New Member

[Guest guest]

Hi nPat, I'm SuZie, one of the moderators here at Dummies. Welcome!yeary You need information, we've got it - lots of it & personal eperience. Me for instance. I was told about 4 or 5 years ago that I had liver cancer, I went through all the testing for a transplant, flew 1000 miles to see the doctors & get tests done 4 times a year only to discover this year that i never had cancer, I had a regenerative nodule! All that means is that my lliver was trying to heal itself, to regenerate. Has your husband had the "cancer" biopsied? Has he gotten a second opinion? Personally, I'd advise both.

There's more information, everything from diet to transplant in the files on the web page, check them out. One of our mottos here is "There's no such thing as a stupid question" So ask away, if we don't know the answer, we'll find it for you. BTW, I caught HCV in 1969 at age 18, I'm now 61. I have cirrhosis of the liver & what they call ESLD - End Stage Liver Disease. I've had cirrhosis since 1990 & ESLD since 2001 & I'm still here. I've tried tx (treatment) twice & both times did not respond. We also hae a lot of people here waiting to give you sympathy & support. Hang around, see how you like it here.Welcome friend, SuZie ay you be in heaven half an hour before the devil knows you're dead To: HepatitisCSupportGroupForDummies Sent: Monday, June 20, 2011 7:46 AMSubject: new member

Hi - my name is Pat and my husband Jim was diagnosed in 1985 with Hep C after a blood

transfusion. In 2007 he was diagnosed with primary liver cancer. He has done really well with

no treatment other than a major change in diet. But his last Ct scan showed some progression

of the cancer and he is now having some major problems. Before I babble on anymore, I

am wondering if this is the right group to join - he most likely will not be a candidate for

transplant. I have so many questions and sure need some moral support. Thank you,

pat

[Guest guest]

Welcome to the group. Can you share some problems your husband is having? That may help with other members that may experience the same symptoms.Subject: Re: new memberTo: "HepatitisCSupportGroupForDummies " <HepatitisCSupportGroupForDummies >Date: Monday, June 20, 2011, 2:11 PM

Hi nPat, I'm SuZie, one of the moderators here at Dummies. Welcome!yeary You need information, we've got it - lots of it & personal eperience. Me for instance. I was told about 4 or 5 years ago that I had liver cancer, I went through all the testing for a transplant, flew 1000 miles to see the doctors & get tests done 4 times a year only to discover this year that i never had cancer, I had a regenerative nodule! All that means is that my lliver was trying to heal itself, to regenerate. Has your husband had the "cancer" biopsied? Has he gotten a second opinion? Personally, I'd advise both.

There's more information, everything from diet to transplant in the files on the web page, check them out. One of our mottos here is "There's no such thing as a stupid question" So ask away, if we don't know the answer, we'll find it for you. BTW, I caught HCV in 1969 at age 18, I'm now 61. I have cirrhosis of the liver & what they call ESLD - End Stage Liver Disease. I've had cirrhosis since 1990 & ESLD since 2001 & I'm still here. I've tried tx (treatment) twice & both times did not respond. We also hae a lot of people here waiting to give you sympathy & support. Hang around, see how you like it here.Welcome friend, SuZie ay you be in heaven half an hour before the devil knows you're dead To: HepatitisCSupportGroupForDummies Sent: Monday, June 20, 2011 7:46 AMSubject: new member

Hi - my name is Pat and my husband Jim was diagnosed in 1985 with Hep C after a blood

transfusion. In 2007 he was diagnosed with primary liver cancer. He has done really well with

no treatment other than a major change in diet. But his last Ct scan showed some progression

of the cancer and he is now having some major problems. Before I babble on anymore, I

am wondering if this is the right group to join - he most likely will not be a candidate for

transplant. I have so many questions and sure need some moral support. Thank you,

pat

[Guest guest]

Hi SuZie - thanks for the welcome. I am happy that you do not have liver cancer and kind of

encouraged to hear that you have had ESLD for so long and sound pretty darn alive!!

