Dentist to remove mercury fillings??

[Guest guest]

Cheers,sounds like the test is well worth doing as a matter of routineBWKathSent from my iPad

http://www.infectolab.de/index.php?id=47 & L=1We did Borrelia Elispot-LTT. I did my sons first and when his came back positive I decided to test myself as I knew he had never had a tick bite and I did have some symptoms including a stiff neck, recently diagnosed heartbeat irregularity and some rheumatism like issues in my fingers and joints. I think the test is pretty new. We did it under Dr Yeou at BS. I think I could have been born with it too as my parents both have Lyme like symptoms too. To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 17:20 Subject: Re: Re: Dentist to remove mercury fillings??

That's fantastic and extremely hopefully for the future.Both Lorene Amet and professor Montagnier are speaking at the TA conference on the Sunday.He has done lots of work on LD and other bacterial infections in autism. My dd tested negative on prof Montagniiers test for LD but positive for gram positive bacteria.I was almost disappointed as LD seems a more concrete thing to be able to treat.Where did you get the LD test done?Oh dear seem to have gone completely off topic.KathSent from my iPad

No I will check it out! I remember seeing her at a TA conf a few years ago!! I was put off testing at the time by the fact the testing was inaccurate and that I didn't think my son showed signs...Now there is a new antibodies test is able to detect Chronic Lymes so it is well worth testing to see! My son has improved in lots of ways with the abx and naturals treatment he is on and we are only 3 months in. He has no more "extreme" meltdowns and pain episodes, and we are seeing small gains in speech, big gains in comprehension and massive gains in sociability and playful interaction with us. I wish I had looked at it earlier! but there you go!! To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 17:05 Subject: Re:

Re: Dentist to remove mercury fillings??

There seem to be lots of kids with regressive autism who test positive for LD ,their parents also testing positive.Have you looked at the website of the autism treatment trust in Edinburgh.? Dr Lorene Amet who runs the clinic has a son with late regressive autism who has been diagnosed with Lymes. She writes extensively about Lymes and about her son and his treatments and progressSent from my iPad

Yes please!! sounds very interesting!! There are not a lot of LD docs in the UK which is why we are using BS! Imo Lyme starts off the immune failure that cause ME and MS and IBS etc etc etc,! Lyme also makes the body extremely toxic as body nor chelating too! My son was born with Lyme imo, and his poly tests at age 4 were off the scale. Lots of Lyme patients chelate as they eradicate the bacteria! You feel like sh*t as you treat it!! lots of very very weird sensations and pains etc.Love to hear your feedback! Thanks x To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Cc: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 16:43

Subject: Re: Re: Dentist to remove mercury fillings??

I have an appointment next week with Dr Pouria at the Burgwood clinic in Banstead Surrey.She was recommended to me by Becky Dutton who runs a website called mercury madness and is associated with the Melisa foundation ,that developed testing for mercury and other metal allergy testing.Apparently people who tend to develop condition like MS, ME,Lymes etc test positive for mercury allergy.Have you heard of this clinic or Dr Pouria? She is an environmental Dr with a specialism, in toxicology and was a renal consultant at Guys Hospital.The clinic sounds similar to Breakspeare ,but people have told me that's it's better and cheaper for treatments and that Dr Pouria has an excellent record at treating mercury toxicity.I will let you know how I get on if you'r interested.KathSent from my iPad

Lucinda and under Dr Yeou, who has not left so have consult booked with Dr Segna at BS To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Cc: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 15:21

Subject: Re: Re: Dentist to remove mercury fillings??

Hi which practioner are you using?Sent from my iPad

Thinking back all my health problems started to get worse on removal of mine! I still have 2! I have a recent diagnosis of Lyme and my practitioner said I should get the last 2 out and start on a de-toxing chelating protocol (she has suggested zeolite too!) whilst I treat the Lyme.Am going to call the one based in London though now! Dont want to feel worse than I already do!! and I certainly cant afford to get more confused than I already am!!!:-) From: "Mum231ASD@..."

To: Autism-Biomedical-Europe Sent: Saturday, 16 June

2012, 13:00 Subject: Re: Re: Dentist to remove mercury fillings??

Have you tried Zeolites Kath?

Mx

Yes def do loads of research before embarking on this.I had 7 done at once by a dentist who used the correct protacol.I felt lousy afterwards for a few weeks but then started chelation doing DMSA using Andy Cutler protacol.All hell let loose with health problems and although improving I am still rubbish compared to how I was prior to amalgam removal.

