Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 > > We were at a banquet this weekend and I was taking a pain pill and > an acquaintance of ours asked me what I was taking. I told her it > was a pain pill and told her about the RA and that I was seeing a > rheumy on the 5th. She said, and I quote: " Oh My Gawd...my friend > and her brother have that disease, of course he DIED from it, but > she is alive and says that it is just excrutiatingly painful. She > says she can barely move some days! " OK, is it just me or is this > the most insensitive response???? I couldn't believe she would tell > me all that. Especially since I haven't been to the Rheumy yet, and > she didn't know how much I have researched. If I hadn't been > researching it, I would have never known how bad it can be, and I > would have heard it for the first time from her. I just smiled and > said, " Yes I know, I have heard it can be very painful (DUH I JUST > TOOK A PAIN PILL YOU MORON!) I told my husband about it in the car > on the way home and he couldn't believe she said it either! I don't > know what is worse, that response, or my best friends response when > I told her. She laughed and said, " Join the club " and I said, " RA > is different than normal arthritus " she just changed the subject > and hasn't mentioned it again--that was 3 weeks ago and we talk > everyday! We are 33 and I highly doubt she even has regular > arthritus and she certainly doesn't have RA. > Anyway, I'm done complaining...for now that is! > Bobbi > HELLO-I KNOW JUST WHAT YOU MEAN ABOUT IGNORANT PEOPLE-MY FAVORITES ARE THE ONES WHO SAY-YOU NEED TO TKKE PAIN PILLS?? NO ONE I KNOW TAKES IT FOR THAT AND THEY ALL WORK FULL TIME---BS...........LYNN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 What a putz! LOL I know its tough- I am tired of people with regular arthritis hearing about the RA and saying " OH, I have arthritis too. But I don't need pain pills or I suffer so bad " or comparing whatever they have to whatever I have. I just want to smack them all. But I guess even ignorant people deserve to live. Jill On 11/20/05, Bobbi <mom2triplets@...> wrote: > > We were at a banquet this weekend and I was taking a pain pill and > an acquaintance of ours asked me what I was taking. I told her it > was a pain pill and told her about the RA and that I was seeing a > rheumy on the 5th. She said, and I quote: " Oh My Gawd...my friend > and her brother have that disease, of course he DIED from it, but > she is alive and says that it is just excrutiatingly painful. She > says she can barely move some days! " OK, is it just me or is this > the most insensitive response???? I couldn't believe she would tell > me all that. Especially since I haven't been to the Rheumy yet, and > she didn't know how much I have researched. If I hadn't been > researching it, I would have never known how bad it can be, and I > would have heard it for the first time from her. I just smiled and > said, " Yes I know, I have heard it can be very painful (DUH I JUST > TOOK A PAIN PILL YOU MORON!) I told my husband about it in the car > on the way home and he couldn't believe she said it either! I don't > know what is worse, that response, or my best friends response when > I told her. She laughed and said, " Join the club " and I said, " RA > is different than normal arthritus " she just changed the subject > and hasn't mentioned it again--that was 3 weeks ago and we talk > everyday! We are 33 and I highly doubt she even has regular > arthritus and she certainly doesn't have RA. > Anyway, I'm done complaining...for now that is! > Bobbi > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Bobbi, I get the same kind of crap from people...usually family members! Burns me up!! I have MS as well, although presently it's in remission. The RA is giving me a really rough time though. I also haven't been to a rheumy yet. I guess I've been 'avoiding' it. My family doctor diagnosed me and that was a little over a year ago. I just get so angry. It was bad enough when they told me I had MS. I literally told my poor doctor off when he told me I had RA too. LOL! I practically screamed at him, " Don't you think I have enough?! " He had no idea how to respond & I wasn't really looking for a response. You know? LOL! Anyway, my mom will ask me how I'm feeling & I'll say something kind of neutral, like I'm hurting a little & I'm tired and then she'll