Jim did have a biopsy in 2007 and was diagnosed with hepatocellular carcinoma. He had a

very small tumor at that time but in a kind of hard to get to place so even though they did offer

surgery he opted against it - mainly due to other health issues. He also did not (then) want

a transplant (he is 73 now, still has other health issues) and most likely would not want a

transplant now. But who knows.

Anyway he had a ct this morning and sees the oncologist tomorrow so I will have more information

then.

Thanks again for the welcome!

pat

From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of SuZieSent: Monday, June 20, 2011 2:11 PMTo: HepatitisCSupportGroupForDummies Subject: Re: new member

Hi nPat,

I'm SuZie, one of the moderators here at Dummies. Welcome!yeary

You need information, we've got it - lots of it & personal eperience. Me for instance. I was told about 4 or 5 years ago that I had liver cancer, I went through all the testing for a transplant, flew 1000 miles to see the doctors & get tests done 4 times a year only to discover this year that i never had cancer, I had a regenerative nodule! All that means is that my lliver was trying to heal itself, to regenerate. Has your husband had the "cancer" biopsied? Has he gotten a second opinion? Personally, I'd advise both. There's more information, everything from diet to transplant in the files on the web page, check them out. One of our mottos here is "There's no such thing as a stupid question" So ask away, if we don't know the answer, we'll find it for you. BTW, I caught HCV in 1969 at age 18, I'm now 61. I have cirrhosis of the liver & what they call ESLD - End Stage Liver Disease. I've had cirrhosis since 1990 & ESLD since 2001 & I'm still here. I've tried tx (treatment) twice & both times did not respond.

We also hae a lot of people here waiting to give you sympathy & support. Hang around, see how you like it here.

Welcome friend,

SuZie

ay you be in heaven half an hour before the devil knows you're dead

To: HepatitisCSupportGroupForDummies Sent: Monday, June 20, 2011 7:46 AMSubject: new member

Hi - my name is Pat and my husband Jim was diagnosed in 1985 with Hep C after a blood

transfusion. In 2007 he was diagnosed with primary liver cancer. He has done really well with

no treatment other than a major change in diet. But his last Ct scan showed some progression

of the cancer and he is now having some major problems. Before I babble on anymore, I

am wondering if this is the right group to join - he most likely will not be a candidate for

transplant. I have so many questions and sure need some moral support. Thank you,

pat

[Guest guest]

Thank you. Jim had lab work last week and they said his ammonia was elevated and gave

him lactulose. He has been taking it since last Friday and except for not being nauseated any

more, he does not feel much better. Still very fatigued and weak and now has a slight yellowish

tinge. And itches like crazy. And he did some research on the internet and read something about the liver disease

killing you before the cancer does - and it seems all the fight has gone out of him.

Can medications cause all this to happen? He was given Zocor and after taking it for about

a week got really sick, with itching and dark urine. He stopped it and felt better. Then they put him

on Niacin - did not have as dramatic a reaction, but all this came on after he was on the Niacin.

He stopped taking both of those drugs.

I will let you know what the doc says tomorrow.

pat

From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of StensSent: Monday, June 20, 2011 2:37 PMTo: HepatitisCSupportGroupForDummies Subject: Re: new member

Welcome to the group. Can you share some problems your husband is having? That may help with other members that may experience the same symptoms.

Subject: Re: new memberTo: "HepatitisCSupportGroupForDummies " <HepatitisCSupportGroupForDummies >Date: Monday, June 20, 2011, 2:11 PM

Hi nPat,

I'm SuZie, one of the moderators here at Dummies. Welcome!yeary

You need information, we've got it - lots of it & personal eperience. Me for instance. I was told about 4 or 5 years ago that I had liver cancer, I went through all the testing for a transplant, flew 1000 miles to see the doctors & get tests done 4 times a year only to discover this year that i never had cancer, I had a regenerative nodule! All that means is that my lliver was trying to heal itself, to regenerate. Has your husband had the "cancer" biopsied? Has he gotten a second opinion? Personally, I'd advise both. There's more information, everything from diet to transplant in the files on the web page, check them out. One of our mottos here is "There's no such thing as a stupid question" So ask away, if we don't know the answer, we'll find it for you. BTW, I caught HCV in 1969 at age 18, I'm now 61. I have cirrhosis of the liver & what they call ESLD - End Stage Liver Disease. I've had cirrhosis since 1990 & ESLD since 2001 & I'm still here. I've tried tx (treatment) twice & both times did not respond.