KathSent from my iPad

You need a rubber dam, suction and alternative air source, that's so you are not breathing in the fumes, at my dentist that goes right by the drill. More scarey is getting amalgams out and poising yourself more than if you left them in...............

Mx

My udnerstanding is that a dam is essential, as is some form of suction and oxygen. All sounds scary to me but would go through it if I thought it would really minimise the risk of toxicity

[Guest guest]

Cheers, sounds like this test could be well worth doing as a matter of routine.BWKathSent from my iPad

http://www.infectolab.de/index.php?id=47 & L=1We did Borrelia Elispot-LTT. I did my sons first and when his came back positive I decided to test myself as I knew he had never had a tick bite and I did have some symptoms including a stiff neck, recently diagnosed heartbeat irregularity and some rheumatism like issues in my fingers and joints. I think the test is pretty new. We did it under Dr Yeou at BS. I think I could have been born with it too as my parents both have Lyme like symptoms too. To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 17:20 Subject: Re: Re: Dentist to remove mercury fillings??

That's fantastic and extremely hopefully for the future.Both Lorene Amet and professor Montagnier are speaking at the TA conference on the Sunday.He has done lots of work on LD and other bacterial infections in autism. My dd tested negative on prof Montagniiers test for LD but positive for gram positive bacteria.I was almost disappointed as LD seems a more concrete thing to be able to treat.Where did you get the LD test done?Oh dear seem to have gone completely off topic.KathSent from my iPad

No I will check it out! I remember seeing her at a TA conf a few years ago!! I was put off testing at the time by the fact the testing was inaccurate and that I didn't think my son showed signs...Now there is a new antibodies test is able to detect Chronic Lymes so it is well worth testing to see! My son has improved in lots of ways with the abx and naturals treatment he is on and we are only 3 months in. He has no more "extreme" meltdowns and pain episodes, and we are seeing small gains in speech, big gains in comprehension and massive gains in sociability and playful interaction with us. I wish I had looked at it earlier! but there you go!! To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 17:05 Subject: Re:

Re: Dentist to remove mercury fillings??

There seem to be lots of kids with regressive autism who test positive for LD ,their parents also testing positive.Have you looked at the website of the autism treatment trust in Edinburgh.? Dr Lorene Amet who runs the clinic has a son with late regressive autism who has been diagnosed with Lymes. She writes extensively about Lymes and about her son and his treatments and progressSent from my iPad

Yes please!! sounds very interesting!! There are not a lot of LD docs in the UK which is why we are using BS! Imo Lyme starts off the immune failure that cause ME and MS and IBS etc etc etc,! Lyme also makes the body extremely toxic as body nor chelating too! My son was born with Lyme imo, and his poly tests at age 4 were off the scale. Lots of Lyme patients chelate as they eradicate the bacteria! You feel like sh*t as you treat it!! lots of very very weird sensations and pains etc.Love to hear your feedback! Thanks x To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Cc: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 16:43

Subject: Re: Re: Dentist to remove mercury fillings??

I have an appointment next week with Dr Pouria at the Burgwood clinic in Banstead Surrey.She was recommended to me by Becky Dutton who runs a website called mercury madness and is associated with the Melisa foundation ,that developed testing for mercury and other metal allergy testing.Apparently people who tend to develop condition like MS, ME,Lymes etc test positive for mercury allergy.Have you heard of this clinic or Dr Pouria? She is an environmental Dr with a specialism, in toxicology and was a renal consultant at Guys Hospital.The clinic sounds similar to Breakspeare ,but people have told me that's it's better and cheaper for treatments and that Dr Pouria has an excellent record at treating mercury toxicity.I will let you know how I get on if you'r interested.KathSent from my iPad

Lucinda and under Dr Yeou, who has not left so have consult booked with Dr Segna at BS To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Cc: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe > Sent: Saturday, 16 June 2012, 15:21

Subject: Re: Re: Dentist to remove mercury fillings??

Hi which practioner are you using?Sent from my iPad

Thinking back all my health problems started to get worse on removal of mine! I still have 2! I have a recent diagnosis of Lyme and my practitioner said I should get the last 2 out and start on a de-toxing chelating protocol (she has suggested zeolite too!) whilst I treat the Lyme.Am going to call the one based in London though now! Dont want to feel worse than I already do!! and I certainly cant afford to get more confused than I already am!!!:-) From: "Mum231ASD@..."

