Re: Re: Me too... was: I am new...

[Guest guest]

Hi Beth -

Good question... does anyone EVER get well?????? I've only been dx for

6 months. However, I've been dealing with RA symptoms for 3 years

intensely . I retired from a secretarial job with the school

district (pretty much had no other choice) due to the principal feeling

I just didn't want to do my job. People really don't understand. I

tend to let people think what they want rather than defend myself -

which would sound like excuses anyway. I too seem to be getting worse

and the rhuemy continues to increase my medications. My question to

all of you also is - isn't this disease accelerated/intensified by

stress? Therefore the lack of family support and as with Steve lack of

medical insurance, doctor, and medication..... duh! No wonder one

would have trouble feeling better.

Is there any solution?

Carol - CA

On Nov 15, 2005, at 12:10 PM, Beth wrote:

> I'm new here too.  I joined after the reality of my prognosis set

> in...it has taken four years for me to accept the fact that this just

> isn't going to go away.  I have done everything in my power to help

> myself, including eliminating all sugar and refined food from my

> diet, getting proper rest, exercise, etc, but I just keep getting

> worse.  Does anyone else have a problem with gluten?  I have been

> diagnosed with RA, lupus, & celiac disease...once I stopped eating

> gluten I must say it helped me tremendously.  I never knew I had

> celiac...this is a whole new world to me.  But the diagnosis of lupus

> sure explained a lot, and in one sense, that alone makes me feel

> better, at lease emotionally.  I don't talk about it to people much

> because, of course, I " don't look sick " despite the fact that I can't

> put on my own clothes many days...sigh...  But here's my question,

> does anyone EVER get well?  I mean...seriously....does anyone EVER

> get well? 

>

> Beth

> Upstate New York

>

>

> >

> > Hi...

> > I have just joined this group and have enjoyed reading all of the

> > messages so far...I would never ever wish RA on anyone...but I am

> glad

> > to know I am not alone in this! 

>

>

>

>

>

>

>

>

[Guest guest]

Beth,

Welcome to our group. Gluten intolerance can cause the same symptoms

as RA and many times when you

eliminate gluten, symptoms go away. It is very difficult to totally

eliminate gluten

because it is hidden in so many places in our foods. How long ago did

you eliminate gluten?

Yes people do get well. Drug induced remissions are the goals that

the doctors are seeking to achieve.

We've had members leave the group because they go into remission and

no longer need support.

Hopefully we all will find the meds that put us into remission.

a

On Nov 15, 2005, at 3:10 PM, Beth wrote:

> I'm new here too. I joined after the reality of my prognosis set

> in...it has taken four years for me to accept the fact that this just

> isn't going to go away. I have done everything in my power to help

> myself, including eliminating all sugar and refined food from my

> diet, getting proper rest, exercise, etc, but I just keep getting

> worse. Does anyone else have a problem with gluten? I have been

> diagnosed with RA, lupus, & celiac disease...once I stopped eating

> gluten I must say it helped me tremendously. I never knew I had

> celiac...this is a whole new world to me. But the diagnosis of lupus

> sure explained a lot, and in one sense, that alone makes me feel

> better, at lease emotionally. I don't talk about it to people much

> because, of course, I " don't look sick " despite the fact that I can't

> put on my own clothes many days...sigh... But here's my question,

> does anyone EVER get well? I mean...seriously....does anyone EVER

> get well?

>

> Beth

> Upstate New York

>

>

> >

> > Hi...

> > I have just joined this group and have enjoyed reading all of the

> > messages so far...I would never ever wish RA on anyone...but I am

> glad

> > to know I am not alone in this!

>

>

>

>

>

>

>

>

[Guest guest]

a -- I've been gluten free for only about 2 months

now, but I'm finding it to be quite easy. Of course,

I had already given up most grains and had been

following a mostly organic, whole foods diet in an

attempt to help control the RA. So it wasn't much of

a change for me. In fact, it became easier, as I

upped my carbs a bit, so now having a baked potato or

a bit of rice is a real luxury. I'm discouraged

because after 4 years of battling with the RA, it's

still getting worse and worse. I've lost a lot of

usage of many joints and worry I will never get it

back. My organs have been affected by the illness and

I'm sure by the meds, so things aren't looking really

chipper to me right now. But I do appreciate your

kind response.

Beth

--- a <a54@...> wrote:

> Beth,

> Welcome to our group. Gluten intolerance can cause

> the same symptoms

> as RA and many times when you

> eliminate gluten, symptoms go away. It is very

> difficult to totally

> eliminate gluten

> because it is hidden in so many places in our foods.

> How long ago did

> you eliminate gluten?

> Yes people do get well. Drug induced remissions are

> the goals that

> the doctors are seeking to achieve.

> We've had members leave the group because they go

> into remission and

> no longer need support.

> Hopefully we all will find the meds that put us into

> remission.

>

> a

>

>

>

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