We also hae a lot of people here waiting to give you sympathy & support. Hang around, see how you like it here.

Welcome friend,

SuZie

ay you be in heaven half an hour before the devil knows you're dead

To: HepatitisCSupportGroupForDummies Sent: Monday, June 20, 2011 7:46 AMSubject: new member

Hi - my name is Pat and my husband Jim was diagnosed in 1985 with Hep C after a blood

transfusion. In 2007 he was diagnosed with primary liver cancer. He has done really well with

no treatment other than a major change in diet. But his last Ct scan showed some progression

of the cancer and he is now having some major problems. Before I babble on anymore, I

am wondering if this is the right group to join - he most likely will not be a candidate for

transplant. I have so many questions and sure need some moral support. Thank you,

pat

[Guest guest]

Hi Pat

welcome to group--my name is Kat my hubby has hep c and is on treatment (tx) for the second time hs been really sick this time but doing good--

this is the best group i know ask all the questions you want someone will give you an answer and they are the best people for support that i have found --hope to hear from you soon

kat

Subject: new memberTo: HepatitisCSupportGroupForDummies Date: Monday, June 20, 2011, 7:46 AM

Hi - my name is Pat and my husband Jim was diagnosed in 1985 with Hep C after a blood

transfusion. In 2007 he was diagnosed with primary liver cancer. He has done really well with

no treatment other than a major change in diet. But his last Ct scan showed some progression

of the cancer and he is now having some major problems. Before I babble on anymore, I

am wondering if this is the right group to join - he most likely will not be a candidate for

transplant. I have so many questions and sure need some moral support. Thank you,

pat

[Guest guest]

Hello, all.

I'm an American living in the suburb of Paris. I'm from San Francisco and my

husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and

Loïc (aged 3, diagnosed PDD-NOS last March).

Loïc's main problems are very little speech, diarrhea, delay in potty training

and hyperactive behaviour in unfamiliar environments.

I've been following the recommendations in The Autism Book by Sears (a

pediatrician in the U.S. who follows the DAN! protocol). And, fortunately,

there's a laboratory in Paris which does specialty testing for autism patients.

Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic

to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do

well with the Nordic Naturals one because it contained soy!), calcium and

probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin

C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix

into my son's fruit purée.

There are no DAN doctors in France and there very few people here who are

properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S.

but my husband thinks we should try to find one in Europe first.

[Guest guest]

We only really have one medic in UK - he has clinic in London, Dr Goyal

http://www.sincerehealth.co.uk/

There is a DAN in Paris (but I think Dr Goyal is better), can't remember her name

Mx

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

To add to that, we have lots of great nutritionists and naturopaths, you only need a doctor when and if you want Rx drugs

Mx

We only really have one medic in UK - he has clinic in London, Dr Goyal

http://www.sincerehealth.co.uk/

There is a DAN in Paris (but I think Dr Goyal is better), can't remember her name

Mx

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

Hello, and welcome,What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.The tel for Dr Amet is 0131 5381494.Best wishes KathSent from my iPad

Hello, all.

I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March).

Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.

I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients.

Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.

There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

Good point! there is also this video below on autism biomed research and

treatment going on in France - not sure if Skorupka is involved but you

might catch a mention of other doctors there (and find out if the trial is

accepting participants!?)

http://www.autismtreatmenttrust.org/?p=1898

Do come to our conference in September, both Montagnier and Lorene Amet

will be speaking.

http://www.treatingautism.co.uk/events/565/save-the-dates-treating-autism-confer\

ence-2012/

Best of luck

Natasa

> Hello, and welcome,

>

> What about Dr Corinne Skorupka, she is a medical doctor based in Paris and

> Geoneva who specialises in autistic children.I believe she is part of the

> Ariane institute in Paris.

>

> If you can't find her try ringing the autism treatment trust in Edinburgh

> and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she

> would put you in touch.

>

> The tel for Dr Amet is 0131 5381494.

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>

>

>

>> Hello, all.