To: Autism-Biomedical-Europe Sent: Saturday, 16 June

2012, 13:00 Subject: Re: Re: Dentist to remove mercury fillings??

Have you tried Zeolites Kath?

Mx

Yes def do loads of research before embarking on this.I had 7 done at once by a dentist who used the correct protacol.I felt lousy afterwards for a few weeks but then started chelation doing DMSA using Andy Cutler protacol.All hell let loose with health problems and although improving I am still rubbish compared to how I was prior to amalgam removal.

KathSent from my iPad

You need a rubber dam, suction and alternative air source, that's so you are not breathing in the fumes, at my dentist that goes right by the drill. More scarey is getting amalgams out and poising yourself more than if you left them in...............

Mx

My udnerstanding is that a dam is essential, as is some form of suction and oxygen. All sounds scary to me but would go through it if I thought it would really minimise the risk of toxicity

[Guest guest]

.........The clinic sounds similar to Breakspeare ,but people have told me that's it's better and cheaper for treatments ........I will let you know

how I get on if you'r interested.KathKath - sorry to jump in - just an aside on the Burghwood clinic - I see Dr Tettenborn is now consulting at this clinic presumably helping ASD kids - he was a senior Surrey paed consultant until c3 years ago but although sympathetic to some dietary intervention wasn't anything like DG as far as I can gather (we never consulted with him but I heard reports of his views). Maybe going into private practice transforms medics' views (kerching!) Just a heads up to anyone thinking of taking their child - I wouldn't desert DG for him unless you need consultant status to back you when he could be useful. Hope Dr Pouria is helpful for you.

[Guest guest]

Thanks for that information .I don,t know anyone who takes their autistic child to Dr Tettenborn.Have not heard of anyone on this list who does either.Would be interesting to hear from anyone who has though. I didn't have any plans to desert Dr G at least not yet!Thanks ,yes hoping Dr Puria can sort me out once and for all.BWKathSent from my iPad

.........The clinic sounds similar to Breakspeare ,but people have told me that's it's better and cheaper for treatments ........I will let you know

how I get on if you'r interested.KathKath - sorry to jump in - just an aside on the Burghwood clinic - I see Dr Tettenborn is now consulting at this clinic presumably helping ASD kids - he was a senior Surrey paed consultant until c3 years ago but although sympathetic to some dietary intervention wasn't anything like DG as far as I can gather (we never consulted with him but I heard reports of his views). Maybe going into private practice transforms medics' views (kerching!) Just a heads up to anyone thinking of taking their child - I wouldn't desert DG for him unless you need consultant status to back you when he could be useful. Hope Dr Pouria is helpful for you.

[Guest guest]

Hello Kath,

Years ago, when my son was five , we started ourbiomedical journey with Dr

Tettenborn.He is the first one who focused on antifungal therapy in UK I

think.My son was on nystatin for a long time.We had many tests in Biolab,general

panels like vitamins, fatty acids so on..He was totally against chelation,saying

chelation is very dangerous.WE were with him for a few years then moved to

Breakspear.

He is nice, responsive but not quite sympathetic for certain therapies may be

now he is ,I don't know..

All the best

nevin

> > .........The clinic sounds similar to Breakspeare ,but people have told me

that's it's better and cheaper for treatments ........

> >

> > I will let you know how I get on if you'r interested.

> > Kath

> >

> > Kath - sorry to jump in - just an aside on the Burghwood clinic - I see Dr

Tettenborn is now consulting at this clinic presumably helping ASD kids - he was

a senior Surrey paed consultant until c3 years ago but although sympathetic to

some dietary intervention wasn't anything like DG as far as I can gather (we

never consulted with him but I heard reports of his views). Maybe going into

private practice transforms medics' views (kerching!) Just a heads up to anyone

thinking of taking their child - I wouldn't desert DG for him unless you need

consultant status to back you when he could be useful. Hope Dr Pouria is helpful

for you.

> >

>

[Guest guest]

Hi NevinThanks for that. As far as I can gather Dr Pouria and others at the Burghwood clinic are very against chelation with DMSA and ALA and the Andy Cutler protacol,or indeed any chelation that isn't done under medical supervision..They seem to offer chelation but using the phospholipid exchange system, either orally or intravenously.This is not a system I know anything much about yet other than it can be done with amalgams in situ.It is used for people who have metalwork in their bodies eg joint replacements or metal plates.It would be interesting to know how many autistic patients Dr Tettenborn is actively treating and whether he has progressed his treatments.BWKathSent from my iPad

Hello Kath,

Years ago, when my son was five , we started ourbiomedical journey with Dr Tettenborn.He is the first one who focused on antifungal therapy in UK I think.My son was on nystatin for a long time.We had many tests in Biolab,general panels like vitamins, fatty acids so on..He was totally against chelation,saying chelation is very dangerous.WE were with him for a few years then moved to Breakspear.