start telling me all about how she bumped her hip on the kitchen counter & how big the bruise is & how bad it hurts. Geez! I wish to God I had a bruise on my hip from bumping it!!! Maybe then my entire body wouldn't hurt so bad & I could actually get off my butt & do something! LOL! I used to tell her the truth...that I was in horrible pain & some days feel like I'm dying and that if my headache doesn't ease up, I might just slit my wrists. She would respond with something about a headache she had the other day & how I was just being overdramatic and headaches aren't that bad, etc. I gave up. The only one I talk to about how I'm really feeling is my husband. He's very supportive & helps with the housework...he knows when I'm having a rough time & just starts cleaning or cooking or whatever needs done. He never complains & when I get upset & cry because I just can't do anything, he just gives me a hug & holds me & ask, " Did you hear me complain? I love to help you out & I know you hurt...no big deal. It's not killing me to do some housework. Marriage is a team effort. " I love him SO much!! He doesn't even say anything when he see's me popping pills several times a day. I know he worries, but more than anything he is just here for me. You know? Anyway, I'm with you! People have an amazing way of ticking me off. LOL! Cami > > We were at a banquet this weekend and I was taking a pain pill and > an acquaintance of ours asked me what I was taking. I told her it > was a pain pill and told her about the RA and that I was seeing a > rheumy on the 5th. She said, and I quote: " Oh My Gawd...my friend > and her brother have that disease, of course he DIED from it, but > she is alive and says that it is just excrutiatingly painful. She > says she can barely move some days! " OK, is it just me or is this > the most insensitive response???? I couldn't believe she would tell > me all that. Especially since I haven't been to the Rheumy yet, and > she didn't know how much I have researched. If I hadn't been > researching it, I would have never known how bad it can be, and I > would have heard it for the first time from her. I just smiled and > said, " Yes I know, I have heard it can be very painful (DUH I JUST > TOOK A PAIN PILL YOU MORON!) I told my husband about it in the car > on the way home and he couldn't believe she said it either! I don't > know what is worse, that response, or my best friends response when > I told her. She laughed and said, " Join the club " and I said, " RA > is different than normal arthritus " she just changed the subject > and hasn't mentioned it again--that was 3 weeks ago and we talk > everyday! We are 33 and I highly doubt she even has regular > arthritus and she certainly doesn't have RA. > Anyway, I'm done complaining...for now that is! > Bobbi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Lynn, I have worked full-time up until a few months ago...it was a major struggle! I have lost 2 jobs in the past 3 months because of the RA...I just can't go. People are so insensitive!! Obviously those people don't have a clue & must think you're talking about 'arthritis' not RA. I have an interview this morning for a job...I'm scared to death! Not because I can't normally do the job, but because I have no idea how I'm going to go to work every day, etc. And how do you tell a prospective employer, " Hey...I have RA & might miss a lot of work now & then. " ??? LOL! Cami > > --- In , " Bobbi " <mom2triplets@y...> wrote: > > > > We were at a banquet this weekend and I was taking a pain pill and > > an acquaintance of ours asked me what I was taking. I told her it > > was a pain pill and told her about the RA and that I was seeing a > > rheumy on the 5th. She said, and I quote: " Oh My Gawd...my friend > > and her brother have that disease, of course he DIED from it, but > > she is alive and says that it is just excrutiatingly painful. She > > says she can barely move some days! " OK, is it just me or is this > > the most insensitive response???? I couldn't believe she would tell > > me all that. Especially since I haven't been to the Rheumy yet, and > > she didn't know how much I have researched. If I hadn't been > > researching it, I would have never known how bad it can be, and I > > would have heard it for the first time from her. I just smiled and > > said, " Yes I know, I have heard it can be very painful (DUH I JUST > > TOOK A PAIN PILL