>>

>> I'm an American living in the suburb of Paris. I'm from San Francisco

>> and my husband is from Bordeaux. We have two boys, Nicolas (aged 5,

>> neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March).

>>

>> Loïc's main problems are very little speech, diarrhea, delay in potty

>> training and hyperactive behaviour in unfamiliar environments.

>>

>> I've been following the recommendations in The Autism Book by

>> Sears (a pediatrician in the U.S. who follows the DAN! protocol). And,

>> fortunately, there's a laboratory in Paris which does specialty testing

>> for autism patients.

>>

>> Loïc is on the gluten-free, casein-free and soy-free diet. He's also

>> allergic to egg. He's taking digestive enzymes, taurine, cod liver oil

>> (He didn't do well with the Nordic Naturals one because it contained

>> soy!), calcium and probiotics. We'll gradually add on others:

>> multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I

>> use the Kirkman brand which is easy to mix into my son's fruit purée.

>>

>> There are no DAN doctors in France and there very few people here who

>> are properly trained in ABA. I'm thinking of going to see a DAN doctor

>> in the U.S. but my husband thinks we should try to find one in Europe

>> first.

>>

>>

>

[Guest guest]

You could also try Dr. Faraji in Wetzlar near furt, Germany. I imagine it would be easy to get a flight from Paris to FRA.We have been very pleased with his support. He also uses labs in Germany and Paris. His web site is also in English if you want to have a look at it. www. Autismus-medicus.deHope this helps. Fabienne

Hello, and welcome,What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.The tel for Dr Amet is 0131 5381494.Best wishes KathSent from my iPad

Hello, all.

I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March).

Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.

I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients.

Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.

There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

=

[Guest guest]

That's the one I meant but could not remember, she does dangerous chelation protocols

Mx

Hello, and welcome,

What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.

If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.

The tel for Dr Amet is 0131 5381494.

Best wishes

KathSent from my iPad

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

Yes both her and Dr Amet are convinced Andy Cutler has got his science wrong.I have talked at length to Dr Amet about my severe reaction and neutropenia with even low dose DMSA and stressed how much worse it would have been if I had followed her advice and a DAN type of protacol for chelation.Hopefully my experience may have made them more cautious.KathSent from my iPad

That's the one I meant but could not remember, she does dangerous chelation protocols

Mx

Hello, and welcome,

What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.

If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.

The tel for Dr Amet is 0131 5381494.

Best wishes

KathSent from my iPad

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

So does Dr GoyalSent from my iPad

That's the one I meant but could not remember, she does dangerous chelation protocols

Mx

Hello, and welcome,

What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.

If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.

The tel for Dr Amet is 0131 5381494.

Best wishes

KathSent from my iPad

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

NatasaThanks for the info. Where can I get all the info in regards to the conference in September in London?Thanks,FabienneSent from my iPad

Good point! there is also this video below on autism biomed research and

treatment going on in France - not sure if Skorupka is involved but you

might catch a mention of other doctors there (and find out if the trial is

accepting participants!?)

http://www.autismtreatmenttrust.org/?p=1898

Do come to our conference in September, both Montagnier and Lorene Amet

will be speaking.

http://www.treatingautism.co.uk/events/565/save-the-dates-treating-autism-conference-2012/

Best of luck

Natasa

> Hello, and welcome,

>

> What about Dr Corinne Skorupka, she is a medical doctor based in Paris and

> Geoneva who specialises in autistic children.I believe she is part of the

> Ariane institute in Paris.

>

> If you can't find her try ringing the autism treatment trust in Edinburgh

> and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she

> would put you in touch.

>

> The tel for Dr Amet is 0131 5381494.

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>

>

>

>> Hello, all.

>>

>> I'm an American living in the suburb of Paris. I'm from San Francisco

>> and my husband is from Bordeaux. We have two boys, Nicolas (aged 5,

>> neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March).

>>

>> Loïc's main problems are very little speech, diarrhea, delay in potty

>> training and hyperactive behaviour in unfamiliar environments.

>>

>> I've been following the recommendations in The Autism Book by

>> Sears (a pediatrician in the U.S. who follows the DAN! protocol). And,

>> fortunately, there's a laboratory in Paris which does specialty testing

>> for autism patients.

