Hope everyone had a fantastic time in Vegas! I'm really looking

forward to hearing all about it.

Thank you all again for all your good wishes. This is such a

supportive group-I'm really glad I found you all.

Love

Kate

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute for

medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical or

professional medical services. You should consult your physician on specific

medical questions, particularly in matters requiring diagnosis or medical

attention. The International Still's Disease Foundation makes no representations

or warranties with respect to any treatment, action, application, medication or

preparation by any person following the information offered or provided within

this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Hi Theresa

I think you have a tough job and I think that being the partner

without the disease is often harder than being the sick one. I would

find it SO hard to see my husband ill and in pain. I honestly think

that for myself, it's easier to put up with it myself. I don't know

how long Bob has been ill for. I know it took me at least 2 of the 3

years I've been ill to come to terms with a chronic illness. That's

not to say it doesn't get me down often. But I have reached a level

of resignation and acceptance which means I can get on with the life

I now have. It might not be the one I imagined, but it's not as bad

as it could be either.

My husband must find it very difficult as I am not exactly the woman

he married! But he and I, thankfully, are closer than ever and work

hard at keeping it that way. I do talk to him about when I feel ill,

but a lot of the time I don't tell him - not because he doesn't want

to hear, but because I don't want to be the complaining wife and I

don't personally find it helpful to dwell on the appalling state of

my body if I can avoid it! I do talk to him if things are really bad,

and of course he can tell if I'm feeling awful. Talking to the Stills

group is a big help as I know someone there will have experienced

what I am struggling with and likely to offer help and support. They

don't replace the support of my husband, just add another dimension.

You sound to me like you are doing a wonderful job, under very trying

circumstances and I applaud you for that. And are you pregnant as

well? That's a lot to cope with at the best of times!

Keep strong and in touch.

Love

C2 (UK)

> HI- Hope everyone is doing well today!!!

> I just wanted to say thank you- (after having thought about this

> most of the night...) for having that chat room and for bringing up

> depression. I was not in the chat room- but Bob was.

> See, I am a talker- and a fixer... so when I think something is

> bothering my husband- I talk MORE and I try to fix it right away- I

> was 2 feet away from him last night and he wasn't speaking a word

> to me so I just tried to go to sleep...and then I heard him typing

> so I asked who he was talking to and he said " Stills people- in a

> chat room " . My first reaction was " oh, thanks.. I'm right here and

> tried to talk to you all night " and then to get hurt feelings- but

> instead, this time- I'm just glad he was talking or typing or

> reading or listening to people who he felt he could talk to.

> I get hurt very easily and to see him depressed is going to kill

> me- we did this before once when it got pretty bad and we all

> suffered. I just hope if there are people who go through this and

> are able to get out of it- that you will take extra time and try to

> help him. I think he likes talking to all of you more than me... he

> can't hear you and you don't follow him around nagging and nagging

> and nagging. That's my job! So if you have any good advice for

> him- please help him. I can only offer the million things that we

> have TO BE HAPPY about- but I am not sick and as he says... " it

> doesn't matter.... all the good stuff- I just want to be normal " .

> So, pray for us all- because a nagging wife that talks and tries to

> fix and a depressed husband with Stills disease don't mix well! I

> am TRYING! believe me I am trying! (I want MY husband back before

> Jan. 5th when our new baby comes to meet us!)

> have a nice day everyone!

> Love, Theresa

>

>

[Guest guest]

Thanks folks for the Happy Birthday wishes...this makes 52 for me which is just fine by me.

I'll be going in January for my annual viral load test. Has been undectable since April 2008...for which I am very grateful to be sure.

Hope your holiday season is wonderful filled with family, friends, health and love.

Blessings