YOU MORON!) I told my husband about it in the car > > on the way home and he couldn't believe she said it either! I don't > > know what is worse, that response, or my best friends response when > > I told her. She laughed and said, " Join the club " and I said, " RA > > is different than normal arthritus " she just changed the subject > > and hasn't mentioned it again--that was 3 weeks ago and we talk > > everyday! We are 33 and I highly doubt she even has regular > > arthritus and she certainly doesn't have RA. > > Anyway, I'm done complaining...for now that is! > > Bobbi > > > HELLO-I KNOW JUST WHAT YOU MEAN ABOUT IGNORANT PEOPLE-MY FAVORITES ARE THE > ONES WHO SAY-YOU NEED TO TKKE PAIN PILLS?? NO ONE I KNOW TAKES IT FOR THAT AND > THEY ALL WORK FULL TIME---BS...........LYNN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Cami, Are we covered by the americans with disabilities act? just curious. Cassy > > > > > > We were at a banquet this weekend and I was taking a pain pill > and > > > an acquaintance of ours asked me what I was taking. I told her > it > > > was a pain pill and told her about the RA and that I was seeing > a > > > rheumy on the 5th. She said, and I quote: " Oh My Gawd...my > friend > > > and her brother have that disease, of course he DIED from it, > but > > > she is alive and says that it is just excrutiatingly painful. > She > > > says she can barely move some days! " OK, is it just me or is > this > > > the most insensitive response???? I couldn't believe she would > tell > > > me all that. Especially since I haven't been to the Rheumy yet, > and > > > she didn't know how much I have researched. If I hadn't been > > > researching it, I would have never known how bad it can be, and > I > > > would have heard it for the first time from her. I just smiled > and > > > said, " Yes I know, I have heard it can be very painful (DUH I > JUST > > > TOOK A PAIN PILL YOU MORON!) I told my husband about it in the > car > > > on the way home and he couldn't believe she said it either! I > don't > > > know what is worse, that response, or my best friends response > when > > > I told her. She laughed and said, " Join the club " and I > said, " RA > > > is different than normal arthritus " she just changed the > subject > > > and hasn't mentioned it again--that was 3 weeks ago and we talk > > > everyday! We are 33 and I highly doubt she even has regular > > > arthritus and she certainly doesn't have RA. > > > Anyway, I'm done complaining...for now that is! > > > Bobbi > > > > > HELLO-I KNOW JUST WHAT YOU MEAN ABOUT IGNORANT PEOPLE-MY FAVORITES > ARE THE > > ONES WHO SAY-YOU NEED TO TKKE PAIN PILLS?? NO ONE I KNOW TAKES IT > FOR THAT AND > > THEY ALL WORK FULL TIME---BS...........LYNN > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 If anyone ever says, " Oh I heard blah blah died of RA... " I just decided I'm going to look them right in the eye and say, " I know, I know. My doctor says I'll probably die sometime next week. Is there anything of mine you want? " laura a.k.a. smartass Bobbi <mom2triplets@...> wrote: We were at a banquet this weekend and I was taking a pain pill and an acquaintance of ours asked me what I was taking. I told her it was a pain pill and told her about the RA and that I was seeing a rheumy on the 5th. She said, and I quote: " Oh My Gawd...my friend and her brother have that disease, of course he DIED from it, but she is alive and says that it is just excrutiatingly painful. She says she can barely move some days! " OK, is it just me or is this the most insensitive response???? I couldn't believe she would tell me all that. Especially since I haven't been to the Rheumy yet, and she didn't know how much I have researched. If I hadn't been researching it, I would have never known how bad it can be, and I would have heard it for the first time from her. I just smiled and said, " Yes I know, I have heard it can be very painful (DUH I JUST TOOK A PAIN PILL YOU MORON!) I told my husband about it in the car on the way home and he couldn't believe she said it either! I don't know what is worse, that response, or my best friends response when I told her. She laughed and said, " Join the club " and I said, " RA is different than normal arthritus " she just changed the subject and hasn't mentioned it again--that was 3 weeks ago and we talk everyday! We are 33 and I highly doubt she even has regular arthritus and she certainly