>>

>> Loïc is on the gluten-free, casein-free and soy-free diet. He's also

>> allergic to egg. He's taking digestive enzymes, taurine, cod liver oil

>> (He didn't do well with the Nordic Naturals one because it contained

>> soy!), calcium and probiotics. We'll gradually add on others:

>> multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I

>> use the Kirkman brand which is easy to mix into my son's fruit purée.

>>

>> There are no DAN doctors in France and there very few people here who

>> are properly trained in ABA. I'm thinking of going to see a DAN doctor

>> in the U.S. but my husband thinks we should try to find one in Europe

>> first.

>>

>>

>

=

[Guest guest]

Dr le Lesmo in Milan, Italy

[Guest guest]

Not any more, he listens unlike some

Mandi

So does Dr GoyalSent from my iPad

That's the one I meant but could not remember, she does dangerous chelation protocols

Mx

Hello, and welcome,

What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.

If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.

The tel for Dr Amet is 0131 5381494.

Best wishes

KathSent from my iPad

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

Lorene says his protocol is not based on science which it is ALL THE WAY, unlike DAN protocol which is not at all.

Mandi

Yes both her and Dr Amet are convinced Andy Cutler has got his science wrong

[Guest guest]

See the link http://www.treatingautism.co.uk/events/565/save-the-dates-treating-autism-conference-2012/From: Fabienne Serna Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Thu, 12 Jul 2012 19:48:42 +0200To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: New Member

NatasaThanks for the info. Where can I get all the info in regards to the conference in September in London?Thanks,FabienneSent from my iPad

Good point! there is also this video below on autism biomed research and

treatment going on in France - not sure if Skorupka is involved but youmight catch a mention of other doctors there (and find out if the trial is

accepting participants!?)http://www.autismtreatmenttrust.org/?p=1898

Do come to our conference in September, both Montagnier and Lorene Ametwill be speaking.http://www.treatingautism.co.uk/events/565/save-the-dates-treating-autism-conference-2012/

Best of luck

Natasa

> Hello, and welcome,

>

> What about Dr Corinne Skorupka, she is a medical doctor based in Paris and

> Geoneva who specialises in autistic children.I believe she is part of the

> Ariane institute in Paris.

>

> If you can't find her try ringing the autism treatment trust in Edinburgh

> and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she

> would put you in touch.

>

> The tel for Dr Amet is 0131 5381494.

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>

>

>

>> Hello, all.

>>

>> I'm an American living in the suburb of Paris. I'm from San Francisco

>> and my husband is from Bordeaux. We have two boys, Nicolas (aged 5,

>> neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March).

>>

>> Loïc's main problems are very little speech, diarrhea, delay in potty

>> training and hyperactive behaviour in unfamiliar environments.>>

>> I've been following the recommendations in The Autism Book by

>> Sears (a pediatrician in the U.S. who follows the DAN! protocol). And,

>> fortunately, there's a laboratory in Paris which does specialty testing

>> for autism patients.

>>

>> Loïc is on the gluten-free, casein-free and soy-free diet. He's also

>> allergic to egg. He's taking digestive enzymes, taurine, cod liver oil

>> (He didn't do well with the Nordic Naturals one because it contained

>> soy!), calcium and probiotics. We'll gradually add on others:

>> multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I

>> use the Kirkman brand which is easy to mix into my son's fruit purée.

>>

>> There are no DAN doctors in France and there very few people here who

>> are properly trained in ABA. I'm thinking of going to see a DAN doctor

>> in the U.S. but my husband thinks we should try to find one in Europe

>> first.

>>

>>

>

=

[Guest guest]

Yes both her and Dr Amet are convinced Andy Cutler has got his science wrong.I have talked at length to Dr Amet about my severe reaction and neutropenia with even low dose DMSA and stressed how much worse it would have been if I had followed her advice and a DAN type of protocol for chelation.