He is nice, responsive but not quite sympathetic for certain therapies may be now he is ,I don't know..

All the best

nevin

> > .........The clinic sounds similar to Breakspeare ,but people have told me that's it's better and cheaper for treatments ........

> >

> > I will let you know how I get on if you'r interested.

> > Kath

> >

> > Kath - sorry to jump in - just an aside on the Burghwood clinic - I see Dr Tettenborn is now consulting at this clinic presumably helping ASD kids - he was a senior Surrey paed consultant until c3 years ago but although sympathetic to some dietary intervention wasn't anything like DG as far as I can gather (we never consulted with him but I heard reports of his views). Maybe going into private practice transforms medics' views (kerching!) Just a heads up to anyone thinking of taking their child - I wouldn't desert DG for him unless you need consultant status to back you when he could be useful. Hope Dr Pouria is helpful for you.

> >

>

[Guest guest]

Good to hear you are improving, I didn't chelate for 2 years after I had mine out which was a mistake I think but I Handle it now when I do a round, much better on oral DMSA/ALA than I am with TD DMPS but just using Zeolites at the mo for me and Sam due to the seizures. Sam has viral rash on zeolites, we saw this before also

Mandi x

Yes I have thanks Mandy I am using the double strength variety twice a day.I am improving thankfully . Still haven't completely worked out what went wrong.Got severe neutropenia on DMSA.On ALA got symptoms of severe mercury toxicity at the end of the round.From my investigations I think I am actually allergic to mercury as well as mercury toxic!

KathSent from my iPad

Have you tried Zeolites Kath?

Mx

Yes def do loads of research before embarking on this.I had 7 done at once by a dentist who used the correct protacol.I felt lousy afterwards for a few weeks but then started chelation doing DMSA using Andy Cutler protacol.All hell let loose with health problems and although improving I am still rubbish compared to how I was prior to amalgam removal.

KathSent from my iPad

You need a rubber dam, suction and alternative air source, that's so you are not breathing in the fumes, at my dentist that goes right by the drill. More scarey is getting amalgams out and poising yourself more than if you left them in...............

Mx

My udnerstanding is that a dam is essential, as is some form of suction and oxygen. All sounds scary to me but would go through it if I thought it would really minimise the risk of toxicity

[Guest guest]

Yes my health also but was very stressful time with Sam as well, I took nearly 4 years to get mine out, I had so many and couldn't afford to do it any other way

Mandi x

Thinking back all my health problems started to get worse on removal of mine! I still have 2! I have a recent diagnosis of Lyme and my practitioner said I should get the last 2 out and start on a de-toxing chelating protocol (she has suggested zeolite too!) whilst I treat the Lyme.

Am going to call the one based in London though now! Dont want to feel worse than I already do!! and I certainly cant afford to get more confused than I already am!!!

:-)

To: Autism-Biomedical-Europe Sent: Saturday, 16 June 2012, 13:00Subject: Re: Re: Dentist to remove mercury fillings??

Have you tried Zeolites Kath?

Mx

Yes def do loads of research before embarking on this.I had 7 done at once by a dentist who used the correct protacol.I felt lousy afterwards for a few weeks but then started chelation doing DMSA using Andy Cutler protacol.All hell let loose with health problems and although improving I am still rubbish compared to how I was prior to amalgam removal.

KathSent from my iPad

You need a rubber dam, suction and alternative air source, that's so you are not breathing in the fumes, at my dentist that goes right by the drill. More scarey is getting amalgams out and poising yourself more than if you left them in...............