doesn't have RA. Anyway, I'm done complaining...for now that is! Bobbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Cassy, I honestly don't know. What burns me up most? I loved my job that I'd had for over a year!! I was 6 days shy of qualifying for FMLA & came down with pneumonia...my family doctor told me illnesses like pneumonia are not uncommon with diseases like I have. The HR woman (who is a really nasty, power-tripping witch!) wouldn't allow my doctor to even fill out the FMLA paperwork...but, she wanted my doctor to give her info that he can not legally give because of the newer HEPA laws! Ugh!! I was so frustrated! My DH wanted me to contact the labor board or an attorney...but, you know, I'm just so dang tired. I couldn't even get up enough strength to do that. LOL! The 2nd job I lost was technically a 'temp' job. It was a lot of fun though & at least it was an income. But, I became so exhausted & then my migraine became debilitating...I actually quit the temp job early because I didn't think it was fair for them with my missing work, etc. Plus, I was afraid they would end up firing me...I didn't want ANOTHER termination on my job record! Ugh! My interview went great this morning! I'm 100% positive he's going to hire me. It's part-time...only up to 36 hours per week. It's working at a pet store (imagine me - with my 8 animals - LOL). I get FREE pet food for my babies...and I'm talking Iams, Eukanuba, Eagle Pak...the good stuff!! That will come in super handy when our GSP's start breeding!! So, I'm kind of excited about that. He said I would have to occasionally lift up to 55 pounds above my head, but that there would be other people to help if it was too much. I hope so!! Right now I don't think I could lift 25 pounds above my head...not for too long anyway!! LOL! The weird part is, I've always had 'professional' jobs. This is a definite switch for me...but maybe just what I need. There's no attendance policy & if I'm sick, I stay home (according to the manager). Also, no drug testing...which is really great with my new preferred pain remedy. I'm honestly hoping to get a better remedy after I see my rheumy, but for now it's all I have...so... That's the other thing...if I have a doctor's appointment or something, as long as I let him know 24 hours in advance, it's no big deal. How cool is that when you have something like this? Sounds perfect...but you know what they say about that! LOL! Cami > > > > > > > > We were at a banquet this weekend and I was taking a pain pill > > and > > > > an acquaintance of ours asked me what I was taking. I told her > > it > > > > was a pain pill and told her about the RA and that I was seeing > > a > > > > rheumy on the 5th. She said, and I quote: " Oh My Gawd...my > > friend > > > > and her brother have that disease, of course he DIED from it, > > but > > > > she is alive and says that it is just excrutiatingly painful. > > She > > > > says she can barely move some days! " OK, is it just me or is > > this > > > > the most insensitive response???? I couldn't believe she would > > tell > > > > me all that. Especially since I haven't been to the Rheumy > yet, > > and > > > > she didn't know how much I have researched. If I hadn't been > > > > researching it, I would have never known how bad it can be, and > > I > > > > would have heard it for the first time from her. I just smiled > > and > > > > said, " Yes I know, I have heard it can be very painful (DUH I > > JUST > > > > TOOK A PAIN PILL YOU MORON!) I told my husband about it in the > > car > > > > on the way home and he couldn't believe she said it either! I > > don't > > > > know what is worse, that response, or my best friends response > > when > > > > I told her. She laughed and said, " Join the club " and I > > said, " RA > > > > is different than normal arthritus " she just changed the > > subject > > > > and hasn't mentioned it again--that was 3 weeks ago and we talk > > > > everyday! We are 33 and I highly doubt she even has regular > > > > arthritus and she certainly doesn't have RA. > > > > Anyway, I'm done complaining...for now that is! > > > > Bobbi > > > > > > > HELLO-I KNOW JUST WHAT YOU MEAN ABOUT IGNORANT PEOPLE-MY > FAVORITES > > ARE THE > > > ONES WHO SAY-YOU NEED TO TKKE PAIN PILLS?? NO ONE I KNOW TAKES IT > > FOR THAT AND > > > THEY ALL WORK FULL TIME---BS...........LYNN > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Dear