Hopefully my experience may have made them more cautious.****i am also a keen supporter of the AC protocol :-) -- is

[Guest guest]

Glad to hear you have succeeded in getting him trained .KathSent from my iPad

Not any more, he listens unlike some

Mandi

So does Dr GoyalSent from my iPad

That's the one I meant but could not remember, she does dangerous chelation protocols

Mx

Hello, and welcome,

What about Dr Corinne Skorupka, she is a medical doctor based in Paris and Geoneva who specialises in autistic children.I believe she is part of the Ariane institute in Paris.

If you can't find her try ringing the autism treatment trust in Edinburgh and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she would put you in touch.

The tel for Dr Amet is 0131 5381494.

Best wishes

KathSent from my iPad

Hello, all.I'm an American living in the suburb of Paris. I'm from San Francisco and my husband is from Bordeaux. We have two boys, Nicolas (aged 5, neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March). Loïc's main problems are very little speech, diarrhea, delay in potty training and hyperactive behaviour in unfamiliar environments.I've been following the recommendations in The Autism Book by Sears (a pediatrician in the U.S. who follows the DAN! protocol). And, fortunately, there's a laboratory in Paris which does specialty testing for autism patients. Loïc is on the gluten-free, casein-free and soy-free diet. He's also allergic to egg. He's taking digestive enzymes, taurine, cod liver oil (He didn't do well with the Nordic Naturals one because it contained soy!), calcium and probiotics. We'll gradually add on others: multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I use the Kirkman brand which is easy to mix into my son's fruit purée.There are no DAN doctors in France and there very few people here who are properly trained in ABA. I'm thinking of going to see a DAN doctor in the U.S. but my husband thinks we should try to find one in Europe first.

[Guest guest]

Thanks, I will become a member and attend. Can't wait! Fabienne

See the link http://www.treatingautism.co.uk/events/565/save-the-dates-treating-autism-conference-2012/From: Fabienne Serna Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Thu, 12 Jul 2012 19:48:42 +0200To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: New Member

NatasaThanks for the info. Where can I get all the info in regards to the conference in September in London?Thanks,FabienneSent from my iPad

Good point! there is also this video below on autism biomed research and

treatment going on in France - not sure if Skorupka is involved but youmight catch a mention of other doctors there (and find out if the trial is

accepting participants!?)http://www.autismtreatmenttrust.org/?p=1898

Do come to our conference in September, both Montagnier and Lorene Ametwill be speaking.http://www.treatingautism.co.uk/events/565/save-the-dates-treating-autism-conference-2012/

Best of luck

Natasa

> Hello, and welcome,

>

> What about Dr Corinne Skorupka, she is a medical doctor based in Paris and

> Geoneva who specialises in autistic children.I believe she is part of the

> Ariane institute in Paris.

>

> If you can't find her try ringing the autism treatment trust in Edinburgh

> and speaking to Dr Lorene Amet. Dr Skorupka is a friend of hers and she

> would put you in touch.

>

> The tel for Dr Amet is 0131 5381494.

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>

>

>

>> Hello, all.

>>

>> I'm an American living in the suburb of Paris. I'm from San Francisco

>> and my husband is from Bordeaux. We have two boys, Nicolas (aged 5,

>> neurotypical) and Loïc (aged 3, diagnosed PDD-NOS last March).

>>

>> Loïc's main problems are very little speech, diarrhea, delay in potty

>> training and hyperactive behaviour in unfamiliar environments.>>

>> I've been following the recommendations in The Autism Book by

>> Sears (a pediatrician in the U.S. who follows the DAN! protocol). And,

>> fortunately, there's a laboratory in Paris which does specialty testing

>> for autism patients.

>>

>> Loïc is on the gluten-free, casein-free and soy-free diet. He's also

>> allergic to egg. He's taking digestive enzymes, taurine, cod liver oil

>> (He didn't do well with the Nordic Naturals one because it contained

>> soy!), calcium and probiotics. We'll gradually add on others:

>> multivitamin,B6, calcium, vitamin C, magnesium, zinc, and vitamin D. I

>> use the Kirkman brand which is easy to mix into my son's fruit purée.

>>

>> There are no DAN doctors in France and there very few people here who

>> are properly trained in ABA. I'm thinking of going to see a DAN doctor

>> in the U.S. but my husband thinks we should try to find one in Europe

>> first.

>>

>>

>

=