Mx

My udnerstanding is that a dam is essential, as is some form of suction and oxygen. All sounds scary to me but would go through it if I thought it would really minimise the risk of toxicity

[Guest guest]

Thanks MandiI have stared Sophie on Zeolites too as can't use DMSA or ALA on her as she has amalgams that we can't get rid of. No sign of any rash.Spoke to Dr Newton who runs a Melisa testing lab at Beverly humberside. He said he was getting good reports about the effectiveness of zeolites. Do you know anything about the phospholipid exchange system for chelationHope Sams siezures are better.KathSent from my iPad

Good to hear you are improving, I didn't chelate for 2 years after I had mine out which was a mistake I think but I Handle it now when I do a round, much better on oral DMSA/ALA than I am with TD DMPS but just using Zeolites at the mo for me and Sam due to the seizures. Sam has viral rash on zeolites, we saw this before also

Mandi x

Yes I have thanks Mandy I am using the double strength variety twice a day.I am improving thankfully . Still haven't completely worked out what went wrong.Got severe neutropenia on DMSA.On ALA got symptoms of severe mercury toxicity at the end of the round.From my investigations I think I am actually allergic to mercury as well as mercury toxic!

KathSent from my iPad

Have you tried Zeolites Kath?

Mx

Yes def do loads of research before embarking on this.I had 7 done at once by a dentist who used the correct protacol.I felt lousy afterwards for a few weeks but then started chelation doing DMSA using Andy Cutler protacol.All hell let loose with health problems and although improving I am still rubbish compared to how I was prior to amalgam removal.

KathSent from my iPad

You need a rubber dam, suction and alternative air source, that's so you are not breathing in the fumes, at my dentist that goes right by the drill. More scarey is getting amalgams out and poising yourself more than if you left them in...............

Mx

My udnerstanding is that a dam is essential, as is some form of suction and oxygen. All sounds scary to me but would go through it if I thought it would really minimise the risk of toxicity

[Guest guest]

Maybe better to get them done very gradually,give your body more of a chance to detoxify itself naturally?My hubby and I went on a dental holiday to Edinburgh in December and each had 7 removed in 2 sessions. It was our Christmas presents for about 5 years.My body could't cope with it or chelation. My husband has been chelating AC protacol ever since and feels much better than before. I feel like I have ruined my health by getting them done too quickly.KathSent from my iPad

Yes my health also but was very stressful time with Sam as well, I took nearly 4 years to get mine out, I had so many and couldn't afford to do it any other way

Mandi x

Thinking back all my health problems started to get worse on removal of mine! I still have 2! I have a recent diagnosis of Lyme and my practitioner said I should get the last 2 out and start on a de-toxing chelating protocol (she has suggested zeolite too!) whilst I treat the Lyme.

Am going to call the one based in London though now! Dont want to feel worse than I already do!! and I certainly cant afford to get more confused than I already am!!!

:-)

To: Autism-Biomedical-Europe Sent: Saturday, 16 June 2012, 13:00Subject: Re: Re: Dentist to remove mercury fillings??

Have you tried Zeolites Kath?

Mx

Yes def do loads of research before embarking on this.I had 7 done at once by a dentist who used the correct protacol.I felt lousy afterwards for a few weeks but then started chelation doing DMSA using Andy Cutler protacol.All hell let loose with health problems and although improving I am still rubbish compared to how I was prior to amalgam removal.

KathSent from my iPad

You need a rubber dam, suction and alternative air source, that's so you are not breathing in the fumes, at my dentist that goes right by the drill. More scarey is getting amalgams out and poising yourself more than if you left them in...............

Mx

My udnerstanding is that a dam is essential, as is some form of suction and oxygen. All sounds scary to me but would go through it if I thought it would really minimise the risk of toxicity

[Guest guest]

Doesn;t work in real life IMHO but would probably make you feel much better regardless

Mx

Do you know anything about the phospholipid exchange system for chelation

[Guest guest]

Oh dear I was pinning my hopes on it.I have been told that the Burghwood clinic can test for mercury on the chromosomes , then demonstrate that it has gone from the chromosomes after treatment with phospholipid exchange.God knows what ACs opinion would be about that.Lorene Amet at the Autism treatment trust reckons they have been getting really good results with it.KathSent from my iPad

Doesn;t work in real life IMHO but would probably make you feel much better regardless

Mx

Do you know anything about the phospholipid exchange system for chelation

[Guest guest]

Dr Myhill writes a bit on Phospholipid exchange http://www.drmyhill.co.uk/wiki/Phospholipid_exchange you've probably already seen it but I thought I would flag it up just in case.

 

Sacha

[Guest guest]

Cheers SachaKathSent from my iPad

Dr Myhill writes a bit on Phospholipid exchange http://www.drmyhill.co.uk/wiki/Phospholipid_exchange you've probably already seen it but I thought I would flag it up just in case.

Sacha