Bobbi, That really was an insensitive statement that woman made!! I think between us all we could compile a book of insensitive comments and people! There is a woman I know who told me several months ago she didn't understand why I was using a cane since I bowl. I may not bowl well, but it IS a night out, and it is only 5 steps to throw the ball! Then a couple of weeks ago she saw me taking my pain pills (we go out for snacks after bowling) and she said " If you didn't take so many pills maybe you wouldn't be sick!! " Several weeks ago a man at church, when they announced I was going to have surgery, said " Oh, there you go again, trying to get more attention! " Good luck with your rheumy appointment, and don't worry, things will NOT be as bad as the jerk said! Peace, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Judi: Talk about insensitive comments. The ones you mention are horrible. I don't think the people would still be standing if they had said that to me! LOL That is awful! Bobbi > > Dear Bobbi, > > That really was an insensitive statement that woman made!! I think > between us all we could compile a book of insensitive comments and > people! There is a woman I know who told me several months ago she > didn't understand why I was using a cane since I bowl. I may not bowl > well, but it IS a night out, and it is only 5 steps to throw the ball! > Then a couple of weeks ago she saw me taking my pain pills (we go out > for snacks after bowling) and she said " If you didn't take so many > pills maybe you wouldn't be sick!! " Several weeks ago a man at church, > when they announced I was going to have surgery, said " Oh, there you go > again, trying to get more attention! " > > Good luck with your rheumy appointment, and don't worry, things will > NOT be as bad as the jerk said! > > Peace, > Judi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 Thanks for the very helpful information, good to know. Cassy > > > > Lynn, > > > > I have worked full-time up until a few months ago...it was a major > > struggle! I have lost 2 jobs in the past 3 months because of the > > RA...I just can't go. People are so insensitive!! > > > > Obviously those people don't have a clue & must think you're > talking > > about 'arthritis' not RA. > > > > I have an interview this morning for a job...I'm scared to death! > > Not because I can't normally do the job, but because I have no idea > > how I'm going to go to work every day, etc. And how do you tell a > > prospective employer, " Hey...I have RA & might miss a lot of work > > now & then. " ??? LOL! > > > > Cami > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2005 Report Share Posted November 22, 2005 Judi, That was a VERY anti-Christian thing for that man to say...in a Church no less! The other one, the incredible RUDE & ignorant woman...I'm afraid I would have to point out her ignorance to her. LOL! But, I have a tendency to tell it like it is...unfortunately, I've managed to hurt a few people's feelings in the process & I hate that, but when you're being ridiculed because of something you can't possibly control or you are a witness to someone being belittled...sorry...I will not just humbly disappear to lick my wounds! All it takes is for people to give 5 seconds of thought...if they still don't 'get it', Good Lord, just ask!! Assumptions are evil. And myself, with my 'big' mouth...I would have looked at her & asked exactly how it was any of her business?! Peace to you too! Cami > > Dear Bobbi, > > That really was an insensitive statement that woman made!! I think > between us all we could compile a book of insensitive comments and > people! There is a woman I know who told me several months ago she > didn't understand why I was using a cane since I bowl. I may not bowl > well, but it IS a night out, and it is only 5 steps to throw the ball! > Then a couple of weeks ago she saw me taking my pain pills (we go out > for snacks after bowling) and she said " If you didn't take so many > pills maybe you wouldn't be sick!! " Several weeks ago a man at church, > when they announced I was going to have surgery, said " Oh, there you go > again, trying to get more attention! " > > Good luck with your rheumy appointment, and don't worry, things will > NOT be as bad as the jerk said! > > Peace, > Judi > Quote Link to comment Share on other sites